A systematic review of psychological interventions for adolescents and young adults living with chronic illness

Health Psychology

Volumn 31, Issue 3, 2012, Pages 380-393

  Sansom Daly, Ursula M ^a,b   Peate, Michelle ^c   Wakefield, Claire E ^b   Bryant, Richard A ^a,b   Cohn, Richard J ^a  

^a UNIVERSITY OF NEW SOUTH WALES   (Australia)

^b SYDNEY CHILDREN'S HOSPITAL   (Australia)

^c UNIVERSITY OF NEW SOUTH WALES   (Australia)

Author keywords

Adolescent; Chronic illness; Intervention studies; Psychological adaptation; Young adult

Indexed keywords

ADAPTIVE BEHAVIOR; ARTICLE; ASTHMA; CHRONIC DISEASE; COMMUNICATION SKILL; EFFECT SIZE; HUMAN; INSULIN DEPENDENT DIABETES MELLITUS; INTERVENTION STUDY; JUVENILE RHEUMATOID ARTHRITIS; NEOPLASM; PSYCHOEDUCATION; PSYCHOLOGICAL AND PSYCHIATRIC PROCEDURES; QUANTITATIVE ANALYSIS; ROLE PLAYING; SICKLE CELL ANEMIA; SYSTEMATIC REVIEW; ADOLESCENT; ADULT; MALE; PARENT; PATIENT EDUCATION; PEER GROUP; PSYCHOLOGICAL ASPECT; REVIEW;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; CHRONIC DISEASE; HUMANS; INTERVENTION STUDIES; MALE; PARENTS; PATIENT EDUCATION AS TOPIC; PEER GROUP; YOUNG ADULT;

EID: 84866564756     PISSN: 02786133     EISSN: 19307810     Source Type: Journal    
DOI: 10.1037/a0025977     Document Type: Article

References (76)

