Psychological interventions for parents of children and adolescents with chronic illness

Cochrane Database of Systematic Reviews

Volumn 2015, Issue 4, 2015, Pages

  Eccleston, Christopher ^a   Fisher, Emma ^a   Law, Emily ^b   Bartlett, Jess ^a   Palermo, Tonya M ^b  

^a University of Bath   (United Kingdom)

^b UNIVERSITY OF WASHINGTON   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENCE; ADOLESCENT; ADVERSE EVENT; ASTHMA; CHILD BEHAVIOR; CHILD CARE; CHILD PSYCHOLOGY; CHRONIC DISEASE; COGNITIVE BEHAVIORAL THERAPY; DIABETES MELLITUS; DISABILITY; FAMILY FUNCTIONING; FAMILY THERAPY; GYNECOLOGIC DISEASE; HUMAN; INFLAMMATORY BOWEL DISEASE; INTERVENTION STUDY; MALIGNANT NEOPLASM; MENTAL HEALTH CARE; META ANALYSIS; PAIN; PRIORITY JOURNAL; PROBLEM SOLVING; PSYCHOTHERAPY; RANDOMIZED CONTROLLED TRIAL (TOPIC); REVIEW; SKIN DISEASE; SYMPTOM; SYSTEMATIC REVIEW; TRAUMATIC BRAIN INJURY; CHILD; CHILD PARENT RELATION; COGNITIVE THERAPY; PARENT; PROCEDURES; PSYCHOLOGY;

ADOLESCENT; CHILD; CHRONIC DISEASE; COGNITIVE THERAPY; FAMILY THERAPY; HUMANS; PARENTING; PARENTS; PROBLEM SOLVING; PSYCHOTHERAPY; RANDOMIZED CONTROLLED TRIALS AS TOPIC;

EID: 84944463992     PISSN: None     EISSN: 1469493X     Source Type: Journal    
DOI: 10.1002/14651858.CD009660.pub3     Document Type: Review

References (209)

1. Allen KD, Shriver MD. Role of parent-mediated pain behavior management strategies in biofeedback treatment of childhood migraines. Behaviour Therapy 1998;29:477-90.
2. Ambrosino JM, Fennie K, Whittemore R, Jaser S, Dowd MF, Grey M. Short-term effects of coping skills training in school-age children with type 1 diabetes. Pediatric Diabetes 2008;9(3 Part 2):74-82.
3. Grey M, Whittermore R, Jaser S, Ambrosino J, Lindemann E, Liberti L, et al. Effects of coping skills training in school-age children with type 1 diabetes. Research in Nursing & Health 2009;32(4):405-18.
4. Antonini TN, Raj SP, Oberjohn KS, Cassedy A, MakoroffKL, Fouladi M, et al. Pilot randomized trial of an online parenting skills program for pediatric traumatic brain injury: improvements in parenting and child behavior. Behavior Therapy 2014;45(4):455-68.
5. Askins MA, Sahler OJ, Sherman SA, Fairclough DL, Butler RW, Katz ER, et al. Report from a multi-institutional randomized clinical trial examining computer-assisted problem-solving skills training for English- and Spanish-speaking mothers of children with newly diagnosed cancer. Journal of Pediatric Psychology 2008;34(5):551-63.
6. Barakat LP, Schwartz LA, Salaom KS, Radcliffe J. A family-based randomized controlled trial of pain intervention for adolescents with sickle cell disease. Journal of Pediatric Hematology Oncology 2010;32(7):540-7.
7. Barry J, Von Baeyer CL. Brief cognitive-behavioral group treatment for child's headache. Clinical Journal of Pain 1997;13(3):215-20.
8. Celano MP, Holsey CN, Kobrynski LJ. Home-based family intervention for low-income children with asthma: a randomized controlled pilot study. Journal of Family Psychology 2012;26(2):171-8.
9. Connelly M, RapoffMA, Thompson N, Connelly W. Headstrong: a pilot study of a CD-ROM intervention for recurrent pediatric headache. Journal of Pediatric Psychology 2006;31(7):737-47.
10. Duarte MA, Penna FJ, Andrade EM, Cancela CS, Neto JC, Barbosa TF. Treatment of nonorganic recurrent abdominal pain: cognitive-behavioral family intervention. Journal of Pediatric Gastroenterology and Nutrition 2006;43(1):59-64.
11. Ellis DA, Naar-King S, Frey M, Templin T, Rowland M, Greger N. Use of multisystemic therapy to improve regimen adherence among adolescents with type 1 diabetes in poor metabolic control: a pilot investigation. Journal of Clinical Psychology in Medical Settings 2004;11(4):315-24.
12. Ellis DA, Frey MA, Naar-King S, Templin T, Cunningham P, Cakan N. The effects of multisystemic therapy on diabetes stress among adolescents with chronically poorly controlled type 1 diabetes: findings from a randomized, controlled trial. Pediatrics 2005;116(6):e826-32.
13. Ellis DA, Frey MA, Naar-King S, Templin T, Cunningham P, Cakan N. Use of multisystemic therapy to improve regimen adherence among adolescents with type 1 diabetes in chronic poor metabolic control. Diabetes Care 2005;28(7):1604-10.
14. Ellis DA, Templin T, Naar-King S, Frey MA, Cunningham PB, Podolski CL, et al. Multisystemic therapy for adolescents with poorly controlled type 1 diabetes: stability of treatment effects in a randomized controlled trial. Journal of Consulting and Clinical Psychology 2007;75(1):168-74.
15. Ellis DA, Yopp J, Templin T, Naar-King S, Frey MA, Cunningham PB, et al. Family mediators and moderators of treatment outcomes among youths with poorly controlled type 1 diabetes: results from a randomized controlled trial. Journal of Pediatric Psychology 2007;32(2):194-205.
16. Naar-King S, Ellis DA, Idalski A, Frey MA, Cunningham P. Multisystemic therapy decreases parental overestimation of adolescent responsibility for type 1 diabetes management in urban youth. Families, Systems & Health 2007;25(2):178-89.
17. Ellis DA, Naar-King S, Chen X, Moltz K, Cunningham P, Idalski-Carcone A. Multisystemic therapy compared to telephone support for youth with poorly controlled diabetes: findings from a randomized controlled trial. Annals of Behavioural Medicine 2012;44(2):207-15.
