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Volumn 3, Issue 4, 2011, Pages

Methods for the de-identification of electronic health records for genomic research

Author keywords

[No Author keywords available]

Indexed keywords

ACT; DATA ANALYSIS; ELECTRONIC MEDICAL RECORD; GENOME; GOVERNMENT REGULATION; HEALTH INSURANCE; HUMAN; MEDICAL RESEARCH; MEDICOLEGAL ASPECT; PRIORITY JOURNAL; PRIVACY; REVIEW; RISK; STANDARD;

EID: 79955608859     PISSN: None     EISSN: 1756994X     Source Type: Journal    
DOI: 10.1186/gm239     Document Type: Review
Times cited : (57)

References (87)
  • 1
    • 59349088021 scopus 로고    scopus 로고
    • Perspectives for medical informatics. Reusing the electronic medical record for clinical research.
    • Prokosch H, Ganslandt T. Perspectives for medical informatics. Reusing the electronic medical record for clinical research. Methods Inf Med 2009, 48:38-44.
    • (2009) Methods Inf Med , vol.48 , pp. 38-44
    • Prokosch, H.1    Ganslandt, T.2
  • 2
    • 61849172253 scopus 로고    scopus 로고
    • Use of primary care electronic medical record database in drug efficacy research on cardiovascular outcomes: Comparison of database and randomized controlled trial findings.
    • 10.1136/bmj.b81, 2769067, 19174434
    • Tannen R, Weiner M, Xie D. Use of primary care electronic medical record database in drug efficacy research on cardiovascular outcomes: Comparison of database and randomized controlled trial findings. BMJ 2009, 338:b81. 10.1136/bmj.b81, 2769067, 19174434.
    • (2009) BMJ , vol.338
    • Tannen, R.1    Weiner, M.2    Xie, D.3
  • 4
    • 36148951701 scopus 로고    scopus 로고
    • Influence of the HIPAA privacy rule on health research.
    • 10.1001/jama.298.18.2164, 18000200
    • Ness R. Influence of the HIPAA privacy rule on health research. JAMA 2007, 298:2164-2170. 10.1001/jama.298.18.2164, 18000200.
    • (2007) JAMA , vol.298 , pp. 2164-2170
    • Ness, R.1
  • 6
    • 66749176708 scopus 로고    scopus 로고
    • Written informed consent and selection bias in observational studies using medical records: systematic review.
    • 10.1136/bmj.b866, 2769263, 19282440
    • Kho M, Duffett M, Willison D, Cook D, Brouwers M. Written informed consent and selection bias in observational studies using medical records: systematic review. BMJ 2009, 338:b866. 10.1136/bmj.b866, 2769263, 19282440.
    • (2009) BMJ , vol.338
    • Kho, M.1    Duffett, M.2    Willison, D.3    Cook, D.4    Brouwers, M.5
  • 8
    • 50949103777 scopus 로고    scopus 로고
    • Personal privacy and public health: potential impacts of privacy legislation on health research in Canada.
    • Harris ALAR, Teschke KE. Personal privacy and public health: potential impacts of privacy legislation on health research in Canada. Can J Public Health 2008, 99:293-296.
    • (2008) Can J Public Health , vol.99 , pp. 293-296
    • Harris, A.L.A.R.1    Teschke, K.E.2
  • 9
    • 77951480975 scopus 로고    scopus 로고
    • Policy by procrastination: secondary use of electronic health records for health research purposes.
    • Kosseim P, Brady M. Policy by procrastination: secondary use of electronic health records for health research purposes. McGill J Law Health 2008, 2:5-45.
    • (2008) McGill J Law Health , vol.2 , pp. 5-45
    • Kosseim, P.1    Brady, M.2
  • 10
    • 0037826936 scopus 로고    scopus 로고
    • Learning from experience: privacy and the secondary use of data in health research.
    • Lowrance W. Learning from experience: privacy and the secondary use of data in health research. J Health Serv Res Policy 2003, 8(Suppl 1):2-7.
    • (2003) J Health Serv Res Policy , vol.8 , Issue.SUPPL. 1 , pp. 2-7
    • Lowrance, W.1
  • 11
    • 0003641378 scopus 로고    scopus 로고
    • Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans.
