REMCARE: Reminiscence groups for people with dementia and their family caregivers - Effectiveness and costeffectiveness pragmatic multicentre randomised trial

Health Technology Assessment

Volumn 16, Issue 48, 2012, Pages

  Woods, R T ^a   Bruce, E ^b   Edwards, R T ^a   Elvish, R ^c   Hoare, Z ^a   Hounsome, B ^a   Keady, J ^c   Moniz Cook, E D ^d   Orgeta, V ^e   Orrell, M ^e   Rees, J ^f   Russell, I T ^a,g  

^a BANGOR UNIVERSITY   (United Kingdom)

^b UNIVERSITY OF BRADFORD   (United Kingdom)

^c GREATER MANCHESTER MENTAL HEALTH NHS FOUNDATION TRUST   (United Kingdom)

^d Clinical Psychology Service for Older People   (United Kingdom)

^e UNIVERSITY COLLEGE LONDON   (United Kingdom)

^f ANEURIN BEVAN UNIVERSITY HEALTH BOARD   (United Kingdom)

^g SWANSEA UNIVERSITY   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

AGED; ARTICLE; CAREGIVER; CLINICAL EFFECTIVENESS; CONTROLLED STUDY; COST EFFECTIVENESS ANALYSIS; DEMENTIA; FAMILY CAREGIVER; GENERAL HEALTH QUESTIONNAIRE; HUMAN; MAJOR CLINICAL STUDY; MULTICENTER STUDY; QUALITY ADJUSTED LIFE YEAR; QUALITY OF LIFE; RANDOMIZED CONTROLLED TRIAL; RATING SCALE; SELF REPORT; SPOUSE; TREATMENT DURATION; ADULT; CONTROLLED CLINICAL TRIAL; COST BENEFIT ANALYSIS; ECONOMICS; FEMALE; GROUP THERAPY; MALE; METHODOLOGY; MIDDLE AGED; NURSING; OUTCOME ASSESSMENT; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; RECALL; SEX RATIO; UNITED KINGDOM; VERY ELDERLY; YOUNG ADULT;

ADULT; AGED; AGED, 80 AND OVER; CAREGIVERS; COST-BENEFIT ANALYSIS; DEMENTIA; FEMALE; GREAT BRITAIN; HUMANS; MALE; MENTAL RECALL; MIDDLE AGED; OUTCOME ASSESSMENT (HEALTH CARE); PSYCHOTHERAPY, GROUP; QUESTIONNAIRES; SEX DISTRIBUTION; YOUNG ADULT;

EID: 84871520370     PISSN: 13665278     EISSN: 20464924     Source Type: Journal    
DOI: 10.3310/hta16480     Document Type: Article

References (67)

