-
1
-
-
33845429600
-
Toward a national framework for the secondary use of health data: an American medical informatics association white paper
-
Safran C, Bloomrosen M, Hammond W, Labkoff S, Markel-Fox S, Tang P, Detmer D, Toward a national framework for the secondary use of health data: an American medical informatics association white paper, Journal of the American Medical Informatics Association (2007); 14:1-9.
-
(2007)
Journal of the American Medical Informatics Association
, vol.14
, pp. 1-9
-
-
Safran, C.1
Bloomrosen, M.2
Hammond, W.3
Labkoff, S.4
Markel-Fox, S.5
Tang, P.6
Detmer, D.7
-
2
-
-
69749119820
-
Toward reuse of clinical data for research and quality improvement: the end of the beginning?
-
Weiner M, Embi P, Toward reuse of clinical data for research and quality improvement: the end of the beginning?Annals of Internal Medicine (2009); 151:359-360.
-
(2009)
Annals of Internal Medicine
, vol.151
, pp. 359-360
-
-
Weiner, M.1
Embi, P.2
-
3
-
-
11844256924
-
Pregnancy, delivery, and neonatal complications in a population cohort of women with schizophrenia and major affective disorders
-
Jablensky A, Morgan V, Zubrick S, Bower C, Yellachich L, Pregnancy, delivery, and neonatal complications in a population cohort of women with schizophrenia and major affective disorders, The American Journal of Psychiatry (2005); 162:79-91.
-
(2005)
The American Journal of Psychiatry
, vol.162
, pp. 79-91
-
-
Jablensky, A.1
Morgan, V.2
Zubrick, S.3
Bower, C.4
Yellachich, L.5
-
4
-
-
54949151847
-
Healthy babies for mothers with serious mental illness: a case management framework for clinicians
-
Hauck Y, Rock D, Jackiewicz T, Jablensky A, Healthy babies for mothers with serious mental illness: a case management framework for clinicians, International Journal of Mental Health Nursing (2008); 17:383-391.
-
(2008)
International Journal of Mental Health Nursing
, vol.17
, pp. 383-391
-
-
Hauck, Y.1
Rock, D.2
Jackiewicz, T.3
Jablensky, A.4
-
5
-
-
84941021976
-
Framingham Heart Study, National Heart, Lung and Blood Institute and Boston University
-
Accessed on 23 October 2014].
-
Framingham Heart Study, National Heart, Lung and Blood Institute and Boston University. http://www.framinghamheartstudy.org [Accessed on 23 October 2014].
-
-
-
-
6
-
-
84938729123
-
Record linkage strategies: part 1: estimating information and evaluating approaches
-
Technical Report 28, University of Manitoba,Winnipeg
-
Roos LL, Wajda A, Record linkage strategies: part 1: estimating information and evaluating approaches. Technical Report 28, University of Manitoba, Winnipeg, (1990).
-
(1990)
-
-
Roos, L.L.1
Wajda, A.2
-
7
-
-
13244269176
-
OX-LINK: The Oxford Medical Rrecord Linkage System
-
Technical Report 19, University of Oxford,Oxford
-
Gill L, OX-LINK: The Oxford Medical Rrecord Linkage System. Record linkage techniques. Technical Report 19, University of Oxford, Oxford, (1997).
-
(1997)
Record linkage techniques
-
-
Gill, L.1
-
9
-
-
0032851098
-
Population-based linkage of health records in Western Australia: development of a health services research linked database
-
Holman CDJ, Bass AJ, Rouse IL, Hobbs MS, Population-based linkage of health records in Western Australia: development of a health services research linked database, Australian and New Zealand Journal of Public Health (1999); 23:453-459.
-
(1999)
Australian and New Zealand Journal of Public Health
, vol.23
, pp. 453-459
-
-
Holman, C.D.J.1
Bass, A.J.2
Rouse, I.L.3
Hobbs, M.S.4
-
10
-
-
70349235495
-
The SAIL Databank: building a national architecture for e-health research and evaluation
-
Ford DV, Jones KH, Verplancke JP, Lyons RA, John G, Brown G, Brooks CJ, Thompson S, O Bodger, Couch T, Leake K, The SAIL Databank: building a national architecture for e-health research and evaluation, BioMed Central Health Services Research (2009); 9:157.
-
(2009)
BioMed Central Health Services Research
, vol.9
, pp. 157
-
-
Ford, D.V.1
Jones, K.H.2
Verplancke, J.P.3
Lyons, R.A.4
John, G.5
Brown, G.6
Brooks, C.J.7
Thompson, S.8
Bodger, O.9
Couch, T.10
Leake, K.11
-
11
-
-
84941022706
-
Notice: NOT-OD-03-032
-
February 26 2003.[Accessed on 23 October 2014].
-
National Insititutes of Health, Final NIH Statement on Sharing Research Data. Notice: NOT-OD-03-032 February 26 2003. http://grants.nih.gov/grants/guide/notice-files/NOT-OD-03-032.html [Accessed on 23 October 2014].
-
(2014)
-
-
-
12
-
-
84937206753
-
NIH genomic data sharing policy
-
Technical Report, NIH 27, August 2014,[Accessed on 23 October 2014].
-
National Institutes of Health, NIH genomic data sharing policy. Technical Report, NIH 27, August 2014, http://grants.nih.gov/grants/guide/notice-files/NOT-OD-14-124.html [Accessed on 23 October 2014].
-
(2014)
-
-
-
13
-
-
66149095126
-
Data: to share or not to share
-
Samet J, Data: to share or not to share, Epidemiology (2009); 20:172-174.
