Determinants of outpatient clinic attendance amongst adults with congenital heart disease and outcome

International Journal of Cardiology

Volumn 203, Issue , 2016, Pages 245-250

  Kempny, Aleksander ^a,b,c   Diller, Gerhard Paul ^a,b,c   Dimopoulos, Konstantinos ^a,b   Alonso Gonzalez, Rafael ^a,b   Uebing, Anselm ^a,b   Li, Wei ^a,b   Babu Narayan, Sonya ^a,b   Swan, Lorna ^a,b   Wort, Stephen J ^a,b   Gatzoulis, Michael A ^a,b  

^a ROYAL BROMPTON HOSPITAL   (United Kingdom)

^b NATIONAL HEART AND LUNG INSTITUTE   (United Kingdom)

^c UNIVERSITY HOSPITAL MÜNSTER   (Germany)

Author keywords

Adult congenital heart disease; Congenital heart disease; Outcome

Indexed keywords

ADULT; ARTICLE; CONGENITAL HEART DISEASE; ECHOCARDIOGRAPHY; ELECTRONIC MEDICAL RECORD; ETHNICITY; FEMALE; FOLLOW UP; HUMAN; MAJOR CLINICAL STUDY; MALE; MORTALITY; OUTCOME ASSESSMENT; OUTPATIENT DEPARTMENT; PATIENT ATTENDANCE; PRIORITY JOURNAL; RETROSPECTIVE STUDY; SOCIAL STATUS; SURVIVAL; ENGLAND; HEART DEFECTS, CONGENITAL; PATIENT COMPLIANCE; PREDICTIVE VALUE; SOCIAL CLASS; STATISTICS AND NUMERICAL DATA; SURVIVAL ANALYSIS;

ADULT; AMBULATORY CARE FACILITIES; ENGLAND; FEMALE; HEART DEFECTS, CONGENITAL; HUMANS; MALE; OUTCOME ASSESSMENT (HEALTH CARE); PATIENT COMPLIANCE; PREDICTIVE VALUE OF TESTS; RETROSPECTIVE STUDIES; SOCIAL CLASS; SURVIVAL ANALYSIS;

EID: 84952651246     PISSN: 01675273     EISSN: 18741754     Source Type: Journal    
DOI: 10.1016/j.ijcard.2015.10.081     Document Type: Article

References (42)