    • 2, Panel on Research Ethics
    • Panel on Research Ethics Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans. 2010, 2, Panel on Research Ethics., http://www.pre.ethics.gc.ca/pdf/eng/tcps2/TCPS_2_FINAL_Web.pdf
    • (2010)
  • 12
    • 35649022736 scopus 로고    scopus 로고
    • Access to medical records for research purposes: varying perceptions across Research Ethics Boards.
    • 10.1136/jme.2006.020032, 18375687
    • Willison D, Emerson C, Szala-Meneok K, Gibson E, Schwartz L, Weisbaum K. Access to medical records for research purposes: varying perceptions across Research Ethics Boards. J Med Ethics 2008, 34:308-314. 10.1136/jme.2006.020032, 18375687.
    • (2008) J Med Ethics , vol.34 , pp. 308-314
    • Willison, D.1    Emerson, C.2    Szala-Meneok, K.3    Gibson, E.4    Schwartz, L.5    Weisbaum, K.6
  • 13
    • 77953170556 scopus 로고    scopus 로고
    • Serving the enterprise and beyond with informatics for integrating biology and the bedside.
    • 10.1136/jamia.2009.000893, 3000779, 20190053
    • Murphy S, Weber G, Mendis M, Gainer V, Chueh H, Churchill S, Kohane I. Serving the enterprise and beyond with informatics for integrating biology and the bedside. J Am Med Inform Assoc 2010, 17:124-130. 10.1136/jamia.2009.000893, 3000779, 20190053.
    • (2010) J Am Med Inform Assoc , vol.17 , pp. 124-130
    • Murphy, S.1    Weber, G.2    Mendis, M.3    Gainer, V.4    Chueh, H.5    Churchill, S.6    Kohane, I.7
  • 14
    • 72949105417 scopus 로고    scopus 로고
    • Evaluating the informatics for integrating biology and the bedside system for clinical research.
    • 10.1186/1471-2288-9-70, 2779809, 19863809
    • Deshmukh V, Meystre S, Mitchell J. Evaluating the informatics for integrating biology and the bedside system for clinical research. BMC Med Res Methodol 2009, 9:70. 10.1186/1471-2288-9-70, 2779809, 19863809.
    • (2009) BMC Med Res Methodol , vol.9 , pp. 70
    • Deshmukh, V.1    Meystre, S.2    Mitchell, J.3
  • 15
    • 49949093313 scopus 로고    scopus 로고
    • Development of a large-scale de-identified DNA biobank to enable personalized medicine.
    • 10.1038/clpt.2008.89, 18500243
    • Roden D, Pulley J, Basford M, Bernard G, Clayton E, Balser J, Masys D. Development of a large-scale de-identified DNA biobank to enable personalized medicine. Clin Pharmacol Ther 2008, 84:362-369. 10.1038/clpt.2008.89, 18500243.
    • (2008) Clin Pharmacol Ther , vol.84 , pp. 362-369
    • Roden, D.1    Pulley, J.2    Basford, M.3    Bernard, G.4    Clayton, E.5    Balser, J.6    Masys, D.7
  • 16
    • 74249091457 scopus 로고    scopus 로고
    • Technical and policy approaches to balancing patient privacy and data sharing in clinical and translational research.
    • 2836827, 20051768
    • Malin B, Karp D, Scheuermann R. Technical and policy approaches to balancing patient privacy and data sharing in clinical and translational research. J Investig Med 2010, 58:11-18. 2836827, 20051768.
    • (2010) J Investig Med , vol.58 , pp. 11-18
    • Malin, B.1    Karp, D.2    Scheuermann, R.3
  • 17
    • 79955591287 scopus 로고    scopus 로고
    • Southern Illinoisan vs. The Illinois Department of Public Health.
    • The Supreme Court of the State of Illinois
    • The Supreme Court of the State of Illinois Southern Illinoisan vs. The Illinois Department of Public Health. Docket No. 98712 2006, The Supreme Court of the State of Illinois., http://www.state.il.us/court/opinions/supremecourt/2006/february/opinions/html/98712.htm
    • (2006) Docket No. 98712
  • 18
    • 77951007514 scopus 로고    scopus 로고
    • AOL removes search data on group of web users.
    • New York Times
    • Hansell S. AOL removes search data on group of web users. 2006, New York Times., http://www.nytimes.com/2006/08/08/business/media/08aol.html
    • (2006)
    • Hansell, S.1
  • 19
    • 65449127268 scopus 로고    scopus 로고
    • A face is exposed for AOL searcher No. 4417749.