-
(2009)
Epidemiology
, vol.20
, pp. 172-174
-
-
Samet, J.1
-
14
-
-
66149158545
-
Epidemiology, data sharing, and the challenge of scientific replication
-
Hernán M, Wilcox A, Epidemiology, data sharing, and the challenge of scientific replication, Epidemiology (2009); 20:167-168.
-
(2009)
Epidemiology
, vol.20
, pp. 167-168
-
-
Hernán, M.1
Wilcox, A.2
-
16
-
-
80053443801
-
Temporal trends in results availability from genome-wide association studies
-
Johnson AD, Leslie R, O'Donnell CJ, Temporal trends in results availability from genome-wide association studies, Public Library of Science Genetics (2011);7(9):e1002269. DOI: 10.1371/journal.pgen.1002269.
-
(2011)
Public Library of Science Genetics
, vol.7
, Issue.9
-
-
Johnson, A.D.1
Leslie, R.2
O'Donnell, C.J.3
-
17
-
-
84872459720
-
Identifying personal genomes by surname inference
-
6117
-
Gymrek M, McGuire AL, Golan D, Halperin E, Erlich Y, Identifying personal genomes by surname inference, Science (2013); 339:6117, 321-324.
-
(2013)
Science
, vol.339
, pp. 321-324
-
-
Gymrek, M.1
McGuire, A.L.2
Golan, D.3
Halperin, E.4
Erlich, Y.5
-
18
-
-
80051746382
-
It's personal: Privacy concerns associated with personal health records
-
Carl K, It's personal: Privacy concerns associated with personal health records, ISJLP (2010); 5:533-603.
-
(2010)
ISJLP
, vol.5
, pp. 533-603
-
-
Carl, K.1
-
20
-
-
0005858785
-
Health Insurance Portability and Accountability Act (HIPAA)
-
Accessed on 1 June 2015].
-
US Government, Health Insurance Portability and Accountability Act (HIPAA), 1996. http://www.gpo.gov/fdsys/pkg/PLAW-104publ191/content-detail.html [Accessed on 1 June 2015].
-
(1996)
-
-
-
21
-
-
85044123713
-
Guidance regarding methods for de-identification of protected health information in accordance with the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule.
-
September 4 2012, Washington, DC.
-
Office for Civil Rights, Guidance regarding methods for de-identification of protected health information in accordance with the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule.U.S. Department of Health and Human Services September 4 2012, Washington, DC.
-
U.S. Department of Health and Human Services
-
-
-
22
-
-
84871866774
-
Building public trust in uses of Health Insurance Portability and Accountability Act de-identified data
-
McGraw D, Building public trust in uses of Health Insurance Portability and Accountability Act de-identified data, Journal of the American Medical Informatics Association (2013); 20(1):29-34.
-
(2013)
Journal of the American Medical Informatics Association
, vol.20
, Issue.1
, pp. 29-34
-
-
McGraw, D.1
-
23
-
-
84935102668
-
Directive 95/46/EC of the European Parliament and of the Council of 24 October 1995 on the protection of individuals with regard to the processing of personal data and on the free movement of such data 1995
-
Accessed on 23 October 2014].
-
European Union, Directive 95/46/EC of the European Parliament and of the Council of 24 October 1995 on the protection of individuals with regard to the processing of personal data and on the free movement of such data 1995. http://eur-lex.europa.eu/LexUriServ/LexUriServ.do?uri=CELEX:31995L0046:en:HTML [Accessed on 23 October 2014].
-
-
-
-
24
-
-
1842517359
-
Draft Report
-
Accessed on 23 October 2014].
-
European Parliament, Draft Report. http://www.europarl.europa.eu/meetdocs/2009_2014/documents/libe/pr/922/922387/922387en.pdf [Accessed on 23 October 2014].
-
-
-
-
27
-
-
0011583645
-
Disclosure risk vs data utility: the R-U confidentiality map
-
Technical Report LA-UR-01-6428, Los Alamos National Laboratory
-
Duncan GT, Keller-McNulty SA, Stokes SL, Disclosure risk vs data utility: the R-U confidentiality map. Technical Report LA-UR-01-6428, Los Alamos National Laboratory.(2001).
-
(2001)
-
-
Duncan, G.T.1
Keller-McNulty, S.A.2
Stokes, S.L.3
-
28
-
-
84869831495
-
-
Springer, New York
-
Duncan G, Elliot M, Salazar-Gonzàlez JJ, Statistical Confidentiality, Springer, New York, (2011).
-
(2011)
Statistical Confidentiality
-
-
Duncan, G.1
Elliot, M.2
Salazar-Gonzàlez, J.J.3
-
30
-
-
33748533643
-
Confidentiality and disclosure limitation
-
Fienberg S, Confidentiality and disclosure limitation, Encyclopedia of Social Measurement (2005); 1:463-469.
-
(2005)
Encyclopedia of Social Measurement
, vol.1
, pp. 463-469
-
-
Fienberg, S.1
-
31
-
-
54949127921
-
Assessing identification risk in survey microdata using log-linear models
-
Skinner C, Shlomo N, Assessing identification risk in survey microdata using log-linear models, Journal of the American Statistical Association (2008); 103:989-1001.
-
(2008)
Journal of the American Statistical Association
, vol.103
, pp. 989-1001
-
-
Skinner, C.1
Shlomo, N.2
-
32
-
-
79960972282
-
Risk-utility paradigms for statistical disclosure limitation: how to think, but not how to act
-
Cox L, Karr A, Kinney S, Risk-utility paradigms for statistical disclosure limitation: how to think, but not how to act, International Statistical Review (2011); 79:160-183.
-
(2011)
International Statistical Review
, vol.79
, pp. 160-183
-
-
Cox, L.1
Karr, A.2
Kinney, S.3
-
33
-
-
34249795497
-
A case study of the impact of statistical disclosure control on data quality in the individual UK samples of anonymized records
-
Elliot M, Purdam K, A case study of the impact of statistical disclosure control on data quality in the individual UK samples of anonymized records, Environment and Planning A (2007); 39:1101-1118.
