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Volumn 169, Issue 1, 2015, Pages 39-47

Good-parent beliefs of parents of seriously ill children

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ARTICLE; CHILD; CHILD HEALTH; COHORT ANALYSIS; CRITICALLY ILL PATIENT; CROSS-SECTIONAL STUDY; DEMOGRAPHY; FEMALE; FINANCIAL DEFICIT; HEALTH BELIEF; HUMAN; MALE; MEDICAL DECISION MAKING; PARENTAL ATTITUDE; PRIORITY JOURNAL; PROSPECTIVE STUDY; SPIRITUAL CARE; WELLBEING; ACUTE DISEASE; ADAPTIVE BEHAVIOR; ATTITUDE TO HEALTH; CHILD PARENT RELATION; CHILD WELFARE; CHRONIC DISEASE; INFANT; MENTAL STRESS; NEWBORN; PARENT; PRESCHOOL CHILD; PSYCHOLOGY; QUESTIONNAIRE; UNITED STATES;

EID: 84925027053     PISSN: 21686203     EISSN: None     Source Type: Journal    
DOI: 10.1001/jamapediatrics.2014.2341     Document Type: Article
Times cited : (170)

References (38)
  • 3
    • 0028091103 scopus 로고
    • Guidelines on forgoing life-sustaining medical treatment
    • Committee on Bioethics. Guidelines on forgoing life-sustaining medical treatment. Pediatrics. 1994;93(3):532-536.
    • (1994) Pediatrics , vol.93 , Issue.3 , pp. 532-536
  • 5
    • 77956353412 scopus 로고    scopus 로고
    • The promise of shared decision-making in paediatrics
    • Fiks AG, Jimenez ME. The promise of shared decision-making in paediatrics. Acta Paediatr. 2010; 99(10):1464-1466.
    • (2010) Acta Paediatr , vol.99 , Issue.10 , pp. 1464-1466
    • Fiks, A.G.1    Jimenez, M.E.2
  • 6
    • 0031023489 scopus 로고    scopus 로고
    • Shared decision-making in the medical encounter: What does it mean? (or it takes at least two to tango)
    • Charles C, Gafni A, Whelan T. Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Soc Sci Med. 1997;44(5):681-692.
    • (1997) Soc Sci Med , vol.44 , Issue.5 , pp. 681-692
    • Charles, C.1    Gafni, A.2    Whelan, T.3
  • 7
    • 84856514960 scopus 로고    scopus 로고
    • Patient- and family-centered care and the pediatrician's role
    • Committee on Hospital Care and Institute for Patient- and Family-Centered Care. Patient- and family-centered care and the pediatrician's role. Pediatrics. 2012;129(2):394-404.
    • (2012) Pediatrics , vol.129 , Issue.2 , pp. 394-404
    • Institute for Patient- and Family-Centered Care1
  • 10
    • 34247338038 scopus 로고    scopus 로고
    • Communication about prognosis between parents and physicians of children with cancer: Parent preferences and the impact of prognostic information
    • Mack JW, Wolfe J, Grier HE, Cleary PD, Weeks JC. Communication about prognosis between parents and physicians of children with cancer: parent preferences and the impact of prognostic information. J Clin Oncol. 2006;24(33):5265-5270.
    • (2006) J Clin Oncol , vol.24 , Issue.33 , pp. 5265-5270
    • Mack, J.W.1    Wolfe, J.2    Grier, H.E.3    Cleary, P.D.4    Weeks, J.C.5
  • 11
    • 77954698251 scopus 로고    scopus 로고
    • Decision making by parents of children with incurable cancer who opt for enrollment on a phase I trial compared with choosing a do not resuscitate/terminal care option
    • Maurer SH, Hinds PS, Spunt SL, Furman WL, Kane JR, Baker JN. Decision making by parents of children with incurable cancer who opt for enrollment on a phase I trial compared with choosing a do not resuscitate/terminal care option. J Clin Oncol. 2010;28(20):3292-3298.
    • (2010) J Clin Oncol , vol.28 , Issue.20 , pp. 3292-3298
    • Maurer, S.H.1    Hinds, P.S.2    Spunt, S.L.3    Furman, W.L.4    Kane, J.R.5    Baker, J.N.6
  • 12
    • 80052525181 scopus 로고    scopus 로고
    • Factors affecting treatment choices in paediatric palliative care: Comparing parents and health professionals
    • Tomlinson D, Bartels U, Hendershot E, Maloney AM, Ethier MC, Sung L. Factors affecting treatment choices in paediatric palliative care: comparing parents and health professionals. Eur J Cancer. 2011;47(14):2182-2187.
    • (2011) Eur J Cancer , vol.47 , Issue.14 , pp. 2182-2187
    • Tomlinson, D.1    Bartels, U.2    Hendershot, E.3    Maloney, A.M.4    Ethier, M.C.5    Sung, L.6
  • 13
    • 79955679732 scopus 로고    scopus 로고
    • How parents of children receiving pediatric palliative care use religion, spirituality, or life philosophy in tough times
    • Hexem KR, Mollen CJ, Carroll K, Lanctot DA, Feudtner C. How parents of children receiving pediatric palliative care use religion, spirituality, or life philosophy in tough times. J Palliat Med. 2011;14 (1):39-44.
