Interventions to facilitate family caregiving at the end of life

Journal of Palliative Medicine

Volumn 8, Issue SUPPL. 1, 2005, Pages

  McMillan, Susan C ^a  

^a UNIVERSITY OF SOUTH FLORIDA   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ANXIETY DISORDER; CAREGIVER; CLINICAL PRACTICE; CONFERENCE PAPER; CULTURAL ANTHROPOLOGY; DAILY LIFE ACTIVITY; DEATH EDUCATION; DECISION MAKING; DEPRESSION; DESCRIPTIVE RESEARCH; DISTRESS SYNDROME; EATING; ECONOMIC ASPECT; EMOTION; EVALUATION; FAMILY SERVICE; HEALTH CARE PERSONNEL; HEALTH CARE POLICY; HIGH RISK POPULATION; HOME CARE; HUMAN; INTERPERSONAL COMMUNICATION; LONELINESS; MARRIAGE; MENTAL HEALTH; OUTCOME ASSESSMENT; PATIENT TRANSPORT; QUALITY OF LIFE; SATISFACTION; TERMINAL CARE;

EID: 32044462507     PISSN: 10966218     EISSN: None     Source Type: Journal    
DOI: 10.1089/jpm.2005.8.s-132     Document Type: Conference Paper

References (43)