-
(2007)
Environment and Planning A
, vol.39
, pp. 1101-1118
-
-
Elliot, M.1
Purdam, K.2
-
34
-
-
78651329889
-
Examples of easy-to-implement, widely used methods of masking for which analytic properties are not justified
-
Winkler W, Examples of easy-to-implement, widely used methods of masking for which analytic properties are not justified. Technical Report, U.S. Bureau of the Census.(2007).
-
(2007)
Technical Report
-
-
Winkler, W.1
-
35
-
-
33745556605
-
Calibrating noise to sensitivity in private data analysis
-
3rd IACR Theory of Cryptography Conference, New York, USA
-
Dwork C, McSherry F, Nissim K, Smith A. Calibrating noise to sensitivity in private data analysis. 3rd IACR Theory of Cryptography Conference, New York, USA, 2006; 265-284.
-
(2006)
, pp. 265-284
-
-
Dwork, C.1
McSherry, F.2
Nissim, K.3
Smith, A.4
-
36
-
-
77957582791
-
Differential privacy for statistics: what we know and what we want to learn
-
Dwork C, Smith A, Differential privacy for statistics: what we know and what we want to learn, Journal of Privacy and Confidentiality (2009); 1:135-154.
-
(2009)
Journal of Privacy and Confidentiality
, vol.1
, pp. 135-154
-
-
Dwork, C.1
Smith, A.2
-
37
-
-
79959983519
-
Nofree lunch in data privacy. Proceedings of the SIGMOD '11, Athens, Greece
-
Kifer D, Machanavajjhala A. Nofree lunch in data privacy. Proceedings of the SIGMOD '11, Athens, Greece, 2011; 193-204.
-
(2011)
, pp. 193-204
-
-
Kifer, D.1
Machanavajjhala, A.2
-
38
-
-
82055191926
-
Towards unrestricted public use business microdata: the synthetic longitudinal business database
-
Kinney SK, Reiter JP, Reznek AP, Miranda J, Jarmin RS, Abowd JM, Towards unrestricted public use business microdata: the synthetic longitudinal business database, International Statistical Review (2011); 79(3)362-384.
-
(2011)
International Statistical Review
, vol.79
, Issue.3
, pp. 362-384
-
-
Kinney, S.K.1
Reiter, J.P.2
Reznek, A.P.3
Miranda, J.4
Jarmin, R.S.5
Abowd, J.M.6
-
39
-
-
84866273960
-
Some experiences with and reflections on data linkage in the United States. International Statistical Institute
-
Steinberg J, Pritzker L, Some experiences with and reflections on data linkage in the United States. International Statistical Institute, 1967.
-
(1967)
-
-
Steinberg, J.1
Pritzker, L.2
-
41
-
-
0000983892
-
Masking procedures for microdata disclosure limitation
-
Fuller WA, Masking procedures for microdata disclosure limitation, Journal of Official Statistics (1993); 9:383-383.
-
(1993)
Journal of Official Statistics
, vol.9
, pp. 383-383
-
-
Fuller, W.A.1
-
42
-
-
0012793677
-
Towards a methodology for statistical disclosure control
-
Dalenius T, Towards a methodology for statistical disclosure control, Statistik Tidskrift (1977); 15:429-444.
-
(1977)
Statistik Tidskrift
, vol.15
, pp. 429-444
-
-
Dalenius, T.1
-
45
-
-
0024914229
-
Security-control methods for statistical databases: a comparative study
-
Adam N, Wortmann J, Security-control methods for statistical databases: a comparative study, ACM Computing Surveys (1989); 21:515-556.
-
(1989)
ACM Computing Surveys
, vol.21
, pp. 515-556
-
-
Adam, N.1
Wortmann, J.2
-
48
-
-
84949807262
-
-
Wiley Series in Survey Methodology, John Wiley & Sons, United Kingdom ().
-
Hundepool A, Domingo-Ferrer J, Franconi L, Giessing S, Nordholt E, Spicer K, de WolfWolf PP, Statistical Disclosure Control, Wiley Series in Survey Methodology, John Wiley & Sons, United Kingdom (2012).
-
(2012)
Statistical Disclosure Control
-
-
Hundepool, A.1
Domingo-Ferrer, J.2
Franconi, L.3
Giessing, S.4
Nordholt, E.5
Spicer, K.6
de Wolf Wolf, P.P.7
-
49
-
-
84871886591
-
Biomedical data privacy: problems, perspectives, and recent advances
-
Malin BA, El Emam K, O'Keefe CM, Biomedical data privacy: problems, perspectives, and recent advances, Journal of the American Medical Informatics Association (2013); 20:2-6.
-
(2013)
Journal of the American Medical Informatics Association
, vol.20
, pp. 2-6
-
-
Malin, B.A.1
El Emam, K.2
O'Keefe, C.M.3
-
50
-
-
0035873984
-
Statistical perspectives in confidentiality and data access in public health
-
Fienberg S, Statistical perspectives in confidentiality and data access in public health, Statistics in Medicine (2001); 20: 1347-1356.
-
(2001)
Statistics in Medicine
, vol.20
, pp. 1347-1356
-
-
Fienberg, S.1
-
51
-
-
46249120253
-
Privacy and the use of health data - reducing disclosure risk
-
O'Keefe CM, Privacy and the use of health data - reducing disclosure risk, Electronic Journal of Health Informatics (2008); 3(1):E5 (9pp).
