The accessibility and acceptability of selfmanagement support interventions for men with long term conditions: A systematic review and meta-synthesis of qualitative studies

BMC Public Health

Volumn 14, Issue 1, 2014, Pages

  Galdas, Paul ^a   Darwin, Zoe ^b   Kidd, Lisa ^c   Blickem, Christian ^d   McPherson, Kerri ^c   Hunt, Kate ^e   Bower, Peter ^d   Gilbody, Simon ^a   Richardson, Gerry ^a  

^a UNIVERSITY OF YORK   (United Kingdom)

^b UNIVERSITY OF LEEDS   (United Kingdom)

^c GLASGOW CALEDONIAN UNIVERSITY   (United Kingdom)

^d UNIVERSITY OF MANCHESTER   (United Kingdom)

^e UNIVERSITY OF GLASGOW   (United Kingdom)

Author keywords

Long term conditions; Masculinity; Men's health; Self management

Indexed keywords

CHRONIC DISEASE; EMOTION; GENDER IDENTITY; HUMAN; MALE; MEN'S HEALTH; PEER GROUP; PERCEPTION; PSYCHOLOGY; QUALITATIVE RESEARCH; SELF CARE; SOCIAL SUPPORT; TRUST;

CHRONIC DISEASE; EMOTIONS; GENDER IDENTITY; HUMANS; MALE; MEN'S HEALTH; PEER GROUP; PERCEPTION; QUALITATIVE RESEARCH; SELF CARE; SOCIAL SUPPORT; TRUST;

EID: 84965188287     PISSN: None     EISSN: 14712458     Source Type: Journal    
DOI: 10.1186/1471-2458-14-1230     Document Type: Review

References (99)

