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Volumn 11, Issue 10, 2015, Pages 1222-1230

A randomized noninferiority trial of condensed protocols for genetic risk disclosure of Alzheimer's disease

(42)  Green, Robert C a,b   Christensen, Kurt D a   Cupples, L Adrienne c   Relkin, Norman R d   Whitehouse, Peter J e   Royal, Charmaine D M f   Obisesan, Thomas O g   Cook Deegan, Robert f   Linnenbringer, Erin h   Butson, Melissa Barber e   Fasaye, Grace Ann i   Levinson, Elana j   Roberts, J Scott k   Bhatt, D a   Biesecker, B l   Blacker, D a   Chen, C c   Cox, E d   Davis, J G d   Farrer, L m   more..


Author keywords

Alzheimer; APOE; Genetics; Genomics; Personalized medicine; Risk assessment

Indexed keywords

ADULT; AFRICAN AMERICAN; AGED; ALZHEIMER DISEASE; ANXIETY; APOE GENE; ARTICLE; CLINICAL PROTOCOL; DEPRESSION; DISEASE SEVERITY; EUROPEAN AMERICAN; FEMALE; FIRST DEGREE RELATIVE; GENE; GENETIC COUNSELING; GENETIC RISK; GENOTYPE; HUMAN; INTERPERSONAL COMMUNICATION; MAJOR CLINICAL STUDY; MALE; MULTICENTER STUDY (TOPIC); OUTCOME ASSESSMENT; PATIENT SAFETY; PRIORITY JOURNAL; RANDOMIZED CONTROLLED TRIAL (TOPIC); CAUCASIAN; CLINICAL TRIAL; CONTROLLED STUDY; GENETIC PREDISPOSITION; GENETICS; MIDDLE AGED; MULTICENTER STUDY; PSYCHOLOGY; RANDOMIZED CONTROLLED TRIAL; RISK FACTOR; VERY ELDERLY; YOUNG ADULT;

EID: 84945438957     PISSN: 15525260     EISSN: 15525279     Source Type: Journal    
DOI: 10.1016/j.jalz.2014.10.014     Document Type: Article
Times cited : (28)

