The impact of stroke on informal carers: A literature review

Social Science and Medicine

Volumn 49, Issue 6, 1999, Pages 711-725

  Low, Joseph T S ^a   Payne, Sheila ^a   Roderick, Paul ^a  

^a UNIVERSITY OF SOUTHAMPTON   (United Kingdom)

Author keywords

Carers; Delivery of health care; Quality of life; Stroke; Stroke services

Indexed keywords

CAREGIVER; COPING BEHAVIOR; HEALTH CARE DELIVERY; HEALTH SERVICE; HUMAN; QUALITY OF LIFE; REVIEW; STROKE;

ADAPTATION, PSYCHOLOGICAL; CAREGIVERS; CEREBROVASCULAR ACCIDENT; COST OF ILLNESS; HEALTH SERVICES; HUMANS; QUALITY OF LIFE; RESEARCH DESIGN; STRESS, PSYCHOLOGICAL;

EID: 0032836422     PISSN: 02779536     EISSN: None     Source Type: Journal    
DOI: 10.1016/S0277-9536(99)00194-X     Document Type: Review

References (42)

1. Anderson C.S., Linto J., Stewart Wynne E.G. A population-based assessment of the impact and burden of caregiving for long-term stroke survivors. Stroke. 26:1995;843-849.
2. Bamford J., Sandercock P., Dennis M., Warlow C., Jones L., McPherson K., Vessey M., Fowler G., Molyneux A., Hughes T., Burn J., Wade D. A propective study of acute cerebrovascular disease in the community: the Oxfordshire Community Project 1981-86. 1. Methodology, demography and incident cases of first-ever stroke. Journal of Neurology, Neurosurgery and Psychiatry. 51:1988;1373-1380.
3. Braithwaite V., McGown A. Caregivers emotional well-being and their capacity to learn about stroke. Journal of Advanced Nursing. 18:1993;195-202.
4. Casas M.S. Experience in coping with stroke - a survey of caregivers. Journal of Rehabilitation. 55:1989;37-43.
5. de Haan R., Aaronson N., Limberg M., Langton-Hewer R., van Crevel H. Measuring quality of life in stroke. Stroke. 24:1992;320-327.
6. Dennis M., O'Rourke S., Slattery J., Staniforth T., Warlow C. Evaluation of a stroke family care worker: results of a randomised controlled trial. British Medical Journal. 314:1997;1071-1076.
7. Draper B.M., Poulos C.J., Cole A.M.D., Poulos R.G., Ehrlich F. A comparison of caregivers for elderly stroke and dementia victims. Journal of the American Geriatrics Society. 40:1992;896-901.
8. Evans R.L., Matlock A., Bishop D.S., Stranahan S., Pederson C. Family intervention after stroke: Does counseling or education help? Stroke. 19:1988;1243-1249.
9. Evans R.L., Connis R.T., Bishop D.S., Hendricks R.D., Haselkorn J.K. Stroke: A family dilemma. Disability and Rehabilitation. 16:1994;110-118.
10. Forster A., Young J. Specialist nurse support for patients with stroke in the community: a randomised controlled trial. British Medical Journal. 312:1996;1642-1646.
11. Geddes J.M.L., Chamberlain M.A. Improving social outcome after stroke: an evaluation of the volunteer stroke scheme. Clinical Rehabilitation. 8:1994;116-126.
12. Gladman J.R.F., Lomas S., Lincoln N.B. Provision of physiotherapy and occupational therapy in outpatient departments and day hospitals for stroke patients in Nottingham. International Disability Studies. 13:1991;38-41.
13. Greveson G.C., Gray C.S., French J.M., James O.F.W. Long-term outcome for patients and carers following hospital admission for stroke. Age and Ageing. 20:1991;337-344.
14. Greveson G.C., James O.F.W. Improving long-term outcome after stroke - the views of patients and carers. Health Trends. 23:1991;161-162.
15. Hall J.A., Dornan M.C. Patient sociodemographic characteristics as predictors of satisfaction with medical care: a meta-analysis. Social Science & Medicine. 30:1990;811-818.
16. Hancock R., Jarvis C. The long term effects of being a carer. 1994;HMSO, London.
17. Hodgson S.P., Wood V.A., Langton-Hewer R. Identification of stroke carers 'at risk': a preliminary study of the predictors of carers' psychological well-being at one year post stroke. Clinical Rehabilitation. 10:1996;337-346.
18. Kinney J.M., Stephens M.A.P., Franks M.M., Norris V.K. Stresses and satisfactions of family caregivers to older stroke patients. Journal of Applied Gerontology. 14:1995;3-21.
19. Logan P.A., Ahern J., Gladman J.R.F., Lincoln N.B. A randomized controlled trial of enhanced Social Service occupational therapy for stroke patients. Clinical Rehabilitation. 11:1997;107-113.