    • New York Times
    • Barbaro M, Zeller T. A face is exposed for AOL searcher No. 4417749. 2006, New York Times., http://www.nytimes.com/2006/08/09/technology/09aol.html
    • (2006)
    • Barbaro, M.1    Zeller, T.2
  • 20
    • 79955596688 scopus 로고    scopus 로고
    • AOL moves to increase privacy on search queries.
    • New York Times
    • Zeller T. AOL moves to increase privacy on search queries. 2006, New York Times., http://www.nytimes.com/2006/08/22/technology/22aol.html
    • (2006)
    • Zeller, T.1
  • 21
    • 33845590451 scopus 로고    scopus 로고
    • Reidentification of individuals in Chicago's homicide database: A technical and legal study.
    • Ochoa S, Rasmussen J, Robson C, Salib M. Reidentification of individuals in Chicago's homicide database: A technical and legal study. 2001, Archived at http://www.webcitation.org/5xyAv7j6M., http://groups.csail.mit.edu/mac/classes/6.805/student-papers/spring01-papers/reidentification.doc
    • (2001)
    • Ochoa, S.1    Rasmussen, J.2    Robson, C.3    Salib, M.4
  • 23
    • 0003529621 scopus 로고    scopus 로고
    • Computational disclosure control: A primer on data privacy protection.
    • Massachusetts Institute of Technology, Electrical Engineering and Computer Science department
    • Sweeney L. Computational disclosure control: A primer on data privacy protection. PhD thesis 2001, Massachusetts Institute of Technology, Electrical Engineering and Computer Science department.
    • (2001) PhD thesis
    • Sweeney, L.1
  • 24
    • 79955601516 scopus 로고    scopus 로고
    • The Southern Illinoisan v. Department of Public Health.
    • Appellate Court of Illinois - Fifth District
    • Appellate Court of Illinois - Fifth District The Southern Illinoisan v. Department of Public Health. 2004, Appellate Court of Illinois - Fifth District., http://law.justia.com/cases/illinois/court-of-appeals-fifth-appellate-district/2004/5020836.html
    • (2004)
  • 25
    • 79955586688 scopus 로고    scopus 로고
    • Mike Gordon vs. The Minister of Health: Affidavit of Bill Wilson.
    • Federal Court (Canada)
    • Federal Court (Canada) Mike Gordon vs. The Minister of Health: Affidavit of Bill Wilson. Court File No. T-347-06 2006, Federal Court (Canada).
    • (2006) Court File No. T-347-06
  • 26
    • 65249152887 scopus 로고    scopus 로고
    • Privacy interests in prescription records, part 2: patient privacy.
    • El Emam K, Kosseim P. Privacy interests in prescription records, part 2: patient privacy. IEEE Security Privacy 2009, 7:75-78.
    • (2009) IEEE Security Privacy , vol.7 , pp. 75-78
    • El Emam, K.1    Kosseim, P.2
  • 27
    • 34547779363 scopus 로고    scopus 로고
    • Ethics. Identifiability in genomic research.
    • 10.1126/science.1147699, 17673640
    • Lowrance W, Collins F. Ethics. Identifiability in genomic research. Science 2007, 317:600-602. 10.1126/science.1147699, 17673640.
    • (2007) Science , vol.317 , pp. 600-602
    • Lowrance, W.1    Collins, F.2
  • 28
    • 0034567068 scopus 로고    scopus 로고
    • Determining the identifiability of DNA database entries.
    • Malin B, Sweeney L. Determining the identifiability of DNA database entries. Proc AMIA Symp 2000, 2000:537-541.
    • (2000) Proc AMIA Symp , vol.2000 , pp. 537-541
    • Malin, B.1    Sweeney, L.2
  • 29
    • 78650591265 scopus 로고    scopus 로고
    • Caught you: threats to confidentiality due to the public release of large-scale genetic data sets.
    • 10.1186/1472-6939-11-21, 3022540, 21190545
    • Wjst M. Caught you: threats to confidentiality due to the public release of large-scale genetic data sets. BMC Med Ethics 2010, 11:21. 10.1186/1472-6939-11-21, 3022540, 21190545.
    • (2010) BMC Med Ethics , vol.11 , pp. 21
    • Wjst, M.1
  • 30
    • 34548508913 scopus 로고    scopus 로고
    • Evaluating the state-of-the-art in automatic de-identification.