References (29)
  • 2
    • 0028470671 scopus 로고
    • Guidelines for the molecular genetics predictive test in Huntington's disease
    • International Huntington Association and the World Federation of Neurology Research Group on Huntington's Chorea Guidelines for the molecular genetics predictive test in Huntington's disease J Med Genet 31 1994 555 559
    • (1994) J Med Genet , vol.31 , pp. 555-559
    • The World Federation of Neurology Research Group on Huntington'S Chorea1
  • 3
    • 79959193198 scopus 로고    scopus 로고
    • Genetic counseling and testing for Alzheimer disease: joint practice guidelines of the American College of Medical Genetics and the National Society of Genetic Counselors
    • J.S. Goldman, S.E. Hahn, J.W. Catania, S. LaRusse-Eckert, M.B. Butson, M. Rumbaugh, and et al. Genetic counseling and testing for Alzheimer disease: joint practice guidelines of the American College of Medical Genetics and the National Society of Genetic Counselors Genet Med 13 2011 597 605
    • (2011) Genet Med , vol.13 , pp. 597-605
    • Goldman, J.S.1    Hahn, S.E.2    Catania, J.W.3    LaRusse-Eckert, S.4    Butson, M.B.5    Rumbaugh, M.6
  • 5
    • 40949088178 scopus 로고    scopus 로고
    • Incorporating ethnicity into genetic risk assessment for Alzheimer disease: the REVEAL Study experience
    • K.D. Christensen, J.S. Roberts, C.D.M. Royal, G.-A. Fasaye, T. Obisesan, L.A. Cupples, and et al. Incorporating ethnicity into genetic risk assessment for Alzheimer disease: the REVEAL Study experience Genet Med 10 2008 207 214
    • (2008) Genet Med , vol.10 , pp. 207-214
    • Christensen, K.D.1    Roberts, J.S.2    Royal, C.D.M.3    Fasaye, G.-A.4    Obisesan, T.5    Cupples, L.A.6
  • 6
    • 78649498680 scopus 로고    scopus 로고
    • Apolipoprotein E epsilon4 prevalence in Alzheimer's disease patients varies across global populations: a systematic literature review and meta-analysis
    • S. Crean, A. Ward, C.J. Mercaldi, J.M. Collins, M.N. Cook, N.L. Baker, and et al. Apolipoprotein E epsilon4 prevalence in Alzheimer's disease patients varies across global populations: a systematic literature review and meta-analysis Dement Geriatr Cogn Disord 31 2011 20 30
    • (2011) Dement Geriatr Cogn Disord , vol.31 , pp. 20-30
    • Crean, S.1    Ward, A.2    Mercaldi, C.J.3    Collins, J.M.4    Cook, M.N.5    Baker, N.L.6
  • 7
    • 0032507032 scopus 로고    scopus 로고
    • The APOE-epsilon4 allele and the risk of Alzheimer disease among African Americans, whites, and Hispanics
    • M.X. Tang, Y. Stern, K. Marder, K. Bell, B. Gurland, R. Lantigua, and et al. The APOE-epsilon4 allele and the risk of Alzheimer disease among African Americans, whites, and Hispanics JAMA 279 1998 751 755
    • (1998) JAMA , vol.279 , pp. 751-755
    • Tang, M.X.1    Stern, Y.2    Marder, K.3    Bell, K.4    Gurland, B.5    Lantigua, R.6
  • 8
    • 0024245652 scopus 로고
    • An inventory for measuring clinical anxiety: psychometric properties
    • A.T. Beck, N. Epstein, G. Brown, and R.A. Steer An inventory for measuring clinical anxiety: psychometric properties J Consult Clin Psychol 56 1988 893 897
    • (1988) J Consult Clin Psychol , vol.56 , pp. 893-897
    • Beck, A.T.1    Epstein, N.2    Brown, G.3    Steer, R.A.4
  • 9
    • 84965520932 scopus 로고
    • The CES-D scale: A self-report depression scale for research in the general population
    • L.S. Radloff The CES-D scale: A self-report depression scale for research in the general population Appl Psychol Meas 1 1977 385 401
    • (1977) Appl Psychol Meas , vol.1 , pp. 385-401
    • Radloff, L.S.1
  • 10
    • 0029026587 scopus 로고
    • Examining scale discriminability in the BDI and CES-D as a function of depressive sererity
    • D.A. Santor, D.C. Zuroff, J.O. Ramsay, P. Cervantes, and J. Palacios Examining scale discriminability in the BDI and CES-D as a function of depressive sererity Psychol Assess 7 1995 131 139
    • (1995) Psychol Assess , vol.7 , pp. 131-139
    • Santor, D.A.1    Zuroff, D.C.2    Ramsay, J.O.3    Cervantes, P.4    Palacios, J.5
  • 11
    • 0018777479 scopus 로고
