The experience of family carers attending a joint reminiscence group with people with dementia: A thematic analysis

Dementia

Volumn 14, Issue 6, 2015, Pages 842-859

  Melunsky, Nina ^a   Crellin, Nadia ^a,b   Dudzinski, Emma ^c   Orrell, Martin ^a,b   Wenborn, Jennifer ^a,b   Poland, Fiona ^c   Woods, Bob ^d   Charlesworth, Georgina ^a,b  

^a NORTH EAST LONDON NHS FOUNDATION TRUST   (United Kingdom)

^b UNIVERSITY COLLEGE LONDON   (United Kingdom)

^c UNIVERSITY OF EAST ANGLIA   (United Kingdom)

^d BANGOR UNIVERSITY   (United Kingdom)

Author keywords

caregiving; dementia; family carers; psychosocial interventions; reminiscence; RYCT; thematic analysis

Indexed keywords

ADULT; AGED; CAREGIVER; DEMENTIA; FAMILY; FEMALE; HUMAN; INTERVIEW; MALE; MEMORY; MIDDLE AGED; PSYCHOLOGY; QUALITATIVE RESEARCH; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIAL (TOPIC); VERY ELDERLY;

ADULT; AGED; AGED, 80 AND OVER; CAREGIVERS; DEMENTIA; FAMILY; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MALE; MEMORY; MIDDLE AGED; QUALITATIVE RESEARCH; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIALS AS TOPIC;

EID: 84946407131     PISSN: 14713012     EISSN: 17412684     Source Type: Journal    
DOI: 10.1177/1471301213516332     Document Type: Article

References (39)