20. Macnamara S.E., Gummow L.J., Goka R., Gregg C.H. Caregiver strain: need for late poststroke intervention. Rehabilitation Psychology. 35:(2):1990;71-78. 00905550.
21. Malmgren R., Bamford J., Warlow C., Sandercock P., Slattery J. Projecting the number of patients with first ever strokes and patients newly handicapped by stroke in England and Wales. British Medical Journal. 298:1989;656-659.
22. Matson N. Coping, caring and stress: a study of stroke carers and carers of older confused people. British Journal of Clinical Psychology. 33:1994;333-344.
23. McLean J., Roper-Hall A., Mayer P., Main A. Serviceneeds of stroke survivors and their informal carers: a pilot study. Journal of Advanced Nursing. 16:1991;559-564.
24. Morris P.L., Robinson R.G., Raphael B., Bishop D. The relationship between the perception of social support and post-stroke depression in hospitalized patients. Psychiatry. 54:1991;306-316.
25. Norris V.K., Stephens M.P., Kinney J.M. The impact of family interactions on recovery from stroke: Help or hindrance? Annual Scientific Meeting of the Gerontological Society of America (1986, Chicago, IL). Gerontologist. 30:1990;5-542.
26. Periard M.E., Ames B.D. Lifestyle changes and coping patterns among caregivers of stroke survivors. Public Health Nursing. 10:1993;2-256.
27. Pound P., Gompertz P., Ebrahim S. Development and results of a questionnaire to measure carer satisfaction after stroke. Journal of Epidemioplogy and Community Health. 47:1993;500-505.
28. Purk J.K., Richardson R.A. Older adult stroke patients and their spousal caregivers. Families in Society - The Journal of Contemporary Human Services. 75:1994;608-615.
29. Schulz R., Tompkins C.A. Life events and changes in social relationships: examples, mechanisms, and measurement. Social support in social and clinical psychology. Journal of Social and Clinical Psychology. 9:1990;69-77.
30. Schulz R., Tompkins C.A., Rau M.T. A longitudinal study of the psychosocial impact of stroke on primary support persons. Psychology and Ageing. 3:1988;131-141.
31. Rosenthal S.G., Pituch M.J., Greninger L.O., Metress E.S. Perceived needs of wivies of stroke patients. Rehabilitation Nursing. 18:1993;148-153.
32. Ross S., Morris R.G. Psychological adjustment of the spouses of aphasic stroke patients. International Journal of Rehabilitation Research. 11:1988;383-386.
33. Thompson S.C., Bundek N.I., Sobolew Shubin A. The caregivers of stroke patients: an investigation of factors associated with depression. Journal of Applied Social Psychology. 20:1990;15-129. 00219029.
34. Tyman R.V. The stress experienced by caregivers of stroke survivors: Is it all in the mind, or is it also in the body? Clinical Rehabilitation. 8:1994;341-345.
35. van Veenedaal H., Grinspun D.R., Adriannse H.P. Educational needs of stroke survivors and their family members, as perceived by themselves and by health professionals. Patient Education and Counselling. 28:1996;265-276.
36. Wade D.T., Legh-Smith J., Langton Hewer R. Effects of living with and looking after survivors of a stroke. British Medical Journal. 293:1986;418-420.
37. Wade D.T. Stroke (acute cerebrovascular disease). Stevens A., Raftery J. Health Care Needs Assessment. 1:1994;Radcliffe Medical Press Ltd, Oxford.
38. Wellwood I., Dennis M., Warlow C. Patients' and carers' satisfaction with acute stroke management. Age and Ageing. 24:1995;519-524.
39. Widen Holmqvist L., De Pedro Cuesta J., Moller G., Holm M., Siden A. A pilot study of rehabilitation at home after stroke: a health-economic appraisal. Scandinavian Journal of Rehabilitation Medicine. 28:1996;9-18.
40. Stroke-1989. Recommendations on stroke prevention, diagnosis, and therapy. Stroke. 20:1989;1407-1431.
41. Williams A.M. Caregivers of persons with stroke - their physical and emotional well-being. Quality of Life Research. 2:1993;213-220.
42. Young J.B., Forster A. The Bradford community stroke trial: results at six months. British Medical Journal. 304:1992;1085-1089.