1. Alderfer, M. A., Navsaria, N., & Kazak, A. E. (2009). Family functioning and posttraumatic stress disorder in adolescent survivors of childhood cancer. Journal of Family Psychology, 23, 717-725. doi:10.1037/ a0015996
2. Andre, M., Hagelberg, S., & Stenstrom, C. H. (2001). Education in the management of juvenile chronic arthritis. Changes in self-reported competencies among adolescents and parents of young children. Scandinavian Journal of Rheumatology, 30, 323-327.
3. Barakat, L. P., Schwartz, L. A., Salamon, K. S., & Radcliffe, J. (2010). A family-based randomized controlled trial of pain intervention for adolescents with sickle cell disease. Journal of Pediatric Hematology/ Oncology, 32, 540-547. doi:10.1097/MPH.0b013e3181e793f9
4. Boardway, R. H., Delamater, A. M., Tomakowsky, J., & Gutai, J. P.(1993). Stress management training for adolescents with diabetes. Journal of Pediatric Psychology, 18, 29-45. doi:10.1093/jpepsy/18.1.29
5. Butow, P., Palmer, S., Pai, A., Goodenough, B., Luckett, T., & King, M. (2010). Review of adherence-related issues in adolescents and young adults with cancer. Journal of Clinical Oncology, 28, 4800-4809. doi:10.1200/JCO.2009.22.2802
6. Campbell, H. S., Phaneuf, M. R., & Deane, K. (2004). Cancer peer support programs-Do they work? Patient Education and Counseling, 55, 3-15. doi:10.1016/j.pec.2003.10.001
7. Canada, A. L., Schover, L. R., & Li, Y. (2007). A pilot intervention to enhance psychosexual development in adolescents and young adults with cancer. Pediatric Blood & Cancer, 49, 824-828. doi:10.1002/ pbc.21130
8. Carpentier, M. Y., & Fortenberry, J. D. (2010). Romantic and sexual relationships, body image, and fertility in adolescent and young adult testicular cancer survivors: A review of the literature. Journal of Adolescent Health, 47, 115-125. doi:10.1016/j.jadohealth.2010.04.005
9. Channon, S. J., Huws-Thomas, M. V., Rollnick, S., Hood, K., Cannings-John, R. L., Rogers, C., & Gregory, J. W. (2007). A multicenter randomized controlled trial of motivational interviewing in teenagers with diabetes. Diabetes Care, 30, 1390-1395. doi:10.2337/dc06-2260
10. Daley, B. J. (1992). Sponsorship for adolescents with diabetes. Health and Social Work, 17, 173-182.
11. De Wit, M., Delemarre-Van de Waal, H. A., Bokma, J. A., Haasnoot, K., Houdijk, M. C., Gemke, R. J., & Snoek, F. J. (2008). Monitoring and discussing health-related quality of life in adolescents with Type 1 diabetes improve psychosocial well-being: A randomized controlled trial. Diabetes Care, 31, 1521-1526. doi:10.2337/dc08-0394
12. Eccleston, C., Morley, S., Williams, A., Yorke, L., & Mastroyannopoulou, K. (2002). Systematic review of randomised controlled trials of psychological therapy for chronic pain in children and adolescents, with a subset meta-analysis of pain relief. Pain, 99, 157-165. doi:10.1016/ S0304-3959(02)00072-6
13. Eiser, C. (2003). What can we learn from other illnesses? Journal of Cystic Fibrosis, 2, 58-60. doi:10.1016/S1569-1993(03)00002-X
14. Evan, E. E., Kaufman, M., Cook, A. B., & Zeltzer, L. K. (2006). Sexual health and self-esteem in adolescents and young adults with cancer. Cancer, 107, 1672-1679. doi:10.1002/cncr.22101
15. Grey, M., Boland, E. A., Davidson, M., Li, J., & Tamborlane, W. V. (2000). Coping skills training for youth with diabetes mellitus has long-lasting effects on metabolic control and quality of life. The Journal of Pediatrics, 137, 107-113. doi:10.1067/mpd.2000.106568
16. Hains, A. A., Davies, W. H., Parton, E., Totka, J., & Amoroso-Camarata, J. (2000). A stress management intervention for adolescents with type 1 diabetes. Diabetes Educator, 26, 417-424. doi:10.1177/ 014572170002600309
17. Hampel, P., Rudolph, H., Stachow, R., & Petermann, F. (2003). Multimodal patient education program with stress management for childhood and adolescent asthma. Patient Education & Counseling, 49, 59-66. doi:10.1016/S0738-3991(02)00046-0
18. Harrop, M. (2007). Psychosocial impact of cystic fibrosis in adolescence. Paediatric Nursing, 19, 41-45.
19. Havighurst, R. (1972). Developmental tasks and education (3rd ed.). New York, NY: David McKay Co.
20. Hayes-Lattin, B., Mathews-Bradshaw, B., & Siegel, S. (2010). Adolescent and young adult oncology training for health professionals: A position statement. Journal of Clinical Oncology, 28, 4858-4861. doi:10.1200/ JCO.2010.30.5508
