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Volumn 14, Issue 5, 2007, Pages 608-619

Ethical and methodological issues in interviewing persons with dementia

Author keywords

Dementia; Ethical considerations; Informed consent

Indexed keywords

ADAPTIVE BEHAVIOR; ARTICLE; ATTITUDE TO HEALTH; DEMENTIA; ETHICS; HUMAN; HUMAN RELATION; INFORMATION PROCESSING; INFORMED CONSENT; INTERVIEW; MENTAL CAPACITY; METHODOLOGY; NURSING METHODOLOGY RESEARCH; ORGANIZATION AND MANAGEMENT; PATIENT SELECTION; PSYCHOLOGICAL ASPECT; STANDARD; SWEDEN;

EID: 34548459356     PISSN: 09697330     EISSN: 14770989     Source Type: Journal    
DOI: 10.1177/0969733007080206     Document Type: Article
Times cited : (211)

References (37)
  • 1
    • 84993683831 scopus 로고    scopus 로고
    • From ritual to relationship: A person-centred approach to consent in qualitative research with older people who have dementia
    • Dewing J. From ritual to relationship: a person-centred approach to consent in qualitative research with older people who have dementia. Dementia 2002; 1: 157-71.
    • (2002) Dementia , vol.1 , pp. 157-171
    • Dewing, J.1
  • 2
    • 3042805804 scopus 로고    scopus 로고
    • Including people with dementia in research: Methods and motivations
    • Wilkinson H ed, London: Jessica Kingsley
    • Wilkinson H. Including people with dementia in research: methods and motivations. In: Wilkinson H ed. The perspectives of people with dementia: research methods and motivations. London: Jessica Kingsley, 2002: 9-24
    • (2002) The perspectives of people with dementia: Research methods and motivations , pp. 9-24
    • Wilkinson, H.1
  • 3
    • 0034534375 scopus 로고    scopus 로고
    • Defining the outcomes of community care: The perspective of older people with dementia and their carers
    • Bamford C, Bruce E. Defining the outcomes of community care: the perspective of older people with dementia and their carers. Ageing Soc 2000; 20: 543-70.
    • (2000) Ageing Soc , vol.20 , pp. 543-570
    • Bamford, C.1    Bruce, E.2
  • 4
    • 0035067201 scopus 로고    scopus 로고
    • Researching dementia: Are there unique methodological challenges for health services research?
    • Bond J, Corner L. Researching dementia: are there unique methodological challenges for health services research? Ageing Soc 2001; 21: 95-116.
    • (2001) Ageing Soc , vol.21 , pp. 95-116
    • Bond, J.1    Corner, L.2
  • 5
    • 3042729064 scopus 로고    scopus 로고
    • Getting down to brass tacks: Discussion of data collection with people with dementia
    • Wilkinson H ed, London: Jessica Kingsley
    • Clarke CL, Keady J. Getting down to brass tacks: discussion of data collection with people with dementia. In: Wilkinson H ed. The perspectives of people with dementia: research methods and motivations. London: Jessica Kingsley, 2002: 25-46.
    • (2002) The perspectives of people with dementia: Research methods and motivations , pp. 25-46
    • Clarke, C.L.1    Keady, J.2
  • 6
    • 0037537368 scopus 로고    scopus 로고
    • Living with the symptoms of Alzheimer's disease
    • Braudy Harris P eds, Baltimore, MD: Johns Hopkins University Press
    • Phinney A. Living with the symptoms of Alzheimer's disease. In: Braudy Harris P eds. The person with Alzheimer's disease. Baltimore, MD: Johns Hopkins University Press, 2002: 49-74.
    • (2002) The person with Alzheimer's disease , pp. 49-74
    • Phinney, A.1
  • 7
    • 0037711357 scopus 로고    scopus 로고
    • Giving voice to persons living with dementia: The researcher's opportunities and challenges
    • Moore TF, Hollett J. Giving voice to persons living with dementia: the researcher's opportunities and challenges. Nurs Sci Q 2003; 16: 163-67.
    • (2003) Nurs Sci Q , vol.16 , pp. 163-167
    • Moore, T.F.1    Hollett, J.2
  • 9
