메뉴 건너뛰기




Volumn 25, Issue 3, 2016, Pages 529-542

Easing the Burden: Describing the Role of Social, Emotional and Spiritual Support in Research Families with Li-Fraumeni Syndrome

Author keywords

Cegrm; Genetic counseling; Genetic testing; Hereditary cancer susceptibility; Li fraumeni syndrome (LFS); Psychosocial; Psychosocial adaptation; Qualitative research; Religious; Resilience; Social support; Spiritual; TP53 germline mutation

Indexed keywords

ADOLESCENT; ADULT; FAMILY; FEMALE; GENETICS; GERMLINE MUTATION; HUMAN; LI-FRAUMENI SYNDROME; MALE; MENTAL STRESS; MIDDLE AGED; PSYCHOLOGY; SOCIAL SUPPORT; TUMOR SUPPRESSOR GENE; YOUNG ADULT;

EID: 84948952944     PISSN: 10597700     EISSN: 15733599     Source Type: Journal    
DOI: 10.1007/s10897-015-9905-x     Document Type: Article
Times cited : (18)

References (78)
  • 1
    • 39349092721 scopus 로고    scopus 로고
    • Flexibility, friendship, and family
    • Allan, G. (2008). Flexibility, friendship, and family. Personal Relationships, 15(1), 1–16. doi:10.1111/j.1475-6811.2007.00181.x.
    • (2008) Personal Relationships , vol.15 , Issue.1 , pp. 1-16
    • Allan, G.1
  • 2
    • 0028220688 scopus 로고
    • Prevalence and diversity of constitutional mutations in the p53 gene among 21 Li-fraumeni families
    • COI: 1:CAS:528:DyaK2cXitFCjsbY%3D, PID: 8118819
    • Birch, J. M., Hartley, A. L., Tricker, K. J., Prosser, J., Condie, A., Kelsey, A. M., et al. (1994). Prevalence and diversity of constitutional mutations in the p53 gene among 21 Li-fraumeni families. Cancer Research, 54(5), 1298–1304.
    • (1994) Cancer Research , vol.54 , Issue.5 , pp. 1298-1304
    • Birch, J.M.1    Hartley, A.L.2    Tricker, K.J.3    Prosser, J.4    Condie, A.5    Kelsey, A.M.6
  • 3
    • 0035797528 scopus 로고    scopus 로고
    • Relative frequency and morphology of cancers in carriers of germline TP53 mutations
    • COI: 1:CAS:528:DC%2BD3MXmtFejs7c%3D, PID: 11498785
    • Birch, J. M., Alston, R. D., McNally, R. J. Q., Evans, D. G. R., Kelsey, A. M., Harris, M., et al. (2001). Relative frequency and morphology of cancers in carriers of germline TP53 mutations. Oncogene, 20(34), 4621–4628.
    • (2001) Oncogene , vol.20 , Issue.34 , pp. 4621-4628
    • Birch, J.M.1    Alston, R.D.2    McNally, R.J.Q.3    Evans, D.G.R.4    Kelsey, A.M.5    Harris, M.6
  • 4
    • 50049112746 scopus 로고    scopus 로고
    • Molecular basis of the Li-fraumeni syndrome: an update from the French LFS families
    • COI: 1:STN:280:DC%2BD1cvpt1SlsQ%3D%3D, PID: 18511570
    • Bougeard, G., Sesboue, R., Baert-Desurmont, S., Vasseur, S., Martin, C., Tinat, J., et al. (2008). Molecular basis of the Li-fraumeni syndrome: an update from the French LFS families. Journal of Medical Genetics, 45(8), 535–538. doi:10.1136/jmg.2008.057570.
    • (2008) Journal of Medical Genetics , vol.45 , Issue.8 , pp. 535-538
    • Bougeard, G.1    Sesboue, R.2    Baert-Desurmont, S.3    Vasseur, S.4    Martin, C.5    Tinat, J.6
  • 5
  • 6
    • 22044452916 scopus 로고    scopus 로고
    • Spirituality and coping among survivors of prostate cancer
    • Retrieved from ISI:000230147400003
    • Bowie, J. V., Sydnor, K. D., Granot, M., & Pargament, K. I. (2004). Spirituality and coping among survivors of prostate cancer. Journal of Psychosocial Oncology, 22(2), 41–56 Retrieved from ISI:000230147400003.
    • (2004) Journal of Psychosocial Oncology , vol.22 , Issue.2 , pp. 41-56
    • Bowie, J.V.1    Sydnor, K.D.2    Granot, M.3    Pargament, K.I.4
  • 8
    • 0036255776 scopus 로고    scopus 로고
    • The Li-fraumeni syndrome
    • COI: 1:CAS:528:DC%2BD38XitFaqsLY%3D, PID: 11900879
    • Chompret, A. (2002). The Li-fraumeni syndrome. Biochimie, 84(1), 75–82.
    • (2002) Biochimie , vol.84 , Issue.1 , pp. 75-82
    • Chompret, A.1
  • 10
    • 35348831738 scopus 로고    scopus 로고
    • Psychological stress and disease
    • COI: 1:CAS:528:DC%2BD2sXhtFGhtrbI, PID: 17925521
    • Cohen, S., Janicki-Deverts, D., & Miller, G. E. (2007). Psychological stress and disease. JAMA, 298(14), 1685–1687.
