Family functioning and emotional state two and five years after traumatic brain injury

Journal of the International Neuropsychological Society

Volumn 16, Issue 2, 2010, Pages 306-317

  Ponsford, Jennie ^a,b,c   Schönberger, Michael ^a,b  

^a MONASH UNIVERSITY   (Australia)

^b EPWORTH HOSPITAL   (Australia)

^c NATIONAL TRAUMA RESEARCH INSTITUTE   (Australia)

Author keywords

Anxiety; Depression; Family functioning; Relatives; Structural equation modelling; Traumatic brain injury

Indexed keywords

EID: 77952542218     PISSN: 13556177     EISSN: 14697661     Source Type: Journal    
DOI: 10.1017/S1355617709991342     Document Type: Article

References (55)

1. Allen, K., Linn, R.T., Gutierrez, H., & Willer, B.S. (1994). Family burden following traumatic brain injury. Rehabilitation Psychology , 39, 29-48.
2. Anderson, M.I., Parmenter, T.R., & Mok, M. (2002). The relationship between neurobehavioural problems of severe traumatic brain injury (TBI), family functioning and the psychological wellbeing of the spouse/caregiver: Path model analysis. Brain Injury, 16, 743-757.
3. Bjelland, I., Dahl, A.A., Haug, T.T., & Neckelmann, D. (2002). The validity of the Hospital Anxiety and Depression Scale: An updated literature review. Journal of Psychosomatic Research, 52, 69-77.
4. Boake, C., & High, W.M. (1996). Functional outcome from traumatic brain injury-Unidimensional or multidimensional? American Journal of Physical Medicine & Rehabilitation, 75, 105-113. (Pubitemid 26123981)
5. Bragg, R.M., Klockars, A.J., & Berninger, V.W. (1992). Comparison of families with and without adolescents with traumatic brain injury . Journal of Head Trauma Rehabilitation, 7, 94-108.
6. Brooks, D.N. (1991). The head-injured family. Journal of Clinical and Experimental Neuropsychology, 13, 155-188.
7. Brooks, D.N., Campsie, L., Symington, C., Beattie, A., & McKinlay, W. (1987). The effects of severe head injury on patient and relative within seven years of injury. Journal of Head Trauma Rehabilitation , 2, 1-13. (Pubitemid 17125208)
8. Carnevale, G.J., Anselmi, V., Busichio, K., & Millis, S.R. (2002). Changes in ratings of caregiver burden following a communitybased behavior management program for persons with traumatic brain injury. Journal of Head Trauma Rehabilitation, 17, 83-95.
9. Chan, J. (2007). Carers' perspective on respite for persons with acquired brain injury. International Journal of Rehabilitation Research, 30, 137-146.
10. Douglas, J.M., & Spellacy, F.J. (1996). Indicators of long-term family functioning following severe traumatic brain injury in adults. Brain Injury, 10, 819-839.
11. Douglas, J.M., & Spellacy, F.J. (2000). Correlates of depression in adults with severe traumatic brain injury and their carers. Brain Injury, 14, 71-88.
12. Draper, K., Ponsford, J., & Schönberger, M. (2007). Psychosocial and emotional outcomes 10 years following traumatic brain injury . Journal of Head Trauma Rehabilitation, 22, 278-287.
13. Epstein, N.B., Baldwin, L.M., & Bishop, D.S. (1983). The McMaster Family Assessment Device. Journal of Marital and Family Therapy, 9, 171-180.
14. Ergh, T.C., Hanks, R.A., Rapport, L.J., & Coleman, R.D. (2003). Social support moderates caregiver life satisfaction following traumatic brain injury. Journal of Clinical and Experimental Neuropsychology, 25, 1090-1101.
15. Ergh, T.C., Rapport, L.J., Coleman, R.D., & Hanks, R.A. (2002). Predictors of caregiver and family functioning following traumatic brain injury: Social support moderates caregiver distress. Journal of Head Trauma Rehabilitation, 17, 155-174.
16. Flora, D.B., & Curran, P.J. (2004). An empirical evaluation of alternative methods of estimation for confi rmatory factor analysis with ordinal data. Psychological Methods, 9, 466-491.
17. Gan, C., Campbell, K.A., Gemeinhardt, M., & McFadden, G.T. (2006). Predictors of family system functioning after brain injury . Brain Injury, 20, 587-600.
18. Gan, C., & Schuller, R. (2002). Family system outcome following acquired brain injury: Clinical and research perspectives. Brain Injury, 16, 311-322.
