Experiences of sexual and gender minorities caring for adults with Non-AIDS-related chronic Illnesses

Social Work Research

Volumn 39, Issue 2, 2015, Pages 71-81

  Washington, Karla T ^a   McElroy, Jane ^a   Albright, David ^b   Oliver, Debra Parker ^a   Lewis, Alexandria ^c   Meadows, Susan ^d   Elliott, Susan ^a  

^a University of Missouri   (United States)

^b School of Social Work   (United States)

^c UNIVERSITY OF MISSOURI   (United States)

^d School of Medicine   (United States)

Author keywords

caregivers; chronic disease; gender minority; homosexuality; sexual minority

Indexed keywords

EID: 84930453898     PISSN: 10705309     EISSN: 15456838     Source Type: Journal    
DOI: 10.1093/swr/svu030     Document Type: Article

References (39)

1. Aronson, J. (1998). Lesbians giving and receiving care: Stretching conceptualizations of caring and community. Women's Studies International Forum, 21, 505-519.
2. Brotman, S., Ryan, B., Collins, S., Chamberland, L., Cormier, R., Julien, D., et al. (2007). Coming out to care: Caregivers of gay and lesbian seniors in Canada. Gerontologist, 47, 490-503.
3. Cayleff, S. (2008). Feeding the hand that bit you: Lesbian daughters at mid-life negotiating parental caretaking. Journal of Lesbian Studies, 12(2-3), 237-254.
4. Coon, D. W., & Burleson, M. H. (2006). Working with gay, lesbian, bisexual, and transgender families. In G. Yeo & D. Gallagher-Thompson (Eds.), Ethnicity and the dementias (2nd ed., pp. 343-358). New York: Routledge.
5. Evans-Campbell, T., Fredriksen-Goldsen, K. I., Walters, K. L., & Stately, A. (2007). Caregiving experiences among American Indian and two-spirit men and women: Contemporary and historical roles. Journal of Gay & Lesbian Social Services, 18(3-4), 75-92.
6. Feinberg, L., Reinhard, S. C, Houser, A., & Choula, R. (2011). Valuing the invaluable 2011 update: The growing contributions and costs of family caregiving [Report of the AARP Policy Institute]. Retrieved from http://assets.aarp.org/rgcenter/ppi/ltc/i51-caregiving.pdf
7. Fish, J. (2006). Heterosexism in health and social care. New York: Palgrave Macmillan.
8. Fredriksen, K. I. (1999). Family caregiving responsibilities amonglesbians and gay men. Social Work, 44, 142-155.
9. Fredriksen-Goldsen, K. I., & Hooyman, N. R. (2005). Caregiving research, services, and policies in historically marginalized communities: Where do we go from here? Journal of Gay & Lesbian Social Services, 18(3-4), 129-145.
10. Fredriksen-Goldsen, K. I., Kim, H., Muraco, A., & Mincer, S. (2009). Chronically ill midlife and older lesbians, gay men, and bisexuals and their informal caregivers: The impact of social context. Sexuality Research and Social Policy, 6(4), 52-64.
11. Galambos, C. M. (2003). Moving cultural diversity toward cultural competence in health care. Health & Social Work, 28, 3-6.
12. Grossman, A. H., D'Augelli, A. R., & Dragowski, E. A. (2007). Caregiving and care receiving among older lesbian, gay, and bisexual adults. Journal of Gay & Lesbian Social Services, 18(3-4), 15-38.
13. Hash, K. (2001). Preliminary study of caregiving and post-caregiving experiences of older gay men and lesbians. Journal of Gay & Lesbian Social Services, 13(4), 87-94.
14. Hash, K. (2006). Caregiving and post-caregiving experiences of midlife and older gay men and lesbians. Journal of Gerontological Social Work, 47(3-4), 121-138.
15. Hash, K., & Netting, F. E. (2007). Long-term planning and decision-making among midlife and older gay men and lesbians. Journal of Social Work in End-of-Life and Palliative Care, 3(2), 59-77.
16. Hooyman, N. R., & Gonyea, J. G. (1999). A feminist model of family care: Practice and policy directions. Journal of Women and Aging, 11(2-3), 149-169.
17. Hornjatkevyc, N. L. (2011). With and without: The bereavement experiences of gay men who have lost a partner to non-AIDS-related causes. Death Studies, 35, 801-823.
18. Kia, H. (2012). "I'm part of this family": How five caregiving partners of gay men story their experiences. Journal of Gay & Lesbian Social Services, 24(2), 140-157.
