Determinants of caregiving burden and quality of life in caregivers of stroke patients

Stroke

Volumn 36, Issue 10, 2005, Pages 2181-2186

  McCullagh, Emily ^a   Brigstocke, Gavin ^a   Donaldson, Nora ^a   Kalra, Lalit ^a  

^a KING'S COLLEGE LONDON   (United Kingdom)

Author keywords

Caregivers; Quality of life; Rehabilitation; Stroke; Stroke management; Stroke outcome

Indexed keywords

ADULT; AGE; AGED; ANXIETY DISORDER; ARTICLE; CAREGIVER; CEREBROVASCULAR ACCIDENT; DISABILITY; EMOTION; FAMILY LIFE; FEMALE; GENDER; HUMAN; MAJOR CLINICAL STUDY; MALE; MOOD; OUTCOMES RESEARCH; PRIORITY JOURNAL; PROSPECTIVE STUDY; QUALITY OF LIFE; RISK FACTOR; SOCIAL SUPPORT; SOCIAL WORK;

AGED; BEHAVIOR; CAREGIVERS; CEREBROVASCULAR ACCIDENT; COST OF ILLNESS; FAMILY; FEMALE; HEALTH STATUS; HOME NURSING; HUMANS; MALE; MIDDLE AGED; MULTIVARIATE ANALYSIS; QUALITY OF LIFE; REGRESSION ANALYSIS; REHABILITATION; RISK; SOCIAL SUPPORT; TIME FACTORS; TREATMENT OUTCOME;

EID: 26444533454     PISSN: 00392499     EISSN: None     Source Type: Journal    
DOI: 10.1161/01.STR.0000181755.23914.53     Document Type: Article

References (29)

1. Organised inpatient (stroke unit) care for stroke. Stroke Unit Trialists' Collaboration. Cochrane Database Syst Rev. 2002;1:CD000197.
2. Anderson CS, Linto J, Stewart-Wynne EG. A population based assessment of the impact and burden of care-giving for long-term stroke survivors. Stroke. 1995;26:843-849.
3. Han B, Haley W. Family caregiving for patients with stroke, review and analysis. Stroke. 1999;30:1478-1485.
4. Blake H, Lincoln NB, Clarke DD. Caregiver strain in spouses of stroke patients. Clin Rehabil. 2003;17:312-317.
5. Low JT, Payne S, Roderick P. The impact of stroke on informal caregivers: a literature review. Soc Sci Med. 1999;49:711-725.
6. Scholte op Reimer WJM, de Haan RJ, Pijnenborg JMA, Limburg M, van den Bos GAM. Assessment of burden in partners of stroke patients with the sense of competence questionnaire. Stroke. 1998;29:373-379.
7. Smith LN, Nome J, Kerr SM, Lawrence IM, Langhorne P, Lees KR. Impact and influences on caregiver outcomes at one year post-stroke. Cerebrovasc Dis. 2004;18:145-153.
8. Jonsson AC, Lindgren I, Hallstrom B, Norrving B, Lindgren A. Determinants of quality of life in stroke survivors and their informal caregivers. Stroke. 2005;36:803-808.
9. van Exel NJ, Koopmanschap MA, van den Berg B, Brouwer WB, van den Bos GA. Burden of informal caregiving for stroke patients. Identification of caregivers at risk of adverse health effects. Cerebrovasc Dis. 2005;19:11-17.
10. Berg A, Palomaki H, Lonnqvist J, Lehtihalmes M, Kaste M. Depression among caregivers of stroke survivors. Stroke. 2005;36:639-643.
11. Hodgson SP, Wood VA, Langton-Hewer R. Identification of stroke carers "at risk": a preliminary study of the predictors of carers' psychological well-being at one year post-stroke. Clin Rehabil. 1996;10:337-346.
12. Bugge C, Alexander H, Hagen S. Stroke patients' informal caregivers. Patient, caregiver, and service factors that affect caregiver strain. Stroke. 1999;30:1517-1523.
13. Forsberg-Warleby G, Moller A, Blomstrand C. Psychological well-being of spouses of stroke patients during the first year after stroke. Clin Rehabil 2004;18:430-437.
14. Kalra L, Evans A, Perez I, Melbourn A, Patel A, Knapp M, Donaldson N. Training carers of stroke patients: randomised controlled trial. BMJ. 2004;328:1099-1101.
15. Wade DT. Measurement in Neurological Rehabilitation. Oxford, UK: Oxford University Press; 1992.
16. Wade DT, Langton-Hewer R. Functional abilities after stroke: measurement, natural history and prognosis. J Neurol Neurosurg Psychiatr. 1987;50:177-182.
17. The Euroqol Group. EuroQo1: a new facility for the measurement of health related quality of life. Health Policy. 1990;16:199-208.
18. Wenger GC, Tucker I. Using network variation in practice: identification of support network type. Health Soc Care Community. 2002;10:28-35.
19. Beecham J, Knapp M. Costing psychiatric interventions. In: Thornicroft G, Brewin C, Wing J, eds. Measuring Mental Health Needs. London, UK: Gaskell; 1992.
20. Elmstahl S, Malmberg B, Annerstedt L. Caregiver's burden of patients 3 years after stroke assessed by a novel caregiver burden scale. Arch Phys Med Rehabil. 1996;77:177-182.
21. Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatrica Scandinavica. 1983;67:361-370.
22. O'Rourke S, MacHale S, Signorini D, Dennis M. Detecting psychiatric morbidity after stroke: comparison of the GHQ and the HAD Scale. Stroke. 1998;29:980-985.
23. van Exel NJ, Brouwer WB, van den Berg B, Koopmanschap MA, van den Bos GA. What really matters: an inquiry into the relative importance of dimensions of informal caregiver burden. Clin Rehabil. 2004;18:683-693.
24. Brouwer WB, van Exel NJ, Koopmanschap MA, Rutten FF. The valuation of informal care in economic appraisal. A consideration of individual choice and societal costs of time. Int J Technol Assess Health Care. 1999;15:147-160.
25. van den Heuvel ET, de Witte LP, Schure LM, Sanderman R, Meyboom-de long B. Risk factors for burn-out in caregivers of stroke patients, and possibilities for intervention. Clin Rehabil. 2001;15:669-677.
26. Forster A, Young J. Specialist nurse support for patients with stroke in the community: a randomised controlled trial. BMJ. 1996;312:1642-1646.
27. Dennis M, O'Rourke S, Slattery J, Staniforth T, Warlow C. Evaluation of a stroke family care worker: results of a randomised controlled trial. BMJ. 1997;314:1071-1077.
28. Mant J, Carter C, Wade DT, Winner S. Family support for stroke: a randomised controlled trial. Lancet. 2000;356:808-813.
29. Friedland JF, McColl M. Social support interventions after stroke: results of a randomised trial. Arch Phys Med Rehabil. 1992;73:573-581.