Therapy online: A web-based video support group for family caregivers of survivors with traumatic brain injury

Journal of Head Trauma Rehabilitation

Volumn 31, Issue 4, 2016, Pages E12-E20

  Damianakis, Thecla ^a,b   Tough, Alicia ^c   Marziali, Elsa ^d   Dawson, Deirdre R ^b,e  

^a UNIVERSITY OF WINDSOR   (Canada)

^b ROTMAN RESEARCH INSTITUTE   (Canada)

^c Gestalt Institute of Toronto   (Canada)

^d Faculty of Medicine and Factor   (Canada)

^e UNIVERSITY OF TORONTO   (Canada)

Author keywords

Brain injury; Family caregiving; Online intervention; Support group; Videoconferencing

Indexed keywords

ACCESS TO INFORMATION; ADOLESCENT; ADULT; ARTICLE; BEHAVIOR CHANGE; CAREGIVER; CAREGIVER SUPPORT; CLINICAL ARTICLE; CONTENT ANALYSIS; COPING BEHAVIOR; DAILY LIFE ACTIVITY; EMOTION; FAMILY FUNCTIONING; FAMILY THERAPY; FEMALE; GRIEF; GROUP DYNAMICS; GROUP PROCESS; HOPELESSNESS; HUMAN; IDENTITY; INTERNET; MALE; ONTARIO; PATIENT CARE; PERSONALITY; PROBLEM IDENTIFICATION; PROBLEM SOLVING; PSYCHOTHERAPY; SELF CARE; SELF CONCEPT; SOCIAL PSYCHOLOGY; SUPPORT GROUP; SURVIVOR; TELETHERAPY; TRAUMATIC BRAIN INJURY; VIDEOCONFERENCING; YOUNG ADULT; BRAIN INJURY; FEASIBILITY STUDY; PSYCHOLOGY; SELF HELP; SOCIAL SUPPORT;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; BRAIN INJURIES; CAREGIVERS; FEASIBILITY STUDIES; FEMALE; HUMANS; INTERNET; MALE; PROBLEM SOLVING; SELF-HELP GROUPS; SOCIAL SUPPORT; SURVIVORS; VIDEOCONFERENCING; YOUNG ADULT;

EID: 84944339207     PISSN: 08859701     EISSN: 1550509X     Source Type: Journal    
DOI: 10.1097/HTR.0000000000000178     Document Type: Article

References (43)