21. Hazzard, A., Celano, M., Collins, M., & Markov, Y. (2002). Effects of STARBRIGHT world on knowledge, social support, and coping in hospitalized children with Sickle Cell Disease and asthma. Children's Health Care, 31, 69-86. doi:10.1207/S15326888CHC3101_5
22. Heiney, S. P., Ruffin, J., Ettinger, R. S., & Ettinger, S. (1988). The effects of group therapy on adolescents with cancer. [Research Support, Non U.S. Gov't]. Journal of the Association of Pediatric Oncology Nurses, 5, 20-24. doi:10.1177/104345428800500305
23. Hinds, P. S., Quargnenti, A., Bush, A. J., Pratt, C., Fairclough, D., Rissmiller, G., Gilchrist, G. S. (2000). An evaluation of the impact of a self-care coping intervention on psychological and clinical outcomes in adolescents with newly diagnosed cancer. European Journal of Oncology Nursing, 4, 6-17. doi:10.1054/ejon.1999.0051
24. Hopewell, S., Loudon, K., Clarke, M. J., Oxman, A. D., & Dickersin, K. (2009). Publication bias in clinical trials due to statistical significance or direction of trial results. Cochrane Database of Systematic Reviews, MR000006.
25. Horner, S. D. (1995). A family care approach for managing childhood asthma. Journal of the American Academy of Nurse Practitioners, 7, 221-227. doi:10.1111/j.1745-7599.1995.tb01145.x
26. Huus, K., & Enskär, K. (2007). Adolescents' experience of living with diabetes. Pediatric Nursing, 19, 29-31.
27. Ireys, H. T., Sills, E. M., Kolodner, K. B., & Walsh, B. B. (1996). A social support intervention for parents of children with juvenile rheumatoid arthritis: Results of a randomized trial. Journal of Pediatric Psychology, 21, 633-641. doi:10.1093/jpepsy/21.5.633
28. Jackson, C., Cheater, F. M., & Reid, I. (2008). A systematic review of decision support needs of parents making child health decisions. Health Expectations, 11, 232-251. doi:10.1111/j.1369-7625.2008.00496.x
29. Jones, J. K., Kamani, S. A., Bush, P. J., Hennessy, K. A., Marfatia, A., & Shad, A. T. (2010). Development and evaluation of an educational interactive CD-ROM for teens with cancer. Pediatric Blood & Cancer, 55, 512-519. doi:10.1002/pbc.22608
30. Karlson, C. W., & Rapoff, M. A. (2009). Attrition in randomized controlled trials for pediatric chronic conditions. Journal of Pediatric Psychology, 34, 782-793. doi:10.1093/jpepsy/jsn122
31. Kato, P. M., Cole, S. W., Bradlyn, A. S., & Pollock, B. H. (2008). A video game improves behavioral outcomes in adolescents and young adults with cancer: A randomized trial. Pediatrics, 122, e305-317. doi: 10.1542/peds.2007-3134
32. Kazak, A. E. (2005). Evidence-based interventions for survivors of childhood cancer and their families. Journal of Pediatric Psychology, 30, 29-39. doi:10.1093/jpepsy/jsi013
33. Kazak, A. E., Alderfer, M. A., Rourke, M. T., Simms, S., Streisand, R., & Grossman, J. R. (2004). Posttraumatic stress disorder (PTSD) and posttraumatic stress symptoms (PTSS) in families of adolescent childhood cancer survivors. Journal of Pediatric Psychology, 29, 211-219. doi: 10.1093/jpepsy/jsh022
34. Kazak, A. E., Alderfer, M. A., Streisand, R., Simms, S., Rourke, M. T., Barakat, L. P., Cnaan, A. (2004). Treatment of posttraumatic stress symptoms in adolescent survivors of childhood cancer and their families: A randomized clinical trial. Journal of Family Psychology, 18, 493-504. doi:10.1037/0893-3200.18.3.493
35. Kennedy, A., & Sawyer, S. (2008). Transition from pediatric to adult services: Are we getting it right? Current Opinion in Pediatrics, 20, 403-409. doi:10.1097/MOP.0b013e328305e128
36. Liberati, A., Altman, D. G., Tetzlaff, J., Mulrow, C., Gøtzsche, P. C., Ioannidis, J. P. A., Moher, D. (2009). The PRISMA statement for reporting systematic reviews and meta-analyses of studies that evaluate healthcare interventions: Explanation and elaboration. British Medical Journal, 339, b2700. doi:10.1136/bmj.b2700
37. Lipsey, M. W., & Wilson, D. B. (2001). Practical meta-analysis (Vol. 49). Thousand Oaks, CA: Sage.
38. Løding, R. N., Wold, J. E., & Skavhaug, Å. (2008). Experiences with a group intervention for adolescents with type 1 diabetes and their parents. European Diabetes Nursing, 5, 9-14. doi:10.1002/edn.96
39. Mohr, D. C., Spring, B., Freedland, K. E., Beckner, V., Arean, P., Hollon, S. D., Kaplan, R. (2009). The selection and design of control conditions for randomized controlled trials of psychological interventions. Psychotherapy & Psychosomatics, 78, 275-284. doi:10.1159/ 000228248