18. Gulewitsch MD, Müller J, Hautzinger M, Schlarb AA. Brief hypnotherapeutic-behavioural intervention for functional abdominal pain and irritable bowel syndrome in childhood: a randomized controlled trial. European Journal of Pediatrics 2013;172(8):1043-51.
19. Hicks CL, Von Baeyer CL, McGrath PJ. Online psychological treatment for pediatric recurrent pain: a randomized evaluation. Journal of Pediatric Psychology 2006;31(7):724-36.
20. Hoekstra-Weebers JE, Heuvel F, Jaspers JP, Kamps WA, Klip EC. Brief report: an intervention program for parents of pediatric cancer patients: a randomized controlled trial. Journal of Pediatric Psychology 1998;23(3):207-14.
21. Kashikar-Zuck S, Swain N, Jones BA, Graham TB. Efficacy of cognitive-behavioral intervention for juvenile primary fibromyalgia syndrome. Journal of Rheumatology 2005;32(8):1594-602.
22. Kashikar-Zuck S, Ting TV, Arnold LM, Bean J, Powers SW, Graham TB, et al. Cognitive behavioral therapy for the treatment of juvenile fibromyalgia. Arthritis and Rheumatism 2012;64(1):297-305.
23. Kazak AE, Alderfer MA, Streisand R, Simms S, Rourke MT, Barakat LP, et al. Treatment of posttraumatic stress symptoms in adolescent survivors of childhood cancer and their families: a randomized clinical trial. Journal of Family Psychology 2004;18(3):493-504.
24. Laffel LM, Vangsness L, Connell A, Goebel-Fabbri A, Butler D, Anderson BJ. Impact of ambulatory, family-focused teamwork intervention on glycemic control in youth with type 1 diabetes. Journal of Pediatrics 2013;142(4):409-16.
25. Lask B, Matthew D. Childhood asthma. A controlled trial of family psychotherapy. Archives of Disease in Childhood 1979;54(2):116-9.
26. Lehmkuhl HD, Storch EA, Cammarata C, Meyer K, Rahman O, Silverstein J, et al. Telehealth behavior therapy for the management of type 1 diabetes in adolescents. Journal of Diabetes Science and Technology 2010;4(1):199-208.
27. Levy RL, Langer SL, Walker LS, Romano JM, Christie DL, Youssef N, et al. Cognitive-behavioral therapy for children with functional abdominal pain and their parents decreases pain and other symptoms. American Journal of Gastroenterology 2010;105(4):946-56.
28. Levy RL, Langer SL, Walker LS, Romano JM, Christie DL, Youssef N, et al. Twelve-month follow-up of cognitive behavioural therapy for children with functional abdominal pain. JAMA Pediatric 2013;167(2):178-84.
29. Marsland AL, Long KA, Howe C, Thompson, AL, Tersak J, Ewing LW. A pilot trial of a stress management intervention for primary caregivers of children newly diagnosed with cancer: preliminary evidence that perceived social support moderates the psychosocial benefit of intervention. Journal of Pediatric Psychology 2013;38(4):449-61.
30. Mullins LL, Fedele DA, Chaffin M, Hullmann SE, Kenner C, Eddington AR, et al. A clinic-based interdisciplinary intervention for mothers of children newly diagnosed with cancer: a pilot study. Journal of Pediatric Pscyhology 2012;37(10):1104-15.
31. Naar-King S, Ellis D, King PS, Lam P, Cunningham P, Secord E, et al. Multisystemic therapy for high-risk African American adolescents with asthma: a randomized clinical trial. Journal of Consulting and Clinical Psychology 2014;82(3):536-45.
32. Nansel TR, Anderson BJ, Laffel LM, Simons-Morton BG, Weissberg-Benchell J, Wysocki T, et al. A multi-site trial of a clinic-integrated intervention for promoting family management of pediatric type 1 diabetes: feasibility and design. Pediatric Diabetes 2009;10(2):105-15.
33. Nansel TR, Iannotti RJ, Liu A. Clinic-integrated behavioural intervention for families of youth with type 1 diabetes: randomized clinical trial. Pediatrics 2012;129(4):1-8.
34. Ng SM, Li AM, Lou VW, Tso IF, Wan PY, Chan DF. Incorporating family therapy into asthma group intervention: a randomized waitlist-controlled trial. Family Process 2008;47(1):115-30.
35. Niebel G, Kallweit C, Lange I, Fölster-Holst R. Direct versus video-aided parent education in atopic eczema in childhood as a supplement to specialty physician treatment. A controlled pilot study [Direkte versus videover-mittelte elternschulung bei atopishchem ekzem in kinderslater als erganzung facharztlicher behandlung: eine kontrollierte pilotstudie]. Hautarzt 2000;51(6):401-11.
36. Olivares J, Mendez FX, Ros M, Bermejo RM. Effects of a training program for parents with diabetic children with obstacles to comply with therapy [El cuidado de la diabetes mellitus insulino-dependiente: Efectos de un programa de modificacion de conducta en padres]. Psicologia Conductual 1997;5(2):219-35.
37. Palermo TM, Wilson AC, Peters M, Lweandowski A, Somhegyi H. Randomized controlled trial of an Internet delivered family cognitive behavioral therapy intervention for children and adolescents with chronic pain. Pain 2009;146(1-2):205-13.
38. Robins PM, Smith SM, Glutting JJ, Bishop CT. A randomized controlled trial of a cognitive-behavioral family intervention for pediatric recurrent abdominal pain. Journal of Pediatric Psychology 2005;30(5):397-408.
39. Sahler OJ, Varni JW, Fairclough DL, Butler RW, Noll RB, Dolgin MJ, et al. Problem-solving skills training for mothers of children with newly diagnosed cancer: a randomized trial. Developmental and Behavioural Pediatrics 2002;23(2):77-86.
40. Sahler OJ, Fairclough DL, Phipps S, Mulhern RK, Dolgin MJ, Noll RB, et al. Using problem-solving skills training to reduce negative affectivity in mothers of children with newly diagnosed cancer: Report of a multisite randomized trial. Journal of Consulting and Clinical Psychology 2005;73(2):272-83.