    • 10.1197/jamia.M2444, 1975792, 17600094
    • Uzuner O, Luo Y, Szolovits P. Evaluating the state-of-the-art in automatic de-identification. J Am Med Inform Assoc 2007, 14:550-563. 10.1197/jamia.M2444, 1975792, 17600094.
    • (2007) J Am Med Inform Assoc , vol.14 , pp. 550-563
    • Uzuner, O.1    Luo, Y.2    Szolovits, P.3
  • 31
    • 34548860412 scopus 로고    scopus 로고
    • Data anonymization practices in clinical research: a descriptive study.
    • Health Canada, Access to Information and Privacy Division
    • El Emam K. Data anonymization practices in clinical research: a descriptive study. 2006, Health Canada, Access to Information and Privacy Division., http://www.ehealthinformation.ca/documents/HealthCanadaAnonymizationReport.pdf
    • (2006)
    • El Emam, K.1
  • 32
    • 79955643248 scopus 로고    scopus 로고
    • Ottawa CMA Holdings, Canadian Medical Association (CMA) Holdings Incorporated
    • Canadian Medical Association (CMA) Holdings Incorporated Deidentification/Anonymization Policy 2009, Ottawa CMA Holdings, Canadian Medical Association (CMA) Holdings Incorporated.
    • (2009) Deidentification/Anonymization Policy
  • 34
    • 76149120487 scopus 로고    scopus 로고
    • Preparing raw clinical data for publications: tuidance for journal editors, authors, and peer reviewers.
    • 10.1136/bmj.c181, 2813427, 20110312
    • Hryanszkiewicz I, Norton M, Vickers A, Altman D. Preparing raw clinical data for publications: tuidance for journal editors, authors, and peer reviewers. BMJ 2010, 340:c181. 10.1136/bmj.c181, 2813427, 20110312.
    • (2010) BMJ , vol.340
    • Hryanszkiewicz, I.1    Norton, M.2    Vickers, A.3    Altman, D.4
  • 36
    • 3042849144 scopus 로고    scopus 로고
    • Genomic research and human subject privacy.
    • 10.1126/science.1095019, 15247459
    • Lin Z, Owen A, Altman R. Genomic research and human subject privacy. Science 2004, 305:183. 10.1126/science.1095019, 15247459.
    • (2004) Science , vol.305 , pp. 183
    • Lin, Z.1    Owen, A.2    Altman, R.3
  • 37
    • 50849101381 scopus 로고    scopus 로고
    • Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays.
    • 10.1371/journal.pgen.1000167, 2516199, 18769715
    • Homer N, Szelinger S, Redman M, Duggan D, Tembe W, Muehling J, Pearson J, Stephan D, Nelson S, Craig D. Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays. PLoS Genet 2008, 4:e1000167. 10.1371/journal.pgen.1000167, 2516199, 18769715.
    • (2008) PLoS Genet , vol.4
    • Homer, N.1    Szelinger, S.2    Redman, M.3    Duggan, D.4    Tembe, W.5    Muehling, J.6    Pearson, J.7    Stephan, D.8    Nelson, S.9    Craig, D.10
  • 39
    • 77955283376 scopus 로고    scopus 로고
    • The disclosure of diagnosis codes can breach research participants' privacy.
    • Loukides G, Denny J, Malin B. The disclosure of diagnosis codes can breach research participants' privacy. J Am Med Inform Assoc 2010, 17:322-327.
    • (2010) J Am Med Inform Assoc , vol.17 , pp. 322-327
    • Loukides, G.1    Denny, J.2    Malin, B.3
  • 42
    • 84995047878 scopus 로고
    • On identification disclosure and prediction disclosure for microdata.
    • Skinner CJ. On identification disclosure and prediction disclosure for microdata. Statistica Neerlandica 1992, 46:21-32.
    • (1992) Statistica Neerlandica , vol.46 , pp. 21-32
    • Skinner, C.J.1
  • 44
    • 0035649152 scopus 로고    scopus 로고
    • Proposals for 2001 samples of anonymized records: an assessment of disclosure risk.
    • Dale A, Elliot M. Proposals for 2001 samples of anonymized records: an assessment of disclosure risk. J R Stat Soc A (Statistics in Society) 2001, 164:427-447.
    • (2001) J R Stat Soc A (Statistics in Society) , vol.164 , pp. 427-447
    • Dale, A.1    Elliot, M.2
  • 46
    • 0001410581 scopus 로고
    • Statistical disclosure limitation practices of United States statistical agencies.
