Evaluation of the living with hope program for rural women caregivers of persons with advanced cancer

BMC Palliative Care

Volumn 12, Issue 1, 2013, Pages

  Duggleby, Wendy ^a   Williams, Allison ^b   Holstlander, Lorraine ^c   Cooper, Dan ^d   Ghosh, Sunita ^a   Hallstrom, Lars K ^e   McLean, Roanne Thomas ^f   Hampton, Mary ^g  

^a UNIVERSITY OF ALBERTA   (Canada)

^b MCMASTER UNIVERSITY   (Canada)

^c UNIVERSITY OF SASKATCHEWAN   (Canada)

^d Clinical Practice Leader (Spiritual Care)   (Canada)

^e UNIVERSITY OF ALBERTA   (Canada)

^f UNIVERSITY OF OTTAWA   (Canada)

^g UNIVERSITY OF REGINA   (Canada)

Author keywords

Caregivers; Hope; Intervention; Palliative care

Indexed keywords

ADVANCED CANCER; ARTICLE; CAREGIVER; EVALUATION; FEMALE; GRIEF; HOPE; HUMAN; OUTCOME ASSESSMENT; QUALITY OF LIFE; RURAL AREA; SAMPLE SIZE; SHORT FORM 12; TIME SERIES ANALYSIS;

EID: 84885079480     PISSN: None     EISSN: 1472684X     Source Type: Journal    
DOI: 10.1186/1472-684X-12-36     Document Type: Article

References (45)

