The impact of caring for those with chronic obstructive pulmonary disease (COPD) on carers' psychological well-being: A narrative review

International Journal of Nursing Studies

Volumn 49, Issue 11, 2012, Pages 1459-1471

  Grant, Maria ^a   Cavanagh, Alison ^a   Yorke, Janelle ^a  

^a UNIVERSITY OF SALFORD   (United Kingdom)

Author keywords

Carers; Chronic obstructive pulmonary disease; Respiratory; Review

Indexed keywords

CAREGIVER; CHRONIC OBSTRUCTIVE LUNG DISEASE; HUMAN; NURSING; PSYCHOLOGICAL ASPECT; REVIEW;

CAREGIVERS; HUMANS; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE;

EID: 84868344417     PISSN: 00207489     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ijnurstu.2012.02.010     Document Type: Review

References (55)

1. Beesley L. Informal Care in England 2006, The King's Fund, London, UK.
2. Bergs D. " The Hidden Client" - women caring for husbands with COPD: their experience of quality of life. Journal of Clinical Nursing 2002, 11(5):613-621.
3. Biegel D.E., Schulz R. Caregiving and caregiver interventions in aging and mental illness. Family Relationships 1999, 48:345-352.
4. Blumenthal J.A., Keefe F.J., Babyak M.A., Fenwick C.V., Johnson J.M., Stott K., Funk R.K., McAdams M.J., Palmer S., Martinu T., Baucom D., Diaz P.T., Emery C. Caregiver-assisted coping skills training for patients with COPD: background, design, and methodological issues for the INSPIRE-II study. Clinical Trials 2009, 6(2):172-184.
5. Booth S., Silvester S., Todd C. Breathlessness in cancer and chronic obstructive pulmonary disease: using a qualitative approach to describe the experience of patients and carers. Palliative and Supportive Care 2003, 1(4):337-344.
6. Boyle A.H. An integrative review of the impact of COPD on families. Southern Online Journal of Nursing Research 2009, 9(3).
7. Cain C., Wicks M.N. Caregiver attributes as correlates of burden in family caregivers coping with chronic obstructive pulmonary disease. Journal of Family Nursing 2000, 6(1):46-68.
8. Caress A.L., Luker K.A., Chalmers K.I., Salmon M.P. A review of the information and support needs of family carers of patients with chronic obstructive pulmonary disease. Journal of Clinical Nursing 2009, 18:479-491.
9. Chapman J.M., Reeder L.G., Massey F.J., Borun R., Picken B., Browning G.G., Coulson A.H., Zimmerman D.H. Relationship of stress, tranquilizers and serum cholesterol levels in a sample population under study for coronary heart disease. American Journal of Epidemiology 1966, 83:227-235.
10. Commission for Social Care Inspection Performance Ratings for Social Services in England 2005, CSCO, London UK.
11. Cossette S., Levesque L. Caregiving tasks as predictors of mental health of wife caregivers of men with chronic obstructive pulmonary disease. Research in Nursing and Health 1993, 16(4):251-263.
12. Currow D.C., Ward A., Clark K., Burns C.M., Abernethy A.P. Caregivers for people with end-stage lung disease: characteristics and unmet needs in the whole population. International Journal of COPD 2008, 3(4):753-762.
13. Department of Health Caring about Carers: Government Information for Carers 2005, The Stationary Office, London UK.
14. Department of Health Our Health, Our Care, Our Say: A New Direction for Community Services 2006, The Stationery Office, London UK.
15. Department of Health Strategy for Services for Chronic Obstructive Pulmonary Disease (COPD) in England - Consultation Document 2010, Web site: http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitalasset/dh_113279.pdf (accessed 11.04.11).
