Patient and public involvement in the coproduction of knowledge: Reflection on the analysis of qualitative data in a mental health study

Qualitative Health Research

Volumn 22, Issue 8, 2012, Pages 1126-1137

  Gillard, Steve ^a   Simons, Lucy ^b   Turner, Kati ^a   Lucock, Mike ^c   Edwards, Christine ^d  

^a ST GEORGE'S UNIVERSITY OF LONDON   (United Kingdom)

^b UNIVERSITY OF SOUTHAMPTON   (United Kingdom)

^c UNIVERSITY OF HUDDERSFIELD   (United Kingdom)

^d KINGSTON UNIVERSITY   (United Kingdom)

Author keywords

Epistemology; Health care, users' experiences; Interpretive methods; Knowledge construction; Mental health and illness; Qualitative analysis; Reflexivity; Research participation; Self care

Indexed keywords

ARTICLE; CAREGIVER; EDUCATION; HEALTH SERVICES RESEARCH; HUMAN; INFORMATION PROCESSING; KNOWLEDGE; MENTAL HEALTH; MENTAL HEALTH SERVICE; METHODOLOGY; PATIENT PARTICIPATION; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; SELF CARE; UNITED KINGDOM;

CAREGIVERS; DATA COLLECTION; EDUCATION; GREAT BRITAIN; HEALTH SERVICES RESEARCH; HUMANS; KNOWLEDGE; MENTAL HEALTH; MENTAL HEALTH SERVICES; PATIENT PARTICIPATION; QUALITATIVE RESEARCH; SELF CARE;

EID: 84863646323     PISSN: 10497323     EISSN: 15527557     Source Type: Journal    
DOI: 10.1177/1049732312448541     Document Type: Article

References (40)

