Preferred and actual participation roles during health care decision making in persons with cancer: A systematic review

Annals of Oncology

Volumn 21, Issue 6, 2009, Pages 1145-1151

  Tariman, J D ^a   Berry, D L ^b   Cochrane, B ^a   Schepp, A Doorenbos ^a  

^a UNIVERSITY OF WASHINGTON   (United States)

^b HARVARD MEDICAL SCHOOL   (United States)

Author keywords

Cancer; Decision making; Health care participation; Patient preferences; Systematic review

Indexed keywords

BREAST CANCER; CANCER PATIENT; CLINICAL ASSESSMENT; COLORECTAL CANCER; GYNECOLOGIC CANCER; HUMAN; LUNG CANCER; MALIGNANT NEOPLASTIC DISEASE; PATIENT ATTITUDE; PATIENT CARE; PATIENT DECISION MAKING; PATIENT PARTICIPATION; PATIENT SATISFACTION; PRIORITY JOURNAL; PROSTATE CANCER; REVIEW; SYSTEMATIC REVIEW; DECISION MAKING; DOCTOR PATIENT RELATION; HEALTH CARE DELIVERY; NEOPLASMS; PATIENT PREFERENCE; PHYSIOLOGY; STATISTICS AND NUMERICAL DATA;

DECISION MAKING; DELIVERY OF HEALTH CARE; HUMANS; NEOPLASMS; PATIENT PARTICIPATION; PATIENT PREFERENCE; PATIENT SATISFACTION; PHYSICIAN-PATIENT RELATIONS;

EID: 77954011614     PISSN: 09237534     EISSN: 15698041     Source Type: Journal    
DOI: 10.1093/annonc/mdp534     Document Type: Review

References (41)