41. Sahler OJ, Dolgin MJ, Phipps S, Fairclough DL, Askins MA, Katz ER, et al. Specificity of problem solving skills training in mothers of children newly diagnosed with cancer: results of a multisite randomized clinical trial. Journal of Clinical Oncology 2013;31(10):1329-35.
42. Sandes MR, Shepherd RW, Cleghorn G, Woolford H. The treatment of recurrent abdominal pain in children: a controlled comparison of cognitive-behavioral family intervention and standard pediatric care. Journal of Consulting and Clinical Psychology 1994;62(2):306-14.
43. Saßmann H, Hair M, Danne T, Lange K. Reducing stress and supporting positive relations in families of young children with type 1 diabetes: A randomized controlled study for evaluating the effects of the DELFIN parenting program. BMC Pediatrics 2012;12(152):2-11.
44. Seid M, Varni JW, Gidwani P, Gelhard LR, Slymen DJ. Problem-solving skills training for vulnerable families of children with persistent asthma: report of a randomized trial on health-related quality of life outcomes. Journal of Pediatric Psychology 2010;35(10):1133-43.
45. Shekarabi-Ahari G, Younesi J, Borjali A, Ansari-Damavandi S. The effectiveness of group hope therapy on hope and depression of mothers with children suffering from cancer in Tehran. Iranian Journal of Cancer Prevention 2012;5(4):183-8.
46. Stark LJ, Davis AM, Janicke DM, Mackner LM, Hommel KA, Bean JA, et al. A randomized clinical trial of dietary calcium to improve bone accretion in children with juvenile rheumatoid arthritis. Pediatrics 2006;148(4):501-7. [DOI: 10.1016/jpeds.2005.11.043]
47. Stark LJ, Janicke D, McGrath AM, Mackner L, Hommel KA, Lovell D. Prevention of osteoporosis: a randomized clinical trial to increase calcium intake in children with juvenile rheumatoid arthritis. Journal of Pediatric Psychology 2005;30(5):377-86.
48. Stehl ML, Kazak AE, Alderfer MA, Rodriguez A, Hwang WT, Pai AL, et al. Conducting a randomized clinical trial of a psychological intervention for parents/caregivers of children with cancer shortly after diagnosis. Journal of Pediatric Psychology 2009;34(8):803-16.
49. Tsiouli E, Pavlopoulos V, Alexopoulos EC, Chrousos G, Darviri C. Short-term impact of a stress management and health promotion program on perceived stress, parental stress, health locus of control and cortisol levels in parents of children and adolescents with diabetes type 1: a pilot randomized controlled trial. Explore 2014;10(2):88-98.
50. Wade SL, Michaud L, Brown TM. Putting the pieces together: preliminary efficacy of a family problem-solving intervention for children with traumatic brain injury. Journal of Head Trauma Rehabilitation 2006;21(1):59-67.
51. Wade SL, Carey J, Wolfe CR. An online family intervention to reduce parental distress following pediatric brain injury. Journal of Consulting and Clinical Psychology 2006;74(3):445-54.
52. Wade SL, Carey J, Wolfe CR. The efficacy of an online cognitive-behavioral family intervention in improving child behavior and social competence following pediatric brain injury. Rehabilitation Psychology 2006;51(3):179-89.
53. Wade SL, Walz NC, Carey J, McMullen KM, Cass J, Mark E, et al. Effect on behavior problems of teen online problem-solving for adolescent traumatic brain injury. Pediatrics 2011;128(4):e947-53.
54. Wade SL, Walz NC, Carey J, McMullen KM, Cass J, Mark E, et al. A randomized trial of teen online problem solving: efficacy in improving caregiver outcomes after brain injury. Health psychology 2012;31(6):767-76.
55. Wysocki T, Greco P, Harris MA, Bubb J, White NH. Behavior therapy for families of adolescents with diabetes: maintenance of treatment effects. Diabetes Care 2001;24(3):441-6.
56. Wysocki T, Harris MA, Greco P, Bubb J, Danda CE, Harvey LM, et al. Randomized, controlled trial of behavior therapy for families of adolescents with insulin-dependent diabetes mellitus. Journal of Pediatric Psychology 2000;25(1):23-33.
57. Wysocki T, Miller KM, Greco P, Harris MA, Harvey LM, Taylor A, et al. Behavior therapy for families of adolescents with diabetes: effects on directly observed family interactions. Behavior Therapy 1999;30:507-25.
58. Wysocki T, Harris MA, Buckloh LM, Mertlich D, Lochrie AS, Mauras N, et al. Randomized trial of behavioral family systems therapy for diabetes: maintenance of effects on diabetes outcomes in adolescents. Diabetes Care 2007;30(3):555-60.
59. Wysocki T, Harris MA, Buckloh LM, Mertlich D, Lochrie AS, Taylor A, et al. Effects of behavioral family systems therapy for diabetes on adolescents' family relationships, treatment adherence, and metabolic control. Journal of Pediatric Psychology 2006;31(9):928-38.
60. Wysocki T, Harris MA, Buckloh LM, Mertlich D, Lochrie AS, Taylor A, et al. Randomized, controlled trial of behavioral family systems therapy for diabetes: maintenance and generalization of effects on parent-adolescent communication. Behavior Therapy 2008;39:33-46.
61. Aleman Mendez S, Palacios AS. An integrated approach to the psychological features of the asthmatic child [Un adordaje integral de los aspectos psicologicos del niño asmatico]. Allergologia et Immunopathologia 1992;20(6):240-5.
62. Anderson BJ, Ho J, Brackett J, Laffel LMB. An office-based intervention to maintain parent-adolescent teamwork in diabetes management: impact on parent involvement, family conflict, and subsequent glycemic control. Diabetes Care 1999;22(7):713-21.
63. Bellin MH, Kub J, Frick KD, Bollinger ME, Tsoukleris M, Walker J, et al. Stress and quality of life in caregivers of inner-city minority children with poorly controlled asthma. Journal of Pediatric Health Care 2013;27(2):127-34.
64. Betancourt GP, Gutierrez de Pineres Scarpetta C. Psychological intervention pre-postsurgical program for cardiovascular pediatric patients. Saludarte 2004;3(11):19-34.
65. Borhani F, NajafiMK, Rabori ED, Sabzevari S. The effect of family-centred empowerment model on quality of life of school-aged children with thalassemia major. Iranian Journal of Nursing Midwifery Research 2011;16(4):292-8.