1. A.J. Marelli, A.S. Mackie, R. Ionescu-Ittu, E. Rahme, and L. Pilote Congenital heart disease in the general population: changing prevalence and age distribution Circulation 115 2007 163 172
2. A.S. Mackie, L. Pilote, R. Ionescu-Ittu, E. Rahme, and A.J. Marelli Health care resource utilization in adults with congenital heart disease Am. J. Cardiol. 99 2007 839 843
3. C.A. Warnes, R. Liberthson, G.K. Danielson, A. Dore, L. Harris, J.I. Hoffman, and et al. Task force 1: the changing profile of congenital heart disease in adult life J. Am. Coll. Cardiol. 37 2001 1170 1175
4. J.A. Dearani, H.M. Connolly, R. Martinez, H. Fontanet, and G.D. Webb Caring for adults with congenital cardiac disease: successes and challenges for 2007 and beyond Cardiol. Young 17 Suppl. 2 2007 87 96
5. J. Wray, A. Frigiola, and C. Bull Loss to specialist follow-up in congenital heart disease; out of sight, out of mind Heart 99 2013 485 490
6. T. Oosterhof, A. van Straten, H.W. Vliegen, F.J. Meijboom, A.P. van Dijk, A.M. Spijkerboer, and et al. Preoperative thresholds for pulmonary valve replacement in patients with corrected tetralogy of fallot using cardiovascular magnetic resonance Circulation 116 2007 545 551
7. M. Cohen, V. Fuster, P.M. Steele, D. Driscoll, and D.C. McGoon Coarctation of the aorta. Long-term follow-up and prediction of outcome after surgical correction Circulation 80 1989 840 845
8. J. Therrien, S.C. Siu, P.R. McLaughlin, P.P. Liu, W.G. Williams, and G.D. Webb Pulmonary valve replacement in adults late after repair of tetralogy of fallot: are we operating too late? J. Am. Coll. Cardiol. 36 2000 1670 1675
9. H. Baumgartner, P. Bonhoeffer, N.M. De Groot, F. de Haan, J.E. Deanfield, N. Galie, and et al. ESC guidelines for the management of grown-up congenital heart disease (new version 2010) Eur. Heart J. 31 2010 2915 2957
10. C.A. Warnes, R.G. Williams, T.M. Bashore, J.S. Child, H.M. Connolly, J.A. Dearani, and et al. ACC/AHA 2008 guidelines for the management of adults with congenital heart disease: a report of the American College of Cardiology/American Heart Association task force on practice guidelines (writing committee to develop guidelines on the management of adults with congenital heart disease) Circulation 118 2008 e714 e833
11. C.K. Silversides, A. Marelli, L. Beauchesne, A. Dore, M. Kiess, O. Salehian, and et al. Canadian Cardiovascular Society 2009 Consensus Conference on the management of adults with congenital heart disease: executive summary Can. J. Cardiol. 26 2010 143 150
12. G.D. Webb, and R.G. Williams 32nd Bethesda Conference: "care of the adult with congenital heart disease" J. Am. Coll. Cardiol. 37 2001 1162 1165
13. G.P. Diller, R. Inuzuka, A. Kempny, R. Alonso-Gonzalez, E. Liodakis, F. Borgia, and et al. Detrimental impact of socioeconomic status on exercise capacity in adults with congenital heart disease Int. J. Cardiol. 165 2013 80 86
14. R developement Core Team R: a Language and Environment for Statistical Computing 2010 R Foundation for Statistical Computing Vienna, Austria (Retrieved from http://www.R-project.org)
15. C.L. Verheugt, C.S. Uiterwaal, E.T. van der Velde, F.J. Meijboom, P.G. Pieper, A.P. van Dijk, and et al. Mortality in adult congenital heart disease Eur. Heart J. 31 2010 1220 1229
16. R. Inuzuka, G.P. Diller, F. Borgia, L. Benson, E.L. Tay, R. Alonso-Gonzalez, and et al. Comprehensive use of cardiopulmonary exercise testing identifies adults with congenital heart disease at increased mortality risk in the medium term Circulation 125 2012 250 259
17. K. Dimopoulos, G. Giannakoulas, I. Bendayan, E. Liodakis, R. Petraco, G.P. Diller, and et al. Cardiothoracic ratio from postero-anterior chest radiographs: a simple, reproducible and independent marker of disease severity and outcome in adults with congenital heart disease Int. J. Cardiol. 166 2013 453 457
18. R. Alonso-Gonzalez, F. Borgia, G.P. Diller, R. Inuzuka, A. Kempny, A. Martinez-Naharro, and et al. Abnormal lung function in adults with congenital heart disease: prevalence, relation to cardiac anatomy, and association with survival Circulation 127 2013 882 890
19. A.S. Mackie, R. Ionescu-Ittu, J. Therrien, L. Pilote, M. Abrahamowicz, and A.J. Marelli Children and adults with congenital heart disease lost to follow-up: who and when? Circulation 120 2009 302 309
20. M. Gurvitz, A.M. Valente, C. Broberg, S. Cook, K. Stout, J. Kay, and et al. Prevalence and predictors of gaps in care among adult congenital heart disease patients: HEART-ACHD (the Health, Education, and Access Research Trial) J. Am. Coll. Cardiol. 61 2013 2180 2184
21. N. Junod Perron, M.D. Dao, N.C. Righini, J.P. Humair, B. Broers, F. Narring, and et al. Text-messaging versus telephone reminders to reduce missed appointments in an academic primary care clinic: a randomized controlled trial BMC Health Serv. Res. 13 2013 125