1. Alzheimer's Society. (2011). Support. Stay. Save. Care and support of people with dementia in their own homes
2. Alzheimer's Society (2012). Dementia 2012: A national challenge
3. C.BarberK.Pasley (1995) Family care of Alzheimer's patients: The role of gender and generational relationship on caregiver outcomes. Journal of Applied Gerontology14: 172–192.
4. D.BiegelR.Schultz (1999) Caregiving and caregiver interventions in aging and mental illness. Family Relations48: 345–355.
5. V.BraunV.Clarke (2006) Using thematic analysis in psychology. Qualitative Research in Psychology3: 77–101.
6. H.BrodatyA.GreenA.Koschera (2003) Meta-analysis of psychosocial interventions for caregivers of people with dementia. Journal of American Geriatrics Society51: 657–664.
7. G.CharlesworthK.BurnellJ.BeechamZ.HoareJ.HoeJ.WenbornM.Orrell (2011) Peer support for family carers of people with dementia, alone or in combination with group reminiscence in a factorial design: Study protocol for a randomised controlled trial. Trials12: 205–205.
8. C.CooperT.BalamuraliG.Livingston (2007) A systematic review of the prevalence and covariates of anxiety in caregivers of people with dementia. International Psychogeriatrics19: 175–195.
9. S.CroogJ.BurlesonA.SudilovskyR.Baume (2006) Spouse caregivers of Alzheimer patients: Problem responses to caregiver burden. Aging and Mental Health10: 87–100.
10. Department of Health (2009) Living well with dementia: A national dementia strategy, London: Department of Health.
11. C.Eisdorfer (1991) Caregiving: An emerging risk factor for emotional and physical pathology. Bulletin of the Menninger Clinic55: 238–247.
12. Elvish, E., Cawley, R., & Keady, J. (2013). The experiences of therapy from the perspectives of carers of people with dementia: An exploratory study. Counselling and Psychotherapy Research: Linking research with practice, Early View, DOI: 10.1080/14733145.2013.768284
13. D.Gallagher-ThompsonD.Coon (2007) Evidence-based psychological treatments for distress in family caregivers of older adults. Psychology and Aging22: 37–51.
14. M.HellstromL.NolanU.Lundh (2007) Ethical and methodological issues in interviewing persons with dementia. Nursing Ethics14: 608–619.
15. J.HendersonL.Forbat (2002) Relationship-based social policy: Personal and policy constructions of ‘care’. Critical Social Policy22: 669–687.
16. Kurz, A., Wagenpfeil, S., Hallauer, J., Schneider-Schelte, H., & Jansen, S. (2010). Evaluation of a brief educational program for dementia carers: The AENEAS Study. International Journal of Geriatric Psychiatry, 25(8), 861–869
17. D.Langdridge (2007) Phenomenological psychology: Theory, research and method, Harlow, UK: Pearson.
18. Y.LincolnE.Guba (1985) Naturalistic inquiry, Beverly Hills, CA: Sage.
19. L.LocockJ.Brown (2010) ‘All in the same boat’? Patient and carer attitudes to peer support and social comparison in motor neurone disease (MND). Social Science and Medicine71: 1498–1505.
20. P.MarsdenN.Friedkin (1994) Network studies of social influence. In: S.WassermanJ.Galaskiewicz (eds) Advances in social network analysis, London: Sage, pp. 3–25.
21. Martire, L.M., Lustig, A.P., Schulz, R., Miller, G.E., & Helgeson, V.S. (2004). Is it beneficial to involve a family member? A meta-analysis of psychosocial interventions for chronic illness. Health Psychology, 23, 599–611
22. P.MoiseM.SchwarzingerM.Um (2004) Dementia care in 9 OECD countries: a comparative analysis, OECD Health Working Paper no. 13, OECD: Paris.
23. E.MurphyR.DingwallD.GreatbachS.ParkerP.Watson (1998) Qualitative research methods in health technology assessment: A review of the literature. Health Technology Assessment2: 138–139.
24. N.NolanP.IngramR.Watson (2002) Working with family carers of people with dementia ‘Negotiated’ coping as an essential outcome. Dementia: The International Journal of Social Research and Practice1: 73–93.
25. B.NoyesR.HillB.HickenM.LuptakR.RupperN.DaileyB.Bair (2009) The role of grief in dementia caregiving. American Journal of Alzheimer's Disease and Other Dementias25: 9–17.
26. NVivo (2013). (Version 10) [Computer software]. Victoria, Australia: QSR International
27. J.OlazaranB.ReisbergL.ClareI.CruzJ.Pena-CasanovaT.del SerR.Muniz (2010) Non-pharmacological therapies in Alzheimer’s disease: A systematic review of efficacy. Dementia and Geriatric Cognitive Disorders30: 161–178.
28. J.PerryD.O’Connor (2002) Preserving personhood: (Re)Membering the spouse with dementia. Family Relations: Interdisciplinary Journal of Applied Family Studies51: 52–62.
29. M.PinquartS.Sorensen (2006) Helping caregivers of persons with dementia: Which interventions work and how large are their effects?International Psychogeriatrics18: 577–595.
30. M.PinquartS.Sorenson (2011) Spouses, adult children, and children-in-law as caregivers of older adults: A meta-analytic comparison. Psychology and Aging26: 1–14.
31. L.RichardsT.Richards (1991) The transformation of qualitative method: Computational paradigms and research processes. In: N.G.FieldingR.M.Lee (eds) Using computers in qualitative research, London: Sage, pp. 38–53.
32. P.SchweitzerE.Bruce (2008) Remembering yesterday, caring today – Reminiscence in dementia care: A guide to good practice, London: Jessica Kingsley Publishers.
33. C.SmitsJ.de LangeR.DröesF.MeilandM.Vernooij-DassenA.Pot (2007) Effects of combined intervention programmes for people with dementia living at home and their caregivers: A systematic review. International Journal of Geriatric Psychiatry22: 1181–1193.
34. P.SubramaniamB.Woods (2012) The impact of individual reminiscence therapy for people with dementia: Systematic review. Expert Review of Neurotherapeutics12: 545–555.
35. L.ThorgrimsenP.SchweitzerM.Orrell (2002) Evaluating reminiscence for people with dementia: A pilot study. Art Psychotherapy29: 93–97.
36. M.Vernooij-DassenI.DraskovicJ.McCleeryM.Downs (2011) Cognitive reframing for carers of people with dementia. The Cochrane Database of Systematic Reviews2011: CD005318–CD005318.
37. B.WoodsA.SpectorC.JonesM.OrrellS.Davies (2005) Reminiscence therapy for dementia. The Cochrane Database of Systematic Reviews2005: CD001120–CD001120.
38. R.WoodsE.BruceR.EdwardsR.ElvishZ.HoareB.HounsomeI.Russell (2012) REMCARE: Reminiscence groups for people with dementia and their family caregivers – effectiveness and cost-effectiveness pragmatic multicentre randomised trial. Health Technology Assessment16: 1–116. DOI: 10.3310/hta16480.
39. S.ZaritR.Toseland (1989) Current and future direction in family caregiving research. Gerontologist29: 481–483.