메뉴 건너뛰기




Volumn 25, Issue 1, 2017, Pages 11-25

Impacts of COPD on family carers and supportive interventions: a narrative review

Author keywords

chronic obstructive pulmonary disease; experience; family members; informal care giving; support

Indexed keywords

CAREGIVER; CHRONIC DISEASE; CHRONIC OBSTRUCTIVE LUNG DISEASE; HUMAN; NURSING; PSYCHOLOGY; SELF CARE; SOCIAL SUPPORT;

EID: 84949681290     PISSN: 09660410     EISSN: 13652524     Source Type: Journal    
DOI: 10.1111/hsc.12292     Document Type: Review
Times cited : (44)

References (60)
  • 1
    • 84897585072 scopus 로고    scopus 로고
    • Perceived breathlessness and psychological distress among patients with chronic obstructive pulmonary disease and their spouses
    • Al-Gamal E. & Yorke J. (2014) Perceived breathlessness and psychological distress among patients with chronic obstructive pulmonary disease and their spouses. Nursing and Health Sciences 16, 103–111.
    • (2014) Nursing and Health Sciences , vol.16 , pp. 103-111
    • Al-Gamal, E.1    Yorke, J.2
  • 2
    • 34548689613 scopus 로고    scopus 로고
    • The impact of chronic diseases: the partner's perspective
    • Baanders A.N. & Heijmans M.J. (2007) The impact of chronic diseases: the partner's perspective. Family and Community Health 30, 305–317.
    • (2007) Family and Community Health , vol.30 , pp. 305-317
    • Baanders, A.N.1    Heijmans, M.J.2
  • 3
    • 22544457212 scopus 로고    scopus 로고
    • Chronic obstructive pulmonary disease: a phenomenological study of patients’ experiences
    • Barnett M. (2005) Chronic obstructive pulmonary disease: a phenomenological study of patients’ experiences. Journal of Clinical Nursing 14, 805–812.
    • (2005) Journal of Clinical Nursing , vol.14 , pp. 805-812
    • Barnett, M.1
  • 4
    • 0036715863 scopus 로고    scopus 로고
    • ‘The Hidden Client’ – women caring for husbands with COPD: their experience of quality of life
    • Bergs D. (2002) ‘The Hidden Client’ – women caring for husbands with COPD: their experience of quality of life. Journal of Clinical Nursing 11, 613–621.
    • (2002) Journal of Clinical Nursing , vol.11 , pp. 613-621
    • Bergs, D.1
  • 5
    • 65249135551 scopus 로고    scopus 로고
    • Caregiver-assisted coping skills training for patients with COPD: background, design, and methodological issues for the INSPIRE-II study
    • Blumenthal J.A., Keefe F.J., Babyak M.A. et al. (2009) Caregiver-assisted coping skills training for patients with COPD: background, design, and methodological issues for the INSPIRE-II study. Clinical Trials 6, 172–184.
    • (2009) Clinical Trials , vol.6 , pp. 172-184
    • Blumenthal, J.A.1    Keefe, F.J.2    Babyak, M.A.3
  • 6
    • 58349119450 scopus 로고    scopus 로고
    • A review of the information and support needs of family carers of patients with chronic obstructive pulmonary disease
    • Caress A.-L., Luker K.A., Chalmers K.I. & Salmon M.P. (2009) A review of the information and support needs of family carers of patients with chronic obstructive pulmonary disease. Journal of Clinical Nursing 18, 479–491.
    • (2009) Journal of Clinical Nursing , vol.18 , pp. 479-491
    • Caress, A.-L.1    Luker, K.A.2    Chalmers, K.I.3    Salmon, M.P.4
  • 7
    • 84923534423 scopus 로고    scopus 로고
    • CASP, Oxford
    • Critical Appraisal Skills Programme (CASP) (2014) CASP Checklists. Available at: http://media.wix.com/ugd/dded87_29c5b002d99342f788c6ac670e49f274.pdf. CASP, Oxford.