1. Department of Health: Improving Chronic Disease Management. London: Department of Health; 2004.
2. Department of Health: Long Term Conditions Compendium of Information, Third Edition edn. London: Department of Health; 2012.2
3. Department of Health: Self-Care: A Real Choice. London: Department of Health; 2005.
4. Kennedy A, Bower P, Reeves D, Blakeman T, Bowen R, Chew-Graham C, Eden M, Fullwood C, Gaffney H, Gardner C: Implementation of self management support for long term conditions in routine primary care settings: cluster randomised controlled trial. BMJ 2013, 346:f2882.
5. Department of Health: Supporting People with Long Term Conditions: An NHS and Social Care Model to Support Local Innovation and Integration. London: Department of Health; 2005.
6. Adams K, Greiner A, Corrigan J: Report of a summit, The 1st annual crossing the quality chasm summit: A focus on communities; 2004:6-7.
7. DAFNE Study Group: Training in flexible, intensive insulin management to enable dietary freedom in people with type 1 diabetes: dose adjustment for normal eating (DAFNE) randomised controlled trial. BMJ 2002, 325(7367):746.
8. Davies MJ, Heller S, Skinner T, Campbell M, Carey M, Cradock S, Dallosso H, Daly H, Doherty Y, Eaton S: Effectiveness of the diabetes education and self management for ongoing and newly diagnosed (DESMOND) programme for people with newly diagnosed type 2 diabetes: cluster randomised controlled trial. BMJ 2008, 336(7642):491-495.
9. Barlow J, Singh D, Bayer S, Curry R: A systematic review of the benefits of home telecare for frail elderly people and those with long-Term conditions. J Telemed Telecare 2007, 13(4):172-179.
10. Kennedy A, Reeves D, Bower P, Lee V, Middleton E, Richardson G, Gardner C, Gately C, Rogers A: The effectiveness and cost effectiveness of a national lay-led self care support programme for patients with long-Term conditions: A pragmatic randomised controlled trial. J Epidemiol Community Health 2007, 61(3):254-261.
11. Lorig KR, Sobel DS, Stewart AL, Brown BW Jr, Bandura A, Ritter P, Gonzalez VM, Laurent DD, Holman HR: Evidence suggesting that a chronic disease self-management program can improve health status while reducing hospitalization: A randomized trial. Med Care 1999, 37(1):5-14.
12. Deakin TA, McShane CE, Cade JE, Williams R: Group based training for self-management strategies in people with type 2 diabetes mellitus. Cochrane Database Syst Rev 2005, 18(2):CD003417.
13. Duncan E, Best C, Hagen S: Shared decision making interventions for people with mental health conditions. Cochrane Database Syst Rev 2010, 20(1):CD007297.
14. Foster G, Taylor S, Eldridge S, Ramsay J, Griffiths C: Self-management education programmes by lay leaders for people with chronic conditions. Cochrane Database Syst Rev 2007, 17(4):CD005108.
15. Haynes RB, Ackloo E, Sahota N, McDonald Heather P, Yao X: Interventions for enhancing medication adherence. Cochrane Database Syst Rev 2008, 16(2):CD000011.
16. Phillips J: Self Care Reduces Costs and Improves Health-The Evidence. London: Expert Patients Programme; 2010.
17. Panagioti M, Richardson G, Small N, Murray E, Rogers A, Kennedy A, Newman S, Bower P: Self-management support interventions to reduce health care utilisation without compromising outcomes: A systematic review and meta-Analysis. BMC Health Serv Res 2014, 14:356.
18. Furler J, Harris M, Rogers A: Equity and long-Term condition self-management. Chronic Illn 2011, 7(1):3-5.
19. Chodosh J, Morton SC, Mojica W, Maglione M, Suttorp MJ, Hilton L, Rhodes S, Shekelle P: Meta-Analysis: chronic disease self-management programs for older adults. Ann Intern Med 2005, 143(6):427-438.
20. Taylor D, Bury M: Chronic illness, expert patients and care transition. Sociol Health Illn 2007, 29(1):27-45.
21. Lorig KR, Ritter P, Stewart AL, Sobel DS, Brown W, Bandura A, Gonzalez VM, Laurent DD, Holman HR: Chronic disease self-management program: 2-year health status and health care utilization outcomes. Med Care 2001, 39(11):1217.
22. Bury M, Newbould J, Taylor D: A rapid Review of the Current state of Knowledge Regarding Lay Led self Management of Chronic illness: Evidence Review. London: National Institute for Health and Clinical Excellence; 2005.
23. Gibbs L: Identifying work as a barrier to men's access to chronic illness (arthritis) self-management programs. Int J Men's Health 2007, 6(2):143-155.
24. Banks I: No man's land: men, illness and the NHS. BMJ 2001, 323:1058-1060.