22. J. Car, I. Gurol-Urganci, T. de Jongh, V. Vodopivec-Jamsek, and R. Atun Mobile phone messaging reminders for attendance at healthcare appointments Cochrane Database Syst. Rev. 7 2012 CD007458
23. M.D. Norris, G. Webb, D. Drotar, A. Lisec, J. Pratt, E. King, and et al. Prevalence and patterns of retention in cardiac care in young adults with congenital heart disease J. Pediatr. 163 2013 902 904 (e1)
24. A. Wacker, H. Kaemmerer, R. Hollweck, M. Hauser, M.A. Deutsch, S. Brodherr-Heberlein, and et al. Outcome of operated and unoperated adults with congenital cardiac disease lost to follow-up for more than five years Am. J. Cardiol. 95 2005 776 779
25. M.A. Gatzoulis Adult congenital heart disease: education, education, education Nat. Clin. Pract. Cardiovasc. Med. 3 2006 2 3
26. A. Gratz, J. Hess, and A. Hager Self-estimated physical functioning poorly predicts actual exercise capacity in adolescents and adults with congenital heart disease Eur. Heart J. 30 2009 497 504
27. A. Kempny, K. Dimopoulos, A. Uebing, P. Moceri, L. Swan, M.A. Gatzoulis, and et al. Reference values for exercise limitations among adults with congenital heart disease. Relation to activities of daily life - single centre experience and review of published data Eur. Heart J. 33 2012 1386 1396
28. G.P. Diller, K. Dimopoulos, D. Okonko, W. Li, S.V. Babu-Narayan, C.S. Broberg, and et al. Exercise intolerance in adult congenital heart disease: comparative severity, correlates, and prognostic implication Circulation 112 2005 828 835
29. K. Dimopoulos, D.O. Okonko, G.P. Diller, C.S. Broberg, T.V. Salukhe, S.V. Babu-Narayan, and et al. Abnormal ventilatory response to exercise in adults with congenital heart disease relates to cyanosis and predicts survival Circulation 113 2006 2796 2802
30. S.V. Babu-Narayan, G.P. Diller, R.R. Gheta, A.J. Bastin, T. Karonis, W. Li, and et al. Clinical outcomes of surgical pulmonary valve replacement after repair of tetralogy of fallot and potential prognostic value of preoperative cardiopulmonary exercise testing Circulation 129 2014 18 27
31. A. Giardini, A. Hager, A.E. Lammers, G. Derrick, J. Müller, G.-P. Diller, and et al. Ventilatory efficiency and aerobic capacity predict event-free survival in adults with atrial repair for complete transposition of the great arteries J. Am. Coll. Cardiol. 53 2009 1548 1555
32. J. Radojevic, R. Inuzuka, R. Alonso-Gonzalez, F. Borgia, G. Giannakoulas, M. Prapa, and et al. Peak oxygen uptake correlates with disease severity and predicts outcome in adult patients with Ebstein's anomaly of the tricuspid valve Int. J. Cardiol. 163 2013 305 308
33. G.P. Diller, A. Kempny, E. Liodakis, R. Alonso-Gonzalez, R. Inuzuka, A. Uebing, and et al. Left ventricular longitudinal function predicts life-threatening ventricular arrhythmia and death in adults with repaired tetralogy of fallot Circulation 125 2012 2440 2446
34. S.V. Babu-Narayan, P.J. Kilner, W. Li, J.C. Moon, O. Goktekin, P.A. Davlouros, and et al. Ventricular fibrosis suggested by cardiovascular magnetic resonance in adults with repaired tetralogy of fallot and its relationship to adverse markers of clinical outcome Circulation 113 2006 405 413
35. M.A. Gatzoulis, S. Balaji, S.A. Webber, S.C. Siu, J.S. Hokanson, C. Poile, and et al. Risk factors for arrhythmia and sudden cardiac death late after repair of tetralogy of Fallot: a multicentre study Lancet 356 2000 975 981
36. G.P. Diller, R. Alonso-Gonzalez, A. Kempny, K. Dimopoulos, R. Inuzuka, G. Giannakoulas, and et al. B-type natriuretic peptide concentrations in contemporary Eisenmenger syndrome patients: predictive value and response to disease targeting therapy Heart 98 2012 736 742
37. J. Therrien, Y. Provost, N. Merchant, W. Williams, J. Colman, and G. Webb Optimal timing for pulmonary valve replacement in adults after tetralogy of Fallot repair Am. J. Cardiol. 95 2005 779 782
38. M. Schwerzmann, O. Salehian, L. Harris, S.C. Siu, W.G. Williams, G.D. Webb, and et al. Ventricular arrhythmias and sudden death in adults after a Mustard operation for transposition of the great arteries Eur. Heart J. 30 2009 1873 1879
39. Z.A. Marcum, M.A. Sevick, and S.M. Handler Medication nonadherence: a diagnosable and treatable medical condition JAMA 309 2013 2105 2106
40. L. Osterberg, and T. Blaschke Adherence to medication N. Engl. J. Med. 353 2005 487 497
41. Y. Lu, G. Agrawal, C.-W. Lin, and R.G. Williams Inpatient admissions and costs of congenital heart disease from adolescence to young adulthood Am. Heart J. 168 2014 948 955
42. A.J. Coats, and L.G. Shewan Statement on authorship and publishing ethics in the international journal of cardiology Int. J. Cardiol. 153 2011 239 240