    • (2011) J Palliat Med , vol.14 , Issue.1 , pp. 39-44
    • Hexem, K.R.1    Mollen, C.J.2    Carroll, K.3    Lanctot, D.A.4    Feudtner, C.5
  • 14
    • 84873464817 scopus 로고    scopus 로고
    • Parental explicit heuristics in decision-making for children with life-threatening illnesses
    • Renjilian CB,Womer JW, Carroll KW, Kang TI, Feudtner C. Parental explicit heuristics in decision-making for children with life-threatening illnesses. Pediatrics. 2013;131(2):e566-e572. doi:10.1542/peds.2012-1957.
    • (2013) Pediatrics , vol.131 , Issue.2 , pp. e566-e572
    • Renjilian, C.B.1    Womer, J.W.2    Carroll, K.W.3    Kang, T.I.4    Feudtner, C.5
  • 15
    • 32044459218 scopus 로고    scopus 로고
    • End-of-life care preferences of pediatric patients with cancer
    • Hinds PS, Drew D, Oakes LL, et al. End-of-life care preferences of pediatric patients with cancer. J Clin Oncol. 2005;23(36):9146-9154.
    • (2005) J Clin Oncol , vol.23 , Issue.36 , pp. 9146-9154
    • Hinds, P.S.1    Drew, D.2    Oakes, L.L.3
  • 16
    • 0036631541 scopus 로고    scopus 로고
    • Grief-love: Contradictions in the lives of fathers of children with disabilities
    • Feudtner C. Grief-love: contradictions in the lives of fathers of children with disabilities. Arch Pediatr Adolesc Med. 2002;156(7):643.
    • (2002) Arch Pediatr Adolesc Med , vol.156 , Issue.7 , pp. 643
    • Feudtner, C.1
  • 17
    • 84869864770 scopus 로고    scopus 로고
    • "I was able to still be her mom" - Parenting at end of life in the pediatric intensive care unit
    • McGraw SA, Truog RD, Solomon MZ, Cohen-Bearak A, Sellers DE,Meyer EC. "I was able to still be her mom"-parenting at end of life in the pediatric intensive care unit. Pediatr Crit Care Med. 2012;13(6):e350-e356. doi:10.1097/PCC.0b013e31825b5607.
    • (2012) Pediatr Crit Care Med , vol.13 , Issue.6 , pp. e350-e356
    • McGraw, S.A.1    Truog, R.D.2    Solomon, M.Z.3    Cohen-Bearak, A.4    Sellers, D.E.5    Meyer, E.C.6
  • 18
    • 73349097271 scopus 로고    scopus 로고
    • "Trying to be a good parent" as defined by interviews with parents who made phase I, terminal care, and resuscitation decisions for their children
    • Hinds PS, Oakes LL, Hicks J, et al. "Trying to be a good parent" as defined by interviews with parents who made phase I, terminal care, and resuscitation decisions for their children. J Clin Oncol. 2009;27(35):5979-5985.
    • (2009) J Clin Oncol , vol.27 , Issue.35 , pp. 5979-5985
    • Hinds, P.S.1    Oakes, L.L.2    Hicks, J.3
  • 19
    • 84857198087 scopus 로고    scopus 로고
    • Influences on decision making identified by parents of children receiving pediatric palliative care
    • Carroll KW, Mollen CJ, Aldridge S, Hexem KR, Feudtner C. Influences on decision making identified by parents of children receiving pediatric palliative care. AJOB Primary Res. 2012;3(1):1-7.
    • (2012) AJOB Primary Res , vol.3 , Issue.1 , pp. 1-7
    • Carroll, K.W.1    Mollen, C.J.2    Aldridge, S.3    Hexem, K.R.4    Feudtner, C.5
  • 20
    • 30044446675 scopus 로고    scopus 로고
    • Maximum difference scaling: Improved measures of importance and preference for segmentation
    • San Antonio, TX; April 15-17, 2003. Sequim, WA: Sawtooth Software
    • Cohen S. Maximum difference scaling: improved measures of importance and preference for segmentation. In: Proceedings of the Sawtooth Software Conference; San Antonio, TX; April 15-17, 2003. Sequim, WA: Sawtooth Software; 2003:61-74.
    • (2003) Proceedings of the Sawtooth Software Conference , pp. 61-74
    • Cohen, S.1
  • 21
    • 4043067250 scopus 로고    scopus 로고
    • What's your preference?
    • Cohen S, Orme B. What's your preference? Marketing Res. 2004;16(2):32-37.
    • (2004) Marketing Res , vol.16 , Issue.2 , pp. 32-37
    • Cohen, S.1    Orme, B.2
  • 23
    • 0007144137 scopus 로고
    • Determining the appropriate response to evidence of public concern: The case of food safety
    • Finn A, Louviere JJ. Determining the appropriate response to evidence of public concern: the case of food safety. J Public Policy Mark. 1992;11(2):12-25.