    • (2014) CASP Checklists
  • 9
    • 0036728672 scopus 로고    scopus 로고
    • A randomized control trial of nursing-based case management for patients with chronic obstructive pulmonary disease
    • Egan E., Clavarino A., Burridge L., Teuwen M. & White E. (2002) A randomized control trial of nursing-based case management for patients with chronic obstructive pulmonary disease. Lippincott's Case Management 7, 170–179.
    • (2002) Lippincott's Case Management , vol.7 , pp. 170-179
    • Egan, E.1    Clavarino, A.2    Burridge, L.3    Teuwen, M.4    White, E.5
  • 10
    • 43649086417 scopus 로고    scopus 로고
    • Living with chronic obstructive pulmonary disease at the end of life: a phenomenological study
    • Ek K. & Ternestedt B.-M. (2008) Living with chronic obstructive pulmonary disease at the end of life: a phenomenological study. Journal of Advanced Nursing 62, 470–478.
    • (2008) Journal of Advanced Nursing , vol.62 , pp. 470-478
    • Ek, K.1    Ternestedt, B.-M.2
  • 11
    • 84894700252 scopus 로고    scopus 로고
    • Caring for relatives with chronic obstructive pulmonary disease: how does the disease severity impact on family carers?
    • Figueiredo D., Gabriel R., Jácome C., Cruz J. & Marques A. (2014) Caring for relatives with chronic obstructive pulmonary disease: how does the disease severity impact on family carers? Aging and Mental Health 18, 385–393.
    • (2014) Aging and Mental Health , vol.18 , pp. 385-393
    • Figueiredo, D.1    Gabriel, R.2    Jácome, C.3    Cruz, J.4    Marques, A.5
  • 12
    • 84901237397 scopus 로고    scopus 로고
    • Day-to-day living with severe chronic obstructive pulmonary disease: towards a family-based approach to the illness impacts
    • Gabriel R., Figueiredo D., Jacome C., Cruz J. & Marques A. (2014) Day-to-day living with severe chronic obstructive pulmonary disease: towards a family-based approach to the illness impacts. Psychology & Health 29, 967–983.
    • (2014) Psychology & Health , vol.29 , pp. 967-983
    • Gabriel, R.1    Figueiredo, D.2    Jacome, C.3    Cruz, J.4    Marques, A.5
  • 13
    • 73749087579 scopus 로고    scopus 로고
    • Exploring the care needs of patients with advanced COPD: an overview of the literature
    • Gardiner C., Gott M., Payne S. et al. (2010) Exploring the care needs of patients with advanced COPD: an overview of the literature. Respiratory Medicine 104, 159–165.
    • (2010) Respiratory Medicine , vol.104 , pp. 159-165
    • Gardiner, C.1    Gott, M.2    Payne, S.3
  • 15
    • 84884715461 scopus 로고    scopus 로고
    • The impact of patients’ chronic disease on family quality of life: an experience from 26 specialties
    • Golics C.J., Basra M.K., Salek M.S. & Finlay A.Y. (2013) The impact of patients’ chronic disease on family quality of life: an experience from 26 specialties. International Journal of General Medicine 6, 787–798.
    • (2013) International Journal of General Medicine , vol.6 , pp. 787-798
    • Golics, C.J.1    Basra, M.K.2    Salek, M.S.3    Finlay, A.Y.4
  • 16
    • 0034119215 scopus 로고    scopus 로고
    • Respite programs for caregivers of persons with dementia: a review with practice implications
    • Gottlieb B.H. & Johnson J. (2000) Respite programs for caregivers of persons with dementia: a review with practice implications. Aging and Mental Health 4, 119–129.
    • (2000) Aging and Mental Health , vol.4 , pp. 119-129
    • Gottlieb, B.H.1    Johnson, J.2
  • 17
    • 84868344417 scopus 로고    scopus 로고
    • The impact of caring for those with chronic obstructive pulmonary disease (COPD) on carers’ psychological well-being: a narrative review
    • Grant M., Cavanagh A. & Yorke J. (2012) The impact of caring for those with chronic obstructive pulmonary disease (COPD) on carers’ psychological well-being: a narrative review. International Journal of Nursing Studies 49, 1459–1471.