19. Gervasio, A.H., & Kreutzer, J.S. (1997). Kinship and family members' psychological distress after traumatic brain injury: A large sample study. Journal of Head Trauma Rehabilitation, 12, 14-26.
20. Hall, K.M., Karzmark, P., Stevens, M., Englander, J., O'Hare, P., & Wright, J. (1994). Family stressors in traumatic brain injury: A two-year follow-up. Archives of Physical Medicine & Rehabilitation , 75, 876-884.
21. Hanks, R.A., Rapport, L.J., & Vangel, S. (2007). Caregiving appraisal after traumatic brain injury: The effects of functional status, coping style, social support and family functioning. Neurorehabilitation , 22, 43-52.
22. Herrmann, C. (1997). International experiences with the Hospital Anxiety and Depression Scale: A review of validation data and clinical results. J ournal of Psychosomatic Research, 4, 2, 17-41.
23. Hoofien, D., Gilboa, A., Vakil, E., & Donovick, P.J. (2001). Traumatic brain injury (TBI) 10-20 years later: A comprehensive outcome study of psychiatric symptomatology, cognitive abilities and psychosocial functioning. Brain Injury, 15, 189-209.
24. Jacobs, H.E. (1988). The Los Angeles Head Injury Survey: Procedures and initial findings. Archives of Physical Medicine & Rehabilitation, 69, 425-431.
25. Kabacoff, R.I., Miller, I. W., Bishop, D.S., Epstein, N.B., & Keitner, G.I. (1990). A psychometric study of the McMaster Family Assessment Device in psychiatric, medical and nonclinical samples . Journal of Family Psychology, 3 (4), 431-439.
26. Kreutzer, J.S., Gervasio, A.H., & Camplair, P.S. (1994 a). Patient correlates of caregivers' distress and family functioning after traumatic brain injury. Brain Injury, 8, 211-230.
27. Kreutzer, J.S., Gervasio, A.H., & Camplair, P.S. (1994 b). Primary caregivers' psychological status and family functioning after traumatic brain injury. Brain Injury, 8, 197-210.
28. Livingston, M.G., Brooks, D.N., & Bond, M.R. (1985). Three months after severe head injury: Psychiatric and social impact on relatives. Journal of Neurology, Neurosurgery & Psychiatry, 48, 870-875.
29. Machamer, J., Temkin, N., & Dikmen, S. (2002). Signifi cant other burden and factors related to it in traumatic brain injury. Journal of Clinical and Experimental Neuropsychology, 24, 420-433.
30. Marsh, N.V., Kersel, D.A., Havill, J.H., & Sleigh, J.W. (1998 a). Caregiver burden at 1 year following severe traumatic brain injury . Brain Injury, 12, 1045-1059.
31. Marsh, N.V., Kersel, D.A., Havill, J.H., & Sleigh, J.W. (1998 b). Caregiver burden at 6 months following severe traumatic brain injury. Brain Injury, 12, 225-238.
32. Marsh, N.V., Kersel, D.A., Havill, J.H., & Sleigh, J.W. (2002). Caregiver burden during the year following severe traumatic brain injury. Journal of Clinical and Experimental Neuropsychology , 24, 434-447.
33. Medd, J., & Tate, R.L. (2000). Evaluation of an anger management therapy programme following acquired brain injury: A preliminary study. Neuropsychological Rehabilitation, 10, 185-201.
34. Miller, I.W., Bishop, D.S., Epstein, N.B., & Keitner, G.I. (1985). The McMaster Family Assessment Device: Reliability and validity . Journal of Marital and Family Therapy, 11, 345-356.
35. Moore, A., Stambrook, M., & Peters, L. (1993). Centripetal and centrifugal family life cycle factors in long-term outcome following traumatic brain injury. Brain Injury, 7, 247-255.
36. Oddy, M., Humphrey, M., & Uttley, D. (1978). Stresses upon the relatives of head-injured patients. British Journal of Psychiatry, 133, 507-513.
37. Perlesz, A., Furlong, M., & McLachland, D. (1989). Familycentred rehabilitation: Family therapy for the head injured and their relatives. In R.D. Harris, R. Burns & R. Rees (Eds.), Recovery from brain injury: Expectations, needs and processes (pp. 180-191). Adelaide, South Australia : Institute for the Study of Learning Diffi culties.
