Exploring the Beliefs of Japanese Mothers Caring for a Child With Disabilities

Journal of Family Nursing

Volumn 21, Issue 2, 2015, Pages 232-260

  Sato, Naho ^a   Araki, Akiko ^b   Ito, Ryuko ^c   Ishigaki, Kazuko ^d  

^a CHIBA UNIVERSITY   (Japan)

^b Chiba Rehabilitation Center   (Japan)

^c JUNTENDO UNIVERSITY   (Japan)

^d ISHIKAWA PREFECTURAL NURSING UNIVERSITY   (Japan)

Author keywords

beliefs; children with disabilities; family; Illness Beliefs Model; Japan; mothers

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; ATTITUDE TO HEALTH; CAREGIVER; CHILD; COMPARATIVE STUDY; CULTURAL FACTOR; FAMILY RELATION; FEMALE; HANDICAPPED CHILD; HUMAN; INFANT; JAPAN; MALE; MENTAL STRESS; MOTHER; PRESCHOOL CHILD; PSYCHOLOGY; SOCIAL SUPPORT;

ADAPTATION, PSYCHOLOGICAL; ADULT; ATTITUDE TO HEALTH; CAREGIVERS; CHILD; CHILD, PRESCHOOL; CULTURAL CHARACTERISTICS; DISABLED CHILDREN; FAMILY RELATIONS; FEMALE; HUMANS; INFANT; JAPAN; MALE; MOTHERS; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL;

EID: 84930426206     PISSN: 10748407     EISSN: 1552549X     Source Type: Journal    
DOI: 10.1177/1074840715586551     Document Type: Article

References (35)