    • (2012) International Journal of Nursing Studies , vol.49 , pp. 1459-1471
    • Grant, M.1    Cavanagh, A.2    Yorke, J.3
  • 18
    • 70349660125 scopus 로고    scopus 로고
    • Experiences and needs of bereaved carers during palliative and end-of-life care for people with chronic obstructive pulmonary disease
    • Hasson F., Spence A., Waldron M., Kernohan G., McLaughlin D., Watson B. & Cochrane B. (2009) Experiences and needs of bereaved carers during palliative and end-of-life care for people with chronic obstructive pulmonary disease. Journal of Palliative Care 25, 157–163.
    • (2009) Journal of Palliative Care , vol.25 , pp. 157-163
    • Hasson, F.1    Spence, A.2    Waldron, M.3    Kernohan, G.4    McLaughlin, D.5    Watson, B.6    Cochrane, B.7
  • 19
    • 67650670770 scopus 로고    scopus 로고
    • Impact of caregiving on health and quality of life: a comparative population-based study of caregivers for elderly persons and noncaregivers
    • Ho S.C., Chan A., Woo J., Chong P. & Sham A. (2009) Impact of caregiving on health and quality of life: a comparative population-based study of caregivers for elderly persons and noncaregivers. The Journals of Gerontology Series A: Biological Sciences and Medical Sciences 64A, 873–879.
    • (2009) The Journals of Gerontology Series A: Biological Sciences and Medical Sciences , vol.64A , pp. 873-879
    • Ho, S.C.1    Chan, A.2    Woo, J.3    Chong, P.4    Sham, A.5
  • 20
    • 84872397754 scopus 로고    scopus 로고
    • Implementing a palliative care trial in advanced COPD: a feasibility assessment (the COPD IMPACT study)
    • Horton R., Rocker G., Dale A., Young J., Hernandez P. & Sinuff T. (2013) Implementing a palliative care trial in advanced COPD: a feasibility assessment (the COPD IMPACT study). Journal of Palliative Medicine 16, 67–73.
    • (2013) Journal of Palliative Medicine , vol.16 , pp. 67-73
    • Horton, R.1    Rocker, G.2    Dale, A.3    Young, J.4    Hernandez, P.5    Sinuff, T.6
  • 21
    • 84858281949 scopus 로고    scopus 로고
    • Informal care-giving in advanced chronic obstructive pulmonary disease: lay knowledge and experience
    • Hynes G., Stokes A. & McCarron M. (2012) Informal care-giving in advanced chronic obstructive pulmonary disease: lay knowledge and experience. Journal of Clinical Nursing 21, 1068–1077.
    • (2012) Journal of Clinical Nursing , vol.21 , pp. 1068-1077
    • Hynes, G.1    Stokes, A.2    McCarron, M.3
  • 22
    • 84901776158 scopus 로고    scopus 로고
    • Predicting anxiety and depression among family carers of people with chronic obstructive pulmonary disease
    • Jácome C., Figueiredo D., Gabriel R., Cruz J. & Marques A. (2014) Predicting anxiety and depression among family carers of people with chronic obstructive pulmonary disease. International Psychogeriatrics 26, 1191–1199.
    • (2014) International Psychogeriatrics , vol.26 , pp. 1191-1199
    • Jácome, C.1    Figueiredo, D.2    Gabriel, R.3    Cruz, J.4    Marques, A.5
  • 24
    • 34047224294 scopus 로고    scopus 로고
    • Cancer caregivers’ quality of life: effects of gender, relationship, and appraisal
    • Kim Y., Baker F. & Spillers R.L. (2007) Cancer caregivers’ quality of life: effects of gender, relationship, and appraisal. Journal of Pain and Symptom Management 34, 294–304.