19. Martinez, P., Barskey, A., & Singleton, S. (2011). Exploring queer consciousness among social workers. Journal of Gay & Lesbian Social Services, 23(2), 296-315.
20. Metlife Mature Market Institute and the Lesbian and Gay Aging Issues Network of the American Society on Aging. (2010). Out and aging: The MetLife Study of Lesbian and Gay Baby Boomers. Journal of GLBT Family Studies, 6(1), 40-57.
21. Meyer, I. H. (2003). Prejudice, social stress, and mental health in lesbian, gay, and bisexual populations: Conceptual issues and research evidence. Psychological Bulletin, 129, 674-697. doi:10.1037/0033-2909.129.5.674
22. Moher, D., Liberati, A., Tetzlaff, J., & Altman, D. G. (2009). Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. Annals of Internal Medicine, 151, 264-269.
23. Muraco, A., & Fredriksen-Goldsen, K. I. (2011). "That's what friends do": Informal caregiving for chronically ill midlife and older lesbian, gay, and bisexual adults. Journal of Social and Personal Relationships, 28, 1073-1092.
24. National Association of Social Workers. (2008). Code of ethics of the National Association of Social Workers. Retrieved from http://www.naswdc.org/pubs/code/code.asp
25. National Center for Chronic Disease Prevention and Health Promotion, Centers for Disease Control and Prevention. (2009). The power of prevention: Chronic disease.. the public health challenge of the 21st century. Retrieved from http://www.cdc.gov/chronicdisease/pdf/2009-power-of-prevention.pdf
26. Parker Oliver, D., & Washington, K. T. (2011). Merging research and clinical practice. In T. Altilio & S. Otis-Green (Eds.), Oxford textbook of palliative social work (pp. 735-743). New York: Oxford University Press.
27. Parslow, O., & Hegarty, P. (2013). Who cares? UK lesbian caregivers in a heterosexual world. Women's Studies International Forum, 40, 78-86.
28. Pinquart, M., & Sorensen, S. (2011). Spouses, adult children, and children-in-law as caregivers of older adults: A meta-analytic comparison. Psychology and Aging, 26(1), 1-14.
29. Prachakul, W., & Grant, J. S. (2003). Informal caregivers of persons with HIV/AIDS: A review and analysis. Journal of the Association of Nurses in AIDS Care, 14(3), 55-71.
30. Price, E. (2010). Coming out to care: Gay and lesbian carers' experiences of dementia services. Health & Social Care in the Community, 18(2), 160-168.
31. Price, E. (2011). Caring for mum and dad: Lesbian women negotiating family and navigating care. British Journal of Social Work, 41, 1288-1303.
32. Price, E. (2012). Gay and lesbian carers: Ageing in the shadow of dementia. Ageing & Society, 32, 516-532.
33. Primack, S. (2006). The stories of lesbian partners of women with breast cancer: An exploration of experiences (Doctoral dissertation, New York University). Retrieved from Sociological Abstracts database.
34. Rubin, A., & Babbie, E. R. (2014). Research methods for social work (8th ed.). Belmont, CA: Brooks/Cole.
35. Shippy, R. A. (2007). We cannot go it alone: The impact of informal support and stressors in older gay, lesbian and bisexual caregivers. Journal of Gay & Lesbian Social Services, 18(3-4), 39-51.
36. Sikkema, K. J., Hansen, N. B., Kochman, A., Tate, D. C., & Difranceisco, W. (2004). Outcomes from a randomized controlled trial of a group intervention for HIV positive men and women coping with AIDS-related loss and bereavement. Death Studies, 28(3), 187-209. doi:10.1080/07481180490276544
37. Sue, D. W. (2010). Microaggressions in everyday life: Race, gender, and sexual orientation. Hoboken, NJ: John Wiley & Sons.
38. Washington, K. T., Meadows, S. E., Elliott, S. G., & Koopman, R.J. (2011). Information needs ofinformal caregivers of older adults with chronic health conditions. Patient Education and Counseling, 83(1), 37-44. doi:10.1016/j.pec.2010.04.017
39. Willis, P., Ward, N., & Fish, J. (2011). Searching for LGBT carers: Mapping a research agenda in social work and social care. British Journal of Social Work, 41, 1304-1320.