Engaging stakeholders in rehabilitation research: A scoping review of strategies used in partnerships and evaluation of impacts

Disability and Rehabilitation

Volumn 37, Issue 15, 2015, Pages 1390-1400

  Camden, Chantal ^a,b   Shikako Thomas, Keiko ^a   Nguyen, Tram ^a   Graham, Emma ^a   Thomas, Aliki ^c   Sprung, Jennifer ^a   Morris, Christopher ^d   Russell, Dianne J ^a  

^a MCMASTER UNIVERSITY   (Canada)

^b UNIVERSITÉ DE SHERBROOKE   (Canada)

^c MCGILL UNIVERSITY   (Canada)

^d UNIVERSITY OF EXETER MEDICAL SCHOOL   (United Kingdom)

Author keywords

Knowledge translation; Public involvement; Research; Stakeholders

Indexed keywords

HUMAN; INTERPERSONAL COMMUNICATION; REHABILITATION RESEARCH; TRANSLATIONAL RESEARCH;

COMMUNICATION; HUMANS; REHABILITATION RESEARCH; TRANSLATIONAL MEDICAL RESEARCH;

EID: 84944077484     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.3109/09638288.2014.963705     Document Type: Article

References (48)

1. Straus SE, Tetroe J, Graham I. Defining knowledge translation. Can Med Assoc J 2009;181:165-8.
2. Menon A, Korner-Bitensky N, Kastner M, et al. Strategies for rehabilitation professionals to move evidence-based knowledge into practice: A systematic review. J Rehabil Med 2009;41:1024-32.
3. Grimshaw JM, Eccles MP, Lavis JN, et al. Knowledge translation of research findings. Implement Sci 2012;7:50.
4. Bowen SJ, Graham ID. From knowledge translation to engaged scholarship: promoting research relevance and utilization. Arch Phys Med Rehabil 2012;94:S3-S8.
5. Morris C, Shilling V, McHugh C, Wyatt K. Why it is crucial to involve families in all stages of childhood disability research. Devel Med Child Neurol 2011;53:769-71.
6. Rosenbaum P. Family-centred research: what does it mean and can we do it? Devel Med Child Neurol 2011;53:99-100.
7. Arksey H, O'Malley L. Scoping studies: Towards a methodological framework. Int J Soc Res Methodol 2005;8:19-32.
8. Levac D, Colquhoun H, O'Brien KK. Scoping studies: Advancing the methodology. Implement Sci 2010;5:1-9.
9. Canadian Institutes of Health Research. Guide to knowledge translation planning at CIHR: integrated and end-of-grant approaches. Ottawa: CIHR; 2012.
10. Amtmann D, Cook KF, Johnson KL, Cella D. The PROMIS initiative: involvement of rehabilitation stakeholders in development and examples of applications in rehabilitation research. Arch Phys Med Rehabil 2011;92:S12-S19.
11. Bigby C, Frawley P. Reflections on doing inclusive research in the "Making life good in the community" study. J Intellect Dev Disabil 2010;35:53-61.
12. Buettgen A, Richardson J, Beckham K, et al. We did it together: A participatory action research study on poverty and disability. Disabil Soc 2012;27:603-16.
13. Cotterell P. Exploring the value of service user involvement in data analysis: 'our interpretation is about what lies below the surface'. Educ Action Res 2008;16:5-17.
14. Ehde DM, Wegener ST, Williams RM, et al. Developing, testing, and sustaining rehabilitation interventions via participatory action research. Arch Phys Med Rehabil 2013;94:S30-S42.
15. Gillard S, Simons L, Turner K, et al. Patient and public involvement in the coproduction of knowledge reflection on the analysis of qualitative data in a mental health study. Qual Health Res 2012;22: 1126-37.
16. Hutton E, Coxon K. Involving parents as service users in an interprofessional research project. J Interprof Care 2008;22:661-3.
17. Johns T, Miller P, Kopp K, et al. Tracey John's research policy and planning equal lives? Disabled people evaluate an independent living strategy for essex social services. J Pol Plan 2004;22:51-8.
18. Langston AL, Mccallum M, Campbell MK, et al. An integrated approach to consumer representation and involvement in a multicentre randomized controlled trial. Clin Trials 2005;2:80-7.
19. McGrath PJ, Lingley-Pottie P, Emberly DJ, et al. Integrated knowledge translation in mental health: Family help as an example. J Can Acad Child Adolesc Psychiatr 2009;18:30-7.
20. Ottmann G, Laragy C, Damonze G. Consumer participation in designing community based consumer-directed disability care: lessons from a participatory action research-inspired project. Systemic Pract Action Res 2009;22:31-44.
21. Sax P. Finding common ground: parents speak out about familycentered practices. J Syst Therap 2007;26:72-90.
22. Suarez-Balcazar Y, Martinez LI, Casas-Byots C. A participatory action research approach for identifying health service needs of hispanic immigrants: implications for occupational therapy. Occup Ther Health Care 2005;19:145-63.