    • (2007) Journal of Pain and Symptom Management , vol.34 , pp. 294-304
    • Kim, Y.1    Baker, F.2    Spillers, R.L.3
  • 25
    • 3142759691 scopus 로고    scopus 로고
    • Families and chronic illness: a synthesis of current research
    • Knafl K.A. & Gilliss C.L. (2002) Families and chronic illness: a synthesis of current research. Journal of Family Nursing 8, 178–198.
    • (2002) Journal of Family Nursing , vol.8 , pp. 178-198
    • Knafl, K.A.1    Gilliss, C.L.2
  • 26
    • 68549101842 scopus 로고    scopus 로고
    • The PRISMA statement for reporting systematic reviews and meta-analyses of studies that evaluate healthcare interventions: explanation and elaboration
    • Liberati A., Altman D.G., Tetzlaff J. et al. (2009) The PRISMA statement for reporting systematic reviews and meta-analyses of studies that evaluate healthcare interventions: explanation and elaboration. British Medical Journal 339, b2700.
    • (2009) British Medical Journal , vol.339 , pp. b2700
    • Liberati, A.1    Altman, D.G.2    Tetzlaff, J.3
  • 27
    • 16344362446 scopus 로고    scopus 로고
    • Caring for family members with chronic physical illness: a critical review of caregiver literature
    • Lim J.W. & Zebrack B. (2004) Caring for family members with chronic physical illness: a critical review of caregiver literature. Health and Quality of Life Outcomes 2, 50.
    • (2004) Health and Quality of Life Outcomes , vol.2 , pp. 50
    • Lim, J.W.1    Zebrack, B.2
  • 28
    • 84879778419 scopus 로고    scopus 로고
    • Conceptions of daily life in women living with a man suffering from chronic obstructive pulmonary disease
    • Lindqvist G., Albin B., Heikkila K. & Hjelm K. (2013) Conceptions of daily life in women living with a man suffering from chronic obstructive pulmonary disease. Primary Health Care Research & Development 14, 40–51.
    • (2013) Primary Health Care Research & Development , vol.14 , pp. 40-51
    • Lindqvist, G.1    Albin, B.2    Heikkila, K.3    Hjelm, K.4
  • 29
    • 0032836422 scopus 로고    scopus 로고
    • The impact of stroke on informal carers: a literature review
    • Low J.T.S., Payne S. & Roderick P. (1999) The impact of stroke on informal carers: a literature review. Social Science and Medicine 49, 711–725.
    • (1999) Social Science and Medicine , vol.49 , pp. 711-725
    • Low, J.T.S.1    Payne, S.2    Roderick, P.3
  • 30
  • 31
    • 7444252761 scopus 로고    scopus 로고
    • Is it beneficial to involve a family member? A meta-analysis of psychosocial interventions for chronic illness
    • Martire L.M., Lustig A.P., Schulz R., Miller G.E. & Helgeson V.S. (2004) Is it beneficial to involve a family member? A meta-analysis of psychosocial interventions for chronic illness. Health Psychology 23, 599–611.
    • (2004) Health Psychology , vol.23 , pp. 599-611
    • Martire, L.M.1    Lustig, A.P.2    Schulz, R.3    Miller, G.E.4    Helgeson, V.S.5
  • 32
    • 22244435945 scopus 로고    scopus 로고
    • Systematically reviewing qualitative and quantitative evidence to inform management and policy-making in the health field
    • Mays N., Pope C. & Popay J. (2005) Systematically reviewing qualitative and quantitative evidence to inform management and policy-making in the health field. Journal of Health Services Research and Policy 10, 6–20.
    • (2005) Journal of Health Services Research and Policy , vol.10 , pp. 6-20
    • Mays, N.1    Pope, C.2    Popay, J.3
  • 33
    • 26444533454 scopus 로고    scopus 로고
    • Determinants of caregiving burden and quality of life in caregivers of stroke patients
    • McCullagh E., Brigstocke G., Donaldson N. & Kalra L. (2005) Determinants of caregiving burden and quality of life in caregivers of stroke patients. Stroke 36, 2181–2186.