    • Jabine T. Statistical disclosure limitation practices of United States statistical agencies. J Official Stat 1993, 9:427-454.
    • (1993) J Official Stat , vol.9 , pp. 427-454
    • Jabine, T.1
  • 47
    • 34547642169 scopus 로고    scopus 로고
    • Evaluation of the effectiveness of posters to provide information to patients about a DNA database and their opportunity to opt out.
    • Pulley J, Brace M, Bernard G, Masys D. Evaluation of the effectiveness of posters to provide information to patients about a DNA database and their opportunity to opt out. Cell Tissue Banking 2007, 8:233-241.
    • (2007) Cell Tissue Banking , vol.8 , pp. 233-241
    • Pulley, J.1    Brace, M.2    Bernard, G.3    Masys, D.4
  • 48
    • 77952923929 scopus 로고    scopus 로고
    • Risk-based de-identification of health data.
    • El Emam K. Risk-based de-identification of health data. IEEE Security Privacy 2010, 8:64-67.
    • (2010) IEEE Security Privacy , vol.8 , pp. 64-67
    • El Emam, K.1
  • 49
    • 69549110786 scopus 로고
    • Working paper 22: Report on statistical disclosure control.
    • Statistical Policy Office, Office of Information and Regulatory Affairs, Office of Management and Budget, Subcommittee on Disclosure Limitation Methodology - Federal Committee on Statistical Methodology
    • Subcommittee on Disclosure Limitation Methodology - Federal Committee on Statistical Methodology Working paper 22: Report on statistical disclosure control. 1994, Statistical Policy Office, Office of Information and Regulatory Affairs, Office of Management and Budget, Subcommittee on Disclosure Limitation Methodology - Federal Committee on Statistical Methodology., http://www.fcsm.gov/working-papers/wp22.html
    • (1994)
  • 50
    • 79955640077 scopus 로고    scopus 로고
    • Manitoba Center for Health Policy Privacy code.
    • Manitoba Center for Health Policy
    • Manitoba Center for Health Policy Manitoba Center for Health Policy Privacy code. 2002, Manitoba Center for Health Policy., http://umanitoba.ca/faculties/medicine/units/mchp/media_room/media/MCHP_privacy_code.pdf
    • (2002)
  • 51
    • 79955577855 scopus 로고    scopus 로고
    • Cancer Care Ontario: Cancer Care Ontario Data Use and Disclosure Policy. 2005,Updated 2008.
    • Cancer Care Ontario: Cancer Care Ontario Data Use and Disclosure Policy. 2005,Updated 2008. , http://www.cancercare.on.ca/common/pages/UserFile.aspx?fileId=13234
  • 52
    • 69549123014 scopus 로고    scopus 로고
    • Saskatoon Health Quality Council, Health Quality Council
    • Health Quality Council Security and Confidentiality Policies and Procedures 2004, Saskatoon Health Quality Council, Health Quality Council.
    • (2004) Security and Confidentiality Policies and Procedures
  • 53
    • 67651145909 scopus 로고    scopus 로고
    • Saskatoon Health Quality Council, Health Quality Council
    • Health Quality Council Privacy code 2004, Saskatoon Health Quality Council, Health Quality Council.
    • (2004) Privacy code
  • 54
    • 70349146001 scopus 로고    scopus 로고
    • Therapeutic abortion survey.
    • Statistics Canada
    • Statistics Canada Therapeutic abortion survey. 2007, Archived at http://www.webcitation.org/5VkcHLeQw, Statistics Canada., http://www.statcan.ca/cgi-bin/imdb/p2SV.pl?Function=getSurvey&SDDS=3209&lang=en&db=IMDB&dbg=f&adm=8&dis=2#b9
    • (2007)
  • 55
    • 80053255314 scopus 로고    scopus 로고
    • Office of the Information and Privacy Commissioner of British Columbia: Order No. 261-1998.
    • Office of the Information and Privacy Commissioner of British Columbia: Order No. 261-1998. 1998, http://www.oipc.bc.ca/orders/1998/Order261.html
    • (1998)
  • 56
    • 84887015592 scopus 로고
    • Order P-644.
    • Office of the Information and Privacy Commissioner of Ontario
    • Office of the Information and Privacy Commissioner of Ontario Order P-644. 1994, Archived at http://www.webcitation.org/5inrVJyQp, Office of the Information and Privacy Commissioner of Ontario., http://www.ipc.on.ca/images/Findings/Attached_PDF/P-644.pdf
    • (1994)
  • 57
    • 0018160897 scopus 로고
    • Access to social security microdata files for research and statistical purposes.