    • Impact of Event Scale: a measure of subjective stress
    • M. Horowitz, N. Wilner, and W. Alvarez Impact of Event Scale: a measure of subjective stress Psychosom Med 41 1979 209 218
    • (1979) Psychosom Med , vol.41 , pp. 209-218
    • Horowitz, M.1    Wilner, N.2    Alvarez, W.3
  • 12
    • 44049091729 scopus 로고    scopus 로고
    • Outcome measurement in clinical genetics services: A systematic review of validated measures
    • K. Payne, S. Nicholls, M. McAllister, R. MacLeod, D. Donnai, and L.M. Davies Outcome measurement in clinical genetics services: A systematic review of validated measures Value Health 11 2008 497 508
    • (2008) Value Health , vol.11 , pp. 497-508
    • Payne, K.1    Nicholls, S.2    McAllister, M.3    MacLeod, R.4    Donnai, D.5    Davies, L.M.6
  • 13
    • 28444468433 scopus 로고    scopus 로고
    • Genetic risk assessment for adult children of people with Alzheimer's disease: the Risk Evaluation and Education for Alzheimer's Disease (REVEAL) Study
    • J.S. Roberts, L.A. Cupples, N.R. Relkin, P.J. Whitehouse, and R.C. Green Genetic risk assessment for adult children of people with Alzheimer's disease: the Risk Evaluation and Education for Alzheimer's Disease (REVEAL) Study J Geriatr Psychiatry Neurol 18 2005 250 255
    • (2005) J Geriatr Psychiatry Neurol , vol.18 , pp. 250-255
    • Roberts, J.S.1    Cupples, L.A.2    Relkin, N.R.3    Whitehouse, P.J.4    Green, R.C.5
  • 15
    • 3442877311 scopus 로고    scopus 로고
    • Estimating risk curves for first-degree relatives of patients with Alzheimer's disease: the REVEAL Study
    • L.A. Cupples, L.A. Farrer, A.D. Sadovnick, N. Relkin, P. Whitehouse, and R.C. Green Estimating risk curves for first-degree relatives of patients with Alzheimer's disease: the REVEAL Study Genet Med 6 2004 192 196
    • (2004) Genet Med , vol.6 , pp. 192-196
    • Cupples, L.A.1    Farrer, L.A.2    Sadovnick, A.D.3    Relkin, N.4    Whitehouse, P.5    Green, R.C.6
  • 16
    • 33644792767 scopus 로고    scopus 로고
    • Reporting of noninferiority and equivalence randomized trials: an extension of the consort statement
    • G. Piaggio, D.R. Elbourne, D.G. Altman, S.J. Pocock, and S.W. Evans Reporting of noninferiority and equivalence randomized trials: an extension of the consort statement JAMA 295 2006 1152 1160
    • (2006) JAMA , vol.295 , pp. 1152-1160
    • Piaggio, G.1    Elbourne, D.R.2    Altman, D.G.3    Pocock, S.J.4    Evans, S.W.5
  • 17
    • 0029987569 scopus 로고    scopus 로고
    • Trials to assess equivalence: the importance of rigorous methods
    • B. Jones, P. Jarvis, J.A. Lewis, and A.F. Ebbutt Trials to assess equivalence: the importance of rigorous methods BMJ 313 1996 36 39
    • (1996) BMJ , vol.313 , pp. 36-39
    • Jones, B.1    Jarvis, P.2    Lewis, J.A.3    Ebbutt, A.F.4
  • 18
    • 0035755636 scopus 로고    scopus 로고
    • A comparison of inclusive and restrictive strategies in modern missing data procedures
    • L.M. Collins, J.L. Schafer, and C.-M. Kam A comparison of inclusive and restrictive strategies in modern missing data procedures Psychol Methods 6 2001 330 351
    • (2001) Psychol Methods , vol.6 , pp. 330-351
    • Collins, L.M.1    Schafer, J.L.2    Kam, C.-M.3
  • 20
    • 84864659386 scopus 로고    scopus 로고
    • Effectiveness of a condensed protocol for disclosing APOE genotype and providing risk education for Alzheimer disease
    • J.S. Roberts, C.A. Chen, W.R. Uhlmann, and R.C. Green Effectiveness of a condensed protocol for disclosing APOE genotype and providing risk education for Alzheimer disease Genet Med 14 2012 742 748
    • (2012) Genet Med , vol.14 , pp. 742-748
    • Roberts, J.S.1    Chen, C.A.2    Uhlmann, W.R.3    Green, R.C.4
  • 21
    • 79955927325 scopus 로고    scopus 로고
    • Changes to perceptions of the pros and cons of genetic susceptibility testing after APOE genotyping for Alzheimer disease risk
    • K.D. Christensen, J.S. Roberts, W.R. Uhlmann, and R.C. Green Changes to perceptions of the pros and cons of genetic susceptibility testing after APOE genotyping for Alzheimer disease risk Genet Med 13 2011 409 414