-
(2008)
Electronic Journal of Health Informatics
, vol.3
, Issue.1
, pp. 9
-
-
O'Keefe, C.M.1
-
52
-
-
80051479558
-
Commentary: Sharing confidential data for research purposes: a primer
-
Reiter J, Kinney S, Commentary: Sharing confidential data for research purposes: a primer, Epidemiology (2011); 22:632-635.
-
(2011)
Epidemiology
, vol.22
, pp. 632-635
-
-
Reiter, J.1
Kinney, S.2
-
53
-
-
84972531331
-
Enhancing access to microdata while protecting confidentiality: prospects for the future
-
Duncan G, Pearson R, Enhancing access to microdata while protecting confidentiality: prospects for the future, Statistical Science (1991); 6:219-239.
-
(1991)
Statistical Science
, vol.6
, pp. 219-239
-
-
Duncan, G.1
Pearson, R.2
-
54
-
-
72049086690
-
Regression output from a remote analysis system
-
O'Keefe CM, Good N, Regression output from a remote analysis system, Data and Knowledge Engineering (2009); 68:1175-1186.
-
(2009)
Data and Knowledge Engineering
, vol.68
, pp. 1175-1186
-
-
O'Keefe, C.M.1
Good, N.2
-
55
-
-
0025994049
-
The case for samples of anonymized records from the 1991 census
-
Marsh C, Skinner C, Arber S, Penhale B, Openshaw S, Hobcraft J, Lievesley D, Walford N, The case for samples of anonymized records from the 1991 census, Journal of the Royal Statistical Society Series A (1991); 154:305-340.
-
(1991)
Journal of the Royal Statistical Society Series A
, vol.154
, pp. 305-340
-
-
Marsh, C.1
Skinner, C.2
Arber, S.3
Penhale, B.4
Openshaw, S.5
Hobcraft, J.6
Lievesley, D.7
Walford, N.8
-
56
-
-
84941025807
-
About CURF microdata
-
Accessed on 23 October 2014].
-
Australian Bureau of Statistics, About CURF microdata. http://www.abs.gov.au/websitedbs/D3310114.nsf/home/About+CURF+Microdata [Accessed on 23 October 2014].
-
-
-
-
57
-
-
77958526319
-
Public-use data files and documentation
-
Accessed on 23 October 2014].
-
Centers for Disease Control and Prevention. Public-use data files and documentation. http://www.cdc.gov/nchs/data_access/ftp_data.htm [Accessed on 23 October 2014].
-
-
-
-
58
-
-
84929055342
-
IPUMS International
-
Accessed on 23 October 2014].
-
Minnesota Population Center UniversityofMinnesota, IPUMS International. https://international.ipums.org/international/ [Accessed on 23 October 2014].
-
-
-
Minnesota Population Center, U.1
-
59
-
-
24944534544
-
Data dissemination and disclosure limitation in a world without microdata: a risk-utility framework for remote access systems
-
Gomatam S, Karr A, Reiter J, Sanil A, Data dissemination and disclosure limitation in a world without microdata: a risk-utility framework for remote access systems, Statistical Science (2005); 20:163-177.
-
(2005)
Statistical Science
, vol.20
, pp. 163-177
-
-
Gomatam, S.1
Karr, A.2
Reiter, J.3
Sanil, A.4
-
60
-
-
46249093660
-
Remote access methods for exploratory data analysis and statistical modelling: privacy-preserving analytics™
-
Sparks R, Carter C, Donnelly J, O'Keefe CM, Duncan J, Keighley T, McAullay D, Remote access methods for exploratory data analysis and statistical modelling: privacy-preserving analytics™, Computer Methods and Programs in Biomedicine (2008); 91:208-222.
-
(2008)
Computer Methods and Programs in Biomedicine
, vol.91
, pp. 208-222
-
-
Sparks, R.1
Carter, C.2
Donnelly, J.3
O'Keefe, C.M.4
Duncan, J.5
Keighley, T.6
McAullay, D.7
-
61
-
-
34250767059
-
Web-based systems that disseminate information but protect confidentiality
-
in, edited by W McIver, A Elmagarmid, Kluwer, Amsterdam
-
Karr A, Lee J, Sanil A, Hernandez J, Karimi S, Litwin K, Web-based systems that disseminate information but protect confidentiality., in Advances in Digital Government: Technology, Human Factors and Public Policy, edited by W McIver, A Elmagarmid, Kluwer, Amsterdam, (2002); 181-196.
-
(2002)
Advances in Digital Government: Technology, Human Factors and Public Policy
, pp. 181-196
-
-
Karr, A.1
Lee, J.2
Sanil, A.3
Hernandez, J.4
Karimi, S.5
Litwin, K.6
-
62
-
-
0346832649
-
Table servers protect confidentiality in tabular data releases
-
Karr AF, Dobra A, Sanil AP, Table servers protect confidentiality in tabular data releases, Communications of the ACM (2003); 46(1):57-58.
-
(2003)
Communications of the ACM
, vol.46
, Issue.1
, pp. 57-58
-
-
Karr, A.F.1
Dobra, A.2
Sanil, A.P.3
-
63
-
-
84941022158
-
Remote Access Data Laboratory (RADL)
-
Accessed on 23 October 2014].
-
Australian Bureau of Statistics, Remote Access Data Laboratory (RADL). http://www.abs.gov.au [Accessed on 23 October 2014].
-
-
-
-
64
-
-
84921630273
-
Methodology for automatic confidentialisation of statistical outputs from remote servers at the Australian Bureau of Statistics
-
Ottawa, Canada, 28-30 October 2013
-
Thompson G, Broadfoot S, Elazar D, Methodology for automatic confidentialisation of statistical outputs from remote servers at the Australian Bureau of Statistics. Joint UNECE/Eurostat work session on statistical data confidentiality (Ottawa, Canada, 28-30 October 2013). 37pp.
