Hospice providers' key approaches to support informal caregivers in managing medications for patients in private residences

Journal of Pain and Symptom Management

Volumn 43, Issue 6, 2012, Pages 1060-1071

  Lau, Denys T ^a   Joyce, Brian ^a,b   Clayman, Marla L ^b   Dy, Sydney ^c   Ehrlich Jones, Linda ^d   Emanuel, Linda ^b   Hauser, Joshua ^b   Paice, Judith ^b   Shega, Joseph W ^e  

^a UNIVERSITY OF ILLINOIS AT CHICAGO   (United States)

^b NORTHWESTERN UNIVERSITY   (United States)

^c JOHNS HOPKINS BLOOMBERG SCHOOL OF PUBLIC HEALTH   (United States)

^d REHABILITATION INSTITUTE OF CHICAGO   (United States)

^e UNIVERSITY OF CHICAGO   (United States)

Author keywords

family caregivers; Hospice home services; pain management

Indexed keywords

ARTICLE; CAREGIVER BURDEN; CAREGIVER SUPPORT; EMOTION; FEMALE; HOME CARE; HOSPICE CARE; HUMAN; MALE; MEDICAL DECISION MAKING; MEDICAL INFORMATION; MEDICATION THERAPY MANAGEMENT; NURSE; PHYSICIAN; PRESCRIPTION; PSYCHOSOCIAL CARE; QUALITATIVE ANALYSIS; RESIDENTIAL CARE; RESOURCE ALLOCATION; SEMI STRUCTURED INTERVIEW; SOCIAL WORKER; TRUST; UNITED STATES;

CAREGIVERS; HOME NURSING; HOSPICE CARE; HUMANS; ILLINOIS; MEDICATION ADHERENCE; MEDICATION THERAPY MANAGEMENT; PATIENT CARE TEAM;

EID: 84861639946     PISSN: 08853924     EISSN: 18736513     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2011.06.025     Document Type: Article

References (31)

1. National Hospice and Palliative Care Organization. Facts and figures: hospice care in America. October 2010. Available from http://www.nhpco.org/ files/public/Statistics-Research/Hospice-Facts-Figures-Oct-2010.pdf. 2010. Accessed April 9, 2011.
2. J.M. Hauser, and B.J. Kramer Family caregivers in palliative care Clin Geriatr Med 20 2004 671 688
3. K. Soothill, S.M. Morris, and J.C. Harman Informal carers of cancer patients: what are their unmet psychosocial needs? Health Soc Care Community 9 2001 464 475
4. D.T. Lau, J.D. Kasper, and J.M. Hauser Family caregiver skills in medication management for hospice patients: a qualitative study to define a construct J Gerontol B Psychol Sci Soc Sci 64 2009 799 807
5. M. Letizia, S. Creech, E. Norton, M. Shanahan, and L. Hedges Barriers to caregiver administration of pain medication in hospice care J Pain Symptom Manage 27 2004 114 124
6. M. Newton, D. Bell, S. Lambert, and A. Fearing Concerns of hospice patient caregivers ABNF J 13 2002 140 144
7. J. Husband, and C. Kennedy Exploring the role of community palliative care nurse specialists as educators Int J Palliat Nurs 12 2006 277 284
8. M.D. Carlson, R.S. Morrison, T.R. Holford, and E.H. Bradley Hospice care: what services do patients and their families receive? Health Serv Res 42 2007 1672 1690
9. E.R. Goy, J.H. Carter, and L. Ganzini Needs and experiences of caregivers for family members dying with Parkinson disease J Palliat Care 24 2008 69 75
10. J.A. Paice, J.C. Muir, and S. Shott Palliative care at the end of life: comparing quality in diverse settings Am J Hosp Palliat Care 21 2004 19 27
11. F. Smith, S.A. Francis, N. Gray, M. Denham, and J. Graffy A multi-centre survey among informal carers who manage medication for older care recipients: problems experienced and development of services Health Soc Care Community 11 2003 138 145
12. D.T. Lau, R. Berman, and L. Halpern Exploring factors that influence informal caregiving in medication management for home hospice patients J Palliat Med 13 2010 1085 1090
13. D.T. Lau, J. Masin-Peters, C. Berdes, and M. Ong Perceived barriers that impede provider relations and medication delivery: hospice providers' experiences in nursing homes and private homes J Palliat Med 13 2010 305 310
14. National Consensus Project for Quality Palliative Care. Clinical practice guidelines for quality palliative care, 2nd ed. Pittsburgh, PA, 2009. Available from http://www.nationalconsensusproject.org. Accessed April 9, 2011.
15. Healthy People 2010 Understanding and improving health and objectives for improving health. United States Department of Health and Human Services 2000 U.S. Government Printing Office Washington, DC
16. J.A. Maxwell Qualitative research design: An iterative approach 1996 Sage Publications Thousand Oaks, CA
17. M.B. Miles, and A.M. Huberman Qualitative data analysis: An expanded sourcebook 2nd ed. 1994 Sage Publications Thousand Oaks, CA
18. P.L. Rice, and D. Ezzy Qualitative research methods: A health focus 1999 Oxford University Press New York
19. G. Guest, A. Bunce, and L. Johnson How many interviews are enough? An experiment with data saturation and variability Field Methods 18 2006 59 82
20. C. Saunders The nature and nurture of pain control J Pain Symptom Manage 1 1986 199 201
21. S.C. McMillan, and B.J. Small Using the COPE intervention for family caregivers to improve symptoms of hospice homecare patients: a clinical trial Oncol Nurs Forum 34 2007 313 321
22. H.G. Prigerson, E. Cherlin, and J.H. Chen The stressful caregiving adult reactions to experiences of dying (SCARED) scale: a measure for assessing caregiver exposure to distress in terminal care Am J Geriatr Psychiatry 11 2003 309 319
23. S. Aranda, P. Yates, and H. Edwards Barriers to effective cancer pain management: a survey of Australian family caregivers Eur J Cancer Care (Engl) 13 2004 336 343
24. E.M. Redinbaugh, A. Baum, C. DeMoss, M. Fello, and R. Arnold Factors associated with the accuracy of family caregiver estimates of patient pain J Pain Symptom Manage 23 2002 31 38
25. K. Hayes Designing written medication instructions: effective ways to help older adults self-medicate J Gerontol Nurs 31 2005 5 10
26. S. Merriam, R. Caffarella, and L. Baumgartner Learning in adulthood: A comprehensive guide 3rd ed. 2007 Jossey-Bass San Francisco, CA
27. M. John Geragogy: A theory for teaching the elderly 1988 Haworth Press New York
28. M. Knowles The adult learner: A neglected species 4th ed. 1990 Gulf Houston, TX
29. D.P. Oliver, E. Wittenberg-Lyles, and G. Demiris Barriers to pain management: caregiver perceptions and pain talk by hospice interdisciplinary teams J Pain Symptom Manage 36 2008 374 382
30. D.P. Oliver, E. Wittenberg-Lyles, K. Washington, and S. Sehrawat Social work role in pain management with hospice caregivers: a national survey J Soc Work End Life Palliat Care 5 2009 61
31. P. Allard, E. Maunsell, J. Labbe, and M. Dorval Educational interventions to improve cancer pain control: a systematic review J Palliat Med 4 2001 191 203