    • (2007) JAMA , vol.298 , Issue.14 , pp. 1685-1687
    • Cohen, S.1    Janicki-Deverts, D.2    Miller, G.E.3
  • 11
    • 84971002155 scopus 로고    scopus 로고
    • LiFE Consortium Retrieved from. Retrieved May 21, 2015, from National Institutes of Health
    • Consortia. (2010). LiFE Consortium Retrieved from http://epi.grants.cancer.gov/Consortia/single/life.html. Retrieved May 21, 2015, from National Institutes of Health.
    • (2010)
  • 14
    • 0029558570 scopus 로고
    • Germline mutations in the TP53 gene
    • COI: 1:CAS:528:DyaK28XitV2mt7k%3D, PID: 8718514, Retrieved from
    • Eeles, R. A. (1995). Germline mutations in the TP53 gene. Cancer Surveys, 25, 101–124 Retrieved from http://www.scopus.com/inward/record.url?eid=2-s2.0-0029558570&partnerID=40&md5=a1cfdb77917fbad75e29adcec769f0de.
    • (1995) Cancer Surveys , vol.25 , pp. 101-124
    • Eeles, R.A.1
  • 15
    • 63049110712 scopus 로고    scopus 로고
    • Psychological and metabolic stress: a recipe for accelerated cellular aging?
    • PID: 19269917, Retrieved fro
    • Epel, E. S. (2009). Psychological and metabolic stress: a recipe for accelerated cellular aging? Hormones, 8(1), 7–22 Retrieved from http://www.scopus.com/inward/record.url?eid=2-s2.0-63049110712&partnerID=40&md5=51ec2990216514bcbed64635616c021d.
    • (2009) Hormones , vol.8 , Issue.1 , pp. 7-22
    • Epel, E.S.1
  • 17
    • 0026984690 scopus 로고
    • Ethical issues: the geneticist’s view point
    • PID: 1338981, discussion 211-128
    • Evans, G. (1992). Ethical issues: the geneticist’s view point. Disease Markers, 10(4), 199–203 discussion 211-128.
    • (1992) Disease Markers , vol.10 , Issue.4 , pp. 199-203
    • Evans, G.1
  • 18
    • 77249085667 scopus 로고    scopus 로고
    • Childhood predictive genetic testing for Li-fraumeni syndrome
    • COI: 1:STN:280:DC%2BC3c7gvFeiug%3D%3D, PID: 19404774
    • Evans, D. G., Lunt, P., Clancy, T., & Eeles, R. (2010). Childhood predictive genetic testing for Li-fraumeni syndrome. Familial Cancer, 9(1), 65–69. doi:10.1007/s10689-009-9245-9.
    • (2010) Familial Cancer , vol.9 , Issue.1 , pp. 65-69
    • Evans, D.G.1    Lunt, P.2    Clancy, T.3    Eeles, R.4
  • 19
    • 80155189719 scopus 로고    scopus 로고
    • Relationships and inflammation across the lifespan: social developmental pathways to disease
    • PID: 22125580
    • Fagundes, C. P., Bennett, J. M., Derry, H. M., & Kiecolt-Glaser, J. K. (2011). Relationships and inflammation across the lifespan: social developmental pathways to disease. Social and Personality Psychology Compass, 5(11), 891–903. doi:10.1111/j.1751-9004.2011.00392.x.
    • (2011) Social and Personality Psychology Compass , vol.5 , Issue.11 , pp. 891-903
    • Fagundes, C.P.1    Bennett, J.M.2    Derry, H.M.3    Kiecolt-Glaser, J.K.4
  • 20
    • 84870757960 scopus 로고    scopus 로고
    • Stressful early life experiences and immune dysregulation across the lifespan
    • COI: 1:CAS:528:DC%2BC38Xhsl2isr%2FI, PID: 22771426
    • Fagundes, C. P., Glaser, R., & Kiecolt-Glaser, J. K. (2013). Stressful early life experiences and immune dysregulation across the lifespan. Brain, Behavior, and Immunity, 27(0), 8–12. doi:10.1016/j.bbi.2012.06.014.
    • (2013) Brain, Behavior, and Immunity , vol.27 , pp. 8-12
    • Fagundes, C.P.1    Glaser, R.2    Kiecolt-Glaser, J.K.3
  • 24
    • 84901033538 scopus 로고    scopus 로고
    • Germline TP53 mutations and the changing landscape of Li-fraumeni syndrome
    • COI: 1:CAS:528:DC%2BC2cXosVOntrY%3D, PID: 24706533
    • Kamihara, J., Rana, H. Q., & Garber, J. E. (2014). Germline TP53 mutations and the changing landscape of Li-fraumeni syndrome. Human Mutation, 35(6), 654–662. doi:10.1002/humu.22559.
    • (2014) Human Mutation , vol.35 , Issue.6 , pp. 654-662
    • Kamihara, J.1    Rana, H.Q.2    Garber, J.E.3
  • 25
    • 0346878840 scopus 로고    scopus 로고
    • The colored, eco-genetic relationship map (CEGRM): a conceptual approach and tool for genetic counseling research
    • COI: 1:STN:280:DC%2BC28%2Fgs1Ortw%3D%3D, PID: 26141156, Retrieved from
    • Kenen, R., & Peters, J. (2001). The colored, eco-genetic relationship map (CEGRM): a conceptual approach and tool for genetic counseling research. Journal of Genetic Counseling, 10(4), 289–309 Retrieved from http://www.scopus.com/inward/record.url?eid=2-s2.0-0346878840&partnerID=40&md5=42fc26ec5f5c32dbd32759a151cd1319.