1. Emanuel EJ, Fairclough DL, Slutsman J, & Emanuel LL: Understanding economic and other burdens of terminal illness: The experience of patients and their caregivers. Ann Intern Med 2000;132:451-459.
2. Haley WE, LaMonde LA, Han B, Narramore S, & Schonwetter R: Family caregiving in hospice: Effects on psychological and health functioning in spousal caregivers for patients with lung cancer or dementia. Hospice J 2001;15:1-18.
3. Haley WE, Allen R, Reynolds S, Chen H, Burton A, & Gallagher-Thompson D: Family issues in end-of-life decision making and end-of-life care. Am Behav Sci 2002;46:284-297.
4. Weitzner M, Moody L, McMillan SC: Symptom management issues in hospice care. Am J Hosp Palliat Care 1997;14:190-195.
5. Emanuel EJ, Fairclough DL, Slutsman J, Alpert H, Baldwin D, & Emanuel LL: Assistance from family members, friends, paid caregivers, and volunteers in the care of terminally ill patients. NEJM, 1999;341: 13:956-963.
6. McMillan SC, Mahon M: The impact of hospice services on the quality of life of primary caregivers. Oncol Nurs Forum 1994;21:1189-1195.
7. McMillan SC, Small BJ, Schonwetter R, Weitzner M, Moody LE, Tittle M, Haley WE: Impact of a coping skills intervention with family caregivers of hospice patients with cancer: A randomized clinical trial. Cancer 2006;105(1).
8. Weitzner MA, Moody LE, McMillan SC: Symptom management issues in hospice care. Am J Hosp Palliat Care 1997;90-195.
9. McMillan SC, Moody LE: Hospice patient and caregiver congruence in reporting patinet's symptom intensity. Cancer Nurs 2003;26:113-118.
10. Pinquart M, & Sorenson D: Differences between caregivers and noncaregivers in psychological health and physical health: A meta-analysis. Psychol Aging 2003;18:250-267.
11. Nijboer C, Triemstra M, Mulder M, Sanderman R, van den Bos, GA: Patterns of caregiver experiences among partners of cancer patients. Gerontologist, 2000;40: 738-746.
12. Given C, Stommel M, Given B, Osuch J, Kurtz M: The influence of cancer patients' symptoms and functional states on patients' depression and family caregivers' reaction and depression. Health Psychol 1993;12: 277-285.
13. Toseland RW, Blanchard CG, McCallion, P: A problem solving intervention for caregivers of cancer patients: Social Sci Med 1995;40:517-528.
14. Schumacher KL, Dodd MJ, Paul SM: The stress process in family caregivers of persons receiving chemotherapy. Res Nurs Health 1993;16:395-404.
15. Haley WE, LaMonde LA, Han B, Burton AM, Schonwetter R: Predictors of depression and life satisfaction among spousal caregivers in hospice: Application of a stress process model. J Palliat Med 2003;6:215-224.
16. Kurtz ME, Given BA, Kurtz JC, Given CW: The interaction of age, symptoms, and survival status on physical and mental health of patients with cancer and their families. Cancer 1994;74:2071-2078.
17. McCorkle R, Robinson L, Nuamah I, et al: The effects of home nursing care for patients during terminal illness on the bereaved's psychological stress. Nursing Research 1998;47:2-10.
18. Given CW, Given BA, Stommel M, Azzouz F: The impact of new demands for assistance on caregiver depression: Tests using an inception cohort. Gerontologist 1999;39:76-85.
19. Given B, Wyatt G, Given CW, Sherwood P, Gift A, DeVoss D, Rahbar M: Burden and depression among caregivers of patients with cancer at the end of life. Oncol Nurs Forum 2004;31:1105-1117.
20. Robinson-Whelan S, Tada Y, MacCallum RC, McGuire L, Kiecolt-Glaser JK: Longterm caregiving: What happens when it ends? J Abnorm Psychol 2001;110:573-584.
21. Schulz R, Newsom JT, Fleissner K, DeCamp AR, Nieboer AP: The effects of bereavement after family caregiving. Aging Mental Health 1997;1:269-282.
22. Schulz R, Mendelsohn AB, Haley WE, Mahoney D, Allen RS, Shang S, Thompson L, Belle SH: End of life care and the effects of bereavement among family caregivers of persons with dementia. NEJM 2003; 349:1936-42.
23. Schultz R, Burgio L, Burns R, Eisdorfer C, Gallagher-Thompson D, Gitlin LN, Mahoney DF: Resources for Enhancing Alzheimer's Caregiver Health (REACH): Overview, site-specific outcomes, and future directions. Gerontologist 2003;43:514-520.
24. Sorenson S, Pinquart M, Duberstein P: How effective are interventions with caregivers? An updated meta-analysis. Gerontologist 2002;42:356-372.
25. Mittelman MS, Roth DL, Coon DW, Haley WE: Sustained benefits of suppportive intervention for depressive symptoms in Alzheimer's caregivers. Am J Psychiatry 2004;161:850-856.
26. Gallagher-Thompson D, Haley WE, Guy D, Rubert M, Arguellas T, Tennstedt S, Ory M: Tailoring psychological interventions for ethnically diverse dementia caregivers. Clin Psychol Sci Pract 2003;10:423-438.
27. Burns R, Nichols LO, Martindale-Adams J, Granley MJ, Lummus A: A primary care intervention for dementia caregivers: 2-Year outcomes from the REACH study. Gerontologist 2003;43:547-555.
28. Burgio L, Stevens A, Guy D, Roth DL, Haley WE. Impact of two psychosocial interventions on white and African American family caregivers in individuals with dementia. Gerontologist 2003;43:568-579.
29. Eisdorfer C, Czaja SJ, Loewenstein DA, Rupret MP, Arguellas S, Mitrani VB, Szapacznik J: The effect of a family therapy and technology-based intervention on caregiver depression. Gerontologist 2003;43:521-531.
30. Gitlin LN, Burgio LD, Mahoney D, Burns R, Zhang S, Schultz R, Belle SH, Czaha SJ, Gallahger-Thompson D, Hauck WW, Ory MG: Effect of multicomponent interventions on caregiver burden and depression: The REACH multisite initiative at 6 month follow-up. Psychol Aging 2003;18:361-374.
31. Mahoney DF, Tarlow BJ, Jones RN: Effects of an automated telephone support system on caregivers' burden and anxiety: Findings from the REACH for TLC intervention study. Gerontologist 2003;43:556-567.
32. Kozachik S, Given CW, Given BA, Pierce SJ, Azzouz F, Rawl SM, Champion V: Improving depressive symptoms among caregivers of patients with cancer: Results of a randomized clinical trial. Oncol Nurs Forum 2001;28:1149-1157.
33. McCorkle R, Robinson L, Nuamah I, et al: The effects of home nursing car for patients during terminal illness on the bereaved's psychological distress. Nurs Res 1998;47:2-10.
34. Ferrall BR, Grant M, Chan J, et al: The impact of cancer pain education on family caregivers of elderly patients. Oncol Nurs Forum 1995;22:1211-1218.
35. Jepson C, McCorkle R, Adler D, Nuamah I, Lusk E: Effects of home care on caregivers' psychosocial status. Image: J Nurs Scholarship 1999;31:115-120.
36. Goldberg RJ, Wool MS: Psychotherapy for the spouse of lung cancer patients: Assessment of an Intervention. Psychother Psychosom 1985;43:141-150.
37. Heinrich RL, Schag SC: Stress activity management: Group treatment for cancer patients and spouses. J Consult Clin Psychol 1985;43:439-446.
38. Blanchard CG, Toseland RW, McCallion P: The effects of a problem-solving intervention with spouses of cancer patients. J Psychosoc Oncol 1996;14:1-21.
39. Smeenk FWJM, deWitte LP, van Haastregt JCM, Schipper RM, Biezemans HPH, Crebolder HFJM: Transmural care of terminal cancer patients: Effects on the quality of life of direct caregivers. Nurs Res 1998;47:129-136.
40. Walsh SM, Schmidt LA: Telephone support for caregivers of patients with cancer. Cancer Nurs 2003; 26:448-453.
41. Given B, Given CW, Sherwood P, Rahbar M, Jeon S: The impact of providing symptom management assistance on caregiver negative reaction: Results of a randomized trial. 2004, in review.
42. McMillan SC, Weitzner MA: Methodologic issues in collecting data from debilitated patients with cancer near the end of life. Oncol Nurs Forum 2003;30: 123-129.
43. McMillan SC: (PI) Caregivers of Cancer Pain Patients: Coping Intervention. (R01-NR008270). Bethesda, MD: National Institute for Nursing Research, 2001-2005.