    • (1992) J Public Policy Mark , vol.11 , Issue.2 , pp. 12-25
    • Finn, A.1    Louviere, J.J.2
  • 24
    • 34347272329 scopus 로고    scopus 로고
    • Shifting place of death among children with complex chronic conditions in the United States, 1989-2003
    • Feudtner C, Feinstein JA, Satchell M, Zhao H, Kang TI. Shifting place of death among children with complex chronic conditions in the United States, 1989-2003. JAMA. 2007;297(24):2725-2732.
    • (2007) JAMA , vol.297 , Issue.24 , pp. 2725-2732
    • Feudtner, C.1    Feinstein, J.A.2    Satchell, M.3    Zhao, H.4    Kang, T.I.5
  • 25
    • 59449083652 scopus 로고    scopus 로고
    • How well can hospital readmission be predicted in a cohort of hospitalized children? A retrospective, multicenter study
    • Feudtner C, Levin JE, Srivastava R, et al. How well can hospital readmission be predicted in a cohort of hospitalized children? a retrospective, multicenter study. Pediatrics. 2009;123(1):286-293.
    • (2009) Pediatrics , vol.123 , Issue.1 , pp. 286-293
    • Feudtner, C.1    Levin, J.E.2    Srivastava, R.3
  • 26
    • 0024023344 scopus 로고
    • Development and validation of brief measures of positive and negative affect: The PANAS scales
    • Watson D, Clark LA, Tellegen A. Development and validation of brief measures of positive and negative affect: the PANAS scales. J Pers Soc Psychol. 1988;54(6):1063-1070.
    • (1988) J Pers Soc Psychol , vol.54 , Issue.6 , pp. 1063-1070
    • Watson, D.1    Clark, L.A.2    Tellegen, A.3
  • 27
    • 17144470627 scopus 로고
    • The will and the ways: Development and validation of an individual-differences measure of hope
    • Snyder CR, Harris C, Anderson JR, et al. The will and the ways: development and validation of an individual-differences measure of hope. J Pers Soc Psychol. 1991;60(4):570-585.
    • (1991) J Pers Soc Psychol , vol.60 , Issue.4 , pp. 570-585
    • Snyder, C.R.1    Harris, C.2    Anderson, J.R.3
  • 28
    • 0020527558 scopus 로고
    • The hospital anxiety and depression scale
    • Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand. 1983;67 (6):361-370.
    • (1983) Acta Psychiatr Scand , vol.67 , Issue.6 , pp. 361-370
    • Zigmond, A.S.1    Snaith, R.P.2
  • 29
    • 0026738552 scopus 로고
    • Decision making during serious illness: What role do patients really want to play?
    • Degner LF, Sloan JA. Decision making during serious illness: what role do patients really want to play? J Clin Epidemiol. 1992;45(9):941-950.
    • (1992) J Clin Epidemiol , vol.45 , Issue.9 , pp. 941-950
    • Degner, L.F.1    Sloan, J.A.2
  • 31
    • 0000120766 scopus 로고
    • Estimating the dimension of a model
    • Schwartz G. Estimating the dimension of a model. Ann Stat. 1978;6(2):461-464.
    • (1978) Ann Stat , vol.6 , Issue.2 , pp. 461-464
    • Schwartz, G.1
  • 32
    • 0000386489 scopus 로고
    • Application of model-selection criteria to some problems in multivariate analysis
    • Sclove LS. Application of model-selection criteria to some problems in multivariate analysis. Psychometrika. 1987;52(3):333-343.
    • (1987) Psychometrika , vol.52 , Issue.3 , pp. 333-343
    • Sclove, L.S.1
  • 33
    • 36849091981 scopus 로고    scopus 로고
    • Deciding on the number of classes in latent class analysis and growth mixture modeling: A Monte Carlo simulation study
    • Nylund KL, Asparouhov T, Muthén BO. Deciding on the number of classes in latent class analysis and growth mixture modeling: a Monte Carlo simulation study. Struct Equ Modeling. 2007; 14(4):535-569.
    • (2007) Struct Equ Modeling , vol.14 , Issue.4 , pp. 535-569
    • Nylund, K.L.1    Asparouhov, T.2    Muthén, B.O.3
  • 35
    • 84898447769 scopus 로고    scopus 로고
    • Regoaling: A conceptual model of how parents of children with serious illness change medical care goals
    • Hill DL, Miller V, Walter JK, et al. Regoaling: a conceptual model of how parents of children with serious illness change medical care goals. BMC Palliat Care. 2014;13(1):9.
    • (2014) BMC Palliat Care , vol.13 , Issue.1 , pp. 9
    • Hill, D.L.1    Miller, V.2    Walter, J.K.3
  • 36
    • 84900551914 scopus 로고    scopus 로고
    • The parent perspective: "Being a good parent" when making critical decisions in the PICU
    • October TW, Fisher KR, Feudtner C, Hinds PS. The parent perspective: "being a good parent" when making critical decisions in the PICU. Pediatr Crit Care Med. 2014;15(4):291-298.
    • (2014) Pediatr Crit Care Med , vol.15 , Issue.4 , pp. 291-298
    • October, T.W.1    