Family burden after traumatic brain injury in children

Pediatrics

Volumn 123, Issue 1, 2009, Pages 199-206

  Aitken, Mary E ^a,h   McCarthy, Melissa L ^b   Slomine, Beth S ^b,c   Ding, Ru ^b   Durbin, Dennis R ^d   Jaffe, Kenneth M ^e   Paidas, Charles N ^f   Dorsch, Andrea M ^e   Christensen, James R ^b,c   MacKenzie, Ellen J ^g  

^a UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES   (United States)

^b JOHNS HOPKINS UNIVERSITY SCHOOL OF MEDICINE   (United States)

^c KENNEDY KRIEGER INSTITUTE   (United States)

^d UNIVERSITY OF PENNSYLVANIA   (United States)

^e UNIVERSITY OF WASHINGTON   (United States)

^f UNIVERSITY OF SOUTH FLORIDA   (United States)

^g JOHNS HOPKINS BLOOMBERG SCHOOL OF PUBLIC HEALTH   (United States)

^h Division of Health Services Research   (United States)

Author keywords

Family burden; Health related quality of life; Pedsql; Traumatic brain injury

Indexed keywords

ADOLESCENT; ARTICLE; CAREGIVER BURDEN; CHILD; EMOTIONALITY; FAMILY STRESS; FEMALE; FOLLOW UP; FUNCTIONAL ASSESSMENT; HEALTH CARE; HEALTH CARE NEED; HEALTH SERVICE; HUMAN; INTERVIEW; MAJOR CLINICAL STUDY; MALE; OUTCOME ASSESSMENT; PRESCHOOL CHILD; PRIORITY JOURNAL; QUALITY OF LIFE; QUESTIONNAIRE; SCHOOL CHILD; TRAUMATIC BRAIN INJURY; BRAIN INJURY; CLINICAL TRIAL; COMPARATIVE STUDY; COST OF ILLNESS; ECONOMICS; FAMILY; HOSPITALIZATION; MULTICENTER STUDY; PSYCHOLOGICAL ASPECT;

ADOLESCENT; BRAIN INJURIES; CHILD; CHILD, PRESCHOOL; COST OF ILLNESS; FAMILY; FEMALE; FOLLOW-UP STUDIES; HOSPITALIZATION; HUMANS; MALE; QUALITY OF LIFE;

EID: 59449100962     PISSN: 00314005     EISSN: 10984275     Source Type: Journal    
DOI: 10.1542/peds.2008-0607     Document Type: Article

References (41)