    • (2005) Stroke , vol.36 , pp. 2181-2186
    • McCullagh, E.1    Brigstocke, G.2    Donaldson, N.3    Kalra, L.4
  • 37
    • 1842562948 scopus 로고    scopus 로고
    • The experiences of close relatives living with a person with serious chronic illness
    • Öhman M. & Söderberg S. (2004) The experiences of close relatives living with a person with serious chronic illness. Qualitative Health Research 14, 396–410.
    • (2004) Qualitative Health Research , vol.14 , pp. 396-410
    • Öhman, M.1    Söderberg, S.2
  • 38
    • 84898712121 scopus 로고    scopus 로고
    • Facilitating change and adaptation: the experiences of current and bereaved carers of patients with severe chronic obstructive pulmonary disease
    • Philip J., Gold M., Brand C., Miller B., Douglass J. & Sundararajan V. (2014) Facilitating change and adaptation: the experiences of current and bereaved carers of patients with severe chronic obstructive pulmonary disease. Journal of Palliative Medicine 17, 421–427.
    • (2014) Journal of Palliative Medicine , vol.17 , pp. 421-427
    • Philip, J.1    Gold, M.2    Brand, C.3    Miller, B.4    Douglass, J.5    Sundararajan, V.6
  • 39
    • 33750282609 scopus 로고    scopus 로고
    • Helping caregivers of persons with dementia: which interventions work and how large are their effects?
    • Pinquart M. & Sörensen S. (2006a) Helping caregivers of persons with dementia: which interventions work and how large are their effects? International Psychogeriatrics 18, 577–595.
    • (2006) International Psychogeriatrics , vol.18 , pp. 577-595
    • Pinquart, M.1    Sörensen, S.2
  • 41
    • 84856980537 scopus 로고    scopus 로고
    • Care and chronic illness: family caregiver's viewpoint in northeast Brazil
    • Pinto J.M.D. & Nations M.K. (2012) Care and chronic illness: family caregiver's viewpoint in northeast Brazil. Ciencia & Saude Coletiva 17, 521–530.
    • (2012) Ciencia & Saude Coletiva , vol.17 , pp. 521-530
    • Pinto, J.M.D.1    Nations, M.K.2
  • 42
    • 34748907206 scopus 로고    scopus 로고
    • Assessment of the burden of caregiving for patients with chronic obstructive pulmonary disease
    • Pinto R.A., Holanda M.A., Medeiros M.M.C., Mota R.M.S. & Pereira E.D.B. (2007) Assessment of the burden of caregiving for patients with chronic obstructive pulmonary disease. Respiratory Medicine 101, 2402–2408.
    • (2007) Respiratory Medicine , vol.101 , pp. 2402-2408
    • Pinto, R.A.1    Holanda, M.A.2    Medeiros, M.M.C.3    Mota, R.M.S.4    Pereira, E.D.B.5
  • 45
    • 0037613363 scopus 로고    scopus 로고
    • Family burden and quality of life
    • Sales E. (2003) Family burden and quality of life. Quality of Life Research 12, 33–41.
    • (2003) Quality of Life Research , vol.12 , pp. 33-41
    • Sales, E.1
  • 46
    • 33644815878 scopus 로고    scopus 로고
    • Assessing family caregiver's mental health using a statistically derived cut-off score for the Zarit Burden Interview
    • Schreiner A.S., Morimoto T., Arai Y. & Zarit S. (2006) Assessing family caregiver's mental health using a statistically derived cut-off score for the Zarit Burden Interview. Aging and Mental Health 10, 107–111.
    • (2006) Aging and Mental Health , vol.10 , pp. 107-111
    • Schreiner, A.S.1    Morimoto, T.2    Arai, Y.3    Zarit, S.4
  • 47
    • 2342596564 scopus 로고    scopus 로고
    • Family caregiving of persons with dementia: prevalence, health effects, and support strategies
    • Schulz R. & Martire L.M. (2004) Family caregiving of persons with dementia: prevalence, health effects, and support strategies. American Journal of Geriatric Psychiatry 12, 240–249.
