Assessing the quality of websites providing information on multiple sclerosis: Evaluating tools and comparing sites

Health Informatics Journal

Volumn 13, Issue 3, 2007, Pages 207-221

  Harland, Juliet ^a   Bath, Peter ^a  

^a UNIVERSITY OF SHEFFIELD   (United Kingdom)

Author keywords

Evaluation; Multiple sclerosis; World Wide Web

Indexed keywords

ACCESS TO INFORMATION; ARTICLE; CLINICAL EVALUATION; INFORMATION RETRIEVAL; INTERNET; MEDICAL INFORMATION; MEDICAL RESEARCH; MULTIPLE SCLEROSIS; ONLINE ANALYTICAL PROCESSING; RELIABILITY; VALIDITY;

EVALUATION STUDIES AS TOPIC; HUMANS; INTERNET; MEDICAL INFORMATICS; MULTIPLE SCLEROSIS; REPRODUCIBILITY OF RESULTS; UNITED STATES;

EID: 34548159541     PISSN: 14604582     EISSN: 17412811     Source Type: Journal    
DOI: 10.1177/1460458207079837     Document Type: Article

References (65)

1. Hepworth M., Harrison J. A survey of the information needs of people with multiple sclerosis. Health Informatics Journal 2004; 10 (1); 49-69.
2. Wollin J., Dale H., Spenser N., Walsh A. What do people with newly diagnosed MS (and their families and friends) need to know? International Journal of MS Care 2000; 2 (3). http://www.mscare.com, 1 August 2004.
3. Croft D.R., Peterson M.W. An evaluation of quality and content of asthma education on the world wide web. Chest Journal 2002; 121 (4); 130 -7. http://www.chestjournal.org, 10 August 2004.
4. Bedell S., Agrawal A., Petersen L.E. A systematic critique of diabetes on the world wide web for patients and their physicians. International Journal of Medical Informatics 2004; 73 (9); 687-94.
5. Nguyen H.Q., Carrieri-Kohlman V., Rankin S.H., Slaughter R., Stulbarg M.S. Internet-based patient education and support interventions: A review of evaluation studies and directions for future research. Computers in Biology and Medicine 2004; 34; 95-112.
6. Rozmovits L., Ziebland S. What do patients with prostate or breast cancer want from an Internet site? A qualitative study of information needs. Patient Education and Counselling 2004; 53; 57-64.
7. Dixon-Woods M. Writing wrongs? An analysis of published discourses about the use of patient information leaflets. Social Science & Medicine 2001; 52; 1417-32.
8. Seidman J.J., Steinwachs D., Rubin H.R. Conceptual framework for a new tool for evaluating the quality of diabetes consumer-information websites. Journal of Medical Internet Research 2003; 5 (4). http://www.jmir.org/2003/4/e29/index.htm, 17 June 2004.
9. Schmidt K., Ernst E. Assessing websites on complementary and alternative medicine for cancer. Annals of Oncology 2004; 15; 733-42.
10. Eysenbach G., Kohler C. How do consumers search for and appraise health information on the world wide web? Qualitative study using focus groups, usability tests, and in-depth interviews. British Medical Journal 2002; 324; 573-6.
11. Purcell G.P., Wilson P., Delamothe T. The quality of health information on the internet. British Medical Journal 2002; 324; 557-8.
12. Eysenbach G. Towards ethical guidelines for e-health. Journal of Medical Internet Research 2000; 2 (1). http://www.jmir.org/2000/1/e7/, 31 July 2004.
13. Kim P., Thomas R.E., Deering M.J., Maxfield A. Published criteria for evaluating health related web sites: Review. British Medical Journal 1999; 318; 647-9.
14. Childs S. Judging the quality of internet-based health information. Performance Measurement and Metrics 2005; 6 (2); 80-96.
15. Ademiluyi G., Rees C.E., Sheard C.E. Evaluating the reliability and validity of three tools to assess the quality of health information on the Internet. Patient Education and Counselling 2003; 50; 151-5.
16. Bouchier H., Bath P.A. Evaluation of websites that provide information on Alzheimer's disease. Health Informatics Journal 2003; 9 (1); 17-32.
17. Eysenbach G., Powell J., Kuss O., Sa E.R. Empirical studies assessing the quality of health information for consumers on the World Wide Web: systematic review. Journal of the American Medical Association 2002; 287 (20); 2691-700.