1. Charles C, Gafni A, Whelan T. Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Soc Sci Med 1999; 49: 651-661.
2. Sutherland HJ, Lockwood GA, Boyd NF. Ratings of the importance of quality of life variables: therapeutic implications for patients with metastatic breast cancer. J Clin Epidemiol 1990; 43: 661-666.
3. Lloyd P, Lupton D, Donaldson C. Consumerism in the health care setting: an exploratory study of factors underlying the selection and evaluation of primary medical services. Aust J Public Health 1991; 15: 194-201.
4. Krosnick A. Medical technological advances and health care costs. J Med Soc N J 1980; 77: 13-15.
5. Hesse BW, Nelson DE, Kreps GL, et al. Trust and sources of health information: the impact of the Internet and its implications for health care providers: findings from the first Health Information National Trends Survey. Arch Intern Med 2005; 165: 2618-2624.
6. Cassileth BR, Zupkis RV, Sutton-Smith K, March V. Information and participation preferences among cancer patients. Ann Intern Med 1980; 92: 832-836.
7. Sutherland HJ, Llewellyn-Thomas HA, Lockwood GA, et al. Cancer patients: their desire for information and participation in treatment decisions. J R Soc Med 1989; 82: 260-263.
8. Beaver K, Luker KA, Owens RG et al. Treatment decision making in women newly diagnosed with breast cancer. Cancer Nurs 1996; 19: 8-19.
9. Davison BJ, Degner LF. Empowerment of men newly diagnosed with prostate cancer. Cancer Nurs 1997; 20: 187-196.
10. Bilodeau BA, Degner LF. Information needs, sources of information, and decisional roles in women with breast cancer. Oncol Nurs Forum 1996; 23: 691-696.
11. Degner LF, Sloan JA. Decision making during serious illness: what role do patients really want to play? J Clin Epidemiol 1992; 45: 941-950.
12. Pipe TB, Conner K, Dansky K et al. Perceived involvement in decision-making as a predictor of decision satisfaction in older adults. SOJNR 2005; 6: 1-13.
13. Gaston CM, Mitchell G. Information giving and decision-making in patients with advanced cancer: a systematic review. Soc Sci Med 2005; 61: 2252-2264.
14. Dominowski RL. Research Methods. Englewood Cliffs, NJ: Prentice Hall 1980.
15. Degner LF, Kristjanson LJ, Bowman D, et al. Information needs and decisional preferences in women with breast cancer. JAMA 1997; 277: 1485-1492.
16. Keating NL, Guadagnoli E, Landrum MB, et al. Treatment decision making in early-stage breast cancer: should surgeons match patients' desired level of involvement? J Clin Oncol 2002; 20: 1473-1479.
17. Hawley ST, Lantz PM, Janz NK, et al. Factors associated with patient involvement in surgical treatment decision making for breast cancer. Patient Educ Couns 2007; 65: 387-395.
18. Degner LF, Sloan JA, Venkatesh P. The Control Preferences Scale. Can J Nurs Res 1997; 29: 21-43.
19. Degner LF, Beaton JI. Life Death Decisions in Health Care. New York: Hemisphere 1987.
20. Coombs CH. A Theory of Data. New York: John Wiley 1964.
21. Wallberg B, Michelson H, Nystedt M, et al. Information needs and preferences for participation in treatment decisions among Swedish breast cancer patients. Acta Oncol 2000; 39: 467-476.
22. Caldon LJ, Walters SJ, Reed MW. Changing trends in the decision-making preferences of women with early breast cancer. Br J Surg 2008; 95: 312-318.
23. Hack TF, Pickles T, Bultz BD, et al. Impact of providing audiotapes of primary treatment consultations to men with prostate cancer: a multi-site, randomized, controlled trial. Psychooncology 2007; 16: 543-552.
24. Davison BJ, Degner, LF. Feasibility of using a computer-assisted intervention to enhance the way women with breast cancer communicate with their physicians. Cancer Nurs 2002; 25: 417-424.
25. Janz NK, Wren PA, Copeland LA, et al. Patient-physician concordance: preferences, perceptions, and factors influencing the breast cancer surgical decision. J Clin Oncol 2004; 22: 3091-3098.
26. Hack TF, Degner LF, Watson P, Sinha, L. Do patients benefit from participating in medical decision making? Longitudinal follow-up of women with breast cancer. Psychooncology 2006; 15: 9-19.
27. Vogel BA, Bengel J, Helmes AW. Information and decision making: patients' needs and experiences in the course of breast cancer treatment. Patient Educ Couns 2008; 71: 79-85.
28. Davison BJ, Goldenberg SL, Gleave ME, Degner LF. Provision of individualized information to men and their partners to facilitate treatment decision making in prostate cancer. Oncol Nurs Forum 2003; 30: 107-114.
29. Davison BJ, Goldenberg SL, Wiens KP, Gleave ME. Comparing a generic and individualized information decision support intervention for men newly diagnosed with localized prostate cancer. Cancer Nurs 2007; 30: E7-E15.
30. Barry B, Henderson A. Nature of decision-making in the terminally ill patient. Cancer Nurs 1996; 19: 384-391.
31. Gattellari M, Butow PN, Tattersall MH. Sharing decisions in cancer care. Soc Sci Med 2001; 52: 1865-1878.
32. Beaver K, Bogg J, Luker KA. Decision-making role preferences and information needs: a comparison of colorectal and breast cancer. Health Expect 1999; 2: 266-276.
33. Ramfelt E, Lutzen K, Nordstrom G. Treatment decision-making in a group of patients with colo-rectal cancer before surgery and a one-year follow-up. Eur J Cancer Care (Engl) 2005; 14: 327-335.
34. Davidson JR, Brundage MD, Feldman-Stewart D. Lung cancer treatment decisions: patients' desires for participation and information. Psychooncology 1999; 8: 511-520.
35. Beaver K, Booth K. Information needs and decision-making preferences: comparing findings for gynaecological, breast and colorectal cancer. Eur J Oncol Nurs 2007; 11: 409-416.
36. Butow PN, Maclean M, Dunn SM, et al. The dynamics of change: cancer patients' preferences for information, involvement and support. Ann Oncol 1997; 8: 857-863.
37. Davison BJ, So AI, Goldenberg SL. Quality of life, sexual function and decisional regret at 1 year after surgical treatment for localized prostate cancer. BJU Int 2007; 100: 780-785.
38. Davison BJ, Gleave ME, Goldenberg SL, et al. Assessing information and decision preferences of men with prostate cancer and their partners. Cancer Nurs 2002; 25: 42-49.
39. Davison BJ, Parker PA, Goldenberg SL. Patients' preferences for communicating a prostate cancer diagnosis and participating in medical decision-making. BJU Int 2004; 93: 47-51.
40. Davison BJ, Goldenberg SL. Decisional regret and quality of life after participating in medical decision-making for early-stage prostate cancer. BJU Int 2003; 91: 14-17.
41. Burns N, Grove SK. Selecting a quantitative research design. In Burns N, Grove SK (eds), The Practice of Nursing Research: Conduct, Critique, and Utilization, 5th edition. St Louis, MO: Elsevier Saunders 2005; 231-272.