25. European Commission: The state of men's health in Europe report. 2011. http://ec.europa.eu/health/population-groups/docs/men-health-report-en.pdf.
26. Galdas PM, Cheater F, Marshall P: Men and health help-seeking behaviour: literature review. J Adv Nurs 2005, 49(6):616-623.
27. Courtenay WH: Key determinants of the health and well-being of men and boys. Int J Men's Health 2003, 2(1):1-30.
28. O'Brien R, Hunt K, Hart G: 'It's caveman stuff, but that is to a certain extent how guys still operate': men's accounts of masculinity and help-seeking. Soc Sci Med 2005, 61(3):503-516.
29. McCartney G, Mahmood L, Leyland AH, Batty GD, Hunt K: Contribution of smoking-related and alcohol-related deaths to the gender gap in mortality: evidence from 30 European countries. Tob Control 2011, 20(2):166-168.
30. Galdas PM: Man up: engaging men in primary care. Practice Nursing, 23(1):10-13.
31. Hunt K, McCann C, Gray CM, Mutrie N, Wyke S: "You've got to walk before you run": Positive evaluations of a walking program as part of a gendersensitized, weight-management program delivered to men through professional football clubs. Health Psychol 2013, 32(1):57.
32. White A, McKee M, Richardson N, Visser R, Madsen SA, Sousa BC, Hogston R, Zatoński W, Makara P: Europe's men need their own health strategy. BMJ 2011, 343:d7397.
33. Wilkins D, Payne S, Granville G, Branney P: The Gender and Access to Health Services Study: Final Report. London: Department of Health; 2008.
34. Noblit GW, Hare RD: Meta-ethnography: Synthesizing qualitative studies, Volume 11. London: Sage Publications, Inc; 1988.
35. Campbell R, Pound P, Morgan M, Daker-White G, Britten N, Pill R, Yardley L, Pope C, Donovan J: Evaluating meta-ethnography: Systematic analysis and synthesis of qualitative research. Health Technol Assess 2011, 15(43):1-164.
36. Flemming K, Briggs M: Electronic searching to locate qualitative research: evaluation of three strategies. J Adv Nurs 2007, 57(1):95-100.
37. Shaw RL, Booth A, Sutton AJ, Miller T, Smith JA, Young B, Jones DR, Dixon-Woods M: Finding qualitative research: An evaluation of search strategies. BMC Med Res Methodol 2004, 4(5):5.
38. Critical Appraisal Skills Program: Critical Appraisal Skills Programme (CASP) Qualitative Research Checklist 31.05.13. 10 questions to help you make sense of qualitative research. CASP; 2013. http://media.wix.com/ugd/dded87-951541699e9edc71ce66c9bac4734c69.pdf.
39. Atkins S, Lewin S, Smith H, Engel M, Fretheim A, Volmink J: Conducting a meta-ethnography of qualitative literature: Lessons learnt. BMC Med Res Methodol 2008, 8(21):10.
40. Schutz A: Collected papers, Volume 1. The Hague: Martinus Nijhoff; 1971.
41. Adamsen L, Rasmussen JM, Pedersen LS: Brothers in arms': how men with cancer experience a sense of comradeship through group intervention which combines physical activity with information relay. J Clin Nurs 2001, 10(4):528-537.
42. Arrington MI, Grant CH, Vanderford ML: Man to man and side by side, they cope with prostate cancer: self-help and social support. J Psychosoc Oncol 2005, 23(4):81-102.
43. Baird KK, Pierce LL: Adherence to cardiac therapy for men with coronary artery disease. Rehabil Nurs J 2001, 26(6):233-237.
44. Barlow J, Edwards R, Turner A: The experience of attending a lay-led, chronic disease self-management programme from the perspective of participants with multiple sclerosis. Psychol Health 2009, 24(10):1167-1180.
45. Barlow JH, Turner AP, Gilchrist M: A randomised controlled trial of lay-led self-management for myocardial infarction patients who have completed cardiac rehabilitation. Eur J Cardiovasc Nurs 2009, 8(4):293-301.
46. Bedell G: Daily life for eight urban gay men with HIV/AIDS. Am J Occup Ther 2000, 54(2):197-206.
47. Bell K, Lee J, Foran S, Kwong S, Christopherson J: Is there an "ideal cancer" support group? Key findings from a qualitative study of three groups. J Psychosoc Oncol 2010, 28(4):432-449.
48. Bourke L, Sohanpal R, Nanton V, Crank H, Rosario DJ, Saxton JM: A qualitative study evaluating experiences of a lifestyle intervention in men with prostate cancer undergoing androgen suppression therapy. Trials [Electronic Resource] 2012, 13:208.
49. Broom A: Virtually he@lthy: The impact of internet use on disease experience and the doctor-patient relationship. Qual Health Res 2005, 15(3):325-345.
50. Chambers SK, Foley E, Galt E, Ferguson M, Clutton S: Mindfulness groups for men with advanced prostate cancer: A pilot study to assess feasibility and effectiveness and the role of peer support. Support Care Cancer 2012, 20(6):1183-1192.