38. Perlesz, A., Kinsella, G., & Crowe, S. (1999). Impact of traumatic brain injury on the family: A critical review. Rehabilitation Psychology , 44, 6-35.
39. Perlesz, A., Kinsella, G., & Crowe, S. (2000). Psychological distress and family satisfaction following traumatic brain injury: Injured individuals and their primary, secondary, and tertiary carers. Journal of Head Trauma Rehabilitation, 15, 909-929.
40. Ponsford, J., Olver, J., Nelms, R., Curran, C., & Ponsford, M. (1999). Outcome measurement in an inpatient and outpatient traumatic brain injury rehabilitation programme. Neuropsychological Rehabilitation, 9, 517-534.
41. Ponsford, J., Olver, J., Ponsford, M., & Nelms, R. (2003). Longterm adjustment of families following traumatic brain injury where comprehensive rehabilitation has been provided. Brain Injury, 17, 453-468.
42. Powell, J., Heslin, J., & Greenwood, R. (2002). Community based rehabilitation after severe traumatic brain injury: A randomised controlled trial. Journal of Neurolog, y Neurosurgery and Psychiatry , 72, 193-202.
43. Rivera, P.A., Elliott, T.R., Berry, J.W., & Grant, J.S. (2008). Problem-solving training for family caregivers of persons with traumatic brain injuries: A randomized controlled trial. Archives of Physical Medicine & Rehabilitation, 89, 931-941.
44. Rodgers, M.L., Strode, A.D., Norell, D.M., Short, R.A., Dyck, D.G., & Becker, B. (2007). Adapting multiple-family group treatment for brain and spinal cord injury intervention development and preliminary outcomes. American Journal of Physical Medicine & Rehabilitation, 86, 482-492.
45. Rosenbaum, M., & Najenson, T. (1976). Changes in life patterns and symptoms of low mood as reported by wives of severely brain-injured soldiers. Journal of Consulting and Clinical Psychology , 44, 881-888.
46. Rosenthal, M., & Young, T. (1988). Effective family intervention after traumatic brain injury: Theory and practice. Journal of Head Trauma Rehabilitation, 3, 42-50.
47. Sander, A.M., Sherer, M., Malec, J.F., High, W.M., Thompson, R.N., Moessner, A.M., et al. (2003). Preinjury emotional and family functioning in caregivers of persons with traumatic brain injury. Archives of Physical Medicine and Rehabilitation, 84, 197-203.
48. Schönberger, M., & Ponsford, J. (in press). The factor structure of the Hospital Anxiety and Depression Scale in individuals with traumatic train injury. Psychiatry Research.
49. Singer, G.H.S., Glang, A., Nixon, C., Cooley, E., Kerns, K.A., Williams, D., et al. (1994). A comparison of two psychosocial interventions for parents of children with acquired brain injury: An exploratory study. The Journal of Head Trauma Rehabilitation , 9, 38-49.
50. Snaith, R.P., & Zigmond, A.S. (1983). The Hospital Anxiety and Depression Scale with the Irritability-Depression-Anxiety Scale and the Leeds Situational Anxiety Scale: Manual. Berkshire, UK : NFER-Nelson.
51. Testa, J.A., Malec, J.F., Moessner, A.M., & Browt, A.W. (2006). Predicting family functioning after TBI: Impact of neurobehavioral factors. Journal of Head Trauma Rehabilitation, 21, 236-247.
52. Thomsen, I.V. (1984). Late outcome of very severe blunt head trauma: A 10-15 year 2nd follow-up. Journal of Neurology, Neurosurgery and Psychiatry, 47, 260-268.
53. Whelan-Goodinson, R., Ponsford, J., & Schönberger, M. (2009). Validity of the Hospital Anxiety and Depression Scale to assess depression and anxiety following traumatic brain injury as compared with the Structured Clinical Interview for DSM-IV. Journal of Affective Disorders, 114, 94-102.
54. Whiteneck, G.G., Charlifue, S.W., Gerhart, K.A., Overholser, J.D., & Richardson, G.N. (1992). Quantifying handicap: A new measure of long-term rehabilitation outcomes. Archives of Physical Medicine and Rehabilitation, 73, 519-526.
55. Winstanley, J., Simpson, G., Tate, R., & Myles, B. (2006). Early indicators and contributors to psychological distress in relatives during rehabilitation following severe traumatic brain injury: Findings from the brain injury outcomes study. Journal of Head Trauma Rehabilitation, 21, 453-466.