Assessments of the extent to which health-care providers involve patients in decision making: A systematic review of studies using the OPTION instrument

Health Expectations

Volumn 18, Issue 4, 2015, Pages 542-561

  Couët, Nicolas ^a   Desroches, Sophie ^a,b   Robitaille, Hubert ^c   Vaillancourt, Hugues ^b   Leblanc, Annie ^d   Turcotte, Stéphane ^c   Elwyn, Glyn ^e   Légaré, France ^a,c  

^a UNIVERSITÉ LAVAL   (Canada)

^b LAVAL UNIVERSITY   (Canada)

^c Université Laval   (Canada)

^d MAYO CLINIC   (United States)

^e DARTMOUTH INSTITUTE FOR HEALTH POLICY AND CLINICAL PRACTICE   (United States)

Author keywords

Clinician patient communication; Implementation; OPTION instrument; Patient involvement; Shared decision making

Indexed keywords

AGE; DECISION MAKING; DOCTOR PATIENT RELATION; HUMAN; INTERPERSONAL COMMUNICATION; PATIENT PARTICIPATION; PATIENT PREFERENCE; PSYCHOMETRY; SEX DIFFERENCE; STATISTICS AND NUMERICAL DATA; TIME FACTOR;

AGE FACTORS; COMMUNICATION; DECISION MAKING; HUMANS; PATIENT PARTICIPATION; PATIENT PREFERENCE; PHYSICIAN-PATIENT RELATIONS; PSYCHOMETRICS; SEX FACTORS; TIME FACTORS;

EID: 84937519105     PISSN: 13696513     EISSN: 13697625     Source Type: Journal    
DOI: 10.1111/hex.12054     Document Type: Article

References (77)