51. Chenard C: The impact of stigma on the self-care behaviors of HIV-positive gay men striving for normalcy. J Assoc Nurses Aids Care 2007, 18(3):23-32.
52. Corboy D, McDonald J, McLaren S: Barriers to Accessing Psychosocial Support Services among Men with Cancer Living in Rural Australia: Perceptions of Men and Health Professionals. Int J Men's Health 2011, 10(2):163-183.
53. Cramer H, Horwood J, Payne S, Araya R, Lester H, Salisbury C: Do depressed and anxious men do groups? What works and what are the barriers to help seeking? Prim Health Care Res Dev 2014, 15(3):287-301.
54. Dickerson SS, Boehmke M, Ogle C, Brown JK: Seeking and Managing Hope: Patients' Experiences Using the Internet for Cancer Care. Oncology Nursing Forum 2006, 33(1):E1-E10.
55. Dickerson SS, Reinhart A, Boemhke M, Akhu-Zaheya L: Cancer as a problem to be solved: internet use and provider communication by men with cancer. Cin Comput Inform Nurs 2011, 29(7):388-395.
56. Eldh AC, Ehnfors M, Ekman I: The meaning of patient participation for patients and nurses at a nurse-led clinic for chronic heart failure. Eur J Cardiovasc Nurs 2006, 5:45-53.
57. Emslie C, Ridge D, Ziebland S, Hunt K: Exploring men's and women's experiences of depression and engagement with health professionals: more similarities than differences? A qualitative interview study. BMC Fam Pract 2007, 8:43.
58. Evans M, Shaw A, Thompson EA, Falk S, Turton P, Thompson T, Sharp D: Decisions to use complementary and alternative medicine (CAM) by male cancer patients: information-seeking roles and types of evidence used. BMC Complement Altern Med 2007, 7:25.
59. Ferrand C, Perrin C, Nasarre S: Motives for regular physical activity in women and men: A qualitative study in French adults with type 2 diabetes, belonging to a patients' association. Health Soc Care Community 2008, 16(5):511-520.
60. Galdas PM, Oliffe JL, Wong ST, Ratner PA, Johnson JL, Kelly MT: Canadian Punjabi Sikh men's experiences of lifestyle changes following myocardial infarction: cultural connections. Ethnicity Health 2012, 17(3):253-266.
61. Gibbs L: Applications of masculinity theories in a chronic illness context. Int J Men's Health 2005, 4(3):287-300.
62. Gooden RJ, Winefield HR: Breast and prostate cancer online discussion boards: A thematic analysis of gender differences and similarities. J Health Psychol 2007, 12(1):103-114.
63. Gray R, Fitch M, Davis C, Phillips C: Breast cancer and prostate cancer self-help groups: Reflections on differences. Psycho-Oncology 1996, 5(2):137-142.
64. Gray R, Fitch M, Davis C, Phillips C: A qualitative study of breast cancer self-help groups. Psycho-Oncology 1997, 6:279-289.
65. Gray RE, Fitch M, Davis C, Phillips C: Interviews with men with prostate cancer about their self-help group experience. J Palliat Care 1997, 13(1):15-21.
66. Harris GE, Alderson K: An investigation of gay men's experiences with HIV counselling and peer support services. Can J Community Ment Health 2007, 26(1):129-142.
67. Iredale R, Williams B, Brain K, France E, Gray J: The information needs of men with breast cancer. Br J Nurs 2007, 16(9):540-544.
68. Kendall J: Promoting wellness in HIV-support groups. J Assoc Nurses AIDS Care 1992, 3(1):28-38.
69. Kronenwetter C, Weidner G, Pettengill E, Marlin R, Crutchfield L, McCormac P, Raisin CJ, Ornish D: A qualitative analysis of interviews of men with early stage prostate cancer: The Prostate Cancer Lifestyle Trial. Cancer Nurs 2005, 28(2):99-107.
70. Martin F, Turner A, Bourne C, Batehup L: Development and qualitative evaluation of a self-management workshop for testicular cancer survivor-initiated follow-up. Oncol Nurs Forum 2013, 40(1):E14-E23.
71. Mfecane S: Negotiating therapeutic citizenship and notions of masculinity in a South African village. Ajar-Afr J Aids Res 2011, 10(2):129-138.
72. Oliffe JL, Gerbrandt JS, Bottorff JL, Hislop TG: Health promotion and illness demotion at prostate cancer support groups. Health Promot Pract 2010, 11(4):562-571.
73. Oliffe JL, Bottorff JL, McKenzie MM, Hislop TG, Gerbrandt JS, Oglov V: Prostate cancer support groups, health literacy and consumerism: Are community-based volunteers re-defining older men's health? Health 2011, 15(6):555-570.
74. Ramachandra P, Booth S, Pieters T, Vrotsou K, Huppert FA: A brief selfadministered psychological intervention to improve well-being in patients with cancer: results from a feasibility study. Psycho-Oncology 2009, 18(12):1323-1326.
75. Sandstrom KL: Searching for information, understanding, and self-value: The utilization of peer support groups by gay men with HIV/AIDS. Soc Work Health Care 1996, 23(4):51-74.
