Chronically Ill Midlife and Older Lesbians, Gay Men, and bisexuals and their informal caregivers: The impact of the social context

Sexuality Research and Social Policy

Volumn 6, Issue 4, 2009, Pages 52-64

  Fredriksen Goldsen, Karen I ^a   Kim, Hyun Jun ^a   Muraco, Anna ^b   Mincer, Shawn ^a  

^a UNIVERSITY OF WASHINGTON   (United States)

^b LOYOLA MARYMOUNT UNIVERSITY   (United States)

Author keywords

Caregiving; Depression; Elder; LGB older adults; Social policy

Indexed keywords

EID: 75649118632     PISSN: 15536610     EISSN: None     Source Type: Journal    
DOI: 10.1525/srsp.2009.6.4.52     Document Type: Article

References (65)

1. Administration on Aging. (2004, June). The Older Americans Act, National Family Caregiver Support Program: Compassion in action. Washington, DC: U.S. Department of Health and Human Services.
2. Aiken, L. S., & West, S. G. (1991). Multiple regression: Testing and interpreting interactions. Newbury Park, CA: Sage.
3. Alm, J., Badgett, M. V. L., & Whittington, L. A. (2000). Wedding bell blues: The income tax consequences of legalizing same-sex marriage. National Tax Journal, 53, 201-214.
4. Aneshensel, C. S., Pearlin, L. I., Mullan, J. R., Zarit, S. H., & Whitlatch, C. J. (1995). Profiles in caregiving: The unexpected career. New York: Academic Press.
5. Barker, J. C., Herdt, G., & de Vries, B. (2006). Social support in the lives of lesbians and gay men at midlife and later. Sexuality Research & Social Policy: Journal of NSRC, 3(2), 1-23.
6. Baron, R. M., & Kenny, D. A. (1986). The moderatormediator variable distinction in social psychological research: Conceptual, strategic, and statistical considerations. Journal of Personality and Social Psychology, 51, 1173-1182.
7. Baronet, A. M. (2003). The impact of family relations on caregivers' positive and negative appraisal of their caretaking activities. Family Relations: Interdisciplinary Journal of Applied Family Studies, 52, 137-142.
8. Bengston, V. L. (2001). Beyond the nuclear family: The increasing importance of multigenerational bonds. Journal of Marriage and Family, 63, 1-16.
9. Berger, R. M. (1996). Gay and gray: The older homosexual man (2nd ed.). New York: Haworth Press.
10. Brotman, S., Ryan, B., Collins, S., Chamberland, L., Cormier, R., Julien, D., et al. (2007). Coming out to care: Caregivers of gay and lesbian seniors in Canada. The Gerontologist, 47, 490-504.
11. Brotman, S., Ryan, B., & Cormier, R. (2003). The health and social service needs of gay and lesbian elders and their families in Canada. The Gerontologist, 43, 192-202.
12. Cahill, S., Ellen, M., & Tobias, S. (2003, January 22). Family policy: Issues affecting gay, lesbian, bisexual, and transgender families [Report]. New York: National Gay and Lesbian Task Force Policy Institute.
13. Cahill, S., South, K., & Spade, J. (2000, November 9). Outing age: Public policy issues affecting gay, lesbian, bisexual, and transgender elders [Policy report]. New York: National Gay and Lesbian Task Force Policy Institute.
14. Cantor, M. H., Brennan, M., & Shippy, R. A. (2004, June 18). Caregiving among older lesbian, gay, bisexual, and transgender New Yorkers [Report]. New York: National Gay and Lesbian Task Force Policy Institute.
15. Clipp, E. C., Adinolfi, A. J., Forrest, L., & Bennett, C. L. (1995). Informal caregivers of persons with AIDS. Journal of Palliative Care, 11(2), 10-18.
16. Clunis, M., Fredriksen-Goldsen, K. I., Freeman, P., & Nystrom, N. (2005). Looking back, looking forward: The lives of lesbian elders. Binghamton, NY: Haworth Press.
17. Congressional Budget Office. (2004, June 21). The potential budgetary impact of recognizing same-sex marriages [Report]. Washington, DC: Author.
18. D'Augelli, A. R., Grossman, A. H., Hershberger, S. L., & Connell, T. A. (2001). Aspects of mental health among older lesbian, gay and bisexual adults. Aging & Mental Health, 5, 149-158.