-
Joint UNECE/Eurostat work session on statistical data confidentiality
, pp. 37
-
-
Thompson, G.1
Broadfoot, S.2
Elazar, D.3
-
65
-
-
84991903359
-
The current stage of the microdata analysis system at the U.S. Census Bureau
-
ISI 2011, Dublin, Ireland
-
Lucero J, Zayatz L, Singh L, You J, DePersio M, Freiman M. The current stage of the microdata analysis system at the U.S. Census Bureau. Proceedings of the 58th Congress of the International Statistical Institute, ISI 2011, Dublin, Ireland, 2011.
-
(2011)
Proceedings of the 58th Congress of the International Statistical Institute
-
-
Lucero, J.1
Zayatz, L.2
Singh, L.3
You, J.4
DePersio, M.5
Freiman, M.6
-
66
-
-
79953250055
-
Evaluating Laplace noise addition to satisfy differential privacy for numeric data
-
Sarathy R, Muralidhar K, Evaluating Laplace noise addition to satisfy differential privacy for numeric data, Transactions in Data Privacy (2011); 4:1-17.
-
(2011)
Transactions in Data Privacy
, vol.4
, pp. 1-17
-
-
Sarathy, R.1
Muralidhar, K.2
-
67
-
-
84883148746
-
Differential privacy for protecting multi-dimensional contingency table data: extensions and applications
-
Yang X, Fienberg SE, Rinaldo A, Differential privacy for protecting multi-dimensional contingency table data: extensions and applications, Journal of Privacy and Confidentiality (2012); 4(1):101-125.
-
(2012)
Journal of Privacy and Confidentiality
, vol.4
, Issue.1
, pp. 101-125
-
-
Yang, X.1
Fienberg, S.E.2
Rinaldo, A.3
-
68
-
-
84941023631
-
Protecting confidentiality in statistical analysis outputs from a virtual data centre. Working Paper 29-30 October 2013. Joint UNECE/Eurostat work session on statistical data confidentiality.
-
Ottawa, Canada, 10pp.[Accessed on 23 October 2014].
-
O'Keefe CM, Westcott M, Ickowicz A, O'Sullivan M, Churches T, Protecting confidentiality in statistical analysis outputs from a virtual data centre. Working Paper 29-30 October 2013. Joint UNECE/Eurostat work session on statistical data confidentiality.Ottawa, Canada, 10pp. http://www.unece.org/stats/documents/2013.10.confidentiality.html [Accessed on 23 October 2014].
-
-
-
O'Keefe, C.M.1
Westcott, M.2
Ickowicz, A.3
O'Sullivan, M.4
Churches, T.5
-
69
-
-
84941023746
-
University of Chicago, NORC website
-
Accessed on 23 October 2014].
-
University of Chicago, NORC website. http://www.norc.org [Accessed on 23 October 2014].
-
-
-
-
70
-
-
84941022900
-
Secure Unified Research Environment (SURE)
-
[Accessed on 23 October 2014].
-
Sax Institute . Secure Unified Research Environment (SURE). http://www.sure.org.au [Accessed on 23 October 2014].
-
-
-
-
71
-
-
84949131905
-
Comparison of two remote access systems recently developed and implemented in Australia
-
edited by J Domingo-Ferrer, Springer, Heidelberg
-
O'Keefe CM, Gould P, Churches T, Comparison of two remote access systems recently developed and implemented in Australia., in Privacy in Statistical Databases PSD2014, LNCS, vol.8744, edited by J Domingo-Ferrer, Springer, Heidelberg, (2014); 299-311.
-
(2014)
Privacy in Statistical Databases PSD2014, LNCS
, vol.8744
, pp. 299-311
-
-
O'Keefe, C.M.1
Gould, P.2
Churches, T.3
-
72
-
-
84941024736
-
-
Accessed on 23 October 2014].
-
Office for National Statistics. http://www.statistics.gov.uk [Accessed on 23 October 2014].
-
-
-
-
73
-
-
84941026104
-
Secure data service website
-
Accessed on 23 October 2014].
-
UK Data Archive. Secure data service website. http://ukdataservice.ac.uk/get-data/how-toaccess/accesssecurelab.aspx [Accessed on 23 October 2014].
-
-
-
-
74
-
-
84941022199
-
-
Accessed on 23 October 2014].
-
United States Census Bureau. http://www.census.gov [Accessed on 23 October 2014].
-
-
-
-
75
-
-
84941022641
-
-
Accessed on 23 October 2014].
-
Australian Bureau of Statistics. http://www.abs.gov.au [Accessed on 23 October 2014].
-
-
-
-
77
-
-
84941023191
-
National statement on ethical conduct in human research 2007 - updated 2014
-
Accessed on 23 October 2014].
-
Australian Government National Health and Medical Research Council, National statement on ethical conduct in human research 2007 - updated 2014. Online publication Reference Number E72, 2007. http://www.nhmrc.gov.au/guidelines/publications/e72 [Accessed on 23 October 2014].
-
(2007)
Online publication Reference Number E72
-
-
-
78
-
-
33646000796
-
No longer de-identified
-
McGuire A, Genetics GibbsR., No longer de-identified, Science (2006); 312:370-371.
-
(2006)
Science
, vol.312
, pp. 370-371
-
-
McGuire, A.1
Genetics, G.2
-
79
-
-
77957594024
-
Broken promises of privacy: responding to the surprising failure of anonymization
-
Ohm P, Broken promises of privacy: responding to the surprising failure of anonymization, UCLA Law Review (2010);57:1701-1777.
-
(2010)
UCLA Law Review
, vol.57
, pp. 1701-1777
-
-
Ohm, P.1
-
80
-
-
77956396767
-
Is deidentification sufficient to protect health privacy in research?
