Reasons why patients referred to diabetes education programmes choose not to attend: a systematic review

Diabetic Medicine

Volumn 34, Issue 1, 2017, Pages 14-26

  Horigan, G ^a   Davies, M ^b   Findlay White, F ^c   Chaney, D ^c   Coates, V ^a  

^a UNIVERSITY OF ULSTER   (United Kingdom)

^b ROYAL GROUP OF HOSPITALS TRUST   (United Kingdom)

^c DIABETES UK   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

CANADA; CINAHL; COMORBIDITY; CONTROLLED STUDY; DIABETES EDUCATION; EMBASE; EUROPE; HUMAN; HUMAN EXPERIMENT; INDIA; MEDLINE; PAKISTAN; PSYCINFO; QUANTITATIVE STUDY; SAMPLE SIZE; SCOPUS; SYSTEMATIC REVIEW; ADULT; ATTITUDE TO HEALTH; CHILD; COMPLICATION; COST OF ILLNESS; DAILY LIFE ACTIVITY; ECONOMICS; HEALTH CARE COST; HOSPITAL MANAGEMENT; INSULIN DEPENDENT DIABETES MELLITUS; META ANALYSIS; MULTIMODALITY CANCER THERAPY; NON INSULIN DEPENDENT DIABETES MELLITUS; PATIENT ATTITUDE; PATIENT EDUCATION; PATIENT REFERRAL; REIMBURSEMENT;

ACTIVITIES OF DAILY LIVING; ADULT; APPOINTMENTS AND SCHEDULES; CHILD; COMBINED MODALITY THERAPY; COST OF ILLNESS; DIABETES MELLITUS, TYPE 1; DIABETES MELLITUS, TYPE 2; HEALTH CARE COSTS; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INSURANCE, HEALTH, REIMBURSEMENT; PATIENT ACCEPTANCE OF HEALTH CARE; PATIENT EDUCATION AS TOPIC; REFERRAL AND CONSULTATION;

EID: 84963545885     PISSN: 07423071     EISSN: 14645491     Source Type: Journal    
DOI: 10.1111/dme.13120     Document Type: Article

References (50)