19. Deevey, S. (1990). Older lesbian women: An invisible minority. Journal of Gerontological Nursing, 16(5), 35-39.
20. Defense of Marriage Act, Pub. L. No.104-199, 100 Stat. 2419 (1996
21. Ensel, W. M. (1986). Measuring depression: The CES-D scale. In N. Lin, A. Dean, & W. M. Ensel (Eds.), Social support, life events and depression (pp. 51-68). New York: Academic Press.
22. Epstein, N., Baldwin, L., & Bishop, D. (1983). The McMaster Family Assessment Device. Journal of Marital & Family Therapy, 9, 171-180.
23. Evashwick, C. J. (2001). The continuum of long-term care: An integrated systems approach. Albany, NY: Delmar Learning.
24. Family and Medical Leave Act of 1993, Pub. L. No. 103-3 (1993).
25. Feinberg, L. F. (2001). Systems development for family caregiver support services. San Francisco: Family Caregiver Alliance.
26. Fredriksen, K. I. (1996, July). Lesbian and gay caregiving. Paper Presented at the 18th Annual National Lesbian and Gay Health Conference, Seattle, WA.
27. Fredriksen, K. I. (1999). Family caregiving responsibilities among lesbians and gay men. Social Work, 44, 142-155.
28. Fredriksen-Goldsen, K. I. (Ed.) (2007a). Caregiving with pride. Binghamton, NY: Haworth Press.
29. Fredriksen-Goldsen, K. I. (2007b). HIV/AIDS caregiving: Predictors of well-being and distress. Journal of Gay & Lesbian Social Services, 18(3/4), 53-73.
30. Fredriksen-Goldsen, K. I., & Scharlach, A. E. (2001). Families and work: New directions in the twentyfirst century. New York: Oxford University Press.
31. Gabbay, S. G., & Wahler, J. J. (2002). Lesbian aging: Review of a growing literature. Journal of Gay & Lesbian Social Services, 14(3), 1-21.
32. George, L. K., & Gwyther, L. P. (1986). Caregiver wellbeing: A multidimensional examination of family caregivers of demented adults. The Gerontologist, 26, 253-259.
33. Gerstel, N., & Gallagher, S. K. (1993). Kinkeeping and distress: Gender, recipients of care, and work-family conflict. Journal of Marriage and Family, 55, 598-608.
34. Grossman, A. H., D'Augelli, A. R., & Dragowski, E. A. (2007). Caregiving and care receiving among older lesbian, gay and bisexual adults. In K. I. Fredriksen-Goldsen (Ed.), Caregiving with pride (pp. 15-38). Binghamton, NY: Haworth Press.
35. Hash, K. M. (2001). Preliminary study of caregiving and post-caregiving experiences of older gay men and lesbians. Journal of Gay & Lesbian Social Services, 13(4), 87-94.
36. Hash, K. M., & Cramer, E. P. (2003). Empowering gay and lesbian caregivers and uncovering their unique experiences through the use of qualitative methods. Journal of Gay & Lesbian Social Services, 15(1/2), 47-63.
37. Herdt, G., & Kertzner, R. (2006). I do, but I can't: The impact of marriage denial on the mental health and sexual citizenship of lesbians and gay men in the United States. Sexuality Research & Social Policy: Journal of NSRC, 3(1), 33-49.
38. Herek, G. M., Chopp, R., & Strohl, D. (2007). Sexual stigma: Putting sexual minority health issues in context. In I. H. Meyer & M. E. Northridge (Eds.), The health of sexual minorities: Public health perspectives on lesbian, gay, bisexual and transgender populations (pp. 171-208). New York: Springer.
39. Human Rights Campaign. (2003). States banning workplace discrimination based on sexual orientation. Washington, DC: Human Rights Campaign Foundation.
40. Human Rights Campaign. (2009). Family and Medical Leave Act: FMLA-equivalent benefit for LGBT workers. Retrieved March 31, 2009, from http:// www.hrc.org/issues/fmla-benefit.htm
41. Kenny, D. A., Kashy, D. A., & Cook, W. L. (2006). Dyadic data analysis. New York: Guilford.
42. Lyons, K. S., Sayer, A. G., Archbold, P. G., Hornbrook, M. C., & Stewart, B. J. (2007). The enduring and contextual effects of physical health and depression on care-dyad mutuality. Research in Nursing & Health, 30, 84-98.