23. Suarez-Balcazar Y. Empowerment and participatory evaluation of a community health intervention: implications for occupational therapy. OTJR 2005;25:133-42.
24. Taylor RR, Braveman B, Hammel J. Developing and evaluating community-based services through participatory action research: Two case examples. Am J Occup Ther 2004;58:73-82.
25. Walmsley J, Mannan H. Parents as co-researchers: A participatory action research initiative involving parents of people with intellectual disabilities in Ireland. Br J Learn Disabil 2009;37:271-6.
26. Walmsley J. Involving users with learning difficulties in health improvement: lessons from inclusive learning disability research. Nurs Inq 2004;11:54-64.
27. Williams V, Simons K. More researching together: The role of nondisabled researchers in working with people first members1. Br J Learn Disabil 2005;33:6-14.
28. Wood M. Disability, participation and welfare to work in staffordshire. Int J Integr Care 2003;11:43-8.
29. Bamm EL, Rosenbaum P. Family-centered theory: origins, development, barriers, and supports to implementation in rehabilitation medicine. Arch Phys Med Rehabil 2008;89:1618-24.
30. Fudge N, Wolfe CD, McKevitt C. Assessing the promise of user involvement in health service development: ethnographic study. BMJ 2008;336:313-17.
31. Kielhofner G. A scholarship of practice: creating discourse between theory, research and practice. Occup Ther Health Care 2005;19: 7-16.
32. McIntyre S, Novak I, Cusick A. Consensus research priorities for cerebral palsy: A Delphi survey of consumers, researchers, and clinicians. Dev Med Child Neurol 2010;52:270-5.
33. Smits PA, Denis J. How research funding agencies support science integration into policy and practice: An international overview. Implementation Sci 2014;9:28.
34. Graham ID, Logan J, Harrison MB, et al. Lost in knowledge translation: Time for a map? J Contin Educ Health Prof 2006;26: 13-24.
35. Armstrong R, Waters E, Dobbins M, et al. Knowledge translation strategies to improve the use of evidence in public health decision making in local government: intervention design and implementation plan. Implement Sci 2013;8:121.
36. Turner K. Involve: briefing notes for researchers: public involvement in NHS, public health and social care research. UK: Involve; 2012.
37. Ketelaar M, Russell DJ, Gorter JW. The challenge of moving evidence-based measures into clinical practice: lessons in knowledge translation. Phys Occup Ther Pediatr 2008;28:191-206.
38. Zidarov D, Thomas A, Poissant L. Knowledge translation in physical therapy: From theory to practice. Disabil Rehabil 2013;35:1571-7.
39. Chaudoir SR, Dugan AG, Barr CH. Measuring factors affecting implementation of health innovations: A systematic review of structural, organizational, provider, patient, and innovation level measures. Implementation Sci 2013;8:22.
40. Beresford P. The role of service user research in generating knowledge-based health and social care: From conflict to contribution. Evid Policy 2007;3:329-41.
41. Menon A, Cafaro T, Loncaric D, et al. Creation and validation of the PERFECT: A critical incident tool for evaluating change in the practices of health professionals. J Eval Clin Pract 2010;16:1170-5.
42. Lavis JN, Oxman AD, Moynihan R, Paulsen EJ. Evidence-informed health policy 1-synthesis of findings from a multi-method study of organizations that support the use of research evidence. Implementation Sci 2008;3:7.
43. Lavis JN, Wilson MG, Grimshaw JM, et al. Effects of an evidence service on health-system policy makers' use of research evidence: A protocol for a randomised controlled trial. Implement Sci 2011;6:51.
44. Russell DJ, Rivard LM, Walter SD, et al. Using knowledge brokers to facilitate the uptake of pediatric measurement tools into clinical practice: A before-after intervention study. Implementation Sci 2010;5:92.
45. McKibbon KA, Lokker C, Wilczynski NL, et al. A cross-sectional study of the number and frequency of terms used to refer to knowledge translation in a body of health literature in 2006: A tower of babel. Implement Sci 2010;5:16.
46. Grindrod K, Forgione A, Tsuyuki RT, et al. Pharmacy 2.0: A scoping review of social media use in pharmacy. Res Social Adm Pharm 2014;10:256-70.
47. Hamm MP, Chisholm A, Shulhan J, et al. Social media use among patients and caregivers: A scoping review. Br Med J Open 2013;3:5.
48. Miller ET. How social media affects our practice. Rehabil Nurs 2013;38:273-4.