1. Weston WW. Informed and shared decision-making: the crux of patient-centred care. Canadian Medical Association Journal, 2001; 165: 438-439.
2. Charles C, Gafni A, Whelan T. Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Social Science & Medicine, 1997; 44: 681-692.
3. Towle A, Godolphin W. Framework for teaching and learning informed shared decision making. BMJ: British Medical Journal, 1999; 319: 766-769.
4. Sandman L, Munthe C. Shared decision making, paternalism and patient choice. Health Care Analysis, 2010; 18: 60-84.
5. Kon AA. The shared decision-making continuum. JAMA: The Journal of the American Medical Association, 2010; 304: 903-904.
6. Street RL Jr, Makoul G, Arora NK, Epstein RM. How does communication heal? Pathways linking clinician-patient communication to health outcomes. Patient Education and Counseling, 2009; 74: 295.
7. Street RL, Elwyn G, Epstein RM. Patient preferences and healthcare outcomes: an ecological perspective. Expert Review of Pharmacoeconomics & Outcomes Research, 2012; 12: 167-180.
8. Wennberg JE. An Agenda for Change: Improving Quality and Curbing Health Care Spending: Opportunities for the Congress and the Obama Administration. Lebanon, NH: Dartmouth Institute for Health Policy and Clinical Practice, 2008.
9. Mulley A, Trimble C, Elwyn G. Patients' Preferences Matter: Stop the Silent Misdiagnosis. London: King's Fund, 2012.
10. Mulley AG, Trimble C, Elwyn G. Stop the silent misdiagnosis: patients' preferences matter. BMJ: British Medical Journal, 2012; 345: e6572-e6575.
11. Stiggelbout A, Weijden T, Wit MPTD et al. Shared decision making: really putting patients at the centre of healthcare. BMJ: British Medical Journal, 2012; 344: e256-e259.
12. Chewning B, Bylund CL, Shah B, Arora NK, Gueguen JA, Makoul G. Patient preferences for shared decisions: a systematic review. Patient Education and Counseling, 2012; 86: 9-18.
13. Williams N, Fleming C. Consumer and Provider Perspectives on Shared Decision Making: A Systematic Review of the Peer-Reviewed Literature. Washington, DC: Center on Health Care Effectiveness: Mathematica Policy Research, 2011.
14. Stevenson FA, Cox K, Britten N, Dundar Y. A systematic review of the research on communication between patients and health care professionals about medicines: the consequences for concordance. Health Expectations, 2004; 7: 235-245.
15. Tariman J, Berry D, Cochrane B, Doorenbos A, Schepp K. Preferred and actual participation roles during health care decision making in persons with cancer: a systematic review. Annals of Oncology, 2010; 21: 1145-1151.
16. Hubbard G, Kidd L, Donaghy E. Preferences for involvement in treatment decision making of patients with cancer: a review of the literature. European Journal of Oncology Nursing, 2008; 12: 299-318.
17. Hamann J, Mendel R, Bühner M et al. How should patients behave to facilitate shared decision making - the doctors' view. Health Expectations, 2011; 15: 360-366.
18. Van Den Brink-Muinen A, Van Dulmen SM, De Haes HCJM, Visser AP, Schellevis FG, Bensing JM. Has patients' involvement in the decision-making process changed over time? Health Expectations, 2006; 9: 333-342.
19. Elwyn G, Edwards A, Mowle S et al. Measuring the involvement of patients in shared decision-making: a systematic review of instruments. Patient Education and Counseling, 2001; 43: 5-22.
20. Dy SM. Instruments for evaluating shared medical decision making - A structured literature review. Medical Care Research and Review, 2007; 64: 623-649.
21. Scholl I, Koelewijn-van Loon M, Sepucha K et al. Measurement of shared decision making - a review of instruments. Zeitschrift fur Evidenz, Fortbildung und Qualitat im Gesundheitswesen, 2011; 105: 313-324.
22. Elwyn G, Hutchings H, Edwards A et al. The OPTION scale: measuring the extent that clinicians involve patients in decision-making tasks. Health Expectations, 2005; 8: 34-42.
23. Elwyn G, Edwards A, Wensing M, Hood K, Atwell C, Grol R. Shared decision making: developing the OPTION scale for measuring patient involvement. Quality & Safety in Health Care, 2003; 12: 93-99.
24. Légaré F, Cauchon M, Labrecque M. French version OPTION: observer l'implication du patient. In: Elwyn G, Edwards A, Wensing M, Grol R (eds) Shared Decision Making Measurement Using the OPTION Instrument. Cardiff, Wales: Cardiff University, 2005: 97-98.
25. Hirsch O, Keller H, Müller Engelmann M, Gutenbrunner MH, Krones T, Donner Banzhoff N. Reliability and validity of the German version of the OPTION scale. Health Expectations, 2012; 15: 379-388.
26. Goss C, Fontanesi S, Mazzi MA, Del Piccolo L, Rimondini M. The assessment of patient involvement across consultation. The Italian version of the option scale. Epidemiologia E Psichiatria Sociale, 2007; 16: 339-349.
27. Goss C, Fontanesi S, Mazzi MA et al. Shared decision making: the reliability of the OPTION scale in Italy. Patient Education and Counseling, 2007; 66: 296-302.
28. Pass M, Belkora J, Moore D, Volz S, Sepucha K. Patient and observer ratings of physician shared decision making behaviors in breast cancer consultations. Patient Education and Counseling, 2012; 88: 93-99.