    • 84993704998 scopus 로고    scopus 로고
    • Ethical considerations in the ENABLE project
    • Bjørneby S, Topo P et al. Ethical considerations in the ENABLE project. Dementia 2004, 3: 297-312.
    • (2004) Dementia , vol.3 , pp. 297-312
    • Bjørneby, S.1    Topo, P.2
  • 10
    • 34548437189 scopus 로고    scopus 로고
    • Sustaining 'couplehood': Spouses' strategies for living positively with dementia
    • in press
    • Hellström I, Nolan MR, Lundh U. Sustaining 'couplehood': spouses' strategies for living positively with dementia. Dementia 2007 (in press).
    • (2007) Dementia
    • Hellström, I.1    Nolan, M.R.2    Lundh, U.3
  • 11
    • 84993683918 scopus 로고    scopus 로고
    • We do things together': A case study of 'couplehood' in dementia
    • Hellström I, Nolan MR, Lundh U. 'We do things together': a case study of 'couplehood' in dementia. Dementia 2005; 4: 7-22.
    • (2005) Dementia , vol.4 , pp. 7-22
    • Hellström, I.1    Nolan, M.R.2    Lundh, U.3
  • 12
    • 84993810431 scopus 로고    scopus 로고
    • Awareness context theory and the dynamics of dementia: Improving understanding using emergent fit
    • Hellström I, Nolan MR, Lundh U. Awareness context theory and the dynamics of dementia: improving understanding using emergent fit. Dementia 2005; 4: 269-95.
    • (2005) Dementia , vol.4 , pp. 269-295
    • Hellström, I.1    Nolan, M.R.2    Lundh, U.3
  • 15
    • 17044401440 scopus 로고    scopus 로고
    • The varieties of dignity
    • Nordenfelt L. The varieties of dignity. Health Care Anal 2004; 12: 69-82.
    • (2004) Health Care Anal , vol.12 , pp. 69-82
    • Nordenfelt, L.1
  • 16
    • 0041466269 scopus 로고    scopus 로고
    • Dignity and the care of the elderly
    • Nordenfelt L. Dignity and the care of the elderly. Med Health Care Philos 2003; 6: 103-10.
    • (2003) Med Health Care Philos , vol.6 , pp. 103-110
    • Nordenfelt, L.1
  • 17
    • 34548438251 scopus 로고    scopus 로고
    • Critiquing ethical issues in published research
    • Crookes PA, Davies S eds, second edition. London: Baillière Tindall
    • Matthews L, Grant G. Critiquing ethical issues in published research. In: Crookes PA, Davies S eds. Research into practice, second edition. London: Baillière Tindall, 2004: 129-42.
    • (2004) Research into practice , pp. 129-142
    • Matthews, L.1    Grant, G.2
  • 19
    • 0028290317 scopus 로고
    • Medical ethics: Four principles plus attention to scope
    • Gillon R. Medical ethics: four principles plus attention to scope. Br Med J 1994; 309: 184-88.
    • (1994) Br Med J , vol.309 , pp. 184-188
    • Gillon, R.1
  • 21
    • 84993741987 scopus 로고    scopus 로고
    • T know where this is going and I know I won't go back': Hearing the individual's voice in dementia quality of life assessment
    • Cahill S, Begley E, Topo P et al. T know where this is going and I know I won't go back': hearing the individual's voice in dementia quality of life assessment. Dementia 2004; 3: 313-30.
    • (2004) Dementia , vol.3 , pp. 313-330
    • Cahill, S.1    Begley, E.2    Topo, P.3
  • 22
    • 0002850457 scopus 로고    scopus 로고
    • The early experiences of Alzheimer's disease: Implications for partnership and practice
    • Adams T, Clarke C eds, London: Baillière Tindall
    • Keady J, Gilliard J. The early experiences of Alzheimer's disease: implications for partnership and practice. In: Adams T, Clarke C eds. Dementia care: developing partnerships in practice. London: Baillière Tindall, 1999: 227-56.
    • (1999) Dementia care: Developing partnerships in practice , pp. 227-256
    • Keady, J.1    Gilliard, J.2
  • 24
  • 25
    • 34548402327 scopus 로고    scopus 로고
    • Including the perspectives of older people in institutional care during the consent process
    • Wilkinson H ed, London: Jessica Kingsley