    • (2004) American Journal of Geriatric Psychiatry , vol.12 , pp. 240-249
    • Schulz, R.1    Martire, L.M.2
  • 48
    • 7944238611 scopus 로고    scopus 로고
    • Living with severe chronic obstructive pulmonary disease (COPD): perceptions of patients and their carers. An interpretative phenomenological analysis
    • Seamark D.A., Blake S.D., Seamark C.J. & Halpin D.M.G. (2004) Living with severe chronic obstructive pulmonary disease (COPD): perceptions of patients and their carers. An interpretative phenomenological analysis. Palliative Medicine 18, 619–625.
    • (2004) Palliative Medicine , vol.18 , pp. 619-625
    • Seamark, D.A.1    Blake, S.D.2    Seamark, C.J.3    Halpin, D.M.G.4
  • 51
    • 0036288410 scopus 로고    scopus 로고
    • How effective are interventions with caregivers? An updated meta-analysis
    • Sorensen S., Pinquart M. & Duberstein P. (2002) How effective are interventions with caregivers? An updated meta-analysis. Gerontologist 42, 356–372.
    • (2002) Gerontologist , vol.42 , pp. 356-372
    • Sorensen, S.1    Pinquart, M.2    Duberstein, P.3
  • 52
    • 33749658552 scopus 로고    scopus 로고
    • Dementia care: mental health effects, intervention strategies, and clinical implications
    • Sorensen S., Duberstein P., Gill D. & Pinquart M. (2006) Dementia care: mental health effects, intervention strategies, and clinical implications. Lancet Neurology 5, 961–973.
    • (2006) Lancet Neurology , vol.5 , pp. 961-973
    • Sorensen, S.1    Duberstein, P.2    Gill, D.3    Pinquart, M.4
  • 54
    • 78649457772 scopus 로고    scopus 로고
    • Review of the literature on the effects of caring for a patient with cancer
    • Stenberg U., Ruland C.M. & Miaskowski C. (2010) Review of the literature on the effects of caring for a patient with cancer. Psycho-Oncology 19, 1013–1025.
    • (2010) Psycho-Oncology , vol.19 , pp. 1013-1025
    • Stenberg, U.1    Ruland, C.M.2    Miaskowski, C.3
  • 55
    • 47749126232 scopus 로고    scopus 로고
    • Methods for the thematic synthesis of qualitative research in systematic reviews
    • Thomas J. & Harden A. (2008) Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Medical Research Methodology 8, 45.
    • (2008) BMC Medical Research Methodology , vol.8 , pp. 45
    • Thomas, J.1    Harden, A.2
  • 56
    • 84873956600 scopus 로고    scopus 로고
    • Global strategy for the diagnosis, management, and prevention of chronic obstructive pulmonary disease
    • Vestbo J., Hurd S.S., Agustí A.G. et al. (2013) Global strategy for the diagnosis, management, and prevention of chronic obstructive pulmonary disease. American Journal of Respiratory and Critical Care Medicine 187, 347–365.
    • (2013) American Journal of Respiratory and Critical Care Medicine , vol.187 , pp. 347-365
    • Vestbo, J.1    Hurd, S.S.2    Agustí, A.G.3
  • 59
    • 54149090275 scopus 로고    scopus 로고
    • WHO Library Cataloguing-in-Publication Data, Geneva
    • World Health Organization (2008) The Global Burden of Disease: 2004 Update. WHO Library Cataloguing-in-Publication Data, Geneva.
    • (2008) The Global Burden of Disease: 2004 Update
  • 60
    • 84888609113 scopus 로고    scopus 로고
    • The experience of a multidisciplinary programme of pulmonary rehabilitation in primary health care from the next of kin's perspective: a qualitative study
    • Zakrisson A.B., Theander K. & Anderzén-Carlsson A. (2013) The experience of a multidisciplinary programme of pulmonary rehabilitation in primary health care from the next of kin's perspective: a qualitative study. Primary Care Respiratory Journal 22, 459–465.
    • (2013) Primary Care Respiratory Journal , vol.22 , pp. 459-465
    • Zakrisson, A.B.1    Theander, K.2    Anderzén-Carlsson, A.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.