    • Alexander L, Jabine T. Access to social security microdata files for research and statistical purposes. Social Security Bulletin 1978, 41:3-17.
    • (1978) Social Security Bulletin , vol.41 , pp. 3-17
    • Alexander, L.1    Jabine, T.2
  • 58
    • 79955616123 scopus 로고
    • Corporate Policy 3-1-21.
    • [Available on request], Ministry of Health and Long Term care (Ontario)
    • Ministry of Health and Long Term care (Ontario) Corporate Policy 3-1-21. 1984, [Available on request], Ministry of Health and Long Term care (Ontario).
    • (1984)
  • 59
    • 0003602434 scopus 로고
    • Private Lives and Public Policies: Confidentiality and Accessibility of Government Statistics.
    • Washington DC: National Academies Press
    • Duncan G, Jabine T, de Wolf S. Private Lives and Public Policies: Confidentiality and Accessibility of Government Statistics. 1993, Washington DC: National Academies Press.
    • (1993)
    • Duncan, G.1    Jabine, T.2    de Wolf, S.3
  • 60
    • 35048852762 scopus 로고    scopus 로고
    • A view on statistical disclosure control for microdata.
    • de Waal A, Willenborg L. A view on statistical disclosure control for microdata. Survey Methodol 1996, 22:95-103.
    • (1996) Survey Methodol , vol.22 , pp. 95-103
    • de Waal, A.1    Willenborg, L.2
  • 61
    • 79955607823 scopus 로고    scopus 로고
    • Chenard v. Ministere de l'agriculture, des pecheries et de l'alimentation (141).
    • [Available on request], Office of the Privacy Commissioner of Quebec (CAI)
    • Office of the Privacy Commissioner of Quebec (CAI) Chenard v. Ministere de l'agriculture, des pecheries et de l'alimentation (141). CAI 141 1997, [Available on request], Office of the Privacy Commissioner of Quebec (CAI).
    • (1997) CAI 141
  • 62
    • 3042682152 scopus 로고    scopus 로고
    • Washington DC US Department of Education, National Center for Education Statistics
    • National Center for Education Statistics NCES Statistical Standards 2003, Washington DC US Department of Education, National Center for Education Statistics.
    • (2003) NCES Statistical Standards
  • 63
    • 79955595588 scopus 로고    scopus 로고
    • Report to the Secretary of the US Department of Health and Human Services on Enhanced Protections for Uses of Health Data: A Stewardship Framework for "Secondary Uses" of Electronically Collected and Transmitted Health Data.
    • National Committee on Vital and Health Statistics
    • National Committee on Vital and Health Statistics Report to the Secretary of the US Department of Health and Human Services on Enhanced Protections for Uses of Health Data: A Stewardship Framework for "Secondary Uses" of Electronically Collected and Transmitted Health Data. V.101907(15) 2007, National Committee on Vital and Health Statistics.
    • (2007) V.101907(15)
  • 64
    • 79955594834 scopus 로고    scopus 로고
    • Data sharing under HIPAA: 12 years later.
    • Workshop on the HIPAA Privacy Rule's De-Identification Standard
    • Sweeney L. Data sharing under HIPAA: 12 years later. 2010, Workshop on the HIPAA Privacy Rule's De-Identification Standard., http://www.hhshipaaprivacy.com/
    • (2010)
    • Sweeney, L.1
  • 65
    • 80052967781 scopus 로고    scopus 로고
    • The Safe Harbor method of de-identification: an empirical test.
    • Fourth National HIPAA Summit West
    • Lafky D. The Safe Harbor method of de-identification: an empirical test. 2010, Fourth National HIPAA Summit West, Archived at http://www.webcitation.org/5xA2HIOmj., http://www.ehcca.com/presentations/HIPAAWest4/lafky_2.pdf
    • (2010)
    • Lafky, D.1
  • 66
    • 0001165108 scopus 로고
    • Procedures for restricted data access.
    • Jabine T. Procedures for restricted data access. J Official Stat 1993, 9:537-589.
    • (1993) J Official Stat , vol.9 , pp. 537-589
    • Jabine, T.1
  • 67
    • 77950527202 scopus 로고    scopus 로고
    • A method for managing re-identification risk from small geographic areas in Canada.