1. How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectiveness. Harding R, List S, Epiphaniou E, Jones H, Palliat Med 2012 26 7 22 10.1177/0269216311409613 21737481
2. Part 1: Home-based family caregiving at the end of life: a comprehensive review of published quantiative research (1998-2008). Stajduhar K, Funk L, Toye C, Grande G, Aoun S, Todd C, Palliat Med 2010 24 573 593 10.1177/ 0269216310371412 20562171
3. 'I am part of the community but.' The changing context of rural living for persons with advanced cancer and their families. Duggleby W, Penz K, Leipert BD, Wilson D, Goodridge D, Williams A, Rural Remote Health 2011 11 1733 Available: http://www.rrh.org.au
4. Canada's caregivers. Cranswick K, Can Soc Trends 1997 47 2 6
5. The concept of hope in family caregivers of cancer patients at home. Borneman T, Stahl C, Ferrell B, Smith D, J Hosp Palliat Nurs 2002 4 21 33 10.1097/00129191-200201000-00012
6. The experience of hope for informal caregivers of palliative patients. Holtslander L, Duggleby W, Williams A, Wright K, J Palliat Care 2005 21 285 291 16483098
7. The level of and relation between hope, hopelessness and fatigue in patients and family members in palliative care. Benzein EG, Berg AC, Palliat Med 2005 19 234 240 10.1191/0269216305pm1003oa 15920938
8. Fostering coping and nurturing hope when discussing the future with terminally ill cancer patients and their caregivers. Clayton J, Butow P, Arnold R, Tattersall M, Cancer Nurs 2005 105 1965 1975
9. A mixed methods study of hope, transitions, and quality of life of family caregivers of persons with Alzheimer's disease. Duggleby W, Swindle J, BMC Geriatr 2011 11 88 http://www.biomedcentral.com/1471-2318/11/88 10.1186/1471-2318-11-88
10. Health-promoting self-care in family caregivers. Acton GJ, West J Nurs Res 2002 24 73 86 10.1177/01939450222045716 11829276
11. Psychological distress, fatigue, burden of care and quality of life in primary caregivers of patients with breast cancer undergoing autologous bone marrrow transplantation. Gaston-Johansson F, Lachica E, Fall-Dickson JM, Kennedy MJ, Oncol Nurs Forum 2004 31 1161 1169 10.1188/04.ONF.1161-1169 15547639
12. Impact of cancer on primary caregivers of patients receiving radiation therapy. Iconomou G, Viha A, Kalofonos HP, Dimitris Kardamakis D, Acta Oncol 2001 40 766 771 10.1080/02841860152619205 11765073
13. Effects of a family intervention on the quality of life of women with recurrent breast cancer and their family caregivers. Northouse L, Kershaw T, Mood D, Schafenacker A, Psychooncology 2005 14 478 491 10.1002/pon.871 15599947
14. Family caregivers' quality of life: Influence of health protective stance and emotional strain. Matthews B, Baker F, Spillers RL, Psychol Health 2004 19 625 641 10.1080/0887044042000205594
15. Quality of life of women with recurrent breast cancer and their family members. Northouse L, Mood D, Kershaw T, Schafenacker A, Mellon S, Walker J, Galvin E, Decker V, J Clin Oncol 2002 20 4050 4064 10.1200/JCO.2002.02.054 12351603
16. Living with Hope: Initial evaluation of a psychosocial hope intervention for older palliative home care patients. Duggleby W, Degner L, Williams A, Wright K, Cooper D, Popkin D, Holtslander L, J Pain Symptom Manage 2007 33 247 257 10.1016/j.jpainsymman.2006.09.013 17349494
17. Enhancing hope in people with a first recurrence of cancer. Herth K, J Adv Nurs 2000 32 1431 1441 10.1046/j.1365-2648.2000.01619.x 11136411
18. Developing a living with hope program for caregivers of family members with advanced cancer. Duggleby W, Wright K, Williams A, Degner L, Cammer A, Holtslander L, J Palliat Care 2007 23 24 31 17444459
19. Bandura A, Self-efficacy: The exercise of control New York: Freeman 1977
20. General self-efficacy in various domains of human functioning: Evidence from five countries. Luszczynska A, Gutierrez-Dona B, Schwarzer R, Int J Psychol 2005 40 80 89 10.1080/00207590444000041
21. Social cognitive theory and cancer patients' quality of life: A meta-analysis of psychosocial intervention components. Graves KD, Health Psychol 2003 22 210 219 12683741
22. Creswell JW, Plano Cark VL. Designing and conducting mixed methods research Thousand Oaks CA: Sage Publications, Inc. 2007
23. Participant diaries as a source of data in research with older adults. Jacelon CS, Imperio K, Qual Health Res 2005 15 991 997 10.1177/1049732305278603 16093375
24. Abbreviated instrument to measure hope: development and psychometric evaluation. Herth K, J Adv Nurs 1992 17 1251 1259 10.1111/j.1365-2648.1992. tb01843.x 1430629
25. The quality of life of male spouses of women with breast cancer: Hope, self-efficacy and perceptions of guilt. Duggleby W, Doell H, Cooper D, Thomas R, Ghosh S, Cancer Nurs in press
26. Ware J, Kosiniski M, Keller S, SF-12. How to score the SF-12 Physical and Mental Health Summary Scale Lincoln RI: Quality Metric Incorporated 1998
27. A shortened version of an instrument measuring bereavement. Lev E, Hazard Munro B, McCorkle R, Int J Nurs Stud 1993 30 213 226 10.1016/0020-7489(93) 90032-P 8335431
28. The Canadian Postal Code http://www.canadapost.ca
29. Munro BH, Statistical methods for health care research Philadelphia: Lippincott Williams & Wilkins 2005
30. Living with hope: Developing a psychosocial supportive program for rural women caregivers of persons with advanced cancer. Duggleby W, Williams A, BMC Palliat Care 2010 9 3 10.1186/1472-684X-9-3 20346156
31. Ware JE, Kosinski M, Turner-Bowker DM, Gandek B, User's Manual for the SF-12v2 Health Survey with a supplement documenting SF-12 Lincoln, RI: QualityMetric Incorporated 2008 24111479
32. An introduction to generalized estimating equations and an application to assess selectivity effects in a longitudinal study on very old individuals. Ghisletta P, Spini D, J Educ Behav Stat 2004 29 421 437 10.3102/ 10769986029004421
33. Using general estimating equations for longitudinal data analysis. Ballinger G, Organ Res Methods 2004 7 127 doi:10.1177/1094428104263672 http://orm.sagepub.com/content/7/2/127.
34. Using generalized estimating equations to analyze longitudinal data in nursing research. Liu S, Dixon J, Qui G, Tian Y, McCorkle R, West J Nurs Res 2009 31 948 10.1177/0193945909336931 19520966
35. Narrative analysis in ethnography. Cortazzi M, Handbook of ethnography Thousand Oaks CA: Sage Publications, Atkinson P, Coffey A, Delamont S, Lofland J, Lofland L, 2001 384 395
36. Development and implementation of a Hope Intervention Program. Herth K, Onc Nurs Forum 2001 28 6 1009 1017
37. Nursing intervention to increase hope and quality of life in newly diagnosed cancer patients. Rustoen T, Wiklund I, Hanestad BR, Moum T, Cancer Nurs 1998 21 235 245 10.1097/00002820-199808000-00003 9691504
38. Care for the cancer caregiver: A systematic review. Applebaum AJ, Breitbart W, Palliat Support Care 2012 1 1 22
39. Consequences of using Sf-12 and RAND-12 when examining levels of well-being and psychological distress. Lee A, Browne MO, Villaneuva E, Aust NZ J Psychiatry 2008 42 315 323 10.1080/00048670701881579
40. Measuring physical and mental health using the SF-12: Implications for community surveys of mental health. Windsor T, Rodgers B, Butterworth P, Anstey K, Jorm A, A NZ J Psychiatry 2006 40 797 803 10.1080/j.1440-1614.2006.01886.x
41. Canadian Institute for Health Information: How healthy are rural Canadians? An Assessment of their Health Status and Health Determinants Ottawa: A component of the initiative "Canada's rural communities: Understanding rural health and its determinants" 2006
42. What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness. Harding R, Higginson I, Palliat Med 2003 17 63 74 10.1191/0269216303pm667oa 12597468
43. Why are trials in palliative care so difficult? Grande G, Todd C, Palliat Med 2000 14 69 70 10.1191/026921600677940614 10717728
44. Supporting family caregivers at the end of life: "They don't know what they don't know" Rabow M, Hauser J, Adams J, JAMA 2004 291 483 491 10.1001/jama.291.4.483 14747506
45. Canadian Hospice Palliative Care Association, Voice in Health Policy Ottawa: The role of informal caregivers in hospice, palliative and end- of-life care in Canada: A discussion of the legal, ethical and moral challenges 2004