66. Braga L, Da Paz A Jr, Ylvisaker M. Direct clinician-delivered versus indirect family-supported rehabilitation of children with traumatic brain injury: a randomized controlled trial. Brain Injury 2005;19(10):819-31.
67. Bruzzese J, Unikel L, Gallagher R, Evans D, Colland V. Feasilbility and impact of a school-based intervention for families of urban adolescents with asthma: results from a randomized pilot trial. Family Process 2008;47(1):95-113.
68. Burke SO, Handley-Derry MH, Costello EA, Kauffmann E, Dillon, MC. Stress-point intervention for parents of repeatedly hospitalized children with chronic conditions. Research in Nursing & Health 1997;20(6):475-85.
69. Burke SO, Harrison MB, Kauffmann E, Wong C. Effects of stress-point intervention with families of repeatedly hospitalized children. Journal of Family Nursing 2001;7(2):128-58.
70. Cakan N, Ellis DA, Templin T, Frey M, Naar-King S. The effects of weight status on treatment outcomes in a randomized clinical trial of multisystemic therapy for adolescents with type 1 diabetes and chronically poor metabolic control. Pediatric Diabetes 2007;8(4):206-13.
71. Canino G, Vila D, Normand ST, Acosta-Perez E, Ramirez R, Garcia P, et al. Reducing asthma health disparities in poor Puerto Rican children: the effectiveness of a culturally tailored family intervention. Journal of Allergy & Clinical Immunology 2008;121(3):665-70.
72. Carey JC, Wade SL, Wolfe CR. Lessons learned: the effect of prior technology use on web-based interventions. Cyber Psychology & Behavior 2008;11(2):188-95.
73. Chen SH, Huang JL, Yeh KW, Tsai YF. Interactive support interventions for caregivers of asthmatic children. Journal of Asthma 2013;50(6):649-57.
74. ChernoffRG, Ireys HT, DeVet KA, Kim YJ. A randomized, controlled trial of a community-based support program for families of children with chronic illness: pediatric outcomes. Archives of Pediatrics and Adolescent Medicine 2002;156(6):533-9.
75. Chiang L, Ma W, Huang J, Tseng L, Hsueh K. Effect of relaxation-breathing training on anxiety and asthma signs/symptoms of children with moderate-to-severe asthma: a randomized controlled trial. International Journal of Nursing Studies 2009;46(8):1061-70.
76. Ellis DA, Naar-King S, Templin T, Frey MA, Cunningham PB. Improving health outcomes among youth with poorly controlled type 1 diabetes: the role of treatment fidelity in a randomized clinical trial of multisystemic therapy. Journal of Family Psychology 2007;21(3):363-71.
77. Ellis D, Naar-King S, Templin T, Frey M, Cunningham P, Sheidow A, et al. Multisystemic therapy for adolescents with poorly controlled type 1 diabetes: reduced diabetic ketoacidosis admissions and related costs over 24 months. Diabetes Care 2008;31(9):1746-7.
78. Evans R, Gergen PJ, Mitchell, H, Kattan M, Kercsmar C, Crain E, et al. A randomized clinical trial to reduce asthma morbidity among inner-city children: results of the national cooperative inner-city asthma study. Journal of Pediatrics 1999;135(3):332-8.
79. Fedele DA, Hullmann SE, Chaffin M, Kenner C, Fisher MJ, Kirk K, et al. Impact of a parent-based interdiscplinary intervention for mothers on adjustment in children newly diagnosed with cancer. Journal of Pediatric Psychology 2013;38(5):531-40.
80. Field T, HenteleffT, Hernandez-Reif M, Martinez E, Mavunda K, Kuhn C, et al. Children with asthma have improved pulmonary functions after massage therapy. Journal of Pediatrics 1998;132(5):854-8.
81. Forsander G. Family attitudes to different management regimens in diabetes mellitus. Practical Diabetes International 1995;12(2):80-5.
82. Forsander G, Persson B, Sundelin J, Berglund E, Snellman K, Hellström R. Metabolic control in children with insulin-dependent diabetes mellitus 5y after diagnosis. Early detection of patients at risk for poor metabolic control. Acta Paediatrica 1998;87(8):857-64.
83. Forsander GA, Sundelin J. Comparison of two therapeutic regimes for diabetes-stricken children. Social and mental resources of the family are often crucial for the prognosis [Två behandlingsregimer vid diabetesdebut hos barn jämförda: Familjens sociala och mentalaresurser avgör ofta prognosen]. Lakartidningen 2001;98(48):5484-9.
84. Forsander GA, Sundelin J, Persson B. Influence of the initial management regimen and family social situation on glycemic control and medical care in children with type I diabetes mellitus. Acta Paediatrica 2000;89(12):1462-8.
85. Sundelin JG, Forsander G, Mattson SE. Family-oriented support at the onset of diabetes mellitus: a comparison of two group conditions during 2 years following diagnosis. Acta Paediatrica 1996;85(1):49-55.
86. Forsander G, Malmodin B, Eklund C, Persson B. Relationship between dietary intake in children with diabetes mellitus type I, their management at diagnosis, social factors, anthropometry and glycaemic control. Scandinavian Journal of Nutrition/Naringsforskning 2003;47(2):75-84.
87. Garbutt JM, Banister C, Highstein G, Sterkel R, Epstein J, Bruns J, et al. Telephone coaching for parents of children with asthma: impact and lessons learned. Archives of Pediatrics and Adolescent Medicine 2010;164(7):625-30.
88. Gerber W, Petermann F, Gerber-von Müller G, Dollwet M, Darabaneanu S, Niederberger U, et al. MIPAS-Family-evaluation of a new multi-modal behavioral training program for pediatric headaches: clinical effects and the impact on quality of life. Journal of Headache Pain 2010;11(3):215-25.
89. Gerber WD, Muller GG, Petermann U, Niederberger U, Petermann F. Do behavioral medicine approaches have an effect on the quality of life and everyday competence of children suffering from chronic headaches? [Verbessern verhaltensmedizinische behandlungsstrategien die lebens-qualitat bei kindern mit chronischen kopfschmerzen?]. Zeitschrift fur Klinische Psychologie und Psychotherapie 2009;38(4):231-9.