    • (2001) Journal of Genetic Counseling , vol.10 , Issue.4 , pp. 289-309
    • Kenen, R.1    Peters, J.2
  • 26
    • 0033088042 scopus 로고    scopus 로고
    • Stress, personal relationships, and immune function: Health implications
    • COI: 1:STN:280:DyaK1MzgtF2nug%3D%3D, PID: 10371678, Retrieved from ISI:000080487300005
    • Kiecolt-Glaser, J. K. (1999). Stress, personal relationships, and immune function: Health implications. Brain, Behavior, and Immunity, 13(1), 61–72 Retrieved from ISI:000080487300005.
    • (1999) Brain, Behavior, and Immunity , vol.13 , Issue.1 , pp. 61-72
    • Kiecolt-Glaser, J.K.1
  • 27
    • 51649111254 scopus 로고    scopus 로고
    • Sisters in hereditary breast and ovarian cancer families: communal coping, social integration, and psychological well-being
    • PID: 18688790
    • Koehly, L. M., Peters, J. A., Kuhn, N., Hoskins, L., Letocha, A., Kenen, R., et al. (2008). Sisters in hereditary breast and ovarian cancer families: communal coping, social integration, and psychological well-being. Psycho-Oncology, 17(8), 812–821. doi:10.1002/pon.1373.
    • (2008) Psycho-Oncology , vol.17 , Issue.8 , pp. 812-821
    • Koehly, L.M.1    Peters, J.A.2    Kuhn, N.3    Hoskins, L.4    Letocha, A.5    Kenen, R.6
  • 28
    • 72249090274 scopus 로고    scopus 로고
    • Characteristics of health information gatherers, disseminators, and blockers within families at risk of hereditary cancer: implications for family health communication interventions
    • PID: 19833996
    • Koehly, L. M., Peters, J. A., Kenen, R., Hoskins, L. M., Ersig, A. L., Kuhn, N. R., et al. (2009). Characteristics of health information gatherers, disseminators, and blockers within families at risk of hereditary cancer: implications for family health communication interventions. American Journal of Public Health, 99(12), 2203–2209. doi:10.2105/AJPH.2008.154096.
    • (2009) American Journal of Public Health , vol.99 , Issue.12 , pp. 2203-2209
    • Koehly, L.M.1    Peters, J.A.2    Kenen, R.3    Hoskins, L.M.4    Ersig, A.L.5    Kuhn, N.R.6
  • 30
    • 77954572243 scopus 로고    scopus 로고
    • Genetic testing in Li-fraumeni syndrome: uptake and psychosocial consequences
    • PID: 20479422, Retrieved from
    • Lammens, C. R., Aaronson, N. K., Wagner, A., Sijmons, R. H., Ausems, M. G., Vriends, A. H., et al. (2010a). Genetic testing in Li-fraumeni syndrome: uptake and psychosocial consequences. Journal of Clinical Oncology, 28(18), 3008–3014 Retrieved from http://www.scopus.com/inward/record.url?eid=2-s2.0-77954572243&partnerID=40&md5=3ee41559bb3c60da506839d60cac27ba.
    • (2010) Journal of Clinical Oncology , vol.28 , Issue.18 , pp. 3008-3014
    • Lammens, C.R.1    Aaronson, N.K.2    Wagner, A.3    Sijmons, R.H.4    Ausems, M.G.5    Vriends, A.H.6
  • 31
    • 78650217249 scopus 로고    scopus 로고
    • Regular surveillance for Li-fraumeni syndrome: advice, adherence and perceived benefits
    • COI: 1:STN:280:DC%2BC3cbms1OksA%3D%3D, PID: 20658357
    • Lammens, C. R., Bleiker, E. M., Aaronson, N. K., Wagner, A., Sijmons, R. H., Ausems, M. G., et al. (2010b). Regular surveillance for Li-fraumeni syndrome: advice, adherence and perceived benefits. Familial Cancer, 9(4), 647–654. doi:10.1007/s10689-010-9368-z.
    • (2010) Familial Cancer , vol.9 , Issue.4 , pp. 647-654
    • Lammens, C.R.1    Bleiker, E.M.2    Aaronson, N.K.3    Wagner, A.4    Sijmons, R.H.5    Ausems, M.G.6
  • 32
    • 79957840216 scopus 로고    scopus 로고
    • Distress in partners of individuals diagnosed with or at high risk of developing tumors due to rare hereditary cancer syndromes
    • COI: 1:STN:280:DC%2BC3MrlvFCksA%3D%3D, PID: 21384469, Retrieved from
    • Lammens, C. R. M., Bleiker, E. M. A., Verhoef, S., Ausems, M. G. E. M., Majoor-Krakauer, D., Sijmons, R. H., et al. (2011). Distress in partners of individuals diagnosed with or at high risk of developing tumors due to rare hereditary cancer syndromes. Psycho-Oncology, 20(6), 631–638 Retrieved from http://www.scopus.com/inward/record.url?eid=2-s2.0-79957840216&partnerID=40&md5=9747a6a0ee453a15206588625c31f761.