-
Rothstein M, Is deidentification sufficient to protect health privacy in research?American Journal of Bioethics (2010); 10:3-11.
-
(2010)
American Journal of Bioethics
, vol.10
, pp. 3-11
-
-
Rothstein, M.1
-
81
-
-
79955608859
-
Methods for de-identification of electronic health records for genomic research
-
2011
-
El Emam K, Methods for de-identification of electronic health records for genomic research, Genome Medicine (2011);3(2011), 25. DOI: 10.1186/gm239.
-
(2011)
Genome Medicine
, vol.3
, pp. 25
-
-
El Emam, K.1
-
82
-
-
44949163380
-
Population Health Research Network
-
Accessed on 23 October 2014
-
Population Health Research Network. http://www.phrn.org.au/ [Accessed on 23 October 2014].
-
-
-
-
83
-
-
84941024518
-
-
Accessed on 23 October 2014].
-
British Columbia Linked Health Database (BCHLD). http://riskfactor.cancer.gov/tools/pharmaco/epi/british_columbia.html [Accessed on 23 October 2014].
-
-
-
-
84
-
-
0036357125
-
Using binning to maintain confidentiality of medical data
-
San Antonio, USA
-
Lin Z, Hewett M, Altman R. Using binning to maintain confidentiality of medical data. Annual Symposium Proceedings, American Medical Informatics Association, San Antonio, USA, 2002, 454-458.
-
(2002)
Annual Symposium Proceedings
, pp. 454-458
-
-
Lin, Z.1
Hewett, M.2
Altman, R.3
-
85
-
-
0000432739
-
Confidentiality, uniqueness and disclosure limitation for categorical data
-
Fienberg S, Makov U, Confidentiality, uniqueness and disclosure limitation for categorical data, Journal of Official Statistics (1998); 14:385-397.
-
(1998)
Journal of Official Statistics
, vol.14
, pp. 385-397
-
-
Fienberg, S.1
Makov, U.2
-
86
-
-
0012776989
-
Discussion: statistical disclosure limitation
-
Rubin D, Discussion: statistical disclosure limitation, Journal of Official Statistics (1993); 9:462-468.
-
(1993)
Journal of Official Statistics
, vol.9
, pp. 462-468
-
-
Rubin, D.1
-
87
-
-
0000185822
-
Statistical analysis of masked data
-
Little R, Statistical analysis of masked data, Journal of Official Statistics (1993); 9:407-426.
-
(1993)
Journal of Official Statistics
, vol.9
, pp. 407-426
-
-
Little, R.1
-
88
-
-
36148937800
-
Using CART to generate partially synthetic public use microdata
-
Reiter J, Using CART to generate partially synthetic public use microdata, Journal of Official Statistics (2005);21:441-462.
-
(2005)
Journal of Official Statistics
, vol.21
, pp. 441-462
-
-
Reiter, J.1
-
89
-
-
35148857674
-
Missing data imputation, matching and other applications of random recursive partitioning
-
Iacus S, Porro G, Missing data imputation, matching and other applications of random recursive partitioning, Computational Statistics and Data Analysis (2007); 52:773-789.
-
(2007)
Computational Statistics and Data Analysis
, vol.52
, pp. 773-789
-
-
Iacus, S.1
Porro, G.2
-
90
-
-
77958547578
-
Multiple imputation for missing data via sequential regression trees
-
Burgette L, Reiter J, Multiple imputation for missing data via sequential regression trees, American Journal of Epidemiology (2010); 172:1070-1076.
-
(2010)
American Journal of Epidemiology
, vol.172
, pp. 1070-1076
-
-
Burgette, L.1
Reiter, J.2
-
91
-
-
79961167441
-
An empirical evaluation of easily implemented, nonparametric methods for generating synthetic datasets
-
Drechsler J, Reiter J., An empirical evaluation of easily implemented, nonparametric methods for generating synthetic datasets, Computational Statistics and Data Analysis (2011); 55:3232-3243.
-
(2011)
Computational Statistics and Data Analysis
, vol.55
, pp. 3232-3243
-
-
Drechsler, J.1
Reiter, J.2
-
92
-
-
84941024572
-
National Institute of Statistical Sciences. NISSWebSwap, Version 1.1
-
Accessed on 23 October 2014].
-
National Institute of Statistical Sciences. NISSWebSwap, Version 1.1, 2003. http://nisla05.niss.org/WebServices/dg/ WebSwap.html [Accessed on 23 October 2014].
-
(2003)
-
-
-
93
-
-
77949405146
-
Final report to the Social Security Administration on the SIPP/SSA/IRS public use file project
-
Technical Report
-
Abowd JM, Stinson M, Benedetto G, Final report to the Social Security Administration on the SIPP/SSA/IRS public use file project. Technical Report (2006).
-
(2006)
-
-
Abowd, J.M.1
Stinson, M.2
Benedetto, G.3
-
94
-
-
78651331183
-
Producing partially synthetic data to avoid disclosure
-
Alexandria, VA
-
Hawala S. Producing partially synthetic data to avoid disclosure. Proceedings of the Joint Statistical Meetings, American Statistical Association, Alexandria, VA, 2008.
-
(2008)
Proceedings of the Joint Statistical Meetings
-
-
Hawala, S.1
-
95
-
-
34848822584
-
Multiple imputation: an alternative to top coding for statistical disclosure control
-
An D, Little R, Multiple imputation: an alternative to top coding for statistical disclosure control, Journal of the Royal Statistical Society Series A (2007); 170:923-940.