16. Effing T., Monninkhof E.M., van der Valk P.D., van der Palen J., van Herwaarden C.L., Partidge M.R., Walters E.H., Zielhuis G.A. Self-management education for patients with chronic obstructive pulmonary disease. Cochrane Database of Systematic Reviews 2007, 17(4):CD002990.
17. Elmstahl S., Malmberg B., Annerstedt L. Caregiver's burden scale. Archives of Physical Medicine Rehabilitation 1996, 77:177-182.
18. Fried T.R., Bradley E.H., O'Leary J.R., Byers A.L. Unmet desire for caregiver-patient communication and increased caregiver burden. Journal of the American Geriatrics Society 2005, 53(1):59-65.
19. Grant M.J., Booth A. A typology of reviews: an analysis of 14 review types and associated methodologies. Health Information and Libraries Journal 2009, 26:91-108.
20. Greene J.G., Smith R., Gardiner M., Timbury G.C. Measuring behavioural disturbance of elderly demented patients in the community and its effects on relatives: a factor analytic study. Age and Aging 1982, 11:121-126.
21. Gullick J., Stainton M.C. Living with chronic obstructive pulmonary disease: developing conscious body management in a shrinking life-world. Journal of Advanced Nursing 2008, 64(6):605-614.
22. Hasson F., Spence A., Waldron M., Kernohan G., McLaughlin D., Watson B., Cochrane B. Experiences and needs of bereaved carers during palliative and end of life care for people with COPD. Journal of Palliative Care 2009, 25(3):157-163.
23. Hogerty G., Katz M. Norm of adjustment and social behaviour. Archives of General Psychiatry 1971, 25:470-480.
24. Jones P.W., Lareau S., Mahler D.A. Measuring the effects of COPD on the patient. Respiratory Medicine 2005, 99:S11-S18.
25. Keele-Card G., Foxall M.J., Barron C.R. Loneliness, depression, and social support of patients with COPD and their spouses. Public Health Nursing 1993, 10(4):245-251.
26. Leidy N., Traver G.A. Adjustment and social behaviour in older adults with chronic obstructive pulmonary disease: the family's perspective. Journal of Advanced Nursing 1996, 23(2):252-259.
27. Mannino D.M., Buist A.S. Global burden of COPD: risk factors, prevalence and future trends. Lancet 2007, 370:765-773.
28. Mays N., Pope C., Popay J. Systematically reviewing qualitative and quantitative evidence to inform management and policy-making in the health field. Journal of Health Services Research Policy 2005, 10(l):16-20.
29. McNair D.M., Lorr M., Droppleman L.F. Profile Mood States 1981, Educational and Industrial Testing Service, San Diego, CA.
30. Molloy G.J., Johnston D.W., Witham M. Family caregiving and congestive heart failure: review and analysis. The European Journal of Heart Failure 2005, 7:592-603.
31. National Clinical Guideline Centre Chronic Obstructive Pulmonary Disease: Management of Chronic Obstructive Pulmonary Disease in Adults in Primary and Secondary Care 2010, National Clinical Guideline Centre, London, Available from: http://guidance.nice.org.uk/CG101/Guidance/pdf/English.
32. Organisation for Economic Co-operation and Development Help Wanted? Providing and Paying for Long-Term Care 2011, ISBN: 978 92 64 0975 82.
33. Pinquart M., Sorensen S. Differences between caregivers and non-caregivers in psychological health and physical health: a meta-analysis. Psychological Aging 2003, 18:250-267.
34. Pinquart M., Sorensen S. Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: a meta-analysis. Journal of Gerontology 2003, 58:112-128.
35. Pinquart M., Sorensen S. Ethnic differences in stressors, resources, and psychological outcomes of family caregiving: a meta-analysis. The Gerontologist 2005, 45(1):90-106.
36. Pinto R.A., Holanda M.A., Medeiros M.M.C., Mota R.M.S., Pereira E.D.B. Assessment of the burden of caregiving for patients with chronic obstructive pulmonary disease. Respiratory Medicine 2007, 101(11):2402-2408.