43. Lyons, K. S., Zarit, S. H., Sayer, A. G., & Whitlatch, C. J. (2002). Caregiving as a dyadic process: Perspectives from caregiver and receiver. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 57, P195-P204.
44. MetLife Mature Market Institute, Lesbian and Gay Aging Issues Network of the American Society on Aging, & Zogby International. (2006). Out and aging: The MetLife study of lesbian and gay baby boomers. Westport, CT: Metropolitan Life Insurance Company.
45. Meyer, I. H., & Northridge, M. E. (2007). The health of sexual minorities: Public health perspectives on lesbian, gay, bisexual and transgender populations. New York: Springer.
46. Muraco, A. (2006). Intentional families: Fictive kin ties between cross-gender, different sexual orientation friends. Journal of Marriage and Family, 68, 1313-1325.
47. National Alliance for Family Caregiving & AARP. (2004). Caregiving in the United States. Washington, DC: AARP Public Policy Institute.
48. National Association of State Units on Aging. (2007). Strategy brief: The Ombudsman Program and caregiver support [Report]. Washington, DC: Author.
49. National Gay and Lesbian Task Force. (2008). State nondiscrimination laws in the U.S. Retrieved March 31, 2009, from http://www.thetaskforce. org/downloads/reports/issue-maps/non- discrimination-7-08.pdf
50. Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30, 583-594.
51. Polen, M. R., & Green, C. A. (2001). Caregiving, alcohol abuse and mental health symptoms among HMO members. Journal of Community Health, 26, 285-301.
52. Population Division, United Nations Department of Economic and Social Affairs. (2006). World population prospects: The 2006 revision [Executive summary]. Retrieved March 31, 2009, from http://www.un.org/esa/population/ publications/ wpp2006/English.pdf
53. Radloff, L. S. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385-401.
54. Royer, A. (1998). Life with chronic illness: Social and psychological dimensions. Westport, CT: Praeger.
55. Rozario, P. A., & DeRienzis, D. (2008). Familism beliefs and psychological distress among African American women caregivers. The Gerontologist, 48, 772-780.
56. Schulz, R. (2001). Resources for enhancing Alzheimer's caregiver health, 1996-2001 [Computer file]. Ann Arbor, MI: Inter-University Consortium for Political and Social Research.
57. Stone, R. I. (2000). Long-term care for the elderly with disabilities: Current policy, emerging trends, and implications for the twenty-first century. New York: Milbank Memorial Fund.
58. United States General Accounting Office. (1995, April). Long-term care: Current issues and future directions. Washington, DC: Author.
59. U.S. Census Bureau. (1990). The need for personal assistance with everyday activities: Recipients and caregivers. Current population reports, household economic studies (Series P-70, No. 19). Washington, DC: U.S. Department of Commerce.
60. U.S. Census Bureau. (1996). Statistical abstract of the United States 1996: The national data book (116th ed.). Blue Ridge Summit, PA: Bernan.
61. U.S. Census Bureau. (2003, February). Married-couple and unmarried-partner households: 2000 [Report]. Washington, DC: U.S. Department of Commerce.
62. Verbrugge, L. M. (1989). The twain meet: Empirical explanations of sex differences in health and mortality. Journal of Health and Social Behavior, 30, 282-304.
63. Whitlatch, C. (2008). Informal caregivers: Communication and decision making. Journal of Social Work Education, 44, 89-95.
64. Williams, D. R., Yu, Y., Jackson, J. S., & Anderson, N. B. (1997). Racial differences in physical and mental health: Socio-economic status, stress, and discrimination. Journal of Health Psychology, 2, 335-351.
65. Zich, J. M., Attkisson, C. C., & Greenfield, T. K. (1990). Screening for depression in primary care clinics: The CES-D and the BDI. The International Journal of Psychiatry in Medicine, 20, 259-277.