Consequences, control and appraisal: Cues and barriers to engaging in self-management among people affected by colorectal cancer - a secondary analysis of qualitative data

Health Expectations

Volumn 17, Issue 4, 2014, Pages 565-578

  Kidd, Lisa A ^a  

^a GLASGOW CALEDONIAN UNIVERSITY   (United Kingdom)

Author keywords

Colorectal cancer; Engagement; Patient centered care; Secondary qualitative analysis; Self management

Indexed keywords

AGED; COLORECTAL NEOPLASMS; FEMALE; HUMAN; LONGITUDINAL STUDY; MALE; MIDDLE AGED; MOTIVATION; PATIENT EDUCATION; PERCEPTION; PSYCHOLOGY; QUALITATIVE RESEARCH; SELF CARE; SEVERITY OF ILLNESS INDEX; UNITED KINGDOM;

AGED; COLORECTAL NEOPLASMS; FEMALE; HUMANS; LONGITUDINAL STUDIES; MALE; MIDDLE AGED; MOTIVATION; PATIENT EDUCATION AS TOPIC; PERCEPTION; QUALITATIVE RESEARCH; SCOTLAND; SELF CARE; SEVERITY OF ILLNESS INDEX;

EID: 84904414005     PISSN: 13696513     EISSN: 13697625     Source Type: Journal    
DOI: 10.1111/j.1369-7625.2012.00785.x     Document Type: Article

References (46)