1. Nabors N, Seacat J, Rosenthal M. Predictors of caregiver burden following traumatic brain injury. Brain Inj. 2002;16(12):1039-1050.
2. Kreutzer JS, Rapport IJ, Marwitz JH, et al. Caregivers' well-being after traumatic brain injury: a multicenter prospective investigation. Arch Phys Med Rehabil. 2009;90(6):939-946.
3. Perlesz A, Kinsella G, Crowe S. Psychological distress and family satisfaction following traumatic brain injury: injured individuals and their primary, secondary, and tertiary carers. J Head Trauma Rehabil. 2000;15(3):909-929.
4. Aitken ME, McCarthy ML, Slomine BS, et al. Family burden after traumatic brain injury in children. JAMA Pediatr. 2009;123(1):199-206.
5. Marsh NV, Kersel DA, Havill JH, Sleigh JW. Caregiver burden at 1 year following severe TBI. Brain Inj. 1998;12:1045-1059.
6. Knight RG, Devereaux R, Godfrey HPD. Caring for a family member with a TBI. Brain Inj. 1998;12:467-481.
7. Hanks RA, Rapport LJ, Vangel S. Caregiving appraisal after traumatic brain injury: the effects of functional status, coping style, social supports and family functioning. NeuroRehabilitation. 2007;22(1):43-52.
8. Ponsford J, Schonberger M. Family functioning and emotional state after traumatic brain injury. J Int Neuropsychol Soc. 2010;16(2):306-317.
9. Wongvatunyu S, Porter EE. Changes in family life perceived by mothers of young adult TBI survivors. J Fam Nurs. 2008;14(3):314-332.
10. Brauer J, Hay CC, Francisco G. A retrospective investigation of occupational therapy services received following a traumatic brain injury. Occup Ther Health Care. 2011;25(2-3):119-130.
11. Acorn S. Head-injured survivors: caregivers and support groups. J Adv Nurs. 1993;18:39-45.
12. Rotondi AJ, Sinkule J, Balzer K, Harris J, Moldovan R. A qualitative needs assessment of persons who have experienced traumatic brain injury and their primary family caregivers. J Head Trauma Rehabil. 2007;22(1):14-25.
13. Ergh TC, Hanks RA, Rapport LJ, Coleman RD. Social support moderates caregiver life satisfaction following traumatic brain injury. J Clin Exp Neuropsychol. 2003;25(8):1090-1101.
14. Ergh TC, Rapport LJ, Coleman RD, Hanks RA. Predictors of caregiver and family functioning following traumatic brain injury: social support moderates caregiver distress. J Head Trauma Rehabil. 2002;17(2):155-174.
15. Kreutzer JS, Kolakowsky-Hayner SA, Demm SR, Meade MA. A structured approach to family intervention after brain injury. J Head Trauma Rehabil. 2002;17(4):349-367.
16. Van Baalen B, Ribbers GM, Medema-Meulepas D, Pas MS, Odd-ing E, Stam HJ. Being restricted in participation after a traumatic brain injury is negatively associated by passive coping style of the caregiver. Brain Inj. 2007;21(9):925-931.
17. Chronister J, Chan F. A stress process model of caregiving for individuals with traumatic brain injury. Rehabil Psychol. 2006;51(3):190-201.
18. Sandler AM, Clark AN, Atchison TB, Rueda M. A web-based videoconferencing approach to training caregivers in rural areas to compensate for problems related to traumatic brain injury. J Head Trauma Rehabil. 2009;24(4):248-261.
19. Wade SL, Walz NC, Carey JC, Williams KM. Preliminary efficacy of a web-based family problem-solving treatment program for adolescents with traumatic brain injury. J Head Trauma Rehabil. 2008;23(6):369-377.
20. Wade SL, Carey J, Wolfe CR. The efficacy of an online family intervention to reduce parental distress following pediatric brain injury. J Consult Clin Psychol. 2006;51:178-189.
21. Brown FL, Whittingham K, Boyd R, Sofronoff K. A systematic review of parenting interventions for traumatic brain injury: child and parent outcomes. J Head Trauma Rehabil. 2013;28(5):349-360.
22. Brown R, Pain K, Berwald C, Hirschi P, Delehanty R, Miller H. Distance education and CG support groups: comparison of traditional and telephone groups. J Head Trauma Rehabil. 1999;14(3):257-268.
23. Gan C, Gargaro J, Brandys C, Gerber G, Boschen K. Family care-givers' support needs after brain injury: a synthesis of perspectives from caregivers, programs, and researchers. NeuroRehabilitation. 2010;27:5-18.
24. Albert SM, Im A, Benner L, Smith M, Waxman R. Effect of a social work liaison program on family caregivers to people with brain injury. J Head Trauma Rehabil. 2002;17(2):175-189.
25. Rivera PA, Elliott TR, Berry JW, Grant JS. Problem-solving training for family caregivers of persons with traumatic brain injuries: a randomized controlled trial. Arch Phys Med Rehabil. 2008;89(5):931-941.
26. Acorn S. Assisting families of head-injured survivors through a family support program. J Adv Nurs. 1995;21(5): 872-877.
27. Kraus JF, MacArthur DL. Epidemiologic aspects of brain injury. Neurol Clin. 1996;14(2):435-450.
28. Sosin DM, Sniezek JE, Thurman DJ. Incidence of mild and moderate brain injury in the United States, 1991. Brain Inj. 1996;10(1):47-54.
29. Rotondi AJ, Sinkule J, Spring J. An initiative Web-based Intervention for persons with TBI and their families: use and evaluation by female significant others. J Head Trauma Rehabil. 2005;20(2):173-185.
30. McLaughlin KA, Glang A, Beaver SV, Gau JM, Keen S. Web-based training in family advocacy. J Head Trauma Rehabil. 2013;28(5):341-348.
31. Dawson DR, Catanzaro AM, Firestone J, Schwartz M, Stuss DT. Changes in coping style following traumatic brain injury and their relationship to productivity status. Brain Cogn. 2006;60: 214-216.
32. Hunt A, Jhutan N, Marziali E, Dawson D. Handbook for Caregivers and Family Members: Traumatic Brain Injury. 2004.
33. Marziali E, Donahue P, Crossin G. Computer-internet health care support interventions for family caregivers of persons with dementia (Alzheimer or other), stroke, or Parkinson disease. Fam Soc. 2005;86:530-538.
34. Marziali E, Donahue P. Caring for others: Internet, videoconferencing group intervention for family caregivers of older adults with neurodegenerative disease. J Gerontol. 2006;46:398-403.
35. Marziali E. E-health program for patients with chronic disease. Telemed J E Health. 2009;1:176-181.
36. Marziali E, Garcia L. Dementia caregivers' responses to 2 internet-based intervention programs. Am J Alzheimer's Dis Other Demen. 2011;26:36-43.
37. Yalom ID, Leszcz M. The Theory and Practice of Group Psychotherapy. 5th ed. New York, NY: Basic Books; 2005.
38. American Group Psychotherapy Association. Practice guidelines for group psychotherapy. http://www.agpa.org/home/practice-resources/practice-guidelines-for-group-psychotherapy. Accessed February 17, 2009.
39. Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277-1288.
40. Lincoln YS, Guba E G. Establishing trustworthiness. In:Lincoln YS, Cuba EG, eds. Naturalistic Inquiry. Beverly Hills, CA: Sage; 1985:289-330.
41. McReynolds CJ, Koch LC, Rumrill PD. Qualitative research strategies in rehabilitation. Work. 2001;16(1):57-65.
42. Bachhaus SL, Ibarra SL, Klyce D, Trexler LE, Malec JF. Brain injury coping skills group: a preventative intervention for patients with brain injury and their caregivers. Arch Phys Med Rehabil. 2010;91:840-848.
43. Dawson DR, Trueman M. Psychosocial considerations in occupational therapy treatment for adults with acquired brain injury: a survey. Occup Ther Health Care. 2010;24(4):295-230.