How much do family physicians involve pregnant women in decisions about prenatal screening for Down syndrome?

Prenatal Diagnosis

Volumn 30, Issue 2, 2010, Pages 115-121

  Gagnon, Susie ^a   Labrecque, Michel ^a,b   Njoya, Merlin ^a   Rousseau, Fraņcois ^a,b,c   St Jacques, Sylvie ^a   Légaŕe, France ^a,b  

^a LAVAL UNIVERSITY   (Canada)

^b UNIVERSITÉ LAVAL   (Canada)

^c CanGèneTest Research Consortium   (Canada)

Author keywords

Down syndrome; Patient involvement in decision making; Physician patient communication; Prenatal screening; Shared decision making

Indexed keywords

ADULT; ARTICLE; CONSTRUCT VALIDITY; CONSULTATION; CORRELATION COEFFICIENT; CRONBACH ALPHA COEFFICIENT; DOWN SYNDROME; FACTORIAL ANALYSIS; FEMALE; GENERAL PRACTITIONER; HUMAN; INTERNAL CONSISTENCY; MAJOR CLINICAL STUDY; MEDICAL DECISION MAKING; PATIENT DECISION MAKING; PREGNANT WOMAN; PRENATAL SCREENING; PRIORITY JOURNAL; PSYCHOMETRY; SCORING SYSTEM; VARIANCE;

DECISION MAKING; DOWN SYNDROME; FAMILY PRACTICE; FEMALE; HUMANS; PATIENT PARTICIPATION; PHYSICIAN-PATIENT RELATIONS; PHYSICIANS, FAMILY; PREGNANCY; PRENATAL DIAGNOSIS;

EID: 75649132164     PISSN: 01973851     EISSN: 10970223     Source Type: Journal    
DOI: 10.1002/pd.2421     Document Type: Article

References (29)

1. Carroll JC, Brown JB, Reid AJ, Pugh P. 2000. Women's experience of maternal serum screening. Can Fam Physician 46: 614-620.
2. Corke CF, Stow PJ, Green DT, Agar JW, Henry MJ. 2005. How doctors discuss major interventions with high risk patients: an observational study. BMJ 330: 182-184.
3. Elwyn G, Edwards A, Hood K, et al. 2004. Achieving involvement: process outcomes from a cluster randomized trial of shared decision making skill development and use of risk communication aids in general practice. Fam Pract 21: 337-346.
4. Elwyn G, Edwards A, Kinnersley P. 1999. Shared decision-making in primary care: the neglected second half of the consultation. Br J Gen Pract 49: 477-482.
5. Elwyn G, Edwards A, Kinnersley P, Grol R. 2000. Shared decision making and the concept of equipoise: the competences of involving patients in healthcare choices.Br J Gen Pract 50: 892-899.
6. Elwyn G, Edwards A, Wensing M, Grol R. 2005a. Shared Decision Making. Measurement Using the OPTION Instrument. Cardiff University: Cardiff.
7. Elwyn G, Edwards A, Wensing M, Hood K, Atwell C, Grol R. 2003. Shared decision making: developing the OPTION scale for measuring patient involvement. Qual Saf Health Care 12: 93-99.
8. Elwyn G, Hutchings H, Edwards A, et al. 2005b. The OPTION scale: measuring the extent that clinicians involve patients in decision-making tasks. Health Expect 8: 34-42.
9. Goossensen A, Zijlstra P, Koopmanschap M. 2007. Measuring shared decision making processes in psychiatry: skills versus patient satisfaction. Patient Educ Couns 67: 50-56.
10. Goss C, Fontanesi S, Mazzi MA, et al. 2007. Shared decision making: the reliability of the OPTION scale in Italy. Patient Educ Couns 66: 296-302.
11. Green JM, Hewison J, Bekker HL, Bryant LD, Cuckle HS. 2004. Psychosocial aspects of genetic screening of pregnant women and newborns: a systematic review. Health Technol Assess 8: iii, ix-ix, 1-109.
12. Hunter AG, Cappelli M, Humphreys L, et al. 2005. A randomized trial comparing alternative approaches to prenatal diagnosis counseling in advanced maternal age patients. Clin Genet 67: 303-313.
13. Légaré F, Cauchon M, Labrecque M. 2005. French version OPTION: observer l'implication du patient. In Shared Decision Making Measurement Using the OPTION Instrument, Elwyn G, Edwards A, Wensing M, Grol R (eds). Cardiff University: Cardiff, Wales.
14. Legare F, O'Connor AC, Graham I, et al. 2006. Supporting patients facing difficult health care decisions: use of the Ottawa Decision Support Framework. Can Fam Physician 52: 476-477.
15. Legare F, Ratte S, Gravel K, Graham ID. 2008. Barriers and facilitators to implementing shared decision-making in clinical practice: update of a systematic review of health professionals' perceptions. Patient Educ Couns 73: 526-535.
16. Loh A, Simon D, Hennig K, Hennig B, Harter M, Elwyn G. 2006. The assessment of depressive patients' involvement in decision making in audio-taped primary care consultations. Patient Educ Couns 63: 314-318.
17. Lomas J, Lavis JN. 1996. Guidelines in the Mist. Centre for Health Economics and Policy Analysis: Hamilton, ON.
18. O'Connor AM, Drake E, Wells G, Tugwell P, Laupacis A, Elmslie T. 2003. A Survey of the decision-making needs of Canadians faced with complex health decisions. Health Expect 6: 1-13.
19. Santalahti P, Hemminki E, Latikka AM, Ryynanen M. 1998. Women's decision-making in prenatal screening. Soc Sci Med 46: 1067-1076.
20. Siriwardena AN, Edwards AG, Campion P, Freeman A, Elwyn G. 2006. Involve the patient and pass the MRCGP: investigating shared decision making in a consulting skills examination using a validated instrument. Br J Gen Pract 56: 857-862.
21. SOGC. 2007. Déclaration de la SOGC sur l'accés au dèpistage génétique.
22. St-Jacques S, Grenier S, Charland M, Forest JC, Rousseau F, Legare F. 2008. Decisional needs assessment regarding Down syndrome prenatal testing: a systematic review of the perceptions of women, their partners and health professionals. Prenat Diagn 28: 1183-1203.
23. Strull WM, Lo B, Charles G. 1984. Do patients want to participate in medical decision making? JAMA 252: 2990-2994.
24. Summers AM, Langlois S, Wyatt P, Wilson RD. 2007. Prenatal screening for fetal aneuploidy. J Obstet Gynaecol Can 29: 146-179.
25. The College of Family Physicians of Canada. 2007. National Physician Survey.
26. Towle A, Godolphin W. 1999. Framework for teaching and learning informed shared decision making. BMJ 319: 766-771.
27. Vassy C. 2005. How prenatal diagnosis became acceptable in France. Trends Biotechnol 23: 246-249.
28. Weiss MC, Peters TJ. 2008. Measuring shared decision making in the consultation: a comparison of the OPTION and Informed Decision Making instruments. Patient Educ Couns 70: 79-86.
29. Young HN, Bell RA, Epstein RM, Feldman MD, Kravitz RL. 2008. Physicians' shared decision-making behaviors in depression care. Arch Intern Med 168: 1404-1408.