Prevalence and predictors of gaps in care among adult congenital heart disease patients: HEART-ACHD (The Health, Education, and Access Research Trial)

Journal of the American College of Cardiology

Volumn 61, Issue 21, 2013, Pages 2180-2184

  Gurvitz, Michelle ^a   Valente, Anne Marie ^a   Broberg, Craig ^b   Cook, Stephen ^c   Stout, Karen ^d   Kay, Joseph ^e   Ting, Jennifer ^f   Kuehl, Karen ^g   Earing, Michael ^h   Webb, Gary ⁱ   Houser, Linda ^j   Opotowsky, Alexander ^a   Harmon, Amy ^a   Graham, Dionne ^a   Khairy, Paul ^k   Gianola, Ann ^l   Verstappen, Amy ^l   Landzberg, Michael ^a  

^a BOSTON CHILDREN S HOSPITAL   (United States)

^b OREGON HEALTH AND SCIENCE UNIVERSITY   (United States)

^c UNIVERSITY OF PITTSBURGH SCHOOL OF MEDICINE   (United States)

^d UNIVERSITY OF WASHINGTON SCHOOL OF MEDICINE   (United States)

^e UNIVERSITY OF COLORADO HOSPITAL   (United States)

^f PENN STATE MILTON S HERSHEY MEDICAL CENTER   (United States)

^g CHILDREN'S NATIONAL MEDICAL CENTER   (United States)

^h Children's Hospital of Wisconsin   (United States)

ⁱ CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER   (United States)

^j UNIVERSITY OF CALIFORNIA   (United States)

^k MONTREAL HEART INSTITUTE   (Canada)

^l Adult Congenital Heart Association   (United States)

more..

Author keywords

access to care; barriers; congenital

Indexed keywords

ADULT; ARTICLE; CONGENITAL HEART DISEASE; CROSS-SECTIONAL STUDY; DISEASE SEVERITY; EDUCATION; FEMALE; FOLLOW UP; HEALTH CARE DELIVERY; HEALTH STATUS; HUMAN; MAJOR CLINICAL STUDY; MALE; PATIENT REFERRAL; PREDICTION; PREVALENCE; PRIORITY JOURNAL; PROSPECTIVE STUDY; QUANTITATIVE ANALYSIS; RACE; SEX; SYMPTOM;

ADULT; CARDIAC CARE FACILITIES; CONTINUITY OF PATIENT CARE; CROSS-SECTIONAL STUDIES; FEMALE; FOLLOW-UP STUDIES; HEART DEFECTS, CONGENITAL; HUMANS; MALE; PATIENT EDUCATION AS TOPIC; PREVALENCE; PROSPECTIVE STUDIES; QUESTIONNAIRES; UNITED STATES; YOUNG ADULT;

EID: 84878001165     PISSN: 07351097     EISSN: 15583597     Source Type: Journal    
DOI: 10.1016/j.jacc.2013.02.048     Document Type: Article

References (17)

1. J.I. Hoffman, S. Kaplan, R.R. Liberthson Prevalence of congenital heart disease Am Heart J 147 2004 425 439
2. C.A. Warnes, R. Liberthson, G.K. Danielson Task force 1: the changing profile of congenital heart disease in adult life J Am Coll Cardiol 37 2001 1170 1175
3. H. Baumgartner, P. Bonhoeffer, N.M. De Groot ESC Guidelines for the management of grown-up congenital heart disease (new version 2010) Eur Heart J 31 2010 2915 2957
4. C.K. Silversides, A. Marelli, L. Beauchesne Canadian Cardiovascular Society 2009 Consensus Conference on the management of adults with congenital heart disease: executive summary Can J Cardiol 26 2010 143 150
5. C.A. Warnes, R.G. Williams, T.M. Bashore ACC/AHA 2008 guidelines for the management of adults with congenital heart disease: a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines (Writing Committee to Develop Guidelines on the Management of Adults With Congenital Heart Disease). Developed in Collaboration With the American Society of Echocardiography, Heart Rhythm Society, International Society for Adult Congenital Heart Disease, Society for Cardiovascular Angiography and Interventions, and Society of Thoracic Surgeons J Am Coll Cardiol 52 2008 e1 e121
6. E. Yeung, J. Kay, G.E. Roosevelt, M. Brandon, A.T. Yetman Lapse of care as a predictor for morbidity in adults with congenital heart disease Int J Cardiol 125 2008 62 65
7. J. de Bono, L.J. Freeman Aortic coarctation repair-lost and found: the role of local long term specialised care Int J Cardiol 104 2005 176 183
8. A. Wacker, H. Kaemmerer, R. Hollweck Outcome of operated and unoperated adults with congenital cardiac disease lost to follow-up for more than five years Am J Cardiol 95 2005 776 779
9. P. Moons, E. De Volder, W. Budts What do adult patients with congenital heart disease know about their disease, treatment, and prevention of complications? A call for structured patient education Heart 86 2001 74 80
10. J.G. Reiss, R.W. Gibson, L.R. Walker Health care transition: youth, family, and provider perspectives Pediatrics 115 2005 112 120
11. A. Verstappen, D. Pearson, A.H. Kovacs Adult congenital heart disease: the patient's perspective Cardiol Clin 24 2006 515 529 v
12. P. Khairy, J.A. Hosn, C. Broberg Multicenter research in adult congenital heart disease Int J Cardiol 129 2008 155 159
13. P. Moons, D. Hilderson, K. Van Deyk Implementation of transition programs can prevent another lost generation of patients with congenital heart disease Eur J Cardiovasc Nurs 7 2008 259 263
14. M.Z. Gurvitz, M. Inkelas, M. Lee, K. Stout, J. Escarce, R.K. Chang Changes in hospitalization patterns among patients with congenital heart disease during the transition from adolescence to adulthood J Am Coll Cardiol 49 2007 875 882
15. A. Knauth, A. Verstappen, J. Reiss, G.D. Webb Transition and transfer from pediatric to adult care of the young adult with complex congenital heart disease Cardiol Clin 24 2006 619 629 vi
16. A.S. Mackie, R. Ionescu-Ittu, J. Therrien, L. Pilote, M. Abrahamowicz, A.J. Marelli Children and adults with congenital heart disease lost to follow-up: who and when? Circulation 120 2009 302 309
17. G.J. Reid, M.J. Irvine, B.W. McCrindle Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects Pediatrics 113 2004 e197 e205