The meaning of leisure for children and young people with physical disabilities: A systematic evidence synthesis

Developmental Medicine and Child Neurology

Volumn 57, Issue 11, 2015, Pages 993-1010

  Powrie, Benita ^a,b   Kolehmainen, Niina ^c   Turpin, Merrill ^b   Ziviani, Jenny ^b,d   Copley, Jodie ^b  

^a LEEDS COMMUNITY HEALTHCARE NHS TRUST   (United Kingdom)

^b UNIVERSITY OF QUEENSLAND   (Australia)

^c NEWCASTLE UNIVERSITY   (United Kingdom)

^d QUEENSLAND HEALTH   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ARTICLE; CHILD; FREEDOM; FRIENDSHIP; HUMAN; LEISURE; MOTIVATION; PATIENT AUTONOMY; PHYSICAL DISABILITY; PRIORITY JOURNAL; SOCIAL BONDING; SYSTEMATIC REVIEW; BIBLIOGRAPHIC DATABASE; DISABLED PERSON; PSYCHOLOGY; QUALITATIVE RESEARCH; SATISFACTION; STATISTICS AND NUMERICAL DATA;

CHILD; DATABASES, BIBLIOGRAPHIC; DISABLED PERSONS; HUMANS; LEISURE ACTIVITIES; PERSONAL SATISFACTION; QUALITATIVE RESEARCH;

EID: 84943197955     PISSN: 00121622     EISSN: 14698749     Source Type: Journal    
DOI: 10.1111/dmcn.12788     Document Type: Article

References (63)

1. Shikako-Thomas K, Lach L, Majnemer A, Nimigon J, Cameron K, Shevell M. Quality of life from the perspective of adolescents with cerebral palsy: 'I just think I'm a normal kid, I just happen to have a disability'. Qual Life Res 2009; 18: 825-32.
2. Simeonsson RJ, Scarborough AA, Hebbeler KM. ICF and ICD codes provide a standard language of disability in young children. J Clin Epidemiol 2006; 59: 365-73.
3. Block P, Vanner EA, Keys CB, Rimmer JH, Everhart Skeels S. Project Shake-It-Up: using health promotion, capacity building and a disability studies framework to increase self efficacy. Disabil Rehabil 2010; 32: 741-54.
4. Fredricks JA, Eccles JS. Is extracurricular participation associated with beneficial outcomes? Concurrent and longitudinal relations Dev Psychol 2006; 42: 698-713.
5. Watts C, Caldwell LL. Self-determination and free time activity participation as predictors of initiative. J Leis Res 2008; 40: 156-81.
6. Imms C, Reilly S, Carlin J, Dodd K. Diversity of participation in children with cerebral palsy. Dev Med Child Neurol 2008; 50: 363-70.
7. Majnemer A, Shevell M, Law M, et al. Participation and enjoyment of leisure activities in school-aged children with cerebral palsy. Dev Med Child Neurol 2008; 50: 751-9.
8. Palisano RJ, Chiarello LA, Orlin M, et al. Determinants of intensity of participation in leisure and recreational activities by children with cerebral palsy. Dev Med Child Neurol 2011; 53: 142-50.
9. King G, Petrenchik T, Law M, Hurley P. The enjoyment of formal and informal recreation and leisure activities: a comparison of school-aged children with and without physical disabilities. Intl J Disabil Dev Educ 2009; 56: 109-30.
10. Orlin MN, Palisano RJ, Chiarello LA, et al. Participation in home, extracurricular, and community activities among children and young people with cerebral palsy. Dev Med Child Neurol 2010; 52: 160-7.
11. Law M, Finkelman S, Hurley P, et al. Participation of children with physical disabilities: relationships with diagnosis, physical function, and demographic variables. Scand J Occup Ther 2004; 11: 156-62.
12. Kleiber D. Leisure Experience and Human Development: a Dialectical Interpretation. New York, NY: Basic Books, 1999.
13. Hammel J, Magasi S, Heinemann A, Whiteneck G, Bogner J, Rodriguez E. What does participation mean? An insider perspective from people with disabilities. Disabil Rehabil 2008; 30: 1445-61.
14. Riley DJ, de Andra D, Blackaller CA. The self-perceptions and interpersonal relationships of persons with significant physical disabilities: a qualitative pilot study. J Soc Work Disabil Rehabil 2007; 6: 1-31.
15. Johnston MV, Goverover Y, Dijkers MPJ. Community activities and individual's satisfaction with them: quality of life in the first year after traumatic brain injury. Arch Phys Med Rehabil 2005; 86: 735-45.
16. Brown M, Dijkers M, Gordon W, Ashman T, Charatz H, Cheng Z. Participation objective, participation subjective: a measure of participation combining outsider and insider perspectives. J Head Trauma Rehabil 2004; 19: 459-81.
17. Patton MQ. Qualitative Research and Evaluation Methods, 3rd edn. Thousand Oaks, CA: Sage Publications, 2002.
18. Centre for Reviews and Dissemination (CRD). Systematic Reviews: CRD's Guidance for Undertaking Reviews in Healthcare. York: CRD, University of York, 2009.
19. Moher D, Liberati A, Tetzlaff J, Altman DG. The PRISMA Group. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. PLoS Med 2009; 6: e1000097.
20. Hannes K, Lockwood C, Pearson A. A comparative analysis of three online appraisal instruments' ability to assess validity in qualitative research. Qual Health Res 2010; 20: 1736-43.
21. Health Care Practice Research and Development Unit. Evaluation Tool for Qualitative Studies 2009. Available from: http://www.fhsc.salford.ac.uk/hcprdu/qualitative.htm (accessed 24 March 2012).
22. Thomas J, Harden A. Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Med Res Methodol 2008; 8: 45-54.
23. Csíkszentmihályi M, Abuhamdeh S, Nakamura J. Flow. In: Elliot AJ, Dweck CS, editors. Handbook of Competence and Motivation. New York, NY: Guilford Press, 2005: 598-608.
24. Iso-Ahola SE, Mannell RC. Leisure and health. In: Haworth JT, Veal AJ, editors. Work and Leisure. New York, NY: Routledge, 2004: 184-99.
25. Hammell KW. Dimensions of meaning in the occupations of daily life. Can J Occup Ther 2004; 71: 296-305.
26. Harden A, Garcia S, Oliver R, et al. Applying systematic review methods to studies of people's views: an example from public health research. J Epidemiol Community Health 2004; 58: 794-800.
27. Anderson D. Adolescent girls' involvement in disability sport: implications for identity development. J Sport Soc Issues 2009; 33: 427-49.
28. Anderson DM, Bedini LA, Moreland L. Getting all girls into the game: physically active recreation for girls with disabilities. J Park Recreat Admi 2005; 23: 78-103.
29. Anderson DM, Wozencroft A, Bedini A. Adolescent girls' involvement in disability sport: a comparison of social support mechanisms. J Leis Res 2008; 40: 183-207.
30. Bedini LA, Anderson DM. I'm nice, I'm smart, I like karate: girls with physical disabilities' perceptions of physical recreation. Ther Recreation J 2005; 39: 114-30.
31. Goodwin DL, Staples K. The meaning of summer camp experiences to youths with disabilities. Adapt Phys Activ Q 2005; 22: 160-78.
32. Hackett J. Perceptions of play and leisure in junior school aged children with juvenile idiopathic arthritis: what are the implications for occupational therapy? Br J Occup Ther 2003; 66: 303-10.
33. Heah T, Case T, McGuire B, Law M. Successful participation: the lived experience among children with disabilities. Can J Occup Ther 2007; 74: 38-48.
34. Fitzgerald H, Kirk D. Identity work: young disabled people, family and sport. Leisure Stud 2009; 28: 469-88.
35. Tamm M, Skär L. How I play: roles and relations in the play situations of children with restricted mobility. Scand J Occup Ther 2000; 7: 174-82.
36. Wilhite B, Devine MA, Goldenberg L. Perceptions of youth with and without disabilities: Implications for inclusive leisure programs and services. Ther Recreation J 1999; 33: 15-28.
37. Young B, Rice H, Dixon-Woods M, Colver AF, Parkinson KN. A qualitative study of the health-related quality of life of disabled children. Dev Med Child Neurol 2007; 49: 660-6.
38. Barletta A, Loy DP. The experience of participation in challenger little league through the eyes of a child with physical disability. Am J Recreation Ther 2006; 5: 6-13.
39. Groff DG, Kleiber DA. Exploring the identity formation of youth involved in an adapted sports program. Ther Recreation J 2001; 35: 318-33.
40. Pollock N, Stewart D, Law M, Sahagian-Whalen S, Harvey S, Toal C. The meaning of play for young people with physical disabilities. Can J Occup Ther 1997; 64: 25-31.
41. Spencer-Cavaliere N, Watkinson EJ. Inclusion understood from the perspectives of children with disability. Adapt Phys Activ Q 2010; 27: 275-93.
42. Deci E, Ryan R. Self-determination theory: a macrotheory of human motivation, development and health. Can Psychol 2008; 49: 182-285.
43. Schulz J, Watkins M. The development of the Leisure Meanings Inventory. J Leis Res 2007; 39: 477-97.
44. Passmore A, French D. The nature of leisure in adolescence: a focus group study. Br J Occup Ther 2003; 66: 419-26.
45. Caldwell LL. Leisure and health: why is leisure therapeutic? Br J Guid Counc 2005; 33: 7-26.
46. Passmore A. The occupation of leisure: three typologies and their influence on mental health in adolescence. OTJR 2003; 23: 76-83.
47. Leversen I, Danielsen A, Wold B, Samdal O. What they want and what they get: self-reported motives, perceived competence, and relatedness in adolescent leisure activities. Child Dev Res 2012; 2012: Article ID 684157. doi:10.1155/2012/684157.
48. Roberts K. The importance of being inconsequential. Leisure Studies 2011; 30: 5-20.
49. Deci E, Ryan R. The 'What' and 'Why' of goal pursuits: human needs and the self-determination of behaviour. Psychol Inq 2000; 11: 227-68.
50. Aitchison C. Exclusive discourses: leisure studies and disability. Leisure Stud 2009; 28: 375-86.
51. Aitchison C. From leisure and disability to disability leisure: developing data, definitions and discourses. Disabil Soc 2003; 18: 955-69.
52. King G, Gibson BE, Mistry B, et al. An integrated methods study of the experiences of youth with severe disabilities in leisure activity settings: the importance of belonging, fun, and control and choice. Disabil Rehabil 2014; 36: 1626-35.
53. Devine MA, Lashua B. Constructing social acceptance in inclusive leisure contexts: the role of individuals with disabilities. Ther Recreation J 2002; 36: 65-83.
54. Bedini LA. 'Just sit down so we can talk': perceived stigma and community recreation pursuits for people with disabilities. Ther Recreation J 2000; 34: 55-6.
55. Badia M, Orgaz M, Verdugo MA, Ullán A. Patterns and determinants of leisure participation of youth and adults with developmental disabilities. J Intellect Disabil Res 2013; 57: 319-32.
56. Dahan-Oliel N, Shikako-Thomas K, Majnemer A. Quality of life and leisure participation in children with neurodevelopmental disabilities: a thematic analysis of the literature. Qual Life Res 2012; 21: 427-39.
57. Salmon N. 'We just stick together': how disabled teens negotiate stigma to create lasting friendship. J Intellect Disabil Res 2013; 57: 347-58.
58. Heijinders M, Van Der Meij S. The fight against stigma: an overview of stigma-reduction strategies and interventions. Psychol Health Med 2006; 11: 353-63.
59. Lundberg NR, Taniguchi S, McCormick BP, Tibbs C. Identity negotiating: redefining stigmatized identities through adaptive sports and recreation participation among individuals with a disability. J Leis Res 2011; 43: 205-25.
60. Chatzisarantis N, Hagger M. Effects of an intervention based on self-determination theory on self-reported leisure-time physical activity participation. Psychol Health 2009; 24: 29-48.
61. Ommundsen Y, Kvalø S. Autonomy-mastery, supportive or performance-focused? Different teacher behaviours and pupils' outcomes in physical education. Scand J Educ Res 2007; 51: 385-413.
62. Fry M, Newton M. Application of achievement goal theory in an urban youth tennis setting. J Appl Sports Psychol 2003; 15: 50-66.
63. Dixon-Woods M, Sutton A, Shaw R, et al. Appraising qualitative research for inclusion in systematic reviews: a quantitative and qualitative comparison of three methods. J Health Serv Res Policy 2007; 12: 42-7.