    • (2011) Psycho-Oncology , vol.20 , Issue.6 , pp. 631-638
    • Lammens, C.R.M.1    Bleiker, E.M.A.2    Verhoef, S.3    Ausems, M.G.E.M.4    Majoor-Krakauer, D.5    Sijmons, R.H.6
  • 34
    • 84867671998 scopus 로고    scopus 로고
    • Li-fraumeni syndrome: report of a clinical research workshop and creation of a research consortium
    • PID: 22939227, Retrieved from
    • Mai, P. L., Malkin, D., Garber, J. E., Schiffman, J. D., Weitzel, J. N., Strong, L. C., et al. (2012). Li-fraumeni syndrome: report of a clinical research workshop and creation of a research consortium. Cancer Genetics, 205(10), 479–487 Retrieved from http://www.scopus.com/inward/record.url?eid=2-s2.0-84867671998&partnerID=40&md5=a342e93da3557987c15b3cd62f2cd31a.
    • (2012) Cancer Genetics , vol.205 , Issue.10 , pp. 479-487
    • Mai, P.L.1    Malkin, D.2    Garber, J.E.3    Schiffman, J.D.4    Weitzel, J.N.5    Strong, L.C.6
  • 35
    • 80053022230 scopus 로고    scopus 로고
    • Li-fraumeni syndrome
    • COI: 1:CAS:528:DC%2BC3MXhtVKju7%2FI
    • Malkin, D. (2011). Li-fraumeni syndrome. Genes & Cancer, 2(4), 475–484. doi:10.1177/1947601911413466.
    • (2011) Genes & Cancer , vol.2 , Issue.4 , pp. 475-484
    • Malkin, D.1
  • 36
    • 0025633582 scopus 로고
    • Germ line p53 mutations in a familial syndrome of breast cancer, sarcomas, and other neoplasms
    • COI: 1:CAS:528:DyaK3MXjslSisw%3D%3D, PID: 1978757
    • Malkin, D., Li, F. P., Strong, L. C., Fraumeni, J. F., Jr., Nelson, C. E., Kim, D. H.,. et al. (1990). Germ line p53 mutations in a familial syndrome of breast cancer, sarcomas, and other neoplasms. Science, 250(4985), 1233–1238.
    • (1990) Science , vol.250 , Issue.4985 , pp. 1233-1238
    • Malkin, D.1    Li, F.P.2    Strong, L.C.3    Fraumeni, J.F.4    Nelson, C.E.5    Kim, D.H.6
  • 37
    • 84899925553 scopus 로고    scopus 로고
    • Li-fraumeni syndrome: cancer risk assessment and clinical management
    • COI: 1:CAS:528:DC%2BC2cXkvVGlt7s%3D, PID: 24642672
    • McBride, K. A., Ballinger, M. L., Killick, E., Kirk, J., Tattersall, M. H., Eeles, R. A., et al. (2014). Li-fraumeni syndrome: cancer risk assessment and clinical management. Nature Reviews. Clinical Oncology, 11(5), 260–271. doi:10.1038/nrclinonc.2014.41.
    • (2014) Nature Reviews. Clinical Oncology , vol.11 , Issue.5 , pp. 260-271
    • McBride, K.A.1    Ballinger, M.L.2    Killick, E.3    Kirk, J.4    Tattersall, M.H.5    Eeles, R.A.6
  • 38
    • 33845269103 scopus 로고    scopus 로고
    • Religion and health: does religious activity improve health outcomes?
    • PID: 16548676
    • Mulligan, T., Gunaratnam, M., & Martin, C. M. (2005). Religion and health: does religious activity improve health outcomes? The Consultant Pharmacist, 20(12), 1025–1031.
    • (2005) The Consultant Pharmacist , vol.20 , Issue.12 , pp. 1025-1031
    • Mulligan, T.1    Gunaratnam, M.2    Martin, C.M.3
  • 39
    • 84970964831 scopus 로고    scopus 로고
    • NCCN, N. C. C. N. Retrieved from. Retrieved May 21, 2015
    • NCCN, N. C. C. N. (2015). Li-Fraumeni Syndrome guidelines Retrieved from http://www.nccn.org/professionals/physician_gls/f_guidelines.asp. Retrieved May 21, 2015.
    • (2015) Li-Fraumeni Syndrome guidelines
  • 40
    • 0035117108 scopus 로고    scopus 로고
    • Germ-line p53 mutations predispose to a wide spectrum of early-onset cancers
    • COI: 1:CAS:528:DC%2BD3MXhtl2gsb8%3D, PID: 11219776, Retrieved from
    • Nichols, K. E., Malkin, D., Garber, J. E., Fraumeni Jr., J. F., & Li, F. P. (2001). Germ-line p53 mutations predispose to a wide spectrum of early-onset cancers. Cancer Epidemiology, Biomarkers and Prevention, 10(2), 83–87 Retrieved from http://www.scopus.com/inward/record.url?eid=2-s2.0-0035117108&partnerID=40&md5=1835aabe60d40c7a86a217a1c3fb5cce.
    • (2001) Cancer Epidemiology, Biomarkers and Prevention , vol.10 , Issue.2 , pp. 83-87
    • Nichols, K.E.1    Malkin, D.2    Garber, J.E.3    Fraumeni, J.F.4    Li, F.P.5
  • 41
    • 84971002463 scopus 로고    scopus 로고
    • Retrieved from Pew Forum website
    • “Nones” on the Rise. (2012). Retrieved from Pew Forum website: http://www.Pewforum.org/2012/10/09/nones-on-the-rise.
    • (2012)
  • 42
    • 34548382062 scopus 로고    scopus 로고
    • The effects of response bias on self-reported quality of life among childhood cancer survivors
    • PID: 17624814
    • O’Leary, T. E., Diller, L., & Recklitis, C. J. (2007). The effects of response bias on self-reported quality of life among childhood cancer survivors. Quality of Life Research, 16(7), 1211–1220. doi:10.1007/s11136-007-9231-3.