    • 10.1186/1472-6947-10-18, 2858714, 20361870
    • El Emam K, Brown A, AbdelMalik P, Neisa A, Walker M, Bottomley J, Roffey T. A method for managing re-identification risk from small geographic areas in Canada. BMC Med Inform Decis Mak 2010, 10:18. 10.1186/1472-6947-10-18, 2858714, 20361870.
    • (2010) BMC Med Inform Decis Mak , vol.10 , pp. 18
    • El Emam, K.1    Brown, A.2    AbdelMalik, P.3    Neisa, A.4    Walker, M.5    Bottomley, J.6    Roffey, T.7
  • 69
    • 0036363092 scopus 로고    scopus 로고
    • A security architecture for query tools used to access large biomedical databases.
    • Murphy S, Chueh H. A security architecture for query tools used to access large biomedical databases. Proc AMIA Symp 2002, 552-556., http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2244204/pdf/procamiasymp00001-0593.pdf
    • (2002) Proc AMIA Symp , pp. 552-556
    • Murphy, S.1    Chueh, H.2
  • 71
    • 79955572882 scopus 로고    scopus 로고
    • A survey of challenges and solutions for privacy in clinical genomics data mining.
    • New York: Chapman & Hall/CRC Press, Bonchi F, Ferrari E
    • Malin B, Cassa C, Kantarcioglu M. A survey of challenges and solutions for privacy in clinical genomics data mining. Privacy-Preserving Knowledge Discovery 2011, New York: Chapman & Hall/CRC Press, Bonchi F, Ferrari E.
    • (2011) Privacy-Preserving Knowledge Discovery
    • Malin, B.1    Cassa, C.2    Kantarcioglu, M.3
  • 72
    • 77952904956 scopus 로고    scopus 로고
    • An overview of techniques for de-identifying personal health information.
    • Access to Information and Privacy Division of Health Canada
    • El Emam K, Fineberg A. An overview of techniques for de-identifying personal health information. 2009, Access to Information and Privacy Division of Health Canada., http://papers.ssrn.com/sol3/papers.cfm?abstract_id=1456490
    • (2009)
    • El Emam, K.1    Fineberg, A.2
  • 73
    • 77953640249 scopus 로고    scopus 로고
    • De-identification of primary care electronic medical records free-text data in Ontario, Canada.
    • 10.1186/1472-6947-10-35, 2907300, 20565894
    • Tu K, Klein-Geltink J, Mitiku T, Mihai C, Martin J. De-identification of primary care electronic medical records free-text data in Ontario, Canada. BMC Med Inform Decis Mak 2010, 10:35. 10.1186/1472-6947-10-35, 2907300, 20565894.
    • (2010) BMC Med Inform Decis Mak , vol.10 , pp. 35
    • Tu, K.1    Klein-Geltink, J.2    Mitiku, T.3    Mihai, C.4    Martin, J.5
  • 74
    • 77951623059 scopus 로고    scopus 로고
    • Pan-Canadian de-identification guidelines for personal health information.
    • Privacy Commissioner of Canada
    • El Emam K, Jonker E, Sams S, Neri E, Neisa A, Gao T, Chowdhury S. Pan-Canadian de-identification guidelines for personal health information. 2007, Privacy Commissioner of Canada., http://www.ehealthinformation.ca/documents/OPCReportv11.pdf
    • (2007)
    • El Emam, K.1    Jonker, E.2    Sams, S.3    Neri, E.4    Neisa, A.5    Gao, T.6    Chowdhury, S.7
  • 75
    • 0036357125 scopus 로고    scopus 로고
    • Using binning to maintain confidentiality of medical data.
    • Lin Z, Hewett M, Altman R. Using binning to maintain confidentiality of medical data. Proc AMIA Symp 2002, 454-458., http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2244360/pdf/procamiasymp00001-0495.pdf
    • (2002) Proc AMIA Symp , pp. 454-458
    • Lin, Z.1    Hewett, M.2    Altman, R.3
  • 76
    • 29244467725 scopus 로고    scopus 로고
    • Protecting genomic sequence anonymity with generalization lattices.
    • Malin B. Protecting genomic sequence anonymity with generalization lattices. Methods Inf Med 2005, 44:687-692.
    • (2005) Methods Inf Med , vol.44 , pp. 687-692
    • Malin, B.1
  • 77
    • 77952390550 scopus 로고    scopus 로고
    • Anonymization of electronic medical records for validating genome-wide association studies.