76. Seale C, Ziebland S, Charteris-Black J: Gender, cancer experience and internet use: A comparative keyword analysis of interviews and online cancer support groups. Soc Sci Med 2006, 62(10):2577-2590.
77. Smith RL, Crane LA, Byers T, Nelson-Marten P: An evaluation of the Man to Man self-help group in Colorado and Utah. Cancer Practice 2002, 10(5):234-239.
78. Sullivan CF: Gendered Cybersupport: A Thematic Analysis of Two Online Cancer Support Groups. J Health Psychol 2003, 8(1):83-103.
79. Trapp SK, Woods JD, Grove A, Stern M: Male coping processes as demonstrated in the context of a cancer-related social support group. Support Care Cancer 2013, 21(2):619-627.
80. Vanable PA, Carey MP, Brown JL, Littlewood RA, Bostwick R, Blair D: What HIV-positive MSM want from sexual risk reduction interventions: Findings from a qualitative study. AIDS Behav 2012, 16(3):554-563.
81. Wallace M, Storms S: The needs of men with prostate cancer: results of a focus group study. Appl Nurs Res 2007, 20(4):181-187.
82. Seymour-Smith S: 'Blokes don't like that sort of thing': men's negotiation of a 'troubled' self-help group identity. J Health Psychol 2008, 13(6):785-797.
83. Oliffe JL, Halpin M, Bottorff JL, Hislop TG, McKenzie M, Mroz L: How prostate cancer support groups do and do not survive: British Columbian perspectives. Am J Mens Health 2008, 2(2):143-155.
84. Douglas FC, Greener J, Van Teijlingen E, Ludbrook A: Services just for men? Insights from a national study of the well men services pilots. BMC Public Health 2013, 13(1):425.
85. Hunt K, Gray CM, Maclean A, Smillie S, Bunn C, Wyke S: Do weight management programmes delivered at professional football clubs attract and engage high risk men? A mixed-methods study. BMC Public Health 2014, 14(1):50.
86. Hunt K, Wyke S, Gray CM, Anderson AS, Brady A, Bunn C, Donnan PT, Fenwick E, Grieve E, Leishman J: A gender-sensitised weight loss and healthy living programme for overweight and obese men delivered by Scottish Premier League football clubs (FFIT): A pragmatic randomised controlled trial. Lancet 2014, 383(9924):1211-1221.
87. Robertson C, Archibald D, Avenell A, Douglas F, van Teijlingen E, Boyers D, Stewart F, Boachie C, Fioratou E, Wilkins D, Street T, Carroll P, Fowler C: Systematic reviews and integrated report on the quantitative, qualitative and economic evidence base for the management of obesity in men. Health Technol Assess 2014, 18(35):v-vi, xxiii-xxix, 1-424.
88. Charmaz K: Loss of self: A fundamental form of suffering in the chronically ill. Sociology Health Illn 1983, 5(2):168-195.
89. O'Brien R, Hart GJ, Hunt K: Standing out from the herd: men renegotiating masculinity in relation to their experience of illness. Int J Men's Health 2007, 6(3):178-200.
90. Clarke LH, Bennett E: 'You learn to live with all the things that are wrong with you': gender and the experience of multiple chronic conditions in later life. Ageing Soc 2013, 33(02):342-360.
91. Taylor S, Greenhalgh T, Griffiths C, Pinnock H, Ribchester J, Sheikh A: A rapid synthesis of the evidence on interventions supporting self management for people with long-Term conditions: report commissioned by the NIHR HTA Programme as project number 11/1014/04. NIHR HS & DR. in press.
92. Bury M: Chronic illness as biographical disruption. Sociol Health Illn 1982, 4(2):167-182.
93. Bury M: The sociology of chronic illness: A review of research and prospects. Sociol Health Illn 1991, 13(4):451-468.
94. Farrimond H: Beyond the caveman: rethinking masculinity in relation to men's help-seeking. Health 2012, 16(2):208-225.
95. Galdas PM, Johnson JL, Percy ME, Ratner PA: Help seeking for cardiac symptoms: Beyond the masculine-feminine binary. Soc Sci Med 2010, 71(1):18-24.
96. Galdas PM: Men, Masculinity and Help-Seeking. In Men's Health: Body, Identity and Social Context. Edited by Broom A, Tovey P. London: John Wiley and Sons Inc; 2010.
97. Coulter A, Roberts S, Dixon A: Delivering Better Services for People with Long-Term Conditions: Building the House of Care. London: King's Fund; 2013.
98. Kidd LA: Consequences, control and appraisal: cues and barriers to engaging in selfmanagement among people affected by colorectal cancer-A secondary analysis of qualitative data. Health Expect 2012, 17(4):565-578.
99. Pawson R, Greenhalgh T, Harvey G, Walshe K: Realist review-A new method of systematic review designed for complex policy interventions. J Health Serv Res Policy 2005, 10(suppl 1):21-34.