    • (2007) Quality of Life Research , vol.16 , Issue.7 , pp. 1211-1220
    • O’Leary, T.E.1    Diller, L.2    Recklitis, C.J.3
  • 43
    • 84970958992 scopus 로고    scopus 로고
    • Li-Fraumeni Syndrome 1 Retrieved from
    • OMIM. (2015). Li-Fraumeni Syndrome 1 Retrieved from http://omim.org/entry/151623.
    • (2015)
  • 44
    • 26044482744 scopus 로고    scopus 로고
    • The psychological burden inflicted by multiple cancers in Li-fraumeni families: five case studies
    • Oppenheim, D., Brugieres, L., Chompret, A., & Hartmann, O. (2001). The psychological burden inflicted by multiple cancers in Li-fraumeni families: five case studies. Journal of Genetic Counseling, 10(2), 169–183. doi:10.1023/A:1009495815436.
    • (2001) Journal of Genetic Counseling , vol.10 , Issue.2 , pp. 169-183
    • Oppenheim, D.1    Brugieres, L.2    Chompret, A.3    Hartmann, O.4
  • 45
    • 84970969567 scopus 로고    scopus 로고
    • July 18
    • Examining the growth of the “spiritual but not religious”, New York Times
    • Oppenheimer, M. (2014, July 18, 2014). Examining the growth of the “spiritual but not religious”. New York Times.
    • (2014) 2014)
    • Oppenheimer, M.1
  • 46
    • 84970969570 scopus 로고    scopus 로고
    • Religion Retrieved from
    • OxfordDictionaries. (2015). Religion Retrieved from http://www.oxforddictionaries.com/us/definition/american_english/religion.
    • (2015)
  • 48
    • 33748132596 scopus 로고    scopus 로고
    • Patterns of positive and negative religious coping with major life stressors
    • Pargament, K., Smith, B., Koenig, H., & Perez, L. (1998). Patterns of positive and negative religious coping with major life stressors. Journal for the Scientific Study of Religion, 37(4), 710–724. doi:10.2307/1388152.
    • (1998) Journal for the Scientific Study of Religion , vol.37 , Issue.4 , pp. 710-724
    • Pargament, K.1    Smith, B.2    Koenig, H.3    Perez, L.4
  • 49
    • 84945487366 scopus 로고    scopus 로고
    • Religion/spirituality and health in the context of cancer: cross-domain integration, unresolved issues, and future directions
    • Park, C. L., Sherman, A. C., Jim, H. S., & Salsman, J. M. (2015). Religion/spirituality and health in the context of cancer: cross-domain integration, unresolved issues, and future directions. Cancer, n/a-n/a. doi:10.1002/cncr.29351.
    • (2015) Cancer, n/a-n/a.
    • Park, C.L.1    Sherman, A.C.2    Jim, H.S.3    Salsman, J.M.4
  • 51
    • 10144246571 scopus 로고    scopus 로고
    • Acceptance of invitations for p53 and BRCA1 predisposition testing: factors infleuencing potential utilization of cancer genetic testing cancer genetic testing
    • Retrieved from
    • Patenaude, A. F., Schneider, K. A., Kieffer, S. A., Calzone, K. A., Stopfer, J. E., Basili, L. A., et al. (1996). Acceptance of invitations for p53 and BRCA1 predisposition testing: factors infleuencing potential utilization of cancer genetic testing cancer genetic testing. Psycho-Oncology, 5(3), 241–250. Retrieved from http://www.scopus.com/inward/record.url?eid=2-s2.0-10144246571&partnerID=40&md5=42786a0745e020a3a4b8f8158df71195
    • (1996) Psycho-Oncology , vol.5 , Issue.3 , pp. 241-250
    • Patenaude, A.F.1    Schneider, K.A.2    Kieffer, S.A.3    Calzone, K.A.4    Stopfer, J.E.5    Basili, L.A.6
  • 52
    • 84970972594 scopus 로고    scopus 로고
    • Li-Fraumeni Syndrome Retrieved from. Retrieved May 21, 2015
    • PDQ,NCIPIS. (2015). Li-Fraumeni Syndrome Retrieved from http://www.cancer.gov/types/breast/hp/breast-ovarian-genetics-pdq/#link/_144. Retrieved May 21, 2015.
    • (2015)
  • 53
    • 4744358652 scopus 로고    scopus 로고
    • Exploratory study of the feasibility and utility of the colored eco-genetic relationship map (CEGRM) in women at high genetic risk of developing breast cancer
    • PID: 15378540, Retrieved from ISI:000224181700007
    • Peters, J. A., Kenen, R., Giusti, R., Loud, J., Weissman, N., & Greene, M. H. (2004). Exploratory study of the feasibility and utility of the colored eco-genetic relationship map (CEGRM) in women at high genetic risk of developing breast cancer. American Journal of Medical Genetics Part A, 130A(3), 258–264 Retrieved from ISI:000224181700007.