1. World Health Organisation. Global status report on non-communicable diseases. Geneva: WHO, 2014.
2. Norris SL, Engelgau MM, Narayan KMV. Effectiveness of self-management training in type 2 diabetes: A systematic review of randomized controlled trials. Diabetes Care 2001; 24: 561–587.
3. Trento M, Gamba S, Gentile L, Grassi G, Miselli V, Morone G et al. Rethink Organization to iMprove Education and Outcomes (ROMEO): A multicentre randomized trial of lifestyle intervention by group care to manage type 2 diabetes. Diabetes Care 2010; 33: 745–747.
4. Loveman E, Frampton G, Clegg AJ. The clinical effectiveness of diabetes education models for Type 2 diabetes: a systematic review. Health Technol Assess 2008; 12: 1–116.
5. Deakin T, McShane CE, Cade JE, Williams RD. Group based training for self-management strategies in people with type 2 diabetes mellitus. Cochrane Database Syst Rev 2005; CD003417.
6. Boren SA, Fitzner KA, Panhalkar PS, Specker JE. Costs and benefits associated with diabetes education: A Review of the Literature. Diabetes Educ 2009; 35: 72–96.
7. Niccoluci A, Cavaliere D, Scorpiglione N, Carinci F, Capani F, Tognoni G. A comprehensive assessment of the avoidability of long-term complications of diabetes. A case–control study. Diabetes Care 1996; 19: 927–933.
8. National Institute for Clinical Excellence. Guidance on the use of patient-education models for diabetes (Technology Appraisal 60). London: NICE, 2003.
9. National Institute for Health and Clinical Excellence. The management of type 2 diabetes (update). (Clinical guideline 66.) London: NICE, 2008. Available at http://www.nice.org.uk/CG66 Last accessed 3 October 2015.
10. HSCIC (2016). National Diabetes Audit 2012–2013. Report 1: Care Processes and Treatment Targets. Available at hscic.gov.uk Last accessed 1 March 2016.
11. Schäfer I, Pawels M, Küver C, Pohontsch N, Scherer M, van den Bussche H et al. Strategies for Improving Participation in Diabetes Education. A Qualitative Study. PLoS One 2014; 9: e95035.
12. Wadher K. Service review of DESMOND non-attenders 2010: How attendance of structured group education for Type 2 diabetes can be improved. Birmingham, UK: Primary Care Diabetes Society, 2010.
13. Temple B, Epp D. Evaluation of a Diabetes Education Program's Non-Attendees: The Program Response. Can J Diabetes 2009; 33: 375–380.
14. Schlundt DG, Flannery ME, Davis DL, Kinzer CK, Pichert JW. Evaluation of a multicomponent, behaviourally, problem based “summer school” programme for adolescents with diabetes. Behav Modif 1999; 23: 79–105.
15. Nicolucci A, Kovacs Burns K, Holt RIG, Comaschi M, Hermanns N, Ishii H et al. Research: Educational and Psychological Issues Diabetes Attitudes, Wishes and Needs second study (DAWN2TM): Cross-national benchmarking of diabetes-related psychosocial outcomes for people with diabetes. Diabet Med 2013; 30: 767–777.
16. McKnight JA, Wild SH, Lamb MJE, Cooper MN, Jones TW, Davis EA. Glycaemic control of Type 1 diabetes in clinical practice early in the 21st century: an international comparison. Diabet Med 2015; 32: 1036–1050.
17. National Institute for Health and Clinical Excellence. Type 1 diabetes in adults: diagnosis and management; (guidelines NG17) August 2015. Available at http://www.nice.org.uk/guidance/ng17/resources/type-1-diabetes-in-adults-diagnosis-and-management-1837276469701 Last accessed 3 October 2015.
18. Holman N, Gadsby R, Dunn L, Sylvester C, Young B. How does current diabetes care compare with landmark clinical studies? Diabet Med 2015; 32: 841–842.
19. Quality and Outcomes Framework (QOF) 2015-2016. Available at http://www.nhsemployers.org/~/media/Employers/Documents/Primary%20care%20contracts/QOF/2015%20-%2016/2015%2016%20QOF%20guidance%20for%20stakeholders.pdf. Last accessed 15 October 2015.
20. Clark M. Diabetes self-management education: A review of published studies. Prim Care Diabetes 2008; 2: 113–120.
21. Pottie K, Hadi A, Chen J, Welch V, Hawthorne K. Realist review to understand the efficacy of culturally appropriate diabetes education programmes. Diabet Med 2013; 30: 1017–1025.
22. Gucciardi E. A systematic review of attrition from diabetes education services: Strategies to improve attrition and retention research. Can J Diabetes 2008; 32: 53–65.
23. Steed L, Cooke D, Newman S. A systematic review of psychosocial outcomes following education, self-management and psychological interventions in diabetes mellitus. Patient Educ Couns 2003; 51: 5–15.
24. Lawal M. Barriers to attendance in diabetes education centres: A systematic review. Diabetes Prim Care 2015; 16: 299–306.
25. Moher D, Liberati A, Tetzlaff J, Altman DG. Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. Ann Intern Med 2009; 151: 264–269.
26. Francis SL, Noterman A, Litchfield R. Factors influencing Latino participation in community-based diabetes education. J Extension 2014; 52: 1–6.