    • 10.1073/pnas.0911686107, 2867915, 20385806
    • Loukides G, Gkoulalas-Divanis A, Malin B. Anonymization of electronic medical records for validating genome-wide association studies. Proc Natl Acad Sci USA 2010, 107:7898-7903. 10.1073/pnas.0911686107, 2867915, 20385806.
    • (2010) Proc Natl Acad Sci USA , vol.107 , pp. 7898-7903
    • Loukides, G.1    Gkoulalas-Divanis, A.2    Malin, B.3
  • 79
    • 84880068132 scopus 로고    scopus 로고
    • Tools for De-Identification of Personal Health Information.
    • Canada Health Infoway
    • Fraser R, Willison D. Tools for De-Identification of Personal Health Information. 2009, Canada Health Infoway, Archived at http://www.webcitation.org/5xA2KBoMm., http://www2.infoway-inforoute.ca/Documents/Tools_for_De-identification_EN_FINAL.pdf
    • (2009)
    • Fraser, R.1    Willison, D.2
  • 80
    • 79955626894 scopus 로고    scopus 로고
    • 'Best Practice' Guidelines for Managing the Disclosure of De-Identified Health Information.
    • Health System Use Technical Advisory Committee - Data De-Identification Working Group
    • Health System Use Technical Advisory Committee - Data De-Identification Working Group 'Best Practice' Guidelines for Managing the Disclosure of De-Identified Health Information. 2011, Archived at http://www.webcitation.org/5x9w6635d, Health System Use Technical Advisory Committee - Data De-Identification Working Group., http://www.ehealthinformation.ca/documents/Data%20De-identification%20Best%20Practice%20Guidelines.pdf
    • (2011)
  • 81
    • 77955080124 scopus 로고    scopus 로고
    • Automatic de-identification of textual documents in the electronic health record: a review of recent research.
    • 10.1186/1471-2288-10-70, 2923159, 20678228
    • Meystre S, Friedlin F, South B, Shen S, Samore M. Automatic de-identification of textual documents in the electronic health record: a review of recent research. BMC Med Res Methodol 2010, 10:70. 10.1186/1471-2288-10-70, 2923159, 20678228.
    • (2010) BMC Med Res Methodol , vol.10 , pp. 70
    • Meystre, S.1    Friedlin, F.2    South, B.3    Shen, S.4    Samore, M.5
  • 83
    • 58349109653 scopus 로고    scopus 로고
    • On Jim Watson's APOE status: genetic information is hard to hide.
    • 2986051, 18941475
    • Nyhold D, Yu C, Visscher P. On Jim Watson's APOE status: genetic information is hard to hide. Eur J Hum Genet 2008, 17:147-149. 2986051, 18941475.
    • (2008) Eur J Hum Genet , vol.17 , pp. 147-149
    • Nyhold, D.1    Yu, C.2    Visscher, P.3
  • 84
    • 34748885498 scopus 로고    scopus 로고
    • Re-identification of familial database records.
    • Malin B. Re-identification of familial database records. Proc AMIA Symp 2006, 524-528., http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1839550/pdf/AMIA2006_0524.pdf
    • (2006) Proc AMIA Symp , pp. 524-528
    • Malin, B.1
  • 85
    • 66749192419 scopus 로고    scopus 로고
    • My sister's keeper ? Genomic research and the identifiability of siblings.
    • 10.1186/1755-8794-1-32, 2503988, 18655711
    • Cassa C, Schmidt B, Kohane I, Mandl K. My sister's keeper ? Genomic research and the identifiability of siblings. BMC Med Genomics 2008, 1:32. 10.1186/1755-8794-1-32, 2503988, 18655711.
    • (2008) BMC Med Genomics , vol.1 , pp. 32
    • Cassa, C.1    Schmidt, B.2    Kohane, I.3    Mandl, K.4
  • 86
    • 33744790632 scopus 로고    scopus 로고
    • Finding criminals through DNA of their relatives.
    • 10.1126/science.1122655, 16690817
    • Bieber F, Brenner C, Lazer D. Finding criminals through DNA of their relatives. Science 2006, 312:1315-1316. 10.1126/science.1122655, 16690817.
    • (2006) Science , vol.312 , pp. 1315-1316
    • Bieber, F.1    Brenner, C.2    Lazer, D.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.