-
(2007)
Journal of the Royal Statistical Society Series A
, vol.170
, pp. 923-940
-
-
An, D.1
Little, R.2
-
96
-
-
77955164506
-
A multiple imputation approach to disclosure limitation for high-age individuals in longitudinal studies
-
An D, Little R, McNally J, A multiple imputation approach to disclosure limitation for high-age individuals in longitudinal studies, Statistics in Medicine (2009); 29:1769-1778.
-
(2009)
Statistics in Medicine
, vol.29
, pp. 1769-1778
-
-
An, D.1
Little, R.2
McNally, J.3
-
97
-
-
47649120963
-
The public-use national health interview survey linked mortality files: methods of reidentification risk avoidance and comparative analysis
-
Lochner K, Hummer R, Bartee S, Wheatcroft G, Cox C, The public-use national health interview survey linked mortality files: methods of reidentification risk avoidance and comparative analysis, American Journal of Epidemiology (2008); 168:336-344.
-
(2008)
American Journal of Epidemiology
, vol.168
, pp. 336-344
-
-
Lochner, K.1
Hummer, R.2
Bartee, S.3
Wheatcroft, G.4
Cox, C.5
-
98
-
-
68349094975
-
Musings on privacy issues in health research involving disaggregate geographic data about individuals
-
Boulos MN, Curtis AJ, AbdelMalik P, Musings on privacy issues in health research involving disaggregate geographic data about individuals, International Journal of Health Geographics (2009); 8(1): 46.
-
(2009)
International Journal of Health Geographics
, vol.8
, Issue.1
, pp. 46
-
-
Boulos, M.N.1
Curtis, A.J.2
AbdelMalik, P.3
-
99
-
-
27344440820
-
Confidentiality and spatially explicit data: Concerns and challenges
-
VanWey L, Rindfuss R, Gutmann M, Entwisle B, Balk D, Confidentiality and spatially explicit data: Concerns and challenges, Proceedings of the National Academy of Sciences of the United States of America (2005); 102:15337-15342.
-
(2005)
Proceedings of the National Academy of Sciences of the United States of America
, vol.102
, pp. 15337-15342
-
-
VanWey, L.1
Rindfuss, R.2
Gutmann, M.3
Entwisle, B.4
Balk, D.5
-
100
-
-
78650193970
-
Confidentiality risks in fine scale aggregations of health data
-
Curtis A, Mills J, Agustin L, Cockburn M, Confidentiality risks in fine scale aggregations of health data, Computers, Environment and Urban Systems (2011), 35:57-64.
-
(2011)
Computers, Environment and Urban Systems
, vol.35
, pp. 57-64
-
-
Curtis, A.1
Mills, J.2
Agustin, L.3
Cockburn, M.4
-
101
-
-
33644669418
-
A context-sensitive approach to anonymizing spatial surveillance data: impact on outbreak detection
-
Cassa C, Grannis S, Overhage J, Mandl K, A context-sensitive approach to anonymizing spatial surveillance data: impact on outbreak detection, Journal of the American Medical Informatics Association (2006); 13:160-165.
-
(2006)
Journal of the American Medical Informatics Association
, vol.13
, pp. 160-165
-
-
Cassa, C.1
Grannis, S.2
Overhage, J.3
Mandl, K.4
-
102
-
-
33745481888
-
Cartographic guidelines for geographically masking the locations of confidential point data
-
Leitner M, Curtis A., Cartographic guidelines for geographically masking the locations of confidential point data, Cartographic Perspectives (2004); 49:22-39.
-
(2004)
Cartographic Perspectives
, vol.49
, pp. 22-39
-
-
Leitner, M.1
Curtis, A.2
-
103
-
-
33750490794
-
Privacy protection versus cluster detection in spatial epidemiology
-
Olson K, Grannis S, Mandl K, Privacy protection versus cluster detection in spatial epidemiology, American Journal of Public Health (2006); 96:2002-2008.
-
(2006)
American Journal of Public Health
, vol.96
, pp. 2002-2008
-
-
Olson, K.1
Grannis, S.2
Mandl, K.3
-
104
-
-
84870265884
-
A smoothing approach for masking spatial data
-
Zhou Y, Dominici F, Louis TA, A smoothing approach for masking spatial data, The Annals of Applied Statistics (2010); 4(3) 1451-1475.
-
(2010)
The Annals of Applied Statistics
, vol.4
, Issue.3
, pp. 1451-1475
-
-
Zhou, Y.1
Dominici, F.2
Louis, T.A.3
-
105
-
-
84974517930
-
Multiple imputation for sharing precise geographies in public use data
-
Wang H, Reiter JP, Multiple imputation for sharing precise geographies in public use data, The Annals of Applied Statistics (2012); 6:1, 229-252.
-
(2012)
The Annals of Applied Statistics
, vol.6
, Issue.1
, pp. 229-252
-
-
Wang, H.1
Reiter, J.P.2
-
107
-
-
0042515066
-
Linear sensitivity measures in statistical disclosure control
-
Cox L, Linear sensitivity measures in statistical disclosure control, Journal of Statistical Planning and Inference (1981); 5:153-164.
-
(1981)
Journal of Statistical Planning and Inference
, vol.5
, pp. 153-164
-
-
Cox, L.1
-
108
-
-
0011644133
-
Cell suppression: experience and theory
-
Edited by J Domingo-Ferrer, Lecture Notes in Computer Science, Springer-Verlag, Berlin Heidelberg
-
Robertston D, Ethier R, Cell suppression: experience and theory., in Inference Control in Statistical Databases, vol.2316, edited by J Domingo-Ferrer, Lecture Notes in Computer Science, Springer-Verlag, Berlin Heidelberg, (2002); 213-239.
-
(2002)
Inference Control in Statistical Databases
, vol.2316
, pp. 213-239
-
-
Robertston, D.1
Ethier, R.2
-
109
-
-
0001582302
-
Post randomisation for statistical disclosure control: theory and implementation
-
Gouweleeuw J, Kooiman P, DeWolf LWPP, Post randomisation for statistical disclosure control: theory and implementation, Journal of Official Statistics (1998); 14:463-478.