27. Winkley K, Evwierhoma C, Amiel S, Lempp H, Ismail K, Forbes A. Patient explanations for non-attendance at structured diabetes education sessions for newly diagnosed Type 2 diabetes: a qualitative study. Diabet Med 2014; 32: 120–128.
28. Visram S, Bremner A, Harrington B, Hawthorne G. Factors affecting uptake of an education and physical activity programme for newly diagnosed type 2 diabetes. Eur Diabetes Nurs 2008; 5: 17–22.
29. Rafique HG, Shaikh F. Identifying needs and barriers to diabetes education in patients with diabetes. J Pak Med Assoc 2006; 56: 347–352.
30. Schäfer I, Küver C, Wiese B, Pawels M, van den Bussche H, Kaduszkiewicz H. Identifying groups of non-participants in type-2-diabetes education. Am J Manag Care 2013; 19: 499–506.
31. Gucciardi E, Chan V, Lo B, Fortugno M, Horodezny S, Swartzack S. Patients’ perspectives on their use of diabetes education centres in Peel-Halton region in Southern Ontario. Can J Diabetes 2012; 36: 214–217.
32. Shaji S, Kumpatia S, Viswanathan V. Bias and Barriers Influencing Patients’ Attendance Towards Diabetes Education Programme. TAPI Journal 2012; 4: 1–7. Available at http://www.mvdiabetes.com/Online-Diabetes-Products/Pharmacy%20Products/pdf/12-TAPIJ-4(3)-ser-dec-2012.pdf Last accessed 5 October 2015.
33. Peyrot M, Rubin RR, Funnell MM, Siminerio LM. Access to Diabetes Self-Management education; Results of National Surveys of patients, educators and physicians. Diabetes Educ 2009; 35: 246–262.
34. Diabetes Self-Management Education Barrier Study, Sept 2006. Augusta, ME: Maine Department of Health and Human Services, 2006. Available at https://www1.maine.gov/dhhs/mecdc/phdata/non-dhp-pdf-doc/diabetes-self-managment-education-barrier-study-september-.pdf Last accessed 24 September 2015.
35. Law M, Stewart D, Pollock N, Letts L, Bosch J, Westmorland M. Critical review form: Quantitative studies. Hamilton, ON: McMaster University, 1998.
36. Letts L, Wilkins S, Law M, Stewart D, Bosch J. Guidelines for critical review form: Qualitative studies (Version 2.0). Hamilton, ON: McMaster University, 2007.
37. Gucciardi E, Wang SC, DeMelo M, Amaral L, Stewart DE. Characteristics of men and women with diabetes: observations during patients’ initial visit to a diabetes education centre. Can Fam Physician 2008; 54: 219–227.
38. Taking Control: Supporting people to self-manage their diabetes: All-Party Parliamentary Group for Diabetes report, March 2015. Available at https://jdrf.org.uk/wp-content/uploads/2015/10/APPG-Diabetes-Report-Education-Final-Report.pdf Last accessed 14 October 2015.
39. Structured Patient Education in Diabetes Report from the Patient Education Working Group. Department of Health and Diabetes, UK, 2005. Available at https://www.diabetes.org.uk/Documents/Reports/StructuredPatientEd.pdf Last accessed 15 October 2015.
40. Jin AJ, Martin D, Maberley D, Dawson KG, Seccombe DW, Beattie J. Evaluation of a mobile diabetes care telemedicine clinic serving Aboriginal communities in Northern British Columbia, Canada. Int J Circumpolar Health 2004; 63: 124–128.
41. Tang TS, Ayala GX, Cherrington A, Rana G. Review of volunteer-based peer support interventions in diabetes. Diabetes Spectrum 2011; 24: 85–98.
42. Philis-Tsimikas A, Fortmann A, Lleva-Ocana L, Walker C, Gallo LC. Peer-Led Diabetes Education Programs in High-Risk Mexican Americans Improve Glycemic Control Compared With Standard Approaches. Diabetes Care 2011; 34: 1926–1931.
43. Glasgow R, Toobert D, Hampson S. Participation in Outpatients Education Programs: How many patients take part and how representative are they? Diabetes Educ 1991; 17: 376–380.
44. Cordina M, McElnay JC, Hughes CM. Assessment of a community pharmacy-based program for patients with asthma. Pharmacotherapy 2001; 21: 1196–1203.
45. Samoocha D, Bruinvels DJ, Elbers NA, Anema JR, van der Beek AJ. Effectiveness of web-based interventions on patient empowerment: a systematic review and meta-analysis. J Med Internet Res 2010; 12: e23.
46. Holmes V, McCance D, Patterson C, Harper R, Alderdice F, Spence M. Evaluation of a DVD for women with diabetes: impact on knowledge and attitudes to preconception care. Diabet Med 2012; 29: 950–956.
47. Glasgow RE, La Chance PA, Toobert D, Brown J, Hampson SE, Riddle MC. Long term effects and costs of brief behavioural dietary intervention for patients with diabetes delivered from the medical office. Patient Educ Couns 1997; 32: 175–184.
48. Fearnley L, Dornhorst A, Oliver N. Online structured education for people with type 1 diabetes. J Diabetes Nurs 2012; 16: 379.
49. Peyrot M, Ruben R. Access to diabetes self-management education. Diabetes Educ 2008; 34: 90–97.
50. Quality and Outcomes Framework (QOF) 2015- 2016. Available at http://www.nhsemployers.org/~/media/Employers/Documents/Primary%20care%20contracts/QOF/2015%20-%2016/2015%2016%20QOF%20guidance%20for%20stakeholders.pdf. Last accessed 15 October 2015.