1. Department of Health. The Expert Patient: a New Approach to Chronic Disease Management for the 21st Century. London: Department of Health, 2001 .
2. Scottish Executive. Partnership for Care: Scotland's Health White Paper. Edinburgh: Scottish Executive, 2003 .
3. Department of Health. Supporting People with Long Term Conditions: an NHS and Social Care Model to Support Local Innovation and Integration. London: Department of Health, 2005 .
4. Department of Health. Self-care: a Real Choice. London: Department of Health, 2005 .
5. Scottish Government. Improving Health and Wellbeing of People with Long Term Conditions in Scotland: an Action Plan. Edinburgh: Scottish Government, 2009 .
6. Scottish Government. Better Health, Better Care. Edinburgh: Scottish Government, 2009 .
7. National Health Priority Action Council (NHPAC). National Chronic Disease Strategy. Canberra: Australian Government Department of Health and Ageing, 2006 .
8. Queensland Health. Framework for Self-Management 2008-2015. Brisbane: Queensland Government, 2007 .
9. British Columbia Ministry of Health. Primary Health Care Charter: a Collaborative Approach. British Columbia: Ministry of Health, 2007 .
10. Wagner E, Austin B, Coleman C. It Takes a Region: Creating a Framework to Improve Chronic Disease Care. Oakland: California Healthcare Foundation, 2006 .
11. Improving chronic illness care. 'The Chronic Care Model'. 2007. Available at: http://www.improvingchroniccare.org/index.php?p=The_Chronic_Care_Model&s=2, accessed 17 January 2012 .
12. Davies N, Batehup L. Towards a personalized approach to aftercare: a review of cancer follow-up in the UK. Journal of Cancer Survivorship, 2011 ; 5: 142 - 151 .
13. Hibbard JH, Mahoney ER, Stockard J, Tusler M. Development and testing of a short form of the Patient Activation Measure. HSR: Health Services Research, 2005 ; 40: 1918 - 1930 .
14. Hibbard J, Greene J, Tussler M. Improving the outcomes of disease management by tailoring care to the patient's level of activation. Ambulatory Journal of Managed Care, 2005 ; 15: 353 - 360 .
15. NCSI, Research Work Stream Mapping Project. Summary and Reports for: Bowel Cancer, Breast Cancer, Lung Cancer, Prostate Cancer. London: National Cancer Survivorship Initiative, 2009 .
16. Warsi A, Wang PS, LaValley MP, Avorn J, Solomon DH. Self management education programmes in chronic disease: a systematic review and methodological critique of the literature. Archives of Internal Medicine, 2004 ; 164: 1641 - 1649 .
17. Bury M, Newbould J, Taylor D. A Rapid Review of the Current State of Knowledge Regarding Lay-Led Self Management of Chronic Illness: Evidence Review. London: National Institute for Health and Clinical Excellence, 2005 .
18. Richardson G, Gravelle H, Weatherly H, Ritchie G. Cost effectiveness of interventions to support self-care: a systematic review. International Journal of Technology Assessment in Health Care, 2005 ; 21: 423 - 432 .
19. Foster G, Taylor SJ, Eldridge SE, Ramsay J, Griffiths CJ. Self management education programmes by lay leaders for people with chronic conditions. Cochrane Database of Systematic Reviews, 2005 ; 4: doi: 10.1002/14651858.CD005108 .
20. Reeves D, Kennedy A, Fullwood C et al. Predicting who will benefit from an Expert Patient self management course. British Journal of General Practice, 2008 ; 58: 198 - 203 .
21. Bower P, Blakeman T, Kennedy A et al. What Influences People to Self-Care. Manchester: University of Manchester, National Primary Care Research and Development Centre, 2009 .
22. Coulter A, Ellins J. Patient-Focussed Interventions: a Review of the Evidence. London: Health Foundation, 2006 .
23. Berzins K, Reilly S, Abell J, Hughes J, Challis D. UK self-care-support initiatives for older patients with long term conditions: a review. Chronic Illness, 2009 ; 5: 56 - 72 .
24. Clark AM, MacIntyre PD, Cruickshank J. A critical realist approach to understanding and evaluating heart health programmes. Health, 2007 ; 11: 513 - 539 .
25. Kidd L, Kearney N, O'Carroll R, Hubbard G. Experiences of self-care in patients with colorectal cancer: a longitudinal study. Journal of Advanced Nursing, 2008 ; 64: 469 - 477 .
26. Cooper JM, Collier J, James V, Hawkey CJ. Beliefs about personal control and self management in 30-40year olds living with Inflammatory Bowel Disease: a qualitative study. International Journal of Nursing Studies, 2010 ; 47: 1500 - 1509 .
27. Rodgers A, Kennedy A, Nelson E, Robinson A. Uncovering the limits of patient-centredness: implementing a self-management trial for chronic illness. Qualitative Health Research, 2005 ; 15: 224 - 239 .
28. Kidd L. An Exploration of Patients' Perceived Control, Self Efficacy and Involvement in Self Care During Chemotherapy for Colorectal Cancer. Stirling: University of Stirling, 2007 .
29. Kidd L, Hubbard G, O'Carroll R, Kearney N. Perceived control and involvement in self-care in patients with colorectal cancer. Journal of Clinical Nursing, 2009 ; 18: 2292 - 2330 .
30. Spradley JP. The Ethnographic Interview. New York: Holt, Rinehart and Winston, 1979 .
31. Gladstone BM, Volpe T, Boydell KM. Issues encountered in a qualitative secondary analysis of help-seeking in the prodrome to psychosis. Journal of Behavioural Health Services and Research, 2007 ; 34: 4 .
32. Holland J, Thomson R. Gaining perspective on choice and fate: revisiting critical moments. European Societies, 2009 ; 11: 3 .
33. Bornat J. Remembering and reworking emotions. The reanalysis of emotion in an interview. Oral History, 2010 ; 38: 2 .
34. Leventhal H, Nerenz DR, Steel DJ. Illness representations and coping with health threats. In: Baum A, Taylor SE, Singer JE ( eds ) Handbook of Psychology and Health, Vol 4. New Jersey: Lawrence Earlbaum, 1984: 219 - 252 .
35. Leventhal H, Benyamini Y, Brownlee S et al. Illness representations: theoretical foundations. In: Petrie KJ, Weinman JA ( eds ) Perceptions of Health and Illness: Current Research and Applications. Amsterdam: Harwood Academic Publishers, 1997: 19 - 45 .
36. Leventhal H, Leventhal EA, Cameron L. Representations, procedures and affect in illness self regulation: a perceptual-cognitive model. In: Baum A, Revenson T, Singer J ( eds ) Handbook of Health Psychology. New York: Earlbaum, 2001: 19 - 47 .
37. Ritchie J, Spencer L, O'Connor W. Carrying out qualitative analysis. In: Ritchie J, Lewis J ( eds ) Qualitative Research Practice: a Guide For Social Science Students and Researchers. London: Sage Publications, 2003: 219 - 263 .
38. Bandura A. Self Efficacy: the Exercise of Control. New York: Freeman, 1997 .
39. Bayliss EA, Steiner JF, Fernald DH, Crane L, Main DS. Descriptions of barriers to self-care by persons with co-morbid conditions. Annals of Family Medicine, 2003 ; 1: 15 - 21 .
40. Pan LH, Tsai YF, Chen ML, Tang R, Chang CJ. Symptom distress and self-care strategies of colorectal cancer patients with diarrhea up to 3months after surgery. Cancer Nursing, 2011 ; 34: E1 - E9 .
41. Fraser DD, Kee CC, Minick P. Living with chronic obstructive pulmonary disease: insiders' perspectives. Journal of Advanced Nursing, 2006 ; 55: 550 - 558 .
42. Collins MM, Bradley CP, O'Sullivan T, Perry IJ. Self-care coping strategies in people with diabetes: a qualitative exploratory study. BMC Endocrine Disorders, 2009 ; 9: 6 .
43. Lawn S, McMillan J, Pulvirenti M. Chronic condition self-management: expectations of responsibility. Patient Education and Counseling, 2011 ; 84: e5 - e8 .
44. Riegel B, Dickson V. A situation-specific theory of heart failure self-care. Journal of Cardiovascular Nursing, 2008 ; 23: 190 - 196 .
45. Loignon C, Bedos C, Sevigny R, Leduc N. Understanding the self-care strategies of patients with asthma. Patient Education and Counseling, 2009 ; 75: 256 - 262 .
46. Anduluv A, Asplund K, Norbergh KG. Who's in charge? The role of responsibility attribution in self management among people with chronic illness. Patient Education and Counseling, 2010 ; 81: 94 - 100 .