1. Brodaty H, Green A, Koschera A. Meta-analysis of psychosocial interventions for caregivers of people with dementia. J Am Geriatr Soc 2003;51:657-64.
2. Spector A, Thorgrimsen L, Woods B, Royan L, Davies S, Butterworth M, et al. Efficacy of an evidence-based cognitive stimulation therapy programme for people with dementia: randomised controlled trial. Br J Psychiatry 2003;183:248-54.
3. National Institute for Health and Clinical Excellence and the Social Care Institute of Excellence (NICE-SCIE). Dementia: supporting people with dementia and their carers in health and social care. Clinical Guideline 42. London: NICE-SCIE; 2006.
4. McShane R, Keene J, Gedling K, Fairburn C, Jacoby R, Hope T. Do neuroleptic drugs hasten cognitive decline in dementia? Prospective study with necropsy follow up. BMJ 1997;314:266-70.
5. Livingston G, Johnston K, Katona C, Paton J, Lyketsos GG. Old Age Task Force of the World Federation of Biological Psychiatry. Systematic review of psychological approaches to the management of neuropsychiatric symptoms of dementia. Am J Psychiatry 2005;162:1996-2021.
6. Olazarán J, Reisberg B, Clare L, Cruz I, Peña-Casanova J, Del Ser T, et al. Nonpharmacological therapies in Alzheimer's disease: a systematic review of efficacy. Dement Geriatr Cogn 2010;30:161-78.
7. Clare L, Woods RT, Moniz Cook ED, Orrell M, Spector A. Cognitive rehabilitation and cognitive training for early-stage Alzheimer's disease and vascular dementia. Cochrane Database Syst Rev 2003;4:CD003260.
8. Woods B, Spector AE, Prendergast L, Orrell M. Cognitive stimulation to improve cognitive functioning in people with dementia. Cochrane Database Syst Rev 2005;4:CD005562.
9. Dementia Services Development Centre (DSDC). Services for people with dementia in Wales. Report No. 1: residential and nursing home care in Wales. DSDC Wales; 2002. URL: www.bangor.ac.uk/imscar/dsdc/documents/DSDCreport1Homes_000.pdf (accessed 9 September 2012).
10. Gibson F. The past in the present: using reminiscence in health and social care. Baltimore, MD: Health Professions Press; 2004.
11. Woods RT, McKiernan F. Evaluating the impact of reminiscence on older people with dementia. In Haight BK, Webster J, editors. The art and science of reminiscing: theory, research, methods and applications. Washington, DC: Taylor & Francis; 1995. pp. 233-42.
12. Woods RT, Bruce E, Edwards RT, Hounsome B, Keady J, Moniz-Cook ED, et al. Reminiscence therapy for dementia. Cochrane Database Syst Rev 2005b;2:CD001120.
13. Tadaka E, Kanagawa K. A randomized controlled trial of a group care program for community-dwelling elderly people with dementia. Jpn J Nurs Sci 2004;1:19-25.
14. Tadaka E, Kanagawa K. Effects of reminiscence group in elderly people with Alzheimer disease and vascular dementia in a community setting. Geriatr Gerontol Int 2007;7:167-73.
15. Wang J-J. Group reminiscence therapy for cognitive and affective function of demented elderly in Taiwan. Int J Geriatr Psychiatry 2007;22:1235-40.
16. Gudex C, Horsted C, Jensen A, Kjer M, Sørensen J. Consequences from use of reminiscence-a randomised intervention study in ten Danish nursing homes. BMC Geriatr 2010;10:33.
17. Hsieh C-J, Chang C, Su S-F, Hsiao Y-L, Shih Y-W, Han W-H, et al. Reminiscence group therapy on depression and apathy in nursing home residents with mild to moderate dementia. JECM 2010;2:72-8.
18. Haslam C, Haslam SA, Jetten J, Bevins A, Ravenscroft S, Tonks J. The social treatment: the benefits of group interventions in residential care settings. Psychol Aging 2010;25:157-67.
19. Schweitzer P, Bruce E. Remembering Yesterday, Caring Today: reminiscence in dementia care-a guide to good practice. London: Jessica Kingsley Publishers; 2008.
20. Bruce E, Gibson F. Remembering Yesterday, Caring Today: evaluatiors' report. London: Age Exchange; 1998.
21. Thorgrimsen L, Schweitzer P, Orrell M. Evaluating reminiscence for people with dementia: a pilot study. Art Psychother 2002;29:93-7.
22. Nolan M, Davies S, Ryan T, Keady J. Relationship-centred care and the 'Senses' framework. J Dementia Care 2008;16:26-8.
23. Tuokko H, McCourt P, Heath Y. Home alone with dementia. Aging Ment Health 1999;3:21-7.
24. Luengo-Fernandez R, Leal J, Gray A. The economic burden of dementia and associated research funding in the United Kingdom. Cambridge: Alzheimer's Research Trust; 2010.
25. Wimo A, Prince M. Alzheimer's Disease International World Alzheimer Report 2010: the global economic impact of dementia. London: Alzheimer's Disease International; 2010.
26. National Institue for Health and Clinical Excellence (NICE). Guide to the methods of technology appraisal. London: NICE; 2008.
27. Homer C. Using the Zelen design in randomized controlled trials: debates and controversies. J Adv Nurs 2002;38:200-7.
28. Folstein MF, Folstein SE, McHugh PR. 'Mini Mental State': a practical method for grading the cognitive state of patients for the clinician. J Psychiatry Res 1975;12:189-98.
29. Logsdon RG, Gibbons LE, McCurry SM, Teri L. Assessing quality of life in older adults with cognitive impairment. Psychosom Med 2002;64:510-19.
30. Agar S, Moniz-Cook E, Orbell S, Elston C, Wang M. Measuring the outcome of psychosocial intervention for family caregivers of dementia sufferers: a factor analytic study. Aging Ment Health 1997;1:166-75.
31. Goldberg DP, Hillier VF. A scaled version of the General Health Questionnaire. Psychol Med 1979;9:139-45.
32. Yesavage JA, Brink TL, Rose TL. Development and validation of a geriatric depression scale: a preliminary report. J Psychiatry Res 1983;17:37-49.