-
(1998)
Journal of Official Statistics
, vol.14
, pp. 463-478
-
-
Gouweleeuw, J.1
Kooiman, P.2
DeWolf, L.W.P.P.3
-
110
-
-
84942648154
-
A method for confidentialising user-defined tables: statistical properties and a risk-utility analysis
-
ISI 2011, Dublin, Ireland, 21-26 August .
-
Marley J, Leaver V. A method for confidentialising user-defined tables: statistical properties and a risk-utility analysis. Proceedings of the 58th Congress of the International Statistical Institute, ISI 2011, Dublin, Ireland, 21-26 August 2011.
-
(2011)
Proceedings of the 58th Congress of the International Statistical Institute
-
-
Marley, J.1
Leaver, V.2
-
111
-
-
84941022972
-
-
τ-ARGUS website Accessed on 23 October 2014].
-
ESSnet-project. τ-ARGUS website . http://neon.vb.cbs.nl/casc/tau.htm [Accessed on 23 October 2014].
-
-
-
-
112
-
-
84941022622
-
Census TableBuilder nd.
-
Accessed on 23 October 2014].
-
Australian Bureau of Statistics, Census TableBuilder nd.http://www.abs.gov.au [Accessed on 23 October 2014].
-
-
-
-
113
-
-
0346171307
-
Model diagnostics for remote-access regression systems
-
Reiter J, Model diagnostics for remote-access regression systems, Statistics and Computing (2003); 13:371-380.
-
(2003)
Statistics and Computing
, vol.13
, pp. 371-380
-
-
Reiter, J.1
-
115
-
-
84872025004
-
A framework for performing statistical analyses of unit record health data without violating either privacy or confidentiality of individuals
-
Sydney
-
Sparks R, Carter C, Donnelly J, Duncan J, O'Keefe CM, Ryan L. A framework for performing statistical analyses of unit record health data without violating either privacy or confidentiality of individuals, Proceedings of the 55th Session of the International Statistical Institute, Sydney, 2005; 4:(4pp).
-
(2005)
Proceedings of the 55th Session of the International Statistical Institute
, pp. 4
-
-
Sparks, R.1
Carter, C.2
Donnelly, J.3
Duncan, J.4
O'Keefe, C.M.5
Ryan, L.6
-
116
-
-
84888203868
-
A summary of attack methods and protective measures for fully automated remote analysis systems
-
O'Keefe CM, Chipperfield JO, A summary of attack methods and protective measures for fully automated remote analysis systems, International Statistical Review (2013); 81:426-455.
-
(2013)
International Statistical Review
, vol.81
, pp. 426-455
-
-
O'Keefe, C.M.1
Chipperfield, J.O.2
-
117
-
-
84949115940
-
Applicability of confidentiality methods to personal and business data
-
edited by J Domingo-Ferrer, Springer, Heidelberg
-
O'Keefe CM, Shlomo N, Applicability of confidentiality methods to personal and business data., in Privacy in Statistical Databases PSD2014, LNCS, vol.8744, edited by J Domingo-Ferrer, Springer, Heidelberg, (2014);350-363.
-
(2014)
Privacy in Statistical Databases PSD2014, LNCS
, vol.8744
, pp. 350-363
-
-
O'Keefe, C.M.1
Shlomo, N.2
-
118
-
-
84858253677
-
Statistical approaches to protecting confidentiality for microdata and their effects on the quality of statistical inferences
-
Reiter JP, Statistical approaches to protecting confidentiality for microdata and their effects on the quality of statistical inferences, Public Opinion Quarterly (2012); 76(1):163-181.
-
(2012)
Public Opinion Quarterly
, vol.76
, Issue.1
, pp. 163-181
-
-
Reiter, J.P.1
-
119
-
-
84958985929
-
Measuring the impact of data protection techniques on data utility: evidence from the survey of consumer finances
-
Springer, Heidelberg
-
Kennickell A, Lane J, Measuring the impact of data protection techniques on data utility: evidence from the survey of consumer finances., in Privacy in Statistical Databases, Springer, Heidelberg, (2006); 291-303.
-
(2006)
Privacy in Statistical Databases
, pp. 291-303
-
-
Kennickell, A.1
Lane, J.2
-
120
-
-
79951945425
-
Multiple imputation in practice-a case study using a complex German establishment survey
-
Drechsler J, Multiple imputation in practice-a case study using a complex German establishment survey, Advances in Statistical Analysis (2011); 95:1-26.
-
(2011)
Advances in Statistical Analysis
, vol.95
, pp. 1-26
-
-
Drechsler, J.1
-
126
-
-
84905233012
-
Scalable privacy-preserving data sharing methodology for genome-wide association studies
-
Yu F, Fienberg SE, Slavković AB, Uhler C, Scalable privacy-preserving data sharing methodology for genome-wide association studies, Journal of Biomedical Informatics (2014); 50:133-141.
-
(2014)
Journal of Biomedical Informatics
, vol.50
, pp. 133-141
-
-
Yu, F.1
Fienberg, S.E.2
Slavković, A.B.3
Uhler, C.4
-
127
-
-
58549115039
-
Verification servers: enabling analysts to assess the quality of inferences from public use data
-
Reiter J, Oganian A, Karr A, Verification servers: enabling analysts to assess the quality of inferences from public use data, Computational Statistics and Data Analysis (2009), 53:1475-1482.
-
(2009)
Computational Statistics and Data Analysis
, vol.53
, pp. 1475-1482
-
-
Reiter, J.1
Oganian, A.2
Karr, A.3
|