29. Clayman ML, Makoul G, Harper MM, Koby DG, Williams AR. Development of a shared decision making coding system for analysis of patient-healthcare provider encounters. Patient Education and Counseling, 2012; 88: 367-372.
30. Guimond P, Bunn H, O'Connor AM et al. Validation of a tool to assess health practitioners' decision support and communication skills. Patient Education and Counseling, 2003; 50: 235-245.
31. Singh S, Butow P, Charles M, Tattersall MHN. Shared decision making in oncology: assessing oncologist behaviour in consultations in which adjuvant therapy is considered after primary surgical treatment. Health Expectations, 2010; 13: 244-257.
32. Kasper J, Hoffmann F, Heesen C, Köpke S, Geiger F. Completing the third person's perspective on patients' involvement in medical decision making-approaching the full picture. Zeitschrift fur Evidenz, Fortbildung und Qualitat im Gesundheitswesen, 2012; 106: 257-283.
33. Kasper J, Heesen C, Köpke S, Fulcher G, Geiger F. Patients' and observers' perceptions of involvement differ. Validation study on inter-relating measures for shared decision making. PLoS ONE, 2011; 6: e26255.
34. Nicolai J, Moshagen M, Eich W, Bieber C. The OPTION scale for the assessment of shared decision making (SDM): methodological issues. Zeitschrift fur Evidenz, Fortbildung und Qualitat im Gesundheitswesen, 2012; 106: 264-271.
35. Brown RF, Butow PN, Juraskova I et al. Sharing decisions in breast cancer care: development of the decision analysis system for oncology (DAS-O) to identify shared decision making during treatment consultations. Health Expectations, 2011; 14: 29-37.
36. Butow P, Juraskova I, Chang S, Lopez AL, Brown R, Bernhard J. Shared decision making coding systems: how do they compare in the oncology context? Patient Education and Counseling, 2010; 78: 261-268.
37. Smith A, Juraskova I, Butow P et al. Sharing vs. caring-the relative impact of sharing decisions versus managing emotions on patient outcomes. Patient Education and Counseling, 2011; 82: 233-239.
38. Knapp A. Partizipative Entscheidungsfindung in der hausärztlichen Versorgung des Diabetes mellitus Type 2: das Bedürfnis nach Beteiligung und die tatsächliche Realisierung, Thesis. Albert-Ludwig-Üniversität Freiburg, 2010.
39. Elwyn G, Edwards A, Hood K et al. Achieving involvement: process outcomes from a cluster randomized trial of shared decision making skill development and use of risk communication aids in general practice. Family Practice, 2004; 21: 337.
40. Kindler CH, Szirt L, Sommer D, Hausler R, Langewitz W. A quantitative analysis of anaesthetist-patient communication during the pre-operative visit. Anaesthesia, 2005; 60: 53-59.
41. Edwards A, Elwyn G. Inside the black box of shared decision making: distinguishing between the process of involvement and who makes the decision. Health Expectations, 2006; 9: 307-320.
42. Loh A, Simon D, Hennig K, Hennig B, Härter M, Elwyn G. The assessment of depressive patients' involvement in decision making in audio-taped primary care consultations. Patient Education and Counseling, 2006; 63: 314-318.
43. Siriwardena AN, Edwards AGK, Campion P, Freeman A, Elwyn G. Involve the patient and pass the MRCGP: investigating shared decision making in a consulting skills examination using a validated instrument. British Journal of General Practice, 2006; 56: 857-862.
44. Goossensen A, Zijlstra P, Koopmanschap M. Measuring shared decision making processes in psychiatry: skills versus patient satisfaction. Patient Education and Counseling, 2007; 67: 50-56.
45. Goss C, Moretti F, Mazzi MA, Del Piccolo L, Rimondini M, Zimmermann C. Involving patients in decisions during psychiatric consultations. British Journal of Psychiatry, 2008; 193: 416-421.
46. Weiss MC, Peters TJ. Measuring shared decision making in the consultation: a comparison of the OPTION and Informed Decision Making instruments. Patient Education and Counseling, 2008; 70: 79-86.
47. Young HN, Bell RA, Epstein RM, Feldman MD, Kravitz RL. Physicians' shared decision-making behaviors in depression care. Archives of Internal Medicine, 2008; 168: 1404-1408.
48. Mullan RJ, Montori VM, Shah ND et al. The diabetes mellitus medication choice decision aid: a randomized trial. Archives of Internal Medicine, 2009; 169: 1560-1568.
49. Burton D, Blundell N, Jones M, Fraser A, Elwyn G. Shared decision-making in cardiology: do patients want it and do doctors provide it? Patient Education and Counseling, 2010; 80: 173-179.
50. Gagnon S, Labrecque M, Njoya M, Rousseau F, St-Jacques S, Légaré F. How much do family physicians involve pregnant women in decisions about prenatal screening for Down syndrome? Prenatal Diagnosis, 2010; 30: 115-121.
51. McKinstry B, Hammersley V, Burton C et al. The quality, safety and content of telephone and face-to-face consultations: a comparative study. Quality & Safety in Health Care, 2010; 19: 298-303.
52. Montori VM, Shah ND, Pencille LJ et al. Use of a decision aid to improve treatment decisions in osteoporosis: the osteoporosis choice randomized trial. American Journal of Medicine, 2011; 124: 549-556.