1. Averill J. B.. Matrix analysis as a complementary analytic strategy in qualitative inquiry. Qualitative Health Research. 2002 ; 12: 855-866
2. Baumbusch J. L., Kirkham S. R., Khan K. B., McDonald H., Semeniuk P., Tan E., Anderson J. M.. Pursuing common agendas: A collaborative model for knowledge translation between research and practice in clinical settings. Research in Nursing & Health. 2008 ; 31: 130-140
3. Beresford P.. Developing the theoretical basis for service user/survivor-led research and equal involvement in research. Epidemiologia e Psichiatria Sociale. 2005 ; 14 (1). 4-9
4. Cunliffe A. L.. Reflexive inquiry in organizational research: Questions and possibilities. Human Relations. 2003 ; 56: 983-1003
5. Deegan P. E., Drake R. E.. Shared decision making and medication management in the recovery process. Psychiatric Services. 2006 ; 57: 1636-1639
6. Best research for best health: A new national health research strategy. London, UK: Author ; 2006:
7. Faulkner A., Layzell S. Strategies for living: A report of user-led research into people's strategies for living with mental distress. London: Mental Health Foundation ; 2000:
8. Faulkner A., Thomas P.. User-led research and evidence-based medicine. British Journal of Psychiatry. 2002 ; 180: 1-3
9. Gibbons M., Limoges C., Nowotny H., Schwatrzman S., Scott P., Trow M. The new production of knowledge. London: Sage ; 1994:
10. Gillard S., Edwards C., White S., White R., Adams K., Davies L.,... Turner K. The barriers and facilitators of supporting self-care in NHS mental health trusts. Southampton, UK: National Institute for Health Research Service Delivery and Organisation programme ; 2010:
11. Gillard S., Turner K., Lovell K., Norton K., Clarke T., Addicott R.,... Ferlie E.. "Staying native": Coproduction in mental health services research. International Journal of Public Sector Management. 2010 ; 23: 567-577
12. Hall J. E.. Professionalizing action research-A meaningful strategy for modernizing services?. Journal of Nursing Management. 2006 ; 14: 195-200
13. Harding S. G. Whose science? Whose knowledge? Thinking from women's lives. Ithaca, NY: Cornell University Press ; 1991:
14. Holmes W., Stewart P., Garrow A., Anderson I., Thorpe L.. Researching Aboriginal health: Experience from a study of urban young people's health and well-being. Social Science & Medicine. 2002 ; 54: 1267-1279
15. Horne R., Weinman J., Barber N., Elliott R., Morgan M., Cribb A. Concordance, adherence and compliance in medicine taking. London: National Coordinating Centre for NHS Service Delivery and Organisation Research & Development ; 2005:
16. James I., Andershed B., Gustavsson B., Ternestedt B.-M.. Knowledge constructions in nursing practice: Understanding and integrating different forms of knowledge. Qualitative Health Research. 2010 ; 20: 1500-1511
17. Keller E. F. Reflections on gender and science. New Haven, CT: Yale University Press ; 1984:
18. Lester H., Tritter J. Q., Sorohan H.. Patients' and health professionals' views on primary care for people with serious mental illness: Focus group study. British Medical Journal. 2005 ; 330: 1122-1126
19. Mason J. Qualitative researching. London: Sage ; 1996:
20. McLaughlin H.. Involving young service users as co-researchers: Possibilities, benefits and costs. British Journal of Social Work. 2006 ; 36: 1395-1410
21. Morgan S.. Risk-making or risk-taking?. Openmind. 2000 ; 101: 16-17
22. Mosavel M., Simon C., van Stade D., Buchbinder M.. Community-based participatory research (CBPR) in South Africa: Engaging multiple constituents to shape the research question. Social Science & Medicine. 2005 ; 61: 2577-2587
23. Nowotny H., Scott P., Gibbons M. Rethinking science. Cambridge, UK: Polity ; 2001:
24. Orr K., Bennett M.. Reflexivity in the co-production of academic-practitioner research. Qualitative Research in Organizations and Management. 2009 ; 4 (1). 85-102
25. Patterson S. E., Hart J., Weaver T. D.. Delusions and qualitative confusions: A dialogic collaborative exploration. Qualitative Health Research. 2010 ; 20: 1008-1018
26. Patton M. Qualitative evaluation and research methods. London: Sage ; 1990:
27. Richardson L. Handbook of qualitative research. 2000 ). Writing: A method of enquiry. In DenzinN.LincolnY. (Eds.), Handbook of qualitative research (2nd ed., pp. 923-948). London: Sage. Denzin N. Lincoln Y., ed. London: Sage ; 2000: 923-948.
28. Ritchie J., Lewis J. Qualitative research practice. London: Sage ; 2003:
29. Rogers A., Oliver D., Bower P., Lovell K., Richards D.. Peoples' understandings of a primary care-based mental health self-help clinic. Patient Education and Counseling. 2004 ; 53: 41-46
30. Rose D. This is survivor research. Sweeney A. Beresford P. Faulkner A. Nettle M. Rose D., ed. Ross-on-Wye, UK: PCCS Books ; 2009: 38-43.
31. Schauer C., Everett A., del Vecchio P., Anderson L.. Promoting the value and practice of shared decision-making in mental health care. Psychiatric Rehabilitation Journal. 2007 ; 31 (1). 54-61
32. Schneider B., Scissons H., Arney L., Benson G., Derry J., Lucas K.,... Sunderland M.. Communication between people with schizophrenia and their medical professionals: A participatory research project. Qualitative Health Research. 2004 ; 14: 562-577
33. Simons L., Lathlean J., Squire C.. Shifting the focus: Sequential methods of analysis with qualitative data. Qualitative Health Research. 2008 ; 18: 120-132
34. Simpson E. L., House A. O.. Involving users in the delivery and evaluation of mental health services: Systematic review. British Medical Journal. 2002 ; 325: 1265-1267
35. Smith E., Ross F., Donovan S., Manthorpe J., Brearley S., Sitzia J., Beresford P.. Service user involvement in nursing, midwifery and health visiting research: A review of evidence and practice. International Journal of Nursing Studies. 2008 ; 45: 298-315
36. Staley K. Exploring impact: Public involvement in NHS, public health and social care research. Eastleigh, UK: INVOLVE ; 2009:
37. Starkey K., Madan P.. Bridging the relevance gap: Aligning stakeholders in the future of management research. British Journal of Management. 2001 ; 12: S3 - S26
38. Sutton J., Weiss M.. Involving patients as advisors in pharmacy practice research: What are the benefits?. International Journal of Pharmacy Practice. 2008 ; 16: 231-238
39. Sweeney A., Beresford P., Faulkner A., Nettle M., Rose D. This is survivor research. Ross-On-Wye, UK: PCCS Books ; 2009:
40. von Elm E., Altman D., Egger M., Pocock S., Gøtzsche P., Vandenbroucke J.. The strengthening the reporting of observational studies in epidemiology (STROBE) statement: Guidelines for reporting observational studies. Lancet. 2007 ; 370: 1453-1457