    • (2004) American Journal of Medical Genetics Part A , vol.130A , Issue.3 , pp. 258-264
    • Peters, J.A.1    Kenen, R.2    Giusti, R.3    Loud, J.4    Weissman, N.5    Greene, M.H.6
  • 54
    • 33845418733 scopus 로고    scopus 로고
    • Evolution of the colored Eco-genetic relationship map (CEGRM) for assessing social functioning in women in hereditary breast-ovarian (HBOC) families
    • PID: 17111216
    • Peters, J. A., Hoskins, L., Prindiville, S., Kenen, R., & Greene, M. H. (2006). Evolution of the colored Eco-genetic relationship map (CEGRM) for assessing social functioning in women in hereditary breast-ovarian (HBOC) families. Journal of Genetic Counseling, 15(6), 477–489. doi:10.1007/s10897-006-9042-7.
    • (2006) Journal of Genetic Counseling , vol.15 , Issue.6 , pp. 477-489
    • Peters, J.A.1    Hoskins, L.2    Prindiville, S.3    Kenen, R.4    Greene, M.H.5
  • 55
    • 80052516555 scopus 로고    scopus 로고
    • Unpacking the blockers: understanding perceptions and social constraints of health communication in hereditary breast ovarian cancer (HBOC) susceptibility families. Journal of Genetic Counseling
    • Peters, J. A., Kenen, R., Hoskins, L. M., Koehly, L. M., Graubard, B., Loud, J. T., & Greene, M. H. (2011a). Unpacking the blockers: understanding perceptions and social constraints of health communication in hereditary breast ovarian cancer (HBOC) susceptibility families. Journal of Genetic Counseling, 1-15 Retrieved from http://www.scopus.com/inward/record.url?eid=2-s2.0-79955511584&partnerID=40&md5=bdddafaec6f1e65a2e51df950bd0ec76.
    • (2011) 1-15 Retrieved from
    • Peters, J.A.1    Kenen, R.2    Hoskins, L.M.3    Koehly, L.M.4    Graubard, B.5    Loud, J.T.6    Greene, M.H.7
  • 56
    • 84971002504 scopus 로고    scopus 로고
    • Health communication constraints in HBOC: 12th international meeting on psychosocial aspects of hereditary cancer (IMPAHC)
    • Peters, J. A., Kenen, R., Koehly, L. M., Hoskins, L. M., Graubard, B., & Loud, J. T. (2011b). Health communication constraints in HBOC: 12th international meeting on psychosocial aspects of hereditary cancer (IMPAHC). Familial Cancer, 10, 69–97. doi:10.1007/s10689-011-9430-5.
    • (2011) Familial Cancer , vol.10 , pp. 69-97
    • Peters, J.A.1    Kenen, R.2    Koehly, L.M.3    Hoskins, L.M.4    Graubard, B.5    Loud, J.T.6
  • 57
    • 84862115233 scopus 로고    scopus 로고
    • Close ties: an exploratory colored Eco-genetic relationship map (CEGRM) study of social connections of men in familial testicular cancer (FTC) families
    • Peters, J. A., Kenen, R., Hoskins, L. M., Glenn, G. M., Kratz, C., & Greene, M. H. (2012). Close ties: an exploratory colored Eco-genetic relationship map (CEGRM) study of social connections of men in familial testicular cancer (FTC) families. Hereditary Cancer in Clinical Practice, 10(1). doi:10.1186/1897-4287-10-2.
    • (2012) Hereditary Cancer in Clinical Practice , vol.10 , Issue.1
    • Peters, J.A.1    Kenen, R.2    Hoskins, L.M.3    Glenn, G.M.4    Kratz, C.5    Greene, M.H.6
  • 58
    • 51649111024 scopus 로고    scopus 로고
    • Psychological functioning in persons considering genetic counseling and testing for Li-fraumeni syndrome
    • PID: 18688785, Retrieved from
    • Peterson, S. K., Pentz, R. D., Marani, S. K., Ward, P. A., Blanco, A. M., LaRue, D., et al. (2008). Psychological functioning in persons considering genetic counseling and testing for Li-fraumeni syndrome. Psycho-Oncology, 17(8), 783–789 Retrieved from http://www.scopus.com/inward/record.url?eid=2-s2.0-51649111024&partnerID=40&md5=01e32557d02751a5348d252ae7bf4a49.
    • (2008) Psycho-Oncology , vol.17 , Issue.8 , pp. 783-789
    • Peterson, S.K.1    Pentz, R.D.2    Marani, S.K.3    Ward, P.A.4    Blanco, A.M.5    LaRue, D.6
  • 59
    • 34248379012 scopus 로고    scopus 로고
    • Impact of mutatant p53 functional properties on TP53 mutation patterns and tumor phenotype: lessons from recent developments in the IARC TP53Database
    • COI: 1:CAS:528:DC%2BD2sXmsVymur8%3D, PID: 17311302
    • Petitjean, A., Mathe, E., Kato, S., Ishioka, C., Tavtigian, S. V., Hainaut, P., & Olivier, M. (2007). Impact of mutatant p53 functional properties on TP53 mutation patterns and tumor phenotype: lessons from recent developments in the IARC TP53Database. Human Mutation, 28(6), 622–629.
    • (2007) Human Mutation , vol.28 , Issue.6 , pp. 622-629
    • Petitjean, A.1    Mathe, E.2    Kato, S.3    Ishioka, C.4    Tavtigian, S.V.5    Hainaut, P.6    Olivier, M.7
  • 60
    • 35448936854 scopus 로고    scopus 로고
    • Adaptive style in children with cancer: implications for a positive psychology approach
    • PID: 17698880
    • Phipps, S. (2007). Adaptive style in children with cancer: implications for a positive psychology approach. Journal of Pediatric Psychology, 32(9), 1055–1066. doi:10.1093/jpepsy/jsm060.