90. Gerber WD, Petermann F, Müller G, Niederberger U, Rentmeister B, Siniatchkin M, et al. MIPAS-family: development and evaluation of a behavioural medicine programme for the treatment of chronic paediatric headaches. Verhaltenstherapie 2008;18(4):247-55.
91. Giallo R, Gavidia-Payne S. Evaluation of a family-based intervention for siblings of children with a disability or chronic illness. Australian e-Journal for the Advancement of Mental Health 2008;7(2):1-13.
92. Glang A, McLaughlin K, Schroeder, S. Using interactive multimedia to teach parent advocacy skills: an exploratory study. Journal of Head Trauma Rehabilitation 2007;22(3):196-203.
93. Grey M, Jaser SS, Whittemore R, Jeon S, Lindemann E. Coping skills training for parents of children with type 1 diabetes. Nursing Research 2011;60(3):173-81.
94. Groß M, Warschburger P. Chronic abdominal pain: psychosocial strain and treatment-associated changes in coping. Verhaltenstherapie 2013;23:80-89.
95. Groß M, Warschburger P. Evaluation of a cognitive-behavioural pain management program for children with chronic abdominal pain: a randomzied controlled study. International journal of behavioural medicine 2013;20:434-43.
96. Gulewitsch MD, Schauer JS, Hautzinger M, Schlarb AA. Therapy of functional stomach ache in children. Concept, acceptance and first pilot results of a hypnotherapeutic- behavioral brief intervention [Therapie funktioneller Bauchschmerzenbei KindernKonzept, Akzeptanz und erste Pilotergebnisse einer hypnotherapeutisch-behavioralen Kurzintervention]. Der Schmerz 2012;26(2):160-7.
97. Gustafsson PA, Kjellman M, Cederblad M. Family therapy in the treatment of severe childhood asthma. Journal of Psychosomatic Research 1986;30(3):369-74.
98. Harris MA, Greco P, Wysocki T, White TH. Family therapy with adolescents with diabetes: a litmus test for clinically meaningful change. Families, Systems & Health 2001;19:159-68.
99. Haus BF, Thompson S. The effect of nursing intervention on a program of behavior modification by parents in the home. Journal of Psychiatric Nursing and Mental Health Services 1976;14(8):9-16.
100. Hernandez NE, Kolb S. Effects of relaxation on anxiety in primary caregivers of chronically ill children. Pediatric Nursing 1998;24(1):51-6.
101. Hommel KA, Hente EA, Odell S, Herzer M, Ingerski LM, Guilfoyle SM, et al. Evaluation of a group-based behavioral intervention to promote adherence in adolescents with inflammatory bowel disease. European Journal of Gastroenterology and Hepatology 2012;24(1):64-9.
102. Hovell MF, Meltzer SB, Zakarian JM, Wahlgren DR, Emerson JA, Hofstetter CR, et al. Reduction of environmental tobacco smoke exposure among asthmatic children: a controlled trial. Chest 1994;106(2):440-6.
103. Humphreys PA, Gevirtz RN. Treatment of recurrent abdominal pain: components analysis of four treatment protocols. Journal of Pediatric Gastroenterology and Nutrition 2000;31(1):47-51.
104. Ireys HT, Sills EM, Kolodner KB, Walsh BB. A social support intervention for parents of children with juvenile rheumatoid arthritis: results of a randomized trial. Journal of Pediatric Psychology 1996;21(5):633-41.
105. Ireys HT, ChernoffR, DeVet KA, Kim Y. Maternal outcomes of a randomized controlled trial of a community-based support program for families of children with chronic illnesses. Archives of Pediatrics and Adolescent Medicine 2001;155(7):771-7.
106. Jay SM, Elliott CH. A stress inoculation program for parents whose children are undergoing painful medical procedures. Journal of Consulting and Clinical Psychology 1990;58(6):799-804.
107. Johnson MR, Whitt JK, Martin B. The effect of fantasy facilitation of anxiety in chronically ill and healthy children. Journal of Pediatric Psychology 1987;12(2):273-84.
108. Kamps JL, RapoffMA, Roberts MC, Varela RE, Barnard M, Olson N. Improving adherence to inhaled corticosteroids in children with asthma: a pilot of a randomized clinical trial. Children's Health Care 2008;37(4):261-77.
109. Kaslow NJ, Collins MH, Rashid FL, Baskin ML, Griffith JR, Hollins L, et al. The efficacy of a pilot family psychoeducational intervention for pediatric sickle cell disease. Families, Systems, & Health 2000;18(4):381-404.
110. Katz ML, Volkening LK, Butler DA, Anderson BJ, Laffel LM. Family-based psychoeducation and care ambassador intervention to improve glycemic control in youth with type 1 diabetes: a randomized trial. Pediatric Diabetes 2014;15(2):142-50.
111. Kazak AE, Penati B, Boyer BA, Himelstein B, Brophy P, Waibel K, et al. A randomized controlled prospective outcome study of a psychological and pharmacological intervention protocol for procedural distress in pediatric leukaemia. Journal of Pediatric Psychology 1996;21(5):615-31.
112. Kazak AE, Simms S, Alderfer MA, Rourke MT, Crump T, McClure K, et al. Feasibility and preliminary outcomes from a pilot study of a brief psychological intervention for families of children newly diagnose with cancer. Journal of Pediatric Psychology 2005;30(8):644-55.
113. Ketchen B, Hazzard A, Lassiter S, Barber N, Armistead L, Mentz R, et al. STARBRIGHT world: a pilot study of a home-based sickle cell psychoeducational intervention. Children's Health Care 2006;35(4):321-38.
114. Klinnert MD, Liu AH, Pearson MR, Ellison M, Budhiraja N, Robinson JL. Short-term impact of a randomized multifaceted intervention for wheezing infants in low-income families. Archives of Pediatric Adolescent Medicine 2005;159(1):75-82.
115. Klinnert MD, Liu AH, Pearson MR, Tong S, Strand M, Luckow A, et al. Outcome of a randomized multifaceted intervention with low-income families of wheezing infants. Archives of Pediatrics and Adolescent Medicine 2007;161(8):783-90.
116. Kroner-Herwig B, Mohn U, Pothmann R. Comparison of biofeedback and relaxation in the treatment of pediatric headache and the influence of parent involvement on outcome. Applied Psychophysiology and Biofeedback 1998;23(3):143-57.