    • (2011) Genet Med , vol.13 , pp. 409-414
    • Christensen, K.D.1    Roberts, J.S.2    Uhlmann, W.R.3    Green, R.C.4
  • 22
    • 0038308832 scopus 로고    scopus 로고
    • Reasons for seeking genetic susceptibility testing among first-degree relatives of people with Alzheimer disease
    • J.S. Roberts, S.A. LaRusse, H. Katzen, P.J. Whitehouse, M. Barber, S.G. Post, and et al. Reasons for seeking genetic susceptibility testing among first-degree relatives of people with Alzheimer disease Alzheimer Dis Assoc Disord 17 2003 86 93
    • (2003) Alzheimer Dis Assoc Disord , vol.17 , pp. 86-93
    • Roberts, J.S.1    LaRusse, S.A.2    Katzen, H.3    Whitehouse, P.J.4    Barber, M.5    Post, S.G.6
  • 23
    • 40049112545 scopus 로고    scopus 로고
    • Interventions to improve risk communication in clinical genetics: systematic review
    • A. Edwards, J. Gray, A. Clarke, J. Dundon, G. Elwyn, C. Gaff, and et al. Interventions to improve risk communication in clinical genetics: systematic review Patient Educ Couns 71 2008 4 25
    • (2008) Patient Educ Couns , vol.71 , pp. 4-25
    • Edwards, A.1    Gray, J.2    Clarke, A.3    Dundon, J.4    Elwyn, G.5    Gaff, C.6
  • 24
    • 20644455962 scopus 로고    scopus 로고
    • Randomized comparison of group versus individual genetic education and counseling for familial breast and/or ovarian cancer
    • K.A. Calzone, S.A. Prindiville, O. Jourkiv, J. Jenkins, M. DeCarvalho, D.B. Wallerstedt, and et al. Randomized comparison of group versus individual genetic education and counseling for familial breast and/or ovarian cancer J Clin Oncol 23 2005 3455 3464
    • (2005) J Clin Oncol , vol.23 , pp. 3455-3464
    • Calzone, K.A.1    Prindiville, S.A.2    Jourkiv, O.3    Jenkins, J.4    DeCarvalho, M.5    Wallerstedt, D.B.6
  • 25
    • 34548039066 scopus 로고    scopus 로고
    • Randomized comparison of phone versus in-person BRCA1/2 predisposition genetic test result disclosure counseling
    • J. Jenkins, K. Calzone, E. Dimond, D. Liewehr, S. Steinberg, O. Jourkiv, and et al. Randomized comparison of phone versus in-person BRCA1/2 predisposition genetic test result disclosure counseling Genet Med 9 2007 487 495
    • (2007) Genet Med , vol.9 , pp. 487-495
    • Jenkins, J.1    Calzone, K.2    Dimond, E.3    Liewehr, D.4    Steinberg, S.5    Jourkiv, O.6
  • 26
    • 3242763836 scopus 로고    scopus 로고
    • Effect of a computer-based decision aid on knowledge, perceptions, and intentions about genetic testing for breast cancer susceptibility: a randomized controlled trial
    • M.J. Green, S.K. Peterson, M.W. Baker, G.R. Harper, L.C. Friedman, W.S. Rubinstein, and et al. Effect of a computer-based decision aid on knowledge, perceptions, and intentions about genetic testing for breast cancer susceptibility: a randomized controlled trial JAMA 292 2004 442 452
    • (2004) JAMA , vol.292 , pp. 442-452
    • Green, M.J.1    Peterson, S.K.2    Baker, M.W.3    Harper, G.R.4    Friedman, L.C.5    Rubinstein, W.S.6
  • 27
    • 84904257718 scopus 로고    scopus 로고
    • What's the harm? Genetic counselor perceptions of adverse effects of genetics service provision by non-genetics professionals
    • T.A. Bensend, P.M. Veach, and K.B. Niendorf What's the harm? Genetic counselor perceptions of adverse effects of genetics service provision by non-genetics professionals J Genet Couns 2013 1 16
    • (2013) J Genet Couns , pp. 1-16
    • Bensend, T.A.1    Veach, P.M.2    Niendorf, K.B.3
  • 29
    • 3442890962 scopus 로고    scopus 로고
    • Who seeks genetic susceptibility testing for Alzheimer's disease? Findings from a multisite, randomized clinical trial
    • J.S. Roberts, M. Barber, T.M. Brown, L.A. Cupples, L.A. Farrer, S.A. LaRusse, and et al. Who seeks genetic susceptibility testing for Alzheimer's disease? Findings from a multisite, randomized clinical trial Genet Med 6 2004 197 203
    • (2004) Genet Med , vol.6 , pp. 197-203
    • Roberts, J.S.1    Barber, M.2    Brown, T.M.3    Cupples, L.A.4    Farrer, L.A.5    LaRusse, S.A.6


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.