40. Morgan, S., Davies, S., Palmer, S., & Plaster, M. (2010). Sex, drugs, and rock 'n' roll: Caring for adolescents and young adults with cancer. Journal of Clinical Oncology, 28, 4825-4830. doi:10.1200/ JCO.2009.22.5474
41. Olsson, C. A., Bond, L., Johnson, M. W., Forer, D. L., Boyce, M. F., & Sawyer, S. M. (2003). Adolescent chronic illness: A qualitative study of psychosocial adjustment. Annals of the Academy of Medicine Singapore, 32, 43-50.
42. Orr, D. P., Weller, S. C., Satterwhite, B., & Pless, I. B. (1984). Psychosocial implications of chronic illness in adolescence. The Journal of Pediatrics, 104, 152-157. doi:10.1016/S0022-3476(84)80616-2
43. Oxman, A. (1995). Preparing and maintaining systematic reviews. In A. Oxman (Ed.), The Cochrane Collaboration, The Cochrane Collaboration Handbook. Available in the Cochrane Database of Systematic Reviews. London: British Medical Journal Publishing Group.
44. Perrin, E. C., Stein, R. E. K., & Drotar, D. (1991). Cautions in using the Child Behavior Checklist: Observations based on research about children with a chronic illness. Journal of Pediatric Psychology, 16, 411-421. doi:10.1093/jpepsy/16.4.411
45. Petersen, A. C., & Leffert, N. (1995). Developmental issues influencing guidelines for adolescent health research: A review. Journal of Adolescent Health, 17, 298-305. doi:10.1016/1054-139X(95)00184-T
46. Plante, W., Lobato, D., & Engel, R. (2001). Review of group interventions for pediatric chronic conditions. Journal of Pediatric Psychology, 26, 435-453. doi:10.1093/jpepsy/26.7.435
47. Rait, D. S., Ostroff, J. S., Smith, K., Cella, D. F., Tan, C., & Lesko, L. M. (1992). Lives in a balance: Perceived family functioning and the psychosocial adjustment of adolescent cancer survivors. Family Process, 31, 383-397. doi:10.1111/j.1545-5300.1992.00383.x
48. Rhee, H., Wenzel, J., & Steeves, R. H. (2007). Adolescents' psychosocial experiences living with asthma: A focus group study. Journal of Pediatric Health Care, 21, 99-107. doi:10.1016/j.pedhc.2006.04.005
49. Rodgers Fischl, A. F., Herman, W. H., Sereika, S. M., Hannan, M., Becker, D., Mansfield, M. J., Charron-Prochownik, D. (2010). Impact of a preconception counseling program for teens with Type 1 diabetes (READY-girls) on patient-provider interaction, resource utilization, and cost. Diabetes Care, 33, 701-705. doi:10.2337/dc09-1821
50. Satin, W., L. A. Greca, A. M., Zigo, M. A., & Skyler, J. S. (1989). Diabetes in adolescence: Effects of multifamily group intervention and parent simulation of diabetes. Journal of Pediatric Psychology, 14, 259-275. doi:10.1093/jpepsy/14.2.259
51. Sawyer, S. M., Drew, S., & Duncan, R. (2007). Adolescents with chronic disease-the double whammy. Australian Family Physician, 36, 622-627.
52. Sawyer, S. M., Drew, S., Yeo, M. S., & Britto, M. T. (2007). Adolescents with a chronic condition: Challenges living, challenges treating. Lancet, 369, 1481-1489, doi:10.1016/S0140-6736(07)60370-5
53. Schiffman, J. D., Csongradi, E., & Suzuki, L. K. (2008). Internet use among adolescent and young adults (AYA) with cancer. Pediatric Blood & Cancer, 51, 410-415. doi:10.1002/pbc.21616
54. Schulz, K. F., Altman, D. G., & Moher, D., for the CONSORT Group. (2010). CONSORT 2010 Statement: Updated guidelines for reporting parallel group randomised trials. British Medical Journal, 340, 698-702.
55. Schwartz, C. E., Feinberg, R. G., Jilinskaia, E., & Applegate, J. C. (1999). An evaluation of a psychosocial intervention for survivors of childhood cancer: Paradoxical effects of response shift over time. PsychoOncology, 8, 344-354. doi:10.1002/(SICI)1099-1611(199907/08)8: 4Universal-GreekwithMathPi.-1.H11021344::AID-PON399Universal-GreekwithMathPi.-1.H110223.0.CO;2-T
56. Seitz, D. C. M., Besier, T., & Goldbeck, L. (2009). Psychosocial interventions for adolescent cancer patients: A systematic review of the literature. Psycho-Oncology, 18, 683-690. doi:10.1002/pon.1473
57. Stein, R. E. K., Bauman, L. J., Westbrook, L. E., Coupey, S. M., & Ireys, H. T. (1993). Framework for identifying children who have chronicconditions: The case for a new definition. The Journal of Pediatrics, 122, 342-347. doi:10.1016/S0022-3476(05)83414-6
58. Stein, R. E. K., & Jessop, D. J. (1989). What diagnosis does not tell: The case for a noncategorical approach to chronic illness in childhood. Social Science & Medicine, 29, 769-778. doi:10.1016/0277-9536(89)90157-3