117. Kupfer J, Gieler U, Diepgen TL, Fartasch M, Lob-Corzilius T, Ring J, et al. Structured education program improves the coping with atopic dermatitis in children and their parents - a multicenter, randomized controlled trial. Journal of Psychosomatic Research 2010;68(4):353-8.
118. Kurowski BG, Wade SL, Kirkwood MW, Brown TM, Stancin T, Taylor G. Online problem-solving therapy for executive dysfunction after child traumatic brain injury. Pediatrics 2013;132(1):158-65.
119. Kurowski BG, Wade SL, Kirkwood MW, Brown TM, Stancin T, Taylor HG. Long-term benefits of an early online problem solving intervention for executive dysfunction after traumatic brain injury in children. JAMA Pediatrics 2014;168(6):523-31.
120. Wade SL, Karver CL, Taylor GH, Cassedy A, Stancin T, Kirkwood MW, et al. Counselor-assisted problem solving improves caregiver efficacy following adolescent brain injury. Rehabilitation Psychology 2014;59(1):1-9.
121. Lasecki K, Olympia D, Clark E, Jenson W, Heathfield LT. Using behavioral interventions to assist children with type 1 diabetes manage blood glucose levels. School Psychology Quarterly 2008;23(3):389-406.
122. Logan S. Emotionally focused therapy improves marital adjustment in parents of children with chronically ill children. Child: Care, Health and Development 1997;23(6):479-80.
123. Lyon ME, Jacobs S, Briggs L, Cheng YI, Wang J. A longitudinal, randomized, controlled trial of advance care planning for teens with cancer: anxiety, depression, quality of life, advance directives, spirituality. Journal of Adolescent Health 2014;54(6):710-7.
124. Lyon ME, Jacobs S, Briggs L, Cheng YI, Wang J. Family-centered advance care planning for teens with cancer. JAMA Pediatrics 2013;167(5):460-7.
125. Mendez FJ, Belendez M. Effects of a behavioral intervention on treatment adherence and stress management in adolescents with IDDM. Diabetes Care 1997;20(9):1370-5.
126. Murphy HR, Wadham C, Hassler-Hurst J, Rayman G, Skinner TC. Randomized trial of a diabetes self-management education and family teamwork intervention in adolescents with type 1 diabetes. Diabetic Medicine 2012;29(8):249-53.
127. Nelson KA, Highstein GR, Garbutt J, Trinkaus K, Fisher E, Smith SR, et al. A randomized controlled trial of parental asthma coaching to improve outcomes among urban minority children. Archives of Pediatric Adolescent Medicine 2011;165(6):520-6.
128. Pérez MG, Feldman L, Caballero F. Effects of a self-management educational program for the control of childhood asthma. Patient Education and Counseling 1999;36(1):47-55.
129. Rasoli R, Etemadi A, Shafidabadi A, Delavar A. Comparing effectiveness of individual and marital emotionally focused intervention based on decreasing relationship distress of couples with chronically ill children. Journal of Family Research 2008;3(3):683-96.
130. Sanders MR, Rebgetz M, Morrison M, Bor W, Gordon A, Dadds M, et al. Cognitive-behavioral treatment of recurrent nonspecific abdominal pain in children: an analysis of generalization, maintenance, and side effects. Journal of Consulting and Clinical Psychology 1989;57(2):294-300.
131. Sanders MR, Cleghorn G, Shepherd RW, Patrick M. Predictors of clinical improvement in children with recurrent abdominal pain. Behavioural and Cognitive Psychotherapy 1996;24:27-38.
132. Satin W, La Greca AM, Zigo MA, Skyler JS. Diabetes in adolescence: effects of multifamily group intervention and parent simulation of diabetes. Journal of Pediatric Psychology 1989;14(2):259-75.
133. Scholten L, Willemen AM, Grootenhuis MA, Maurice-Stam H, Schuengel C, Last BF. A cognitive behavioral based group intervention for children with a chronic illness and their parents: a multicentre randomized controlled trial. BMC Pediatrics 2011;11(65):1-8.
134. Sieberg CB, Flannery-Schroeder E, Plante W. Children with co-morbid recurrent abdominal pain and anxiety disorders: results from a multiple-baseline intervention study. Journal of Child Health Care 2011;15(2):126-39.
135. Staab D, Van Rueden U, Kehrt R, Erhart M, Wenninger K, Kamtsiuris P, et al. Evaluation of a parental training program for the management of childhood atopic dermatitis. Pediatric Allergy and Immunology 2002;13(2):84-90.
136. Sullivan-Bolyai S, Bova C, Leung K, Trudeau A, Lee M, Gruppuso P. Social support to empower parents (STEP): an intervention for parents of young children newly diagnosed with type 1 diabetes. The Diabetes Educator 2010;36(1):88-97.
137. Szczepanski R, Jaeschke R, Spindler T, Ihorst G, Forster J, ASEV Study Group. Preschoolers' and parents' asthma education trial (P2AET) - a randomized controlled study. European Journal of Pediatrics 2010;169(9):1051-60.
138. Van der Veek SMC, Derkx BHF, Benninga MA, Boer F, De Haan E. Cognitive behaviour therapy for pediatric functional abdominal pain: a randomized controlled trial. Pediatrics 2013;132(5):1163-72.
139. Wade SL, Walz NC, Carey J, Williams KM, Cass J, Herren L, et al. A randomized trial of teen online problem solving for improving executive function deficits following pediatric traumatic brain injury. Journal of Head Trauma Rehabilitation 2010;25(6):409-15.
140. Walders N, Kercsmar C, Schluchter M, Redline S, Lester Kirchner H, Drotar D. An interdisciplinary intervention for undertreated pediatric asthma. Chest 2006;129(2):292-9.
141. Walker JG, Johnson S, Manion I, Cloutier P. Emotionally focused marital intervention for couples with chronically ill children. Journal of Consulting and Clinical Psychology 1996;64(5):1029-36.
142. Warner CM, Ludwig K, Sweeney C, Spillane C, Hogan L, Ryan J, et al. Treating persistent distress and anxiety in parents of children with cancer: an initial feasibility trial. Journal of Pediatric Oncology Nursing 2011;28(4):224-30.