33. Spruytte N, Van Audenhove C, Lammertyn F, Storms G. The quality of the caregiving relationship in informal care for older adults with dementia and chronic psychiatric patients. Psychol Psychother 2002;75:295-311.
34. Gallagher-Thompson D, Dal-Canto PG, Darnley S, Basilio LA, Whelan L, Jacob T. A feasibility study of videotaping to assess the relationship between distress in Alzheimer's disease caregivers and their interaction style. Aging Ment Health 1997;1:346-55.
35. The National Archives. Mental Capacity Act 2005. URL: www.legislation.gov.uk/ ukpga/2005/9/contents (accessed 13 September 2011).
36. Woods RT, Wills W, Higginson IJ, Hobbins J, Whitby M. Support in the community for people with dementia and their carers: a comparative outcome study of specialist mental health service interventions. Int J Geriatr Psych 2003;18:298-307.
37. Dobson C. Conducting research with people not having the capacity to consent to their participation. Leicester: British Psychological Society; 2008.
38. Russell D, Hoare ZSJ, Whitaker R, Whitaker CJ, Russell IT. Generalized method for adaptive randomization in clinical trials. Stat Med 2011;30:922-34.
39. Thorgrimsen L, Selwood A, Spector A, Royan L, de Madariaga Lopez M, Woods RT, et al. Whose quality of life is it anyway?: the validity and reliability of the Quality of Life-Alzheimer's Disease (QoL-AD) scale. Alzheimer Dis. Assoc 2003;17:201-8.
40. Orrell M, Hoe J, Hancock G, Livingston G. Quality of life of people with dementia in residential care homes. Br J Psychiatry 2006;188:460-4.
41. Donaldson C, Tarrier N, Burns A. Determinants of carer stress in Alzheimer's disease. Int J Geriatr Psychiatry 1998;13:248-56.
42. Marriott A, Donaldson C, Tarrier N, Burns A. Effectiveness of cognitive-behavioural family intervention in reducing the burden of care in carers of patients with Alzheimer's disease. Br J Psychiatry 2000;176:557-62.
43. Kopelman MD, Wilson BA, Baddeley A. The autobiographical memory interview. Bury St Edmunds: Thames Valley Test Company; 1990.
44. Alexopoulos GS, Abrams RC, Young RC, Shamoian CA. Cornell scale for depression in dementia. Biol Psychiatry 1988;23:271-84.
45. Shankar KK, Walker M, Frost D, Orrell MW. The development of a valid and reliable scale for rating anxiety in dementia (RAID). Aging Ment Health 1999;3:39-49.
46. Flint AJ, Rifat SL. Validation of the hospital anxiety and depression scale as a measure of severity of geriatric depression. Int J Geriatr Psychiatry 1996;11:991-4.
47. EuroQol EQ-5D. URL: www.euroqol.org (accessed 13 September 2011).
48. Bucks RS, Ashworth DL, Wilcock GK, Siegfried K. Assessment of activities of daily living in dementia: development of the Bristol Activities of Daily Living scale. Age Ageing 1996;25:113-20.
49. Beecham J, Knapp M. Costing psychiatric interventions. London: Gaskell; 1992.
50. Knapp M, Thorgrimsen L, Patel A, Spector A, Hallam A, Woods RT, et al. Cognitive stimulation therapy for people with dementia: cost-effectiveness analysis. Br J Psychiatry 2006;188:574-80.
51. Matthews J. An introduction to clinical trials. London: Arnold/Hodder Headline; 2000.
52. Kinsella S. Ten lesson for micro-costing in health economics. 2004. URL: www.stephenkinsella. net/2008/07/04/985 (accessed 24 August 2010).
53. Morris S, Devlin N, Parkin D. Economic analysis in health care. Chichester: Wiley and Sons; 2007.
54. Department of Health. NHS reference costs 2009-10. 2010. URL: www.dh.gov.uk/en/ Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_123459 (accessed 9 September 2012).
55. Curtis L. Unit costs of health and social care. Canterbury: Personal Social Services Research Unit (PSRRU), University of Kent; 2010.
56. British Medical Association and Royal Pharmaceutical Society of Great Britain. British national formulary. No. 61, March 2011. London: BMA and RPS; 2011.
57. Mistry H, Buxton M, Longworth L, Chatwin J, Peveler R. Comparison of general practitioner records and patient self-report questionnaires for estimation of costs. Eur J Health Econ 2005;6:261-6.
58. Hounsome N, Orrell M, Edwards RT. EQ-5D as a quality of life measure in people with dementia and their carers: evidence and key issues. Value Health 2011;14:390-9.
59. Kind P, Hardman G, Macran S. UK population norms for EQ-5D. Centre for Health Economics Discussion Paper 172. York: University of York; 1999.
60. Hughes CP, Berg L, Danziger WL, Coben LA, Martin RL. A new clinical scale for the staging of dementia. Br J Psychiatry 1982;140:566-72.
61. Royal College of Nursing. NHS Agenda for Change pay scales-2010/2011. URL: www.rcn. org.uk/__data/assets/pdf_file/0018/233901/003303.pdf (accessed 9 September 2012).
62. Bangor University. Bangor University Pay Scales 2010. URL: www.bangor.ac.uk/finance/py/ documents/pcalc11b_000.pdf (accessed 9 September 2012).
63. Landis JR, Koch GG. The measurement of observer agreement for categorical data. Biometrics 1977;33:159-74.
64. Altman DG. Practical statistics for medical research. London: Chapman and Hall; 1991.
65. Charlesworth GM, Shepstone L, Wilson E, Reynolds S, Mugford M, Price D, et al. Befriending carers of people with dementia: randomised controlled trial. BMJ 2008;336:1295.
66. Charlesworth G, Burnell K, Beecham J, Hoare Z, Hoe J, Wenborn J, et al. Peer support for family carers of people with dementia, alone or in combination with group reminiscence in a factorial design: study protocol for a randomised controlled trial. Trials 2011;12:205.
67. Charlesworth G, Shepstone L, Wilson E, Thalanany M, Mugford M, Poland F. Does befriending by trained lay workers improve psychological well-being and quality of life for carers of people with dementia, and at what cost? A randomised controlled trial. Health Technol Assess 2008;12(4).