    • Hubbard G, Downs M, Tester S. Including the perspectives of older people in institutional care during the consent process. In: Wilkinson H ed. The perspectives of people with dementia: research methods and motivations. London: Jessica Kingsley, 2002: 63-81.
    • (2002) The perspectives of people with dementia: Research methods and motivations , pp. 63-81
    • Hubbard, G.1    Downs, M.2    Tester, S.3
  • 27
    • 0016823810 scopus 로고
    • Mini-Mental State: A practical guide for grading the cognitive state of patients for the clinician
    • Folstein MF, Folstein SE, McHugh PR. Mini-Mental State: a practical guide for grading the cognitive state of patients for the clinician. J Psychiatr Res 1975; 12: 189-98.
    • (1975) J Psychiatr Res , vol.12 , pp. 189-198
    • Folstein, M.F.1    Folstein, S.E.2    McHugh, P.R.3
  • 28
    • 0003416797 scopus 로고    scopus 로고
    • No diagnosis has to be your whole life: The effect of being told the diagnosis of dementia from the perspective of the person with dementia
    • London: Mental Health Foundation
    • Pratt R, Wilkinson H. No diagnosis has to be your whole life: the effect of being told the diagnosis of dementia from the perspective of the person with dementia. Final report to the Mental Health Foundation. London: Mental Health Foundation, 2001.
    • (2001) Final report to the Mental Health Foundation
    • Pratt, R.1    Wilkinson, H.2
  • 29
    • 0035225097 scopus 로고    scopus 로고
    • Patient decision making competence: Outlines of a conceptual analysis
    • Weile JVM, Weile SPK. Patient decision making competence: outlines of a conceptual analysis. Med Health Care Philos 2001; 4: 127-38.
    • (2001) Med Health Care Philos , vol.4 , pp. 127-138
    • Weile, J.V.M.1    Weile, S.P.K.2
  • 30
    • 0035225044 scopus 로고    scopus 로고
    • Autonomy, authenticity, or best interest: Everyday decision-making and persons with dementia
    • Holm S. Autonomy, authenticity, or best interest: everyday decision-making and persons with dementia. Med Health Care Philos 2001; 4: 153-59.
    • (2001) Med Health Care Philos , vol.4 , pp. 153-159
    • Holm, S.1
  • 31
    • 0010780158 scopus 로고
    • Self-awareness in early dementia
    • Gearing B, Johnson M, Heller I eds, Buckingham: Open University Press
    • Froggatt A. Self-awareness in early dementia. In: Gearing B, Johnson M, Heller I eds. Mental health problems in old age. Buckingham: Open University Press, 1988: 131-36.
    • (1988) Mental health problems in old age , pp. 131-136
    • Froggatt, A.1
  • 32
    • 30844471619 scopus 로고    scopus 로고
    • Make it easy on yourself Advice to researchers from someone with dementia on being interviewed
    • McKillop J, Wilkinson H. Make it easy on yourself Advice to researchers from someone with dementia on being interviewed. Dementia 2004; 3: 117-25.
    • (2004) Dementia , vol.3 , pp. 117-125
    • McKillop, J.1    Wilkinson, H.2
  • 34
    • 0001834367 scopus 로고    scopus 로고
    • Grounded theory: Objectivist and constructivist methods
    • Denzin NK, Lincoln YS eds, second edition. Thousand Oaks, CA: SAGE
    • Charmaz K. Grounded theory: objectivist and constructivist methods. In: Denzin NK, Lincoln YS eds. Handbook of qualitative research, second edition. Thousand Oaks, CA: SAGE, 2000: 509-35.
    • (2000) Handbook of qualitative research , pp. 509-535
    • Charmaz, K.1
  • 37
    • 0029046406 scopus 로고
    • Exploring the ethics of dementia research: A response to Berghmans and ter Meulen: a psychosocial perspective
    • Kitwood T. Exploring the ethics of dementia research: a response to Berghmans and ter Meulen: a psychosocial perspective. Int J Geriatr Psychiatry 1995; 10: 655-57.
    • (1995) Int J Geriatr Psychiatry , vol.10 , pp. 655-657
    • Kitwood, T.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.