143. Wysocki T, McDonell K, Harris MA, Elder Danda CL, Greco P, Bubb J, et al. Social validity of support group and behavior therapy interventions for families of adolescents with insulin-dependent diabetes mellitus. Journal of Pediatric Psychology 1997;22(5):635-49.
144. American Psychological Association. Publication Manual of the American Psychological Association. Washington: American Psychological Association, 2011.
145. Anie KA, Green J. Psychological therapies for sickle cell disease and pain. Cochrane Database of Systematic Reviews 2012, Issue 2. [DOI: 10.1002/14651858.CD001916.pub2]
146. Armour TA, Norris SL, Jack Jr L, Zhang X, Fisher L. The effectiveness of family interventions in people with diabetes mellitus: a systematic review. Diabetic Medicine 2005;22(10):1295-305.
147. Ashby FG, Isen AM, Turken AU. A neuropsychological theory of positive affect and its influence on cognition. Psychological Review 1999;106(3):529-50.
148. Bandura A. Social Learning Theory. New Jersey: Prentice-Hall, 1977.
149. Bandura A. Human agency in social cognitive theory. American Psychologist 1989;44(9):1175-84.
150. Bargh JA, Morsella E. The unconscious mind. Perspectives on Psychological Science 2008;3(1):73-9.
151. Beck AR, Rush AJ, Shaw B, Emery G. Cognitive Therapy of Depression. New York: Guilford Press, 1979.
152. Beck JS. Introduction to cognitive behavior therapy. Cognitive Behavior Therapy. New York: The Guilford Press, 2011:1-14.
153. Bergin AE, Suinn RM. Individual psychotherapy and behavior therapy. Annual Review of Psychology 1975;26:509-56.
154. Bronfenbreener U. The Ecology of Human Development: Experiments and Design and Nature. Massachusetts: Harvard University, 1979.
155. Cancer Research UK. Childhood cancer key stats. www.cancerresearchuk.org/cancer-info/cancerstats/keyfacts/Childhoodcancers/(Acessed 9th January 2015).
156. Cohen J. A power primer. Psychological Bulletin 1992;112(1):155-9.
157. Committee on Publication Ethics. Code of conduct and best practice guidelines for journal editors. publicationethics.org/(accessed 22 March 2012).
158. D'Zurilla TJ, Goldfried MR. Problem solving and behavior modification. Journal of Abnormal Psychology 1971;78(1):107-26.
159. D'Zurilla TJ, Nezu AM. Social problem solving in adults. In: Kendall PC editor(s). Advances in Cognitive-Behavioral Research and Therapy. New York: Academic Press, 1982:202-74.
160. D'Zurilla TJ, Nezu AM. Problem-Solving Therapy: A Social Competence Approach to Clinical Intervention. New York: Springer-Verlag, 1999.
161. D'Zurilla TJ, Nezu AM. Problem-Solving Therapy. A Positive Approach to Clinical Intervention. New York: Springer, 2007.
162. Data Resource Center. National survey of children with special health care needs: current health conditions and functional difficulties. childhealthdata.org/docs/cshcn/conditions-difficulties-09cshcn_feb-2-2012.pdf (accessed 5th April 2015).
163. Drotar D. Editorial: Guidance for submission and review of multiple publications derived from the same study. Journal of Pediatric Psychology 2010;35(3):225-30.
164. Eccleston C, Palermo TM, Williams ACDC, Lewandowski Holley A, Morley S, Fisher E, et al. Psychological therapies for the management of chronic and recurrent pain in children and adolescents. Cochrane Database of Systematic Reviews 2014, Issue 5. [DOI: 10.1002/14651858.CD003968.pub4]
165. Ersser SJ, Cowdell F, Latter S, Gardiner E, Flohr C, Thompson AR, et al. Psychological and educational interventions for atopic eczema in children. Cochrane Database of Systematic Reviews 2014, Issue 1. [DOI: 10.1002/14651858.CD004054.pub3]
166. Fisher E, Heathcote L, Palermo TM, Williams ACDC, Lau J, Eccleston C. Systematic review and meta-analysis: psychological therapies for children with chronic pain. Journal of Pediatric Psychology 2014;39(8):1-20.
167. Gilliom M, Shaw DS, Beck JE, Schonberg MA, Lukon JL. Anger regulation in disadvantaged preschool boys: strategies, antecedents, and the development of self-control. Developmental Psychology 2002;38(2):222-35.
168. Haley J. Problem Solving Therapy. San Francisco: Jossey-Bass, 1976.
169. Halfon N, Newackeck PW. Evolving notions of childhood chronic illness. JAMA 2010;303(7):665-6.
170. Henggeler SW, Lee T. Multisystemic treatment of serious clinical problems. In: Kazdin E, Weisz JR editor(s). Evidence-Based Psychotherapies for Children and Adolescents. New York: Guilford Press, 2003:301-24.
171. Higgins JPT, Green S (editors). Cochrane Handbook for Systematic Reviews of Interventions Version 5.1.0 [updated March 2011]. The Cochrane Collaboration, 2011. Available from www.cochrane-handbook.org.
172. Huertas-Ceballos AA, Logan S, Bennett C, Macarthur C. Psychosocial interventions for recurrent abdominal pain (RAP) and irritable bowel syndrome (IBS) in childhood. Cochrane Database of Systematic Reviews 2008, Issue 1. [DOI: 10.1002/14651858.CD003014.pub2]
173. James W. The Principles of Psychology. New York: Henry Holt and Company, 1980.
174. Jordan AL, Eccleston C, Osborn M. Being a parent of the adolescent with complex chronic pain: an interpretative phenomenological analysis. European Journal of Pain 2007;11(1):49-56.
175. Karabulut GS, Beşer OF, Erginöz E, Kutlu T, Çokuğraş FC, Erka T. The incidence of irritable bowel syndrome in children using the Rome III. criteria and the effect of trimebutine treatment. Journal of Neurogastroenterology and Motility 2013;19(1):90-93.
176. Law EF, Fisher E, Fales J, Noel M, Eccleston C. Systematic review and meta-analysis of parent and family-based interventions for children and adolescents with chronic medical conditions. Journal of Pediatric Psychology 2014;39(8):866-886.