59. Stinson, J. N., McGrath, P. J., Hodnett, E. D., Feldman, B. M., Duffy, C. M., Huber, A. M., White, M. E. (2010). An Internet-based self-management program with telephone support for adolescents with arthritis: A pilot randomized controlled trial. The Journal of Rheumatology, 37, 1944-1952. doi:10.3899/jrheum.091327
60. Suris, J-C., Akre, C., Berchtold, A., Belanger, R. E., & Michaud, P.-A. (2010). Chronically connected? Internet use among adolescents with chronic conditions. Journal of Adolescent Health, 46, 200-202. doi: 10.1016/j.jadohealth.2009.07.008
61. Taylor, R. M., Gibson, F., & Franck, L. S. (2008). The experience of living with a chronic illness during adolescence: A critical review of the literature. Journal of Clinical Nursing, 17, 3083-3091. doi:10.1111/ j.1365-2702.2008.02629.x
62. Thalheimer, W., & Cook, S. (2002). How to calculate effect sizes from published research articles: A simplified methodology. Retrieved from http://work-learning.com/effect_sizes.htm
63. Thompson, R. J., Armstrong, F. D., Link, C. L., Pegelow, C. H., Moser, F., & Wang, W. C. (2003). A prospective study of the relationship over time of behavior problems, intellectual functioning, and family functioning in children with Sickle Cell Disease: A report from the cooperative study of Sickle Cell Disease. Journal of Pediatric Psychology, 28, 59-65. doi:10.1093/jpepsy/28.1.59
64. Treadgold, C. L., & Kuperberg, A. (2010). Been there, done that, wrote the blog: The choices and challenges of supporting adolescents and young adults with cancer. Journal of Clinical Oncology, 28, 4842-4849. doi: 10.1200/JCO.2009.23.0516
65. Van Dongen-Melman, J. E., De Groot, A., Hahlen, K., & Verhulst, F. C. (1996). Commentary: Potential pitfalls of using illness-specific measures. Journal of Pediatric Psychology, 21, 103-106. doi:10.1093/ jpepsy/21.1.103
66. Varni, J. W., Limbers, C. A., & Burwinkle, T. A. (2007). Impaired health-related quality of life in children and adolescents with chronic conditions: A comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL™ 4.0 Generic Core Scales. Health and Quality of Life Outcomes, 5, 1-15.
67. Wakefield, C. E., McLoone, J., Goodenough, B., Lenthen, K., Cairns, D. R., & Cohn, R. J. (2010). The psychosocial impact of completing childhood cancer treatment: A systematic review of the literature. Journal of Pediatric Psychology, 35, 262-274. doi:10.1093/jpepsy/jsp056
68. Wakefield, C. E., McLoone, J., Sansom-Daly, U. M., Fleming, C., Lenthen, K., Butow, P., Cohn, R. J. (2010). Decision-making during and after cancer treatment: A qualitative study of adolescent and family experiences. Paper presented at the Australian New Zealand Children's Haematology and Oncology Group (ANZCHOG) Annual Scientific Meeting.
69. Wang, Y-C. A., Stewart, S., Tuli, E., & White, P. (2008). Improved glycemic control in adolescents with type 1 diabetes mellitus who attend diabetes camp. Pediatric Diabetes, 9, 29-34. doi:10.1111/j.13995448.2007.00285.x
70. Whiting, P., Bagnall, A. M., Sowden, A. J., Cornell, J. E., Mulrow, C. D., & Ramírez, G. (2001). Interventions for the treatment and management of chronic fatigue syndrome: A systematic review. Journal of American Medical Association, 286, 1360-1368. doi:10.1001/jama.286.11.1360
71. Whittemore, R., Grey, M., Lindemann, E., Ambrosino, J., & Jaser, S. (2010). Development of an Internet coping skills training program for teenagers with Type 1 diabetes. CIN: Computers, Informatics, Nursing, 28, 103-111.
72. World Health Organization. (1977). Health needs of adolescents. Geneva, Switzerland: World Health Organization.
73. Wysocki, T., Greco, P., Harris, M. A., Bubb, J., & White, N. H. (2001). Behavior therapy for families of adolescents with diabetes: Maintenance of treatment effects. Diabetes Care, 24, 441-446. doi:10.2337/ diacare.24.3.441
74. Wysocki, T., Harris, M. A., Buckloh, L. M., Mertlich, D., Sobel Lochrie, A., Taylor, A., White, N. H. (2006). Effects of behavioral family systems therapy for diabetes on adolescents' family relationships, treatment adherence, and metabolic control. Journal of Pediatric Psychology, 31, 928-938. doi:10.1093/jpepsy/jsj098
75. Yeo, M., & Sawyer, S. (2005). Chronic illness and disability. British Medical Journal, 330, 721-723. doi:10.1136/bmj.330.7493.721
76. Zebrack, B., Chesler, M., & Kaplan, S. (2010). To foster healing amongadolescents and young adults with cancer: What helps? What hurts? Supportive Care in Cancer, 18, 131-135. doi:10.1007/s00520-009-0719-y