18. Seidman J.J., Steinwachs D., Rubin H.R. Design and testing of a tool for evaluating the quality of diabetes consumer-information web sites. Journal of Medical Internet Research 2003; 5 (4). http://www.jmir.org/ 2003/4/e30/index.htm, 17 June 2004.
19. Coleman B. Producing an information leaflet to help patients access high quality drug information on the Internet: A local study. Health Information and Libraries Journal 2003; 20; 160-71.
20. Bath P.A., Bouchier H. Development and application of a tool designed to evaluate web-sites providing information on Alzheimer's disease. Journal of Information Science 2003; 29 (4); 279-97.
21. Wilson P. How to find the good and avoid the bad or ugly: A short guide to tools for rating quality of health information on the Internet. British Medical Journal 2000; 324; 598-602.
22. Health Summit Working Group. Information Quality Tool. http://hitiweb.mitretek.org/iq/iqmain.asp, 6 July 2004.
23. Centre for Health Information Quality. Hi Quality Guidelines. www.hfht.org/hiquality/guidelines.htm, 6 July 2004.
24. Health On the Net Foundation. HON Code of Conduct. http://www.hon.ch/ HONcode/HONcode_check.html, 6 July 2004.
25. Action MS. http://www.actionms.co.uk, 12 July 2004.
26. All About MS. http://www.mult-sclerosis.org, 12 July 2004.
27. Betaseron. http://www.betaseron.com, 12 July 2004.
28. Boston Cure. http://www.bostoncure.org/, 12 July 2004.
29. Chilterns MS Centre. http://www.web-shack.com/cmsc, 12 July 2004.
30. CLAMS. http://www.clams.org, 12 July 2004.
31. Direct MS. http://www.direct-ms.com, 12 July 2004.
32. Friends with MS. http://www.friendswithms.com, 12 July 2004.
33. James S. Huggins. http://www.jamesshuggins.com/h/ms_1/ multiple_sclerosis.htm, 12 July 2004.
34. Jean Sumption. http://www.imssf.com, 12 July 2004.
35. Jooly's Joint. http://www.mswebpals.org, 12 July 2004.
36. Mayo Clinic. http://www.mayoclinic.com, 12 July 2004.
37. MS Active Source. http://www.msactivesource.com, 12 July 2004.
38. MS Awareness Foundation. http://www.msawarenessfoundation.org, 12 July 2004.
39. MS Central Support. http://www.mscentralsupport.com, 12 July 2004.
40. MS Gateway. http://www.ms-gateway.com, 12 July 2004.
41. MS International Federation. http://www.msif.org, 12 July 2004.
42. MS Lifelines. http://www.mslifelines.com, 12 July 2004.
43. MS National Research Institute. http://www.ms-national-research.org, 12 July 2004.
44. MS Net. http://www.msnet.org, 12 July 2004.
45. MS Network. http://www.ms-network.com, 12 July 2004.
46. MS Only. http://www.msonly.com, 12 July 2004.
47. MS Outreach. http://www.msoutreach.com, 12 July 2004.
48. MS Resource Centre. http://www.msrc.co.uk, 12 July 2004.
49. MS Society Australia. http://www.msaustralia.org.au, 12 July 2004.
50. MS Society Canada. http://www.mssociety.ca, 12 July 2004.
51. MS Society UK. http://www.mssociety.org.uk, 12 July 2004.
52. MS Society USA. http://www.msaa.com, 12 July 2004.
53. MS South Africa. http://www.kznms.org.za, 12 July 2004.
54. MS Sucks. http://www.mssucks.com, 12 July 2004.
55. MS Watch. http://www.mswatch.com, 12 July 2004.
56. Multiple Sclerosis.com. http://www.multiplesclerosis.com, 12 July 2004.
57. Multiple Sclerosis Foundation (MSF). http://www.msfacts.org, 12 July 2004.
58. National MS Society. http://www.nationalmssociety.org, 12 July 2004.
59. National Institute of Neurological Disorders and Stroke. http://www.ninds.nih.gov/health_and_medical/disorders/ multiple_sclerosis.htm, 12 July 2004.
60. Pennsylvania Neurological Associates. http://www.pneuro.com, 12 July 2004.
61. T. H. Juland's MS Pages. http://www.albany.net, 12 July 2004.
62. Understanding MS. http://www.understandingms.com, 12 July 2004.
63. Utah University. http://medstat.med.utah.edu/kw/ms, 12 July 2004.
64. Vernon Society. http://members.shaw.ca/vernon-ms-soc, 12 July 2004.
65. Bland J.M., Altman D.G. Statistics notes: Cronbach's alpha. British Medical Journal 1997; 314; 572.