177. Lewin S, Munabi-Babigumira S, Glenton C, Daniels K, Bosch-Capblanch X, Van Wyk BE, et al. Lay health workers in primary and community health care for maternal and child health and the management of infectious diseases. Cochrane Database of Systematic Reviews 2010, Issue 3. [DOI: 10.1002/14651858.CD004015.pub3]
178. Logan DE, ScharffL. Relationships between family and parent characteristics and functional abilities in children with recurrent pain syndromes: an investigation of moderating effects on the pathway from pain to disability. Journal of Pediatric Psychology 2005;30(8):698-707.
179. McBroom LA, Enriquez M. Review of family-centered interventions to enhance the health outcomes of children with type 1 diabetes. The Diabetes Educator 2009;35(3):428-38.
180. McDougall J, King G, De Wit D, Miller LT, Honh S, Offord DR, et al. Chronic physical health conditions and disability among Canadian school-aged children: a national profile. Disability and Rehabilitation 2004;26(1):35-45.
181. Minuchin S. Families & Family Therapy. Massachusetts: Harvard University, 1974.
182. National Cancer Institute at the National Institutes of Health. Cancer in children and adolescents. www.cancer.gov/cancertopics/factsheet/Sites-Types/childhood (Accessed 9th January 2015).
183. Nature Editorial. Data's shameful neglect. Nature 2009;461(7261):145.
184. Nock MK, Kazdin AE. Parent expectancies for child therapy: assessment and relation to participation in treatment. Journal of Child and Family Studies 2001;10(2):155-80.
185. Pai AL, Drotar D, Zebracki K, Moore M, Youngstorm E. A meta-analysis of the effects of psychological interventions in pediatric oncology on outcomes of psychological distress and adjustment. Journal of Pediatric Psychology 2006;31(9):978-88.
186. Palermo TM. Impact of recurrent and chronic pain on child and family daily functioning: a critical review of the literature. Developmental and Behavioral Pediatrics 2000;21(1):58-69.
187. Palermo TM, Chambers CT. Parent and family factors in pediatric chronic pain and disability: an integrative approach. Pain 2005;119(1-3):1-4.
188. Palermo TM, Wilson AC, Peters M, Lewandowski A, Somhegyi H. Randomized controlled trial of an internet delivered family cognitive-behavioral therapy intervention for children and adolescents with chronic pain. Pain 2009;146(1-2):205-13. [DOI: 10.1016/j.pain.2009.07.034]
189. Palermo TM, Eccleston C. Parents of children and adolescents with chronic pain. Pain 2009;146(1-2):15-7.
190. The Nordic Cochrane Centre, The Cochrane Collaboration. Review Manager (RevMan). 5.3. Copenhagen: The Nordic Cochrane Centre, The Cochrane Collaboration, 2014.
191. Robin AL, Foster SL. Negotiating Parent Adolescent Conflict: A Behavioral-Family Systems Approach. New York: Guilford, 1989.
192. Sansom-Daly UM, Peate M, Wakefield CE, Bryant RA, Cohn RJ. A systematic review of psychological interventions for adolescents and young adults living with chronic illness. Health Psychology 2012;31(3):380-93. [DOI: 10.1037/a0025977]
193. Savage E, Beirne PV, Ni Chroinin M, DuffA, Fitzgerald T, Farrell D. Self-management education for cystic fibrosis. Cochrane Database of Systematic Reviews 2014, Issue 9. [DOI: 10.1002/14651858.CD007641.pub3]
194. Schulz KF, Altman DG, Moher D, for the CONSORT Group. CONSORT 2010 Statement: updated guidelines for reporting parallel group randomised trials. BMJ 2010;340:698-702.
195. Skinner BF. Chapter 5: Operant behavior. Science and Human Behaviour. Toronto: The Macmillan Company, 1953.
196. Soo C, Tate R. Psychological treatment for anxiety in people with traumatic brain injury. Cochrane Database of Systematic Reviews 2007, Issue 3. [DOI: 10.1002/14651858.CD005239.pub2]
197. Van Cleave J, Gortmaker SL, Perrin JM. Dynamics of obesity and chronic health conditions among children and youth. JAMA 2010;303(7):623-30.
198. Van der Lee JH, Mokkink LB, Grootenhuis MA, Heymans HS, Offringa M. Definitions and measurement of chronic health conditions in childhood. JAMA 2007;297(24):2741-51.
199. Wegner DM. Ironic processes of mental control. Psychological Review 1994;101(1):34-52.
200. World Health Organization. World Health Statistics. WHO Library Cataloguing-in-Publication Data 2011.
201. Wicherts JM, Borsboom D, Kats J, Molenaar D. The poor availability of psychological research data for reanalysis. American Psychologist 2006;61(7):726-8.
202. Wicherts JM, Bakker M, Molenaar D. Willingness to share research data is related to the strength of the evidence and quality of reporting of statistical results. PLoS ONE 2011;6(11):e26828.
203. Williams ACDC, Eccleston C, Morley S. Psychological therapies for the management of chronic pain (excluding headache) in adults. Cochrane Database of Systematic Reviews 2012, Issue 11. [DOI: 10.1002/14651858.CD007407.pub3]
204. World Association of Medical Editors. Publication ethics policies for medical journals. www.wame.org (accessed 22 March 2012).
205. Wysocki T, Harris MA, Greco P, Bubb J, Danda CE, Harvey LM, et al. Randomized, controlled trial of behavior therapy for families of adolescents with insulin-dependent diabetes mellitus. Journal of Pediatric Psychology 2000;25(1):23-33.
206. Yates SL, Morley S, Eccleston C, Williams A. A scale for rating the quality of psychological trials for pain. Pain 2005;117(3):314-25.
207. Yorke J, Shuldham C. Family therapy for asthma in children. Cochrane Database of Systematic Reviews 2005, Issue 2. [DOI: 10.1002/14651858.CD003272.pub2]
208. Eccleston C, Palermo TM, Fisher E, Law E. Psychological interventions for parents of children and adolescents with chronic illness. Cochrane Database of Systematic Reviews 2012, Issue 2. [DOI: 10.1002/14651858.CD009660]
209. Eccleston C, Palermo TM, Fisher E, Law E. Psychological interventions for parents of children and adolescents with chronic illness. Cochrane Database of Systematic Reviews 2012, Issue 8. [DOI: 10.1002/14651858.CD009660.pub2]