    • (2007) Journal of Pediatric Psychology , vol.32 , Issue.9 , pp. 1055-1066
    • Phipps, S.1
  • 62
    • 84945445314 scopus 로고    scopus 로고
    • Religion, spirituality, and health outcomes in cancer: a case for a meta-analytic investigation
    • Salsman, J. M., Fitchett, G., Merluzzi, T. V., Sherman, A. C., & Park, C. L. (2015a). Religion, spirituality, and health outcomes in cancer: a case for a meta-analytic investigation. Cancer. doi:10.1002/cncr.29349.
    • (2015) Cancer
    • Salsman, J.M.1    Fitchett, G.2    Merluzzi, T.V.3    Sherman, A.C.4    Park, C.L.5
  • 63
    • 84945461759 scopus 로고    scopus 로고
    • A meta-analytic approach to examining the correlation between religion/spirituality and mental health in cancer
    • Salsman, J. M., Pustejovsky, J. E., Jim, H. S. L., Munoz, A. R., Merluzzi, T. V., George, L., et al. (2015b). A meta-analytic approach to examining the correlation between religion/spirituality and mental health in cancer. Cancer. doi:10.1002/cncr.29350.
    • (2015) Cancer
    • Salsman, J.M.1    Pustejovsky, J.E.2    Jim, H.S.L.3    Munoz, A.R.4    Merluzzi, T.V.5    George, L.6
  • 64
    • 84970954420 scopus 로고    scopus 로고
    • Schneider, K., Zelley, K., Nichols, K., & Garber, J. Retrieved from. Retrieved 4/14/15, from National Library of Medicine, NIH
    • Schneider, K., Zelley, K., Nichols, K., & Garber, J. (2013). GeneReviews: Li-Fraumeni Syndrome Retrieved from http://www.ncbi.nlm.nih.gov/books/NBK1311/. Retrieved 4/14/15, from National Library of Medicine, NIH.
    • (2013) GeneReviews: Li-Fraumeni Syndrome
  • 65
    • 0034116210 scopus 로고    scopus 로고
    • Spiritual faith and genetic testing decisions among high-risk breast cancer probands
    • COI: 1:STN:280:DC%2BD3c3lt1Cktw%3D%3D, PID: 10794482, Retrieved from PM:10794482
    • Schwartz, M. D., Hughes, C., Roth, J., Main, D., Peshkin, B. N., Isaacs, C., et al. (2000). Spiritual faith and genetic testing decisions among high-risk breast cancer probands. Cancer Epidemiology, Biomarkers and Prevention, 9(4), 381–385 Retrieved from PM:10794482.
    • (2000) Cancer Epidemiology, Biomarkers and Prevention , vol.9 , Issue.4 , pp. 381-385
    • Schwartz, M.D.1    Hughes, C.2    Roth, J.3    Main, D.4    Peshkin, B.N.5    Isaacs, C.6
  • 66
    • 84945491418 scopus 로고    scopus 로고
    • A meta-analytic review of religious or spiritual involvement and social health among cancer patients
    • Sherman, A. C., Merluzzi, T. V., Pustejovsky, J. E., Park, C. L., George, L., Fitchett, G., et al. (2015). A meta-analytic review of religious or spiritual involvement and social health among cancer patients. Cancer. doi:10.1002/cncr.29352.
    • (2015) Cancer
    • Sherman, A.C.1    Merluzzi, T.V.2    Pustejovsky, J.E.3    Park, C.L.4    George, L.5    Fitchett, G.6
  • 67
    • 33847067535 scopus 로고    scopus 로고
    • Health psychology: psychological adjustment to chronic disease
    • PID: 16930096
    • Stanton, A. L., Revenson, T. A., & Tennen, H. (2007). Health psychology: psychological adjustment to chronic disease. Annual Review of Psychology, 58(1), 565–592. doi:10.1146/annurev.psych.58.110405.085615.
    • (2007) Annual Review of Psychology , vol.58 , Issue.1 , pp. 565-592
    • Stanton, A.L.1    Revenson, T.A.2    Tennen, H.3
  • 68
    • 79955507522 scopus 로고    scopus 로고
    • Parents' attitudes toward pediatric genetic testing for common disease risk
    • PID: 21502235
    • Tercyak, K. P., Hensley Alford, S., Emmons, K. M., Lipkus, I. M., Wilfond, B. S., & McBride, C. M. (2011). Parents' attitudes toward pediatric genetic testing for common disease risk. Pediatrics, 127(5), e1288–e1295. doi:10.1542/peds.2010-0938.
    • (2011) Pediatrics , vol.127 , Issue.5 , pp. e1288-e1295
    • Tercyak, K.P.1    Hensley Alford, S.2    Emmons, K.M.3    Lipkus, I.M.4    Wilfond, B.S.5    McBride, C.M.6
  • 69
    • 36549063576 scopus 로고    scopus 로고
    • Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups
    • PID: 17872937
    • Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349–357. doi:10.1093/intqhc/mzm042.
    • (2007) International Journal for Quality in Health Care , vol.19 , Issue.6 , pp. 349-357
    • Tong, A.1    Sainsbury, P.2    Craig, J.3
  • 70
    • 0029397050 scopus 로고
    • Appraisal support predicts age-related differences in cardiovascular function in women
    • COI: 1:STN:280:DyaK287jvFagsg%3D%3D, PID: 8565930, Retrieved from
    • Uchino, B. N., Cacioppo, J. T., Malarkey, W., Glaser, R., & Kiecolt-Glaser, J. K. (1995). Appraisal support predicts age-related differences in cardiovascular function in women. Health Psychology, 14(6), 556–562 Retrieved from http://www.scopus.com/inward/record.url?eid=2-s2.0-0029397050&partnerID=40&md5=7b91d9790eeb98c6c448777ac7317c21.
