Managing Medications During Home Hospice Cancer Care: The Needs of Family Caregivers

Journal of Pain and Symptom Management

Volumn 50, Issue 5, 2015, Pages 630-641

  Tjia, Jennifer ^a   Ellington, Lee ^b   Clayton, Margaret F ^b   Lemay, Celeste ^a   Reblin, Maija ^b  

^a UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL   (United States)

^b UNIVERSITY OF UTAH   (United States)

Author keywords

caregiver skills; framework; Hospice; medication management; symptom management

Indexed keywords

ADULT; AGED; ARTICLE; CANCER CENTER; CAREGIVER; CLINICAL ARTICLE; FEMALE; HOME CARE; HOME HOSPICE CANCER CARE; HOSPICE CARE; HUMAN; MALE; MEDICATION THERAPY MANAGEMENT; MIDDLE AGED; ORGANIZATIONAL SKILL; PERSONHOOD; PERSONHOOD SKILL; SKILL; TEAMWORK; VERY ELDERLY; ELECTRONIC HEALTH RECORD; FAMILY; INTERPERSONAL COMMUNICATION; NEOPLASMS; NURSE; PROCEDURES; PSYCHOLOGY; UNITED STATES; URBAN POPULATION;

AGED; AGED, 80 AND OVER; CAREGIVERS; COMMUNICATION; ELECTRONIC HEALTH RECORDS; FAMILY; FEMALE; HOME NURSING; HOSPICE CARE; HUMANS; MALE; MEDICATION THERAPY MANAGEMENT; MIDDLE AGED; NEOPLASMS; NURSES; UNITED STATES; URBAN POPULATION;

EID: 84945441787     PISSN: 08853924     EISSN: 18736513     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2015.06.005     Document Type: Article

References (31)

1. J.M. Hauser, and B.J. Kramer Family caregivers in palliative care Clin Geriatr Med 20 2004 671 688
2. J. Kutner, K.M. Kilbourn, A. Costenaro, and et al. Support needs of informal hospice caregivers: a qualitative study J Palliat Med 12 2009 1101 1104
3. D.B. McGuire, M. Grant, and J. Park Palliative care and end of life: the caregiver Nurs Outlook 60 2012 351 356 e320
4. D.T. Lau, R. Berman, L. Halpern, and et al. Exploring factors that influence informal caregiving in medication management for home hospice patients J Palliat Med 13 2010 1085 1090
5. K. Donelan, C.A. Hill, C. Hoffman, and et al. Challenged to care: informal caregivers in a changing health system Health Aff (Millwood) 21 2002 222 231
6. M. Glajchen The emerging role and needs of family caregivers in cancer care J Support Oncol 2 2003 145 155
7. S.S. Hwang, V.T. Chang, Y. Alejandro, and et al. Caregiver unmet needs, burden, and satisfaction in symptomatic advanced cancer patients at a Veterans Affairs (VA) Medical Center Palliat Support Care 1 2003 319 329
8. B.H. Osse, M.J. Vernooij-Dassen, E. Schadé, and R.P. Grol Problems experienced by the informal caregivers of cancer patients and their needs for support Cancer Nurs 29 2006 378 388
9. K.L. Schumacher, B.J. Stewart, P.G. Archbold, and et al. Effects of caregiving demand, mutuality, and preparedness on family caregiver outcomes during cancer treatment Oncol Nurs Forum 35 2008 49 56
10. J.A. Paice, J.C. Muir, and S. Shott Palliative care at the end of life: comparing quality in diverse settings Am J Hosp Palliat Care 21 2004 19 27
11. B.T. Joyce, R. Berman, and D.T. Lau Formal and informal support of family caregivers managing medications for patients who receive end-of-life care at home: a cross-sectional survey of caregivers Palliat Med 28 2014 1146 1155
12. D.P. Oliver, E. Wittenberg-Lyles, K. Washington, and et al. Hospice caregivers' experiences with pain management: "I'm not a doctor, and I don't know if I helped her go faster or slower" J Pain Symptom Manage 46 2013 846 858
13. B.T. Joyce, and D.T. Lau Hospice experiences and approaches to support and assess family caregivers in managing medications for home hospice patients: a providers survey Palliat Med 27 2012 329 338
14. D.T. Lau, B. Joyce, M.L. Clayman, and et al. Hospice providers' key approaches to support informal caregivers in managing medications for patients in private residences J Pain Symptom Manage 43 2012 1060 1071
15. D.T. Lau, J.D. Kasper, J.M. Hauser, and et al. Family caregiver skills in medication management for hospice patients: a qualitative study to define a construct J Gerontol B Psychol Sci Soc Sci 64 2009 799 807
16. S. Elo, and H. Kyngäs The qualitative content analysis process J Adv Nurs 62 2008 107 115
17. L. Ellington, M. Reblin, M.F. Clayton, P. Berry, and K. Mooney Hospice nurse communication with cancer patients and their family caregivers J Palliat Med 15 2012 262 268
18. G. Guest, A. Bunce, and L. Jonson How many interviews are enough? An experiment with data saturation and variability Field Meth 18 2006 59 82
19. H.-F. Hsieh, and S.E. Shannon Three approaches to qualitative content analysis Qual Health Res 15 2005 1277 1288
20. S.C. Mcmillan Interventions to facilitate family caregiving at the end of life J Palliat Med 8 2005 s-132 s-139
21. S.B. Detmar, M.J. Muller, L.D. Wever, and et al. The patient-physician relationship. Patient-physician communication during outpatient palliative treatment visits: an observational study JAMA 285 2001 1351 1357
22. U. Stenberg, C.M. Ruland, and C. Miaskowski Review of the literature on the effects of caring for a patient with cancer Psychooncology 19 2010 1013 1025
23. F.J. Keefe, I. Lipkus, J.C. Lefebvre, and et al. The social context of gastrointestinal cancer pain: a preliminary study examining the relation of patient pain catastrophizing to patient perceptions of social support and caregiver stress and negative responses Pain 103 2003 151 156
24. L. Northouse, A-l Williams, B. Given, and R. McCorkle Psychosocial care for family caregivers of patients with cancer J Clin Oncol 30 2012 1227 1234
25. C. Kimberlin, D. Brushwood, W. Allen, E. Radson, and D. Wilson Cancer patient and caregiver experiences: communication and pain management issues J Pain Symptom Manage 28 2004 566 578
26. J.L. Wolff, D.L. Roter, B. Given, and L.N. Gitlin Optimizing patient and family involvement in geriatric home care J Healthc Qual 31 2009 24 33
27. C.C. Hendrix, A. Abernethy, R. Sloane, J. Misuraca, and J. Moore A pilot study on the influence of an individualized and experiential training on cancer caregiver's self-efficacy in home care and symptom management Home Healthc Nurse 27 2009 271 278
28. B. Sheehy-Skeffington, S. McLean, M. Bramwell, N. O'Leary, and A. O'Gorman Caregivers experiences of managing medications for palliative care patients at the end of life a qualitative study Am J Hosp Palliat Care 31 2014 148 154
29. E. Wittenberg-Lyles, D.P. Oliver, R.L. Kruse, and et al. Family caregiver participation in hospice interdisciplinary team meetings: how does it affect the nature and content of communication? Health Commun 28 2013 110 118
30. M. Sandelowski Sample size in qualitative research Res Nurs Health 18 1995 179 183
31. K.L. Schumacher, V.L. Plano Clark, C.M. West, and et al. Pain medication management processes used by oncology outpatients and family caregivers, part I: health system contexts J Pain Symptom Manage 48 2014 770 783