Privacy protection versus cluster detection in spatial epidemiology

American Journal of Public Health

Volumn 96, Issue 11, 2006, Pages 2002-2008

  Olson, Karen L ^a,b   Grannis, Shaun J ^c   Mandl, Kenneth D ^a,b  

^a BOSTON CHILDREN S HOSPITAL   (United States)

^b HARVARD MEDICAL SCHOOL   (United States)

^c INDIANA UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ALGORITHM; AMBULATORY MONITORING; ARTICLE; CLUSTER ANALYSIS; CONFIDENTIALITY; EMERGENCY WARD; EPIDEMIC; HEALTH SURVEY; PRIVACY; SIMULATION;

ALGORITHMS; CENSUSES; CLUSTER ANALYSIS; COMPUTER SIMULATION; CONFIDENTIALITY; DISEASE OUTBREAKS; EMERGENCY SERVICE, HOSPITAL; GEOGRAPHIC INFORMATION SYSTEMS; GEOGRAPHY; HUMANS; POSTAL SERVICE; PUBLIC HEALTH INFORMATICS; SENTINEL SURVEILLANCE;

EID: 33750490794     PISSN: 00900036     EISSN: None     Source Type: Journal    
DOI: 10.2105/AJPH.2005.069526     Document Type: Article

References (30)

1. Mandl KD, Overhage JM, Wagner MM, et al. Implementing syndromic surveillance: a practical guide informed by the early experience. J Am Med Inform Assoc. 2004;11:141-150.
2. Henning KJ. What is syndromic surveillance? MMWR Morb Mortal Wkly Rep. 2004;53(suppl):5-11.
3. Armstrong MP, Rushton G, Zimmerman DL. Geographically masking health data to preserve confidentiality. Stat Med. 1999;18:497-525.
4. Drociuk D, Gibson J, Hodge J, Jr. Health information privacy and syndromic surveillance systems. MMWR Morb Mortal Wkly Rep. 2004;53(suppl):221- 225.
5. Rushton G, Elmes G, McMaster R. Considerations for improving geographic information system research in public health. USISA J. 2000;12:31-49.
6. Lober WB, Karras BT, Wagner MM, et al. Round-table on bioterrorism detection: information system-based surveillance. J Am Med Inform Assoc. 2002;9:105-115.
7. Heffernan R, Mostashari F, Das D, Karpati A, Kulldorff M, Weiss D. Syndromic surveillance in public health practice, New York City. Emerg Infect Dis. 2004;10:858-864.
8. Tsui F-C, Espino JU, Dato VM, Gesteland PH, Hutman J, Wagner MM. Technical description of RODS: a real-time public health surveillance system. J Am Med Inform Assoc. 2003;10:399-408.
9. Lombardo JS, Burkom H, Pavlin J. ESSENCE II and the framework for evaluating syndromic surveillance systems. MMWR Morb Mortal Wkly Rep. 2004;53(suppl):159-165.
10. Platt R, Bocchino C, Caldwell B, et al. Syndromic surveillance using minimum transfer of identifiable data: the example of the National Bioterrorism Syndromic Surveillance Demonstration Program. J Urban Health. 2003;80(suppl 1):i25-i31.
11. Bradley CA, Rolka H, Walker D, Loonsk J. BioSense: implementation of a national early event detection and situational awareness system. MMWR Morb Mortal Wkly Rep. 2005;54(suppl):11-19.
12. Jacquez GM, Jacquez JA. Disease clustering for uncertain locations. In: Lawson A, Biggeri A, Böhning D, Lesaffre E, Viel J-F, Bertollini R, eds. Disease Mapping and Risk Assessment for Public Health. London, England: John Wiley & Sons Inc; 1999:151-168.
13. Jacquez G. Current practices in the spatial analysis of cancer: flies in the ointment. Int J Health Geogr. 2004;3:22.
14. Centers for Disease Control and Prevention. HIPAA privacy rule and public health: guidance from CDC and the US Department of Health and Human Services. MMWR Morb Mortal Wkly Rep. 2003;52 (suppl):1-20.
15. Gregorio DI, Dechello LM, Samociuk H, Kulldorff M. Lumping or splitting: seeking the preferred areal unit for health geography studies. Int J Health Geogr. 2005;4:6.
16. Gregorio DI, Kulldorff M, Barry L, Samociuk H. Geographic differences in invasive and in situ breast cancer incidence according to precise geographic coordinates, Connecticut 1991-95. Int J Cancer. 2002;100:194-198.
17. Sweeney L. k-anonymity: A model for protecting privacy. Int J Uncertain Fuzziness Knowledge Based Syst. 2002;10:557-570.
18. Malin B, Sweeney L. How (not) to protect genomic data privacy in a distributed network: using trail reidentification to evaluate and design anonymity protection systems. J Biomed Inform. 2004;37:179-192.
19. Kamel Boulos MN, Cai Q, Padget JA, Rushton G. Using software agents to preserve individual health data confidentiality in microscale geographical analyses. J Biomed Inform. 2006;39:160-170.
20. Mandl KD, Reis BY, Cassa C. Measuring outbreak-detection performance by using controlled feature set simulations. MMWR Morb Mortal Wkly Rep. 2004;53(suppl):130-136.
21. Olson KL, Bonetti M, Pagano M, Mandl KD. Real time spatial cluster detection using interpoint distances among precise patient locations. BMC Med Inform Decis Mak. 2005;5:19.
22. Kulldorff M. A spatial scan statistic. Commun Stat Theory Methods. 1997;26:1481-1496.
23. Kulldorff M, Heffernan R, Hartman J, Assuncao R, Mostashari F. A space-time permutation scan statistic for disease outbreak detection. PLoS Med. 2005;2:e59.
24. Beitel AJ, Olson KL, Reis BY, Mandl KD. Use of emergency department chief complaint and diagnostic codes for identifying respiratory illness in a pediatric population. Pediatr Emerg Care. 2004;20:355-360.
25. Cassa C, Olson KL, Mandl KD. A software tool for creating simulated outbreaks to benchmark surveillance systems. BMC Med Inform Decis Mak. 2005;5:22.
26. Kulldorff M. SaTScan Version 5.0: Software for the Spatial and Space-Time Scan Statistics. Silver Spring, Md: Information Management Services; 2004.
27. Rushton G. Public health, GIS, and spatial analytic tools. Annu Rev Public Health. 2003;24:43-56.
28. Cassa CA, Grannis SJ, Overhage JM, Mandl KD. A context-sensitive approach to anonymizing spatial surveillance data: impact on outbreak detection. J Am Med Inform Assoc. 2006;13:160-165.
29. Kwan M-P, Casas I, Schmitz BC. Protection of geoprivacy and accuracy of spatial information: How effective are geographical masks? Cartographica. 2004;39:15-28.
30. Leitner M, Curtis A. Cartographic guidelines for geographically masking the locations of confidential point data. Cartographic Perspect. 2004;49:22-39.