53. Politi MC, Clark MA, Ombao H, Dizon D, Elwyn G. Communicating uncertainty can lead to less decision satisfaction: a necessary cost of involving patients in shared decision making? Health Expectations, 2011; 14: 84-91.
54. Weber H, Nübling M, Szirt L, Aldorf K, Stolz A. Projekt AEG 2004/Aufnahme- und Entlassungsgespräche/Eine Studie zum Kommunicationsverhalten von Pflegenden des Universitätsspitals Basel. Basel: Universitätsspital Basel, 2006.
55. Langseth MS, Shepherd E, Thomson R, Lord S. Quality of decision making is related to decision outcome for patients with cardiac arrhythmia. Patient Education and Counseling, 2012; 87: 49-53.
56. Sonntag U, Wiesner J, Fahrenkrog S, Renneberg B, Braun V, Heintze C. Motivational interviewing and shared decision making in primary care. Patient Education and Counseling, 2012; 87: 62-66.
57. Forschung F, Härter M, Dirmaier J, Scholl I, Kriston L. Abschlussbericht zum Projekt - Validierung und Normierung des Fragebogens zur Partizipativen Entscheidungsfindung (PEF-FB) bei chronischen Erkrankungen, Thesis. Universitätsklinikum Hamburg-Eppendorf, 2012.
58. Pierce MA, Hess EP, Kline JA et al. The Chest Pain Choice trial: a pilot randomized trial of a decision aid for patients with chest pain in the emergency department. Trials, 2010; 11: 57.
59. Brinkman WB, Hartl J, Rawe LM, Sucharew H, Britto MT, Epstein JN. Physicians' shared decision-making behaviors in attention-deficit/hyperactivity disorder care. Archives of Pediatrics and Adolescent Medicine, 2011; 165: 1013-1019.
60. Hoving C, Hochstenbach L, van der Weijden T, van Osch L, Mertens H, Kruitwagen R. Occurrence of health professionals initiating shared decision making in gynecological oncology practice. ISDM 2011: 6th International Shared Decision Making Conference. Maastricht, 2011.
61. Nannenga MR, Montori VM, Weymiller AJ et al. A treatment decision aid may increase patient trust in the diabetes specialist. The Statin Choice randomized trial. Health Expectations, 2009; 12: 38-44.
62. Weymiller AJ, Montori VM, Jones LA et al. Helping patients with type 2 diabetes mellitus make treatment decisions: statin choice randomized trial. Archives of Internal Medicine, 2007; 167: 1076-1082.
63. Heesen C, Solari A, Giordano A, Kasper J, Köpke S. Decisions on multiple sclerosis immunotherapy: new treatment complexities urge patient engagement. Journal of the Neurological Sciences, 2011; 306: 192-197.
64. Pellerin M-A, Elwyn G, Rousseau M, Stacey D, Robitaille H, Légaré F. Toward shared decision making: using the OPTION scale to analyze resident-patient consultations in family medicine. Academic Medicine, 2011; 86: 1010-1018.
65. Shepherd HL, Barratt A, Trevena LJ et al. Three questions that patients can ask to improve the quality of information physicians give about treatment options: a cross-over trial. Patient Education and Counseling, 2011; 84: 379-385.
66. Vaillancourt H, Légaré F, Lapointe A, Deschênes S-M, Desroches S. Do dietitians involve patients in decision making related to dietary treatment options for dyslipidemia? Preliminary results of an exploratory study. 2012 Canadian Nutrition Society (CSN-SCN) Annual Meeting, Vancouver, (BC) Canada, May 23-26, 2012. Applied Physiology, Nutrition, and Metabolism, 2012; 37: 593.
67. Hess EP, Knoedler MA, Shah ND et al. The chest pain choice decision aid: a randomized trial. Circulation: Cardiovascular Quality and Outcomes, 2012; 5: 251-259.
68. Vaillancourt H, Légaré F, Lapointe A, Deschênes SM, Desroches S. Assessing patients' involvement in decision making during the nutritional consultation with a dietitian. Health Expectations, 2012; doi: 10.1111/j.1369-7625.2012.00783.x. (In press).
69. Edwards A, Elwyn G. Involving patients in decision making and communicating risk: a longitudinal evaluation of doctors' attitudes and confidence during a randomized trial. Journal of Evaluation in Clinical Practice, 2004; 10: 431-437.
70. Légaré F, Ratté S, Stacey D et al. Interventions for improving the adoption of shared decision making by healthcare professionals. Cochrane Database of Systematic Reviews, 2010; 5: CD006732.
71. Légaré F, Politi MC, Drolet R, Desroches S, Stacey D, Bekker H. Training health professionals in shared decision-making: an international environmental scan. Patient Education and Counseling, 2012; 88: 159-169.
72. Elwyn G, Edwards A, Kinnersley P, Grol R. Shared decision making and the concept of equipoise: the competences of involving patients in healthcare choices. British Journal of General Practice, 2000; 50: 892-899.
73. Strull WM, Lo B, Charles G. Do patients want to participate in medical decisions? JAMA: The Journal of the American Medical Association, 1984; 252: 2990-2994.
74. Degner LF, Sloan JA, Venkatesh P. The control preferences scale. Canadian Journal of Nursing Research, 1997; 29: 21.
75. Ryan J, Sysko J. The contingency of patient preferences for involvement in health decision making. Health Care Management Review, 2007; 32: 30-36.
76. Butow P, Maclean M, Dunn S, Tattersall M, Boyer M. The dynamics of change: cancer patients' preferences for information, involvement and support. Annals of Oncology, 1997; 8: 857-863.
77. Llewellyn-Thomas HA. Editorial. Health Expectations, 2006; 9: 305-306.