1. Aston M.,Breau L.,MacLeod E.Understanding the importance of relationships: Perspective of children with intellectual disabilities, their parents, and nurses in Canada.Journal of Intellectual Disabilities. 2014;18:221-237
2. Bell J. M.,Wright L. M.Family nursing in action. Svarvarsdottir E. K.Jonsdottir H., ed. Reykjavik: University of Iceland Press; 2011:15-51.
3. BerryJ.AgrawalR. K.CohenE.KuoD. Z. (2013). The landscape of medical care for children with medical complexity (Special report). Retrieved from www.childrenshospitals.net/cmclitreview
4. Dyches T. T.,Smith T. B.,Korth B. B.,Roper S. O.,Mandleco B.Positive parenting of children with developmental disabilities: A meta-analysis.Research in Developmental Disabilities. 2012;33 (6): 2213-2220
5. Drotar D.,Baskiewicz A.,Irvin N.,Kennell J.,Klaus M.The adaptation of parents to the birth of an infant with a congenital malformation: A hypothetical model.Pediatrics. 1975;56:710-717
6. Feudtner C.,Walter J. K.,Faerber J. A.,Hill D. L.,Carroll K. W.,Mollen C. J.,.. Hinds P. S.Good-parent beliefs of parents of seriously ill children. Advance online publication.JAMA Pediatrics. 2015;169:39-47
7. Ichihara M.,Araki A.,Sato N.,Konno M.,Nakamura N.Family decision-making in tracheotomy of infant/toddler with severe disabilities.Journal of Chiba Academy of Nursing Science. 2007;13 (1): 77-84
8. Ito I.,Araki A.,Sato N.,Ishigaki K.The beliefs of parents of children with special need in transitioning to home and maintaining daily living.Journal of School of Nursing, Chiba University. 2010;32:63-68
9. Kazak A. E.,McClure K. S.,Alderfer M. A.,Hwang W.-T.,Crump T. A.,Le L. T.,.. Rourke M. T.Cancer-related parental beliefs: The Family Illness Beliefs Inventory (FIBI).Journal of Pediatric Psychology. 2004;29:531-542
10. Keller D.,Honig A. S.Maternal and paternal stress in families with school-aged children with disabilities.American Journal of Orthopsychiatry. 2004;74:337-348
11. Kimura M.,Yamazaki Y.The lived experience of mothers of multiple children with intellectual disabilities.Qualitative Health Research. 2013;23:1307-1319
12. King G. A.,Zwaigenbaum L.,King S.,Baxter D.,Rosenbaum P.,Bates A.A qualitative investigation of changes in the belief systems of families of children with autism or Down syndrome.Child: Care, Health and Development. 2006;32:353-369
13. Knafl K. A.,Deatrick J. A.,Havill N. L.Continued development of the Family Management Style Framework.Journal of Family Nursing. 2012;18:11-34
14. Kyzar K. B.,Turnbull A. P.,Summers J. A.,Gomez V. A.The relationship of family support to family outcomes: A synthesis of key findings from research on severe disability.Research and Practice for Persons With Severe Disabilities. 2012;37:31-44
15. Lee J.Maternal stress, well-being, and impaired sleep in mothers of children with developmental disabilities: A literature review.Research in Developmental Disabilities. 2013;34:4255-4273
16. McConnell D.,Savage A.Stress and resilience among families caring for children with intellectual disability: Expanding the research agenda.Current Developmental Disorders Reports. 2015;2:100-109
17. Ministry of Health, Labour and Welfare. (2011). Seikatsu no shidurasa nadoni kansuru chosa [Fact-Finding Survey on Persons Having Difficulty in Daily Life at Home]. Retrieved from http://www.mhlw.go.jp/toukei/list/seikatsu_chousa.html [in Japanese]
18. Raina P.,O’Donnell M.,Rosenbaum P.,Brehaut J.,Walter S. D.,Russell D.,.. Wood E.The health and well-being of caregivers of children with cerebral palsy.Pediatrics. 2005;115:e626-e636
19. Robinson C. A.Women, families, chronic illness, and nursing interventions: From burden to balance.Journal of Family Nursing. 1998;4:271-290
20. Robinson C. A.,Wright L. M.Family nursing interventions: What families say makes a difference.Journal of Family Nursing. 1995;1:327-345
21. Rolland J.,Walsh F.Facilitating family resilience with childhood illness and disability.Current Opinion in Pediatrics. 2006;18:527-538
22. Smith J.,Swallow V.,Coyne I.Involving parents in managing their child’s long-term condition—A concept synthesis of family-centered and partnership-in-care.Journal of Pediatric Nursing. 2015;30:143-159
23. Swallow V.,Macfayden A.,Santacroce S.,Lambert H.Fathers’ contributions to the management of their child’s long-term medical condition: A narrative review of the literature.Health Expectations. 2012;15:157-175
24. Tanaka M.Perceptions of children among mothers raising children with severe motor and intellectual disabilities: Mothers’ experiences with how they perceive their children.Journal of St. Luke’s Society for Nursing Research. 2010;14 (2): 29-36
25. Tanigawa R.,Nakamura Y.The relationship between the beliefs of families of children with disabilities and the mothers’ response to the disability (2nd report): Facilitating beliefs and constraining beliefs.Collected Papers from the Japan Society of Nursing (Pediatric Nursing). 2009;39:260-262
26. Vermaes I.,van Susante A.,van Bakel H.Psychosocial functioning of siblings in families of children with chronic health conditions: A meta-analysis.Journal of Pediatric Psychology. 2012;37:166-184
27. Wakimizu R.,Fujioka H.,Iejima A.,Miyamoto S.Effectiveness of the group-based Positive Parenting Program with Japanese families raising a child with developmental disabilities: A longitudinal study.Journal of Psychological Abnormalities in Children. 2014;3 (1): 113
28. Wakimizu R.,Fujioka H.,Yoneyama A.Empowerment process for families rearing children with developmental disorders in Japan.Nursing & Health Sciences. 2010;12:322-328
29. Woodman A.Trajectories of stress among parents of children with disabilities: A dyadic analysis.Family Relations. 2014;63:39-54
30. Wright L. M.Brain science and illness beliefs: An unexpected explanation of the healing power of therapeutic conversations and the family interventions that matter.Journal of Family Nursing. 2015;21 (2): 186-205
31. Wright L. M.,Bell J. M.Beliefs and illness: A model for healing. Calgary, Alberta, Canada: 4th Floor Press; 2009:
32. Wright L. M.,Bell J. M.Beliefs and illness a model for healing. Tokyo: Japanese Nursing Association; 2011:
33. Wright L. M.,Leahey M.Nurses and families: A guide to family assessment and intervention. (2013). Nurses and families: A guide to family assessment and intervention (6th ed.). Philadelphia, PA: F.A. Davis.Philadelphia, PA: F.A. Davis; 2013:
34. Wright L. M.,Watson W. L.,Bell J. M.Beliefs: The heart of healing in families and illness. New York, NY: Basic Books; 1996:
35. Wright L. M.,Watson W. L.,Bell J. M.Beliefs: The heart of healing in families and illness. Tokyo: Japanese Nursing Association; 2002: