Quality of health information for consumers on the web: A systematic review of indicators, criteria, tools, and evaluation results

Journal of the Association for Information Science and Technology

Volumn 66, Issue 10, 2015, Pages 2071-2084

  Zhang, Yan ^a   Sun, Yalin ^a   Xie, Bo ^a  

^a UNIVERSITY OF TEXAS AT AUSTIN   (United States)

Author keywords

quality; reviewing; World Wide Web

Indexed keywords

HEALTH; IMAGE QUALITY; WORLD WIDE WEB;

CONSUMER EVALUATION; HEALTH INFORMATION SYSTEMS; HEALTH INFORMATIONS; ONLINE HEALTH INFORMATION; QUALITY OF CONTENTS; REVIEWING; TECHNOLOGICAL PLATFORM; USER-GENERATED CONTENT;

QUALITY CONTROL;

ATTENTION; CONSUMER; HUMAN; MEDICAL INFORMATION; MEDICAL INFORMATION SYSTEM; PRACTICE GUIDELINE; PRIVACY; SCIENTIST; SYSTEMATIC REVIEW; VALIDITY;

EID: 84942656669     PISSN: 23301635     EISSN: 23301643     Source Type: Journal    
DOI: 10.1002/asi.23311     Document Type: Article

References (67)

1. Abbott, V.P., (2000). Web page quality: can we measure it and what do we find? A report of exploratory findings. Journal of Public Health Medicine, 22 (2), 191-197.
2. Arora, N.K., Hesse, B.W., Rimer, B.K., Viswanath, K., Clayman, M.L., &, Croyle, R.T., (2008). Frustrated and confused: The American public rates its cancer-related information-seeking experiences. Journal of General Internal Medicine, 23 (3), 223-228.
3. Bailey, M.A., Coughlin, P.A., Sohrabi, S., Griffin, K.J., Rashid, S.T., Troxler, M.A.,... (2012). Quality and readability of online patient information for abdominal aortic aneurysms. Journal of Vascular Surgery, 56 (1), 21-26.
4. Barnes, C., Harvey, R., Wilde, A., Hadzi-Pavlovic, D., Wilhelm, K., &, Mitchell, P.B., (2009). Review of the quality of information on bipolar disorder on the Internet. Australian & New Zealand Journal of Psychiatry, 43 (10), 934-945.
5. Bernstam, E.V., Sagaram, S., Walji, M., Johnson, C.W., &, Meric-Bernstam, F., (2005). Usability of quality measures for online health information: Can commonly used technical quality criteria be reliably assessed? International Journal of Medical Informatics, 74 (7-8), 675-683.
6. Bernstam, E.V., Shelton, D.M., Walji, M., &, Meric-Bernstam, F., (2005). Instruments to assess the quality of health information on the World Wide Web: What can our patients actually use? International Journal of Medical Informatics, 74 (1), 13-19.
7. Brunswik, E., (1952). The conceptual framework of psychology. Chicago: University of Chicago Press.
8. Car, J., Lang, B., Colledge, A., Ung, C., &, Majeed, A., (2011). Interventions for enhancing consumers' online health literacy. The Cochrane Database of Systematic Reviews 2011, (6). Article No. CD007092.
9. Charnock, D., (1998). The DISCERN handbook: Quality criteria for consumer health information on treatment choices. Retrieved from: http://www.discern.org.uk/discern.pdf
10. Chestnutt, I.G., (2002). The nature and quality of periodontal related patient information on the world-wide web. British Dental Journal, 193 (11), 657-659; discussion 643.
11. Chou, W., Prestin, A., Lyons, C., &, Wen, K., (2013). Web 2.0 for health promotion: Reviewing the current evidence. American Journal of Public Health, 103 (1), e9-18.
12. Cline, R.J.W., &, Haynes, K.M., (2001). Consumer health information seeking on the Internet: the state of the art. Health Education Research, 16 (6), 671-692.
13. Craigie, M., Loader, B., Burrows, R., &, Muncer, S., (2002). Reliability of health information on the Internet: an examination of experts' ratings. Journal of Medical Internet Research, 4 (1), e2. Available at: http://www.jmir.org/2002/1/e2/
14. Crocco, A.G., Villasis-Keever, M., &, Jadad, A.R., (2002). Analysis of cases of harm associated with use of health information on the internet. JAMA, 287 (21), 2869-2871.
15. Eysenbach, G., (2008). Medicine 2.0: Social networking, collaboration, participation, apomediation, and openness. Journal of Medical Internet Research, 10 (3). Available at: http://www.jmir.org/2008/3/e22/
16. Eysenbach, G., &, Diepgen, T.L., (1998). Towards quality management of medical information on the internet: evaluation, labelling, and filtering of information. BMJ, 317 (7171), 1496-1502.
17. Eysenbach, G., &, Kohler, C., (2002). How do consumers search for and appraise health information on the world wide web? Qualitative study using focus groups, usability tests, and in-depth interviews. BMJ, 324 (7337), 573-577.
18. Eysenbach, G., Powell, J., Kuss, O., &, Sa, E.-R., (2002). Empirical studies assessing the quality of health information for consumers on the World Wide Web. JAMA, 287 (20), 2691-2700.
19. Feufel, M.A., &, Stahl, S.F., (2012). What do Web-use skill differences imply for online health information searches? Journal of Medical Internet Research, 14 (3), e87. Available at: http://www.jmir.org/2012/3/e87/
20. Fogg, B.J., (2003). Persuasive technology: Using computers to change what we think and do. San Franciso: Morgan Kaufmann.
21. Fox, S., (2011). The social life of health information. Retrieved from: http://www.pewinternet.org/files/old-media/Files/Reports/2011/PIP-Social-Life-of-Health-Info.pdf
22. Gagliardi, A., &, Jadad, A.R., (2002). Examination of instruments used to rate quality of health information on the internet: Chronicle of a voyage with an unclear destination. BMJ, 324 (7337), 569-573.
23. Griffiths, K.M., Tang, T.T., Hawking, D., &, Christensen, H., (2005). Automated assessment of the quality of depression Websites. Journal of Medical Internet Research, 7 (5), e59. Available at: http://www.jmir.org/2005/5/e59/
24. Hamm, M.P., Chisholm, A., Shulhan, J., Milne, A., Scott, S.D., Given, L.M.,... (2013). Social media use among patients and caregivers: A scoping review. BMJ open, 3 (5), e002819.
25. Harland, J.P., (2007). Assessing the quality of websites providing information on multiple sclerosis: Evaluating tools and comparing sites. Health Informatics Journal, 13 (3), 207-221.
26. Hesse, B.W., &, Shneiderman, B., (2007). eHealth research from the user's perspective. American Journal of Preventive Medicine, 32 (5 Suppl), S97-103.
27. Health On the Net Foundation. (2013). The HON Code of Conduct for medical and health web sites (HONcode). Accessed from: http://www.hon.ch/HONcode/Conduct.html
28. Hedman, A.S., (2008). Using the SMOG formula to revise a health-related document. American Journal of Health Education, 39 (1), 61-64.
29. Hendrick, P.A., Ahmed, O.H., Bankier, S.S., Chan, T.J., Crawford, S.A., Ryder, C. R.,... (2012). Acute low back pain information online: An evaluation of quality, content accuracy and readability of related websites. Manual Therapy, 17 (4), 318-324.
30. Hogarth, R.M., (1987). Judgement and choice (2 ed.). New York: John Wiley & Sons.
31. Hwang, K.O., Farheen, K., Johnson, C.W., Thomas, E.J., Barnes, A. S., &, Bernstam, E.V., (2007). Quality of weight loss advice on Internet forums. The American Journal of Medicine, 120 (7), 604-609.
32. Irwin, J.Y., Thyvalikakath, T., Spallek, H., Wali, T., Kerr, A. R., &, Schleyer, T., (2011). English and Spanish oral cancer information on the Internet: A pilot surface quality and content evaluation of oral cancer Web sites. Journal of Public Health Dentistry, 71 (2), 106-116.
33. Jadad, A.R., &, Gagliardi, A., (1998). Rating health information on the Internet: Navigating to knowledge or to Babel? JAMA, 279 (8), 611-614.
34. Kaicker, J., Wu, K., &, Athreya, S., (2012). Assessing the reliability and quality of online uterine fibroid embolization resources. CardioVascular and Interventional Radiology, 36 (2), 385-394.
35. Khazaal, Y., Chatton, A., Cochand, S., Coquard, O., Fernandez, S., Khan, R.,... (2010). Quality of web-based information on alcohol dependence. Drugs: Education, Prevention, and Policy, 17 (3), 248-260.
36. Kim, P., Eng, T.R., Deering, M.J., &, Maxfield, A., (1999). Published criteria for evaluating health related web sites: Review. BMJ, 318 (7184), 647-649.
37. Kincaid, J., Fishburne, R.P., Rogers, R.L., &, Chissom, B.S., (1975). Derivation of new readability formulas (Automated Readability Index, Fog Count, and Flesch Reading Ease formula) for Navy enlisted personnel. Research Branch Report 8-75. Chief of Naval Technical Training: Naval Air Station, Memphis, TN.
38. Lam, C.G., Roter, D.L., &, Cohen, K.J., (2013). Survey of quality, readability, and social reach of websites on osteosarcoma in adolescents. Patient Education and Counseling, 90 (1), 82-87.
39. Meric, F., Bernstam, E.V., Mirza, N.Q., Hunt, K.K., Ames, F.C., Ross, M.I.,... (2002). Breast cancer on the world wide web: cross sectional survey of quality of information and popularity of websites. BMJ, 324 (7337), 577-581.
40. Mousiolis, A., Michala, L., &, Antsaklis, A., (2012). Polycystic ovary syndrome: double click and right check. What do patients learn from the Internet about PCOS? European Journal of Obstetrics & Gynecology and Reproductive Biology, 163 (1), 43-46.
41. Nasser, S., Mullan, J., &, Bajorek, B., (2012). Assessing the quality, suitability and readability of internet-based health information about warfarin for patients. Australasian Medical Journal, 5 (3), 194-203.
42. Ni Riordain, R., &, McCreary, C., (2009). Head and neck cancer information on the internet: Type, accuracy and content. Oral Oncology, 45 (8), 675-677.
43. O'Grady, L., (2006). Future directions for depicting credibility in health care web sites. International Journal of Medical Informatics, 75 (1), 58-65.
44. O'Keefe, D.J., (2002). Persuasion: Theory and research (2nd ed.). Thousand Oaks, CA: Sage Publications.
45. Perez-Lopez, F.R., &, Roncero, G.R.P., (2006). Assessing the content and quality of information on the treatment of postmenopausal osteoporosis on the World Wide Web. Gynecological Endocrinology, 22 (12), 669-675.
46. Pew Research Center. (December 16, 2013). Health fact sheet. Accessed from: http://www.pewinternet.org/fact-sheets/health-fact-sheet/
47. Post, R.E., &, Mainous, A.G., 3rd,. (2010). The accuracy of nutrition information on the Internet for type 2 diabetes. Archives of Internal Medicine, 170 (16), 1504-1506.
48. Risk, A., &, Dzenowagis, J., (2001). Review of Internet health information quality initiatives. Journal of Medical Internet Research, 3 (4), e28. Available at: http://www.jmir.org/2001/4/e28/
49. Sandvik, H., (1999). Health information and interaction on the internet: a survey of female urinary incontinence. BMJ (Clinical Research ed.), 319 (7201), 29-32.
50. Silberg, W.M., Lundberg, G.D., &, Musacchio, R.A., (1997). Assessing, controlling, and assuring the quality of medical information on the Internet: Caveant lector et viewor-Let the reader and viewer beware. JAMA, 277 (15), 1244-1245.
51. Stanovich, K.E., (1999). Who is rational?: Studies of individual differences in reasoning. New York: Psychology Press.
52. Stinson, J.N., White, M., Breakey, V., Chong, A.L., Mak, I., Low, K.K.,... (2011). Perspectives on quality and content of information on the internet for adolescents with cancer. Pediatric Blood & Cancer, 57 (1), 97-104.
53. Tallgren, M., &, Backlund, M., (2009). Patient information about general anaesthesia on the internet. Anaesthesia, 64 (4), 408-415.
54. Tan, B.H.L., Kostapanagiotou, K., &, Jilaihawi, A.N.A., (2009). A review of mesothelioma information on the World Wide Web. Journal of Thoracic Oncology, 4 (1), 102-104.
55. Tavare, A.N., Alsafi, A., &, Hamady, M.S., (2012). Analysis of the quality of information obtained about uterine artery embolization from the Internet. Cardiovascular and Interventional Radiology, 35 (6), 1355-1362.
56. Tseng, S., &, Fogg, B.J., (1999). Credibility and computing technology. Communications of the ACM, 42 (5), 39-44.
57. Tsunehara, S.T., &, Gaster, B., (2002). A critical assessment of diabetes information on the Internet. Diabetes Educator, 28 (2), 186.
58. Wallace, L.S., Turner, L.W., Ballard, J.E., Keenum, A.J., &, Weiss, B.D., (2005). Evaluation of web-based osteoporosis educational materials. Journal of Women's Health, 14 (10), 936-945.
59. Wang, Y.L., &, Liu, Z.K., (2007). Automatic detecting indicators for quality of health information on the Web. International Journal of Medical Informatics, 76 (8), 575-582.
60. Williams, J., (2010). Social networking applications in health care: Threats to the privacy and security of health information. In Proceedings of the 2010 ICSE Workshop on Software Engineering in Health Care (SEHC), pp. 39-49.
61. Wilson, P., (2002). How to find the good and avoid the bad or ugly: A short guide to tools for rating quality of health information on the internet. BMJ, 324 (7337), 598-602.
62. Wyatt, J.C., (1997). Commentary: Measuring quality and impact of the world wide web. BMJ, 314 (7098), 1879-1879.
63. Yeo, H., Roman, S., Air, M., Maser, C., Trapasso, T., Kinder, B.,... (2007). Filling a void: Thyroid cancer surgery information on the internet. World Journal of Surgery, 31 (6), 1185-1191.
64. Zermatten, A., Khazaal, Y., Coquard, O., Chatton, A., &, Bondolfi, G., (2010). Quality of web-based information on depression. Depression and Anxiety, 27 (9), 852-858.
65. Zhang, Y., (2012). Consumer health information searching process in real life settings. In Proceedings of the 75th Annual Conference of the American Society for Information Science & Technology (ASIST'12), pp. 1-10.
66. Zhang, Y., (2014). Beyond quality and accessibility: Source selection in consumer health information searching. Journal of the Association for Information Science and Technology, 65 (5), 911-927.
67. Zun, L.S., Downey, L., &, Brown, S., (2011). Completeness and accuracy of emergency medical information on the Web: Update 2008. Western Journal of Emergency Medicine, 12 (4), 448-454.