37. Radolff L.S. The CES-D scale: a self-report depression scale for research in general population. Applied Psychometric Measurement 1977, 1:385-401.
38. Ries A.L., Kaplan R.M., Limberg T.M., Prewitt L.M. Effects of pulmonary rehabilitation on physiologic and psychosocial outcomes in patients with COPD. Annals of Internal Medicine 1995, 122:823-832.
39. Ross E., Graydon J.E. The impact on the wife of caring for a physically ill spouse. Journal of Women and Aging 1997, 9(4):23-35.
40. Schreiner A.S., Morimoto T., Arai Y., Zarit S. Assessing family caregiver's mental health using a statistically derived cut-off score for the Zarit Burden Interview. Aging and Mental Health 2006, 10(2):107-111.
41. Schulz R., Beach S.R. Caregiving as a risk factor for mortality: the Caregiver Health Effects Study. JAMA 1999, 282:2215-2219.
42. Seamark D.A., Blake S.D., Seamark C.J., Halpin D.M. Living with severe chronic obstructive pulmonary disease (COPD): perceptions of patients and their carers. An interpretative phenomenological analysis. Palliative Medicine 2004, 18(7):619-625.
43. Sexton D.L., Munro B.H. Impact of a husband's chronic illness (COPD) on the spouse's life. Research in Nursing and Health 1985, 8(1):83-90.
44. Simpson A.C., Rocker G.M. Advanced chronic obstructive pulmonary disease: impact on informal caregivers. Journal of Palliative Care 2008, 24(1):29-54.
45. Simpson A.C., Young J., Donadu M., Rocker G. A day at a time: caregiving on the edge in advanced COPD. International Journal of COPD 2010, 5:141-151.
46. Spence A., Hasson F., Waldron M., Kernohan G., McLaughlin D., Cochrane B., Watson B. Active carers: living with chronic obstructive pulmonary disease. International Journal of Palliative Nursing 2008, 14(8):368-372.
47. Takata S., Washio M., Moriwaki A., Tsuda T., Nakayama H., Iwanaga T., Aizawa H., Arai Y., Nakanishi Y., Inoue H. Burden among caregivers of patients with chronic obstructive pulmonary disease with long-term oxygen therapy. International Medical Journal 2008, 15(1):53-57.
48. Yesavage J.A., Brink T.L., Rose T.L., Lum O., Huang V., Adey M., Lirer V.O. Development and validation of a geriatric depression screening scale: a preliminary report. Journal of Psychiatric Research 1982, 17(1):37-49.
49. Ware J.F., Kosinski M., Keller S.D. The SF-36 Physical and Mental Health Summary Scales: A User's Manual 1994, The Health Institute. New England Medical Centre, Boston.
50. Washio M., Inoue H., Kiyohara C., Matsumoto, Koto H., Nakanishi Y., Arai Y., Mori M. Depression among caregivers of patients with chronic obstructive pulmonary disease. International Medical Journal 2003, 10(4):255-259.
51. Wicks M.N. A test of the Wicks family health model in families coping with chronic obstructive pulmonary disease. Journal of Family Nursing 1997, 3(2):189-212.
52. Wiklund I. Assessment of patient-reported outcomes in clinical trials: the example of health-related quality of life. Fundamental and Clinical Pharmacology 2004, 18(3):351-363.
53. World Health Organisation WHO Strategy for Prevention and Control of Chronic Respiratory Diseases 2002, World Health Organisation, Geneva, WHO/MNC/CRA/02.1.
54. Zarit S.H., Tood P.A., Zarit J.M. Subjective burden of husbands and wives as caregivers: a longitudinal study. Gerontologist 1986, 26(3):260-266.
55. Zarit S. Assessment of family caregivers: a research perspective. Caregiver Assessment: Voices and Views from the Field. Report from a National Consensus Development Conference (vol. II) 2006, 12-37. Family Caregiver Alliance (Ed.).