    • (1995) Health Psychology , vol.14 , Issue.6 , pp. 556-562
    • Uchino, B.N.1    Cacioppo, J.T.2    Malarkey, W.3    Glaser, R.4    Kiecolt-Glaser, J.K.5
  • 71
    • 84928208002 scopus 로고    scopus 로고
    • A cross-sectional analysis of the association between perceived network social control and telomere length
    • Uchino, B. N., Cawthon, R. M., Smith, T. W., Kent, R. G., Bowen, K., & Light, K. C. (2014). A cross-sectional analysis of the association between perceived network social control and telomere length. Health Psychology. doi:10.1037/hea0000148.
    • (2014) Health Psychology
    • Uchino, B.N.1    Cawthon, R.M.2    Smith, T.W.3    Kent, R.G.4    Bowen, K.5    Light, K.C.6
  • 72
    • 79952276454 scopus 로고    scopus 로고
    • Social relationships and health: a flashpoint for health policy
    • PID: 20943583
    • Umberson, D., & Montez, J. K. (2010). Social relationships and health: a flashpoint for health policy. Journal of Health and Social Behavior, 51(Suppl), S54–S66. doi:10.1177/0022146510383501.
    • (2010) Journal of Health and Social Behavior , vol.51 , pp. S54-S66
    • Umberson, D.1    Montez, J.K.2
  • 73
    • 0000850475 scopus 로고    scopus 로고
    • The effect of social relationships on psychological well-being: Are men and women really so different?
    • Retrieved from ://WOS:A1996VL94000007
    • Umberson, D., Chen, M. C. D., House, J. S., Hopkins, K., & Slaten, E. (1996). The effect of social relationships on psychological well-being: Are men and women really so different? American Sociological Review, 61(5), 837–857 Retrieved from ://WOS:A1996VL94000007.
    • (1996) American Sociological Review , vol.61 , Issue.5 , pp. 837-857
    • Umberson, D.1    Chen, M.C.D.2    House, J.S.3    Hopkins, K.4    Slaten, E.5
  • 74
    • 0037222381 scopus 로고    scopus 로고
    • Germline TP53 mutations and Li-fraumeni syndrome
    • COI: 1:CAS:528:DC%2BD3sXis1yjtLc%3D, PID: 12619118
    • Varley, J. M. (2003). Germline TP53 mutations and Li-fraumeni syndrome. Human Mutation, 21(3), 313–320. doi:10.1002/humu.10185.
    • (2003) Human Mutation , vol.21 , Issue.3 , pp. 313-320
    • Varley, J.M.1
  • 75
    • 0030806921 scopus 로고    scopus 로고
    • Germline mutations of TP 53 in Li-fraumeni families: an extended study of 39 families
    • COI: 1:CAS:528:DyaK2sXkvFKqsLs%3D, PID: 9242456
    • Varley, J. M., McGown, G., Thorncroft, M., et al. (1997). Germline mutations of TP 53 in Li-fraumeni families: an extended study of 39 families. Cancer Research, 57, 3245–3252.
    • (1997) Cancer Research , vol.57 , pp. 3245-3252
    • Varley, J.M.1    McGown, G.2    Thorncroft, M.3
  • 76
    • 77953960881 scopus 로고    scopus 로고
    • Effects of genetic risk information on children’s psychosocial wellbeing: a systematic review of the literature
    • PID: 20445458
    • Wade, C. H., Wilfond, B. S., & McBride, C. M. (2010). Effects of genetic risk information on children’s psychosocial wellbeing: a systematic review of the literature. Genetics in Medicine, 12(6), 317–326. doi:10.1097/GIM.0b013e3181de695c.
    • (2010) Genetics in Medicine , vol.12 , Issue.6 , pp. 317-326
    • Wade, C.H.1    Wilfond, B.S.2    McBride, C.M.3
  • 77
    • 0038624107 scopus 로고    scopus 로고
    • Ethical issues with genetic testing in pediatrics
    • Wilfond and AAP Bioethics Committee. (2001). Ethical issues with genetic testing in pediatrics. Pediatrics, 107(6), 1451–1455.
    • (2001) Pediatrics , vol.107 , Issue.6 , pp. 1451-1455
  • 78
    • 39449121254 scopus 로고    scopus 로고
    • Psychosocial outcomes and health-related quality of life in adult childhood cancer survivors: a report from the childhood cancer survivor study
    • Zeltzer, L. K., Lu, Q., Leisenring, W., Tsao, J. C., Recklitis, C., Armstrong, G., et al. (2008). Psychosocial outcomes and health-related quality of life in adult childhood cancer survivors: a report from the childhood cancer survivor study. Cancer Epidemiology, Biomarkers & Prevention, 17(2), 435–446. doi:10.1158/1055-9965.epi-07-2541.
    • (2008) Cancer Epidemiology, Biomarkers & Prevention , vol.17 , Issue.2 , pp. 435-446
    • Zeltzer, L.K.1    Lu, Q.2    Leisenring, W.3    Tsao, J.C.4    Recklitis, C.5    Armstrong, G.6


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.