Challenged to care: Informal caregivers in a changing health system

Health Affairs

Volumn 21, Issue 4, 2002, Pages 222-231

  Donelan, Karen ^a,b   Hill, Craig A ^a   Hoffman, Catherine ^c   Scoles, Kimberly ^d   Feldman, Penny Hollander ^e   Levine, Carol ^f   Gould, David ^a  

^a Medrock ^*

^b HARVARD SCHOOL OF PUBLIC HEALTH   (United States)

^c Kaiser Commission   (United States)

^d Harvard Prog Pub Opinion/Hlth C

^e Visiting Nurse Association of Central New York   (United States)

^f United Hospital Fund New York   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ADULT; AGED; ARTICLE; CAREGIVER; COMPARATIVE STUDY; EPIDEMIOLOGY; FEMALE; HEALTH CARE QUALITY; HOME CARE; HUMAN; MALE; MEDICATION ERROR; MIDDLE AGED; ORGANIZATION; PSYCHOLOGICAL ASPECT; SOCIAL SUPPORT; STANDARD; STATISTICS; UNITED STATES; UTILIZATION REVIEW;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; AGED; CAREGIVERS; FEMALE; HEALTH CARE SURVEYS; HOME NURSING; HUMANS; MALE; MEDICATION ERRORS; MIDDLE AGED; ORGANIZATIONAL INNOVATION; QUALITY OF HEALTH CARE; SOCIAL SUPPORT; UNITED STATES;

EID: 1642283870     PISSN: 02782715     EISSN: None     Source Type: Journal    
DOI: 10.1377/hlthaff.21.4.222     Document Type: Article

References (9)

1. Data from the 2000 census on residence and place of birth are from U.S. Census Bureau, "Profile of Selected Social Characteristics, 2000," factfinder.census.gov/servlet (22 April 2002).
2. R.D. Putnam, Bowling Alone. The Collapse and Revival of American Community (New York: Simon and Schuster, 2000).
3. See, for example, K. Schulz and S.K. Beach, "Caregiving as a Risk Factor for Mortality: The Caregiver Health Effects Study," Journal of the American Medical Association 282, no. 23 (1999): 2215-2219; W.S. Shaw et al., "Longitudinal Analysis of Multiple Indicators of Health Decline among Spousal Caregivers," Annals of Behavioral Medicine 19, no. 2 (1997): 101-108; and D.P. Vitaliano, H.M. Young, and J. Russo, "Burden: A Review of Measures Used among Caregivers of Individuals with Dementia," Gerontologist 31, no. 1 (1991): 76-83.
4. See, for example, K. Schulz and S.K. Beach, "Caregiving as a Risk Factor for Mortality: The Caregiver Health Effects Study," Journal of the American Medical Association 282, no. 23 (1999): 2215-2219; W.S. Shaw et al., "Longitudinal Analysis of Multiple Indicators of Health Decline among Spousal Caregivers," Annals of Behavioral Medicine 19, no. 2 (1997): 101-108; and D.P. Vitaliano, H.M. Young, and J. Russo, "Burden: A Review of Measures Used among Caregivers of Individuals with Dementia," Gerontologist 31, no. 1 (1991): 76-83.
5. See, for example, K. Schulz and S.K. Beach, "Caregiving as a Risk Factor for Mortality: The Caregiver Health Effects Study," Journal of the American Medical Association 282, no. 23 (1999): 2215-2219; W.S. Shaw et al., "Longitudinal Analysis of Multiple Indicators of Health Decline among Spousal Caregivers," Annals of Behavioral Medicine 19, no. 2 (1997): 101-108; and D.P. Vitaliano, H.M. Young, and J. Russo, "Burden: A Review of Measures Used among Caregivers of Individuals with Dementia," Gerontologist 31, no. 1 (1991): 76-83.
6. Older Americans Act Amendments of 2000 (P.L. 106-501).
7. C. Levine et al., Survey of Family Caregivers in New York City: Findings and Implications for the Health Care System (New York United Hospital Fund, 2000).
8. C. Levine, Rough Crossings: Family Caregivers' Odysseys through the Health Care System, A United Hospital Fund Special Report (New York United Hospital Fund, 1998).
9. National Alliance for Caregiving and AARP, Family Caregiving in the U.S.: Findings from a National Survey (Bethesda, Md., and Washington: NAC and AARP, June 1997), 1-40.