1. Langlois JA, Rutland-Brown W, Thomas KE. Traumatic Brain Injury in the United States: Emergency Department Visits, Hospitalizations, and Deaths. Atlanta, GA: Centers for Disease Control and Prevention; 2006
2. Taylor HG, Yeates KO, Wade SL, Drotar D, Klein SK, StancinT. Influences on first-year recovery from traumatic brain injury in children. Neuropsychology. 1999;13(1):76-89
3. Taylor HG, Yeates KO, Wade SL, Drotar D, Stancin T, Burant C. Bidirectional child-family influences on outcomes of traumatic brain injury in children. J Int Neuropsychol Soc. 2001;7(6): 755-767
4. Taylor HG, Yeates KO, Wade SL, Drotar D, Stancin T, Minich N. A prospective study of short- and long-term outcomes after traumatic brain injury in children: behavior and achievement. Neuropsychology. 2002;16(1):15-27
5. Gerring JP, Slomine B, Vasa RA, et al. Clinical predictors of posttraumatic stress disorder after closed head injury in children. J Am Acad Child Adolesc Psychiatry. 2002;41(2):157-165
6. McCarthy ML, MacKenzie EJ, Durbin DR, et al. Health-related quality of life during the first year after traumatic brain injury. Arch Pediatr Adolesc Med. 2006;160(3):252-260
7. Slomine BS, McCarthy ML, Ding R, et al. Health care utilization and needs after pediatric traumatic brain injury. Pediatrics. 2006 Apr;117(4). Available at: www.pediatrics.org/cgi/content/full/ 117/4/e663
8. Wade SL, Taylor HG, Drotar D, Stancin T, Yeates KO. Child hood traumatic brain injury: initial impact on the family. J Learn Disabil. 1996;29(6):652-661
9. Wade SL, Taylor HG, Drotar D, Stancin T, Yeates KO. Family burden and adaptation during the initial year after traumatic brain injury in children. Pediatrics. 1998;102(1 pt 1):110-116
10. Wade SL, Gerry TH, Yeates KO, et al. Long-term parental and family adaptation following pediatric brain injury. J Pediatr Psychol. 2006;31(10):1072-1083
11. Rivara JB, Fay GC, Jaffe KM, Polissar NL, Shurtleff HA, Martin KM. Predictors of family functioning one year following traumatic brain injury in children. Arch Phys Med Rehabil. 1992; 73(10):899-910
12. Wade SL, Taylor HG, Drotar D, Stancin T, Yeates KO, Minich NM. A prospective study of long-term caregiver and family adaptation following brain injury in children. J Head Trauma Rehabil. 2002;17(2):96-111
13. Hawley CA, Ward AB, Magnay AR, Long J. Parental stress and burden following traumatic brain injury amongst children and adolescents. Brain Inj. 2003;17(1):1-23
14. Aitken ME, Mele N, Barrett KW. Recovery of injured children: parent perspectives on family needs. Arch Phys Med Rehabil. 2004;85(4):567-573
15. Rivara JM, Jaffe KM, Polissar NL, Fay GC, Liao S, Martin KM. Predictors of family functioning and change 3 years after traumatic brain injury in children. Arch Phys Med Rehabil. 1996; 77(8):754-764
16. Wade SL, Borawski EA, Taylor HG, Drotar D, Yeates KO, Stancin T. The relationship of caregiver coping to family outcomes during the initial year following pediatric traumatic injury. J Consult Clin Psychol. 2001;69(3):406-415
17. McCarthy ML, MacKenzie EJ, Durbin DR, et al. The Pediatric Quality of Life Inventory: an evaluation of its reliability and validity for children with traumatic brain injury. Arch Phys Med Rehabil. 2005;86(10):1901-1909
18. Landgraf JM, Abetz LA, Ware JE. The CHQ User's Manual. Boston, MA: Health Institute, New England Medical Center; 1996
19. Varni JW, Seid M, Rode CA. The PedsQL: measurement model for the pediatric quality of life inventory. Med Care. 1999;37(2): 126 -139
20. Varni JW, Seid M, Kurtin PS. PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care. 2001;39(8):800-812
21. Varni JW, Burwinkle TM, Seid M, Skarr D. The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambul Pediatr. 2003;3(6):329-341
22. Schwimmer JB, Burwinkle TM, Varni JW. Health-related quality of life of severely obese children and adolescents. JAMA. 2003;289(14):1813-1819
23. Bastiaansen D, Koot HM, Bongers IL, Varni JW, Verhulst FC. Measuring quality of life in children referred for psychiatric problems: psychometric properties of the PedsQL 4.0 generic core scales. Qual Life Res. 2004;13(2):489-495
24. Eiser C, Vance YH, Horne B, Glaser A, Galvin H. The value of the PedsQLTM in assessing quality of life in survivors of childhood cancer. Child Care Health Dev. 2003;29(2):95-102
25. Varni JW, Seid M, Smith KT, Burwinkle T, Brown J, Szer IS. The PedsQL in pediatric rheumatology: reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory Generic Core Scales and Rheumatology Module. Arthritis Rheum. 2002;46(3):714-725
26. Varni JW, Burwinkle TM, Katz ER, Meeske K, Dickinson P. The PedsQL in pediatric cancer: reliability and validity of the Pedi-atric Quality of Life Inventory Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module. Cancer. 2002; 94(7):2090-2106
27. Varni JW, Burwinkle TM, Jacobs JR, Gottschalk M, Kaufman F, Jones KL. The PedsQL in type 1 and type 2 diabetes: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales and type 1 Diabetes Module. Diabetes Care. 2003;26(3):631-637
28. Miller IW, Ryan CE, Keitner GI, Bishop DS, Epstein NB. "Factor analyses of the family assessment device," by Ridenour,Daley, & Reich. Fam Process. 2000;39(1):141-144
29. Byles J, Byrne C, Boyle MH, Offord DR. Ontario Child Health Study: reliability and validity of the general functioning sub- scale of the McMaster Family Assessment Device. Fam Process. 1988;27(1):97-104
30. Committee on Injury Scaling. The Abbreviated Injury Scale 1990 Revision. Des Plaines, IL: Association for the Advancement of Automotive Medicine; 1990
31. Mackenzie EJ. Injury severity scales: overview and directions for future research. Am J Emerg Med. 1984;2(6):537-549
32. Osler T, Baker SP, Long W. A modification of the injury severity score that both improves accuracy and simplifies scoring. J Trauma. 1997;43(6):922-925
33. Osberg JS, Kahn P, Rowe K, Brooke MM. Pediatric trauma: impact on work and family finances. Pediatrics. 1996;98(5): 890-897
34. Wade SL, Wolfe CR, Pestian JP. A Web-based family problem- solving intervention for families of children with traumatic brain injury. Behav Res Methods Instrum Comput. 2004;36(2): 261-229
35. Wade SL, Wolfe C, Brown TM, Pestian JP. Putting the pieces together: preliminary efficacy of a Web-based family intervention for children with traumatic brain injury. J Pediatr Psychol. 2005;30(5):437-442
36. Wade SL, Carey J, Wolfe CR. An online family intervention to reduce parental distress following pediatric brain injury. J Consult Clin Psychol. 2006;74(3):445-454
37. Wade SL, Michaud L, Brown TM. Putting the pieces together: preliminary efficacy of a family problem-solving intervention for children with traumatic brain injury. J Head Trauma Rehabil. 2006;21(1):57-67
38. Mowbray CT, Lewandowski L, Bybee D, Oyserman D. Relationship between maternal clinical factors and mother- reported child problems. Community Ment Health J. 2005;41(6): 687-704
39. Minkovitz CS, O'CampoPJ, ChenYH, GrasonHA. Associations between maternal and child health status and patterns of medical care use. Ambul Pediatr. 2002;2(2):85-92
40. Minkovitz CS, Strobino D, Scharfstein D, et al. Maternal depressive symptoms and children's receipt of health care in the first 3 years of life. Pediatrics. 2005;115(2):306-314
41. Sills MR, Shetterly S, Xu S, Magid D, Kempe A. Association between parental depression and children's health care use. Pediatrics. 2007;119(4). Available at: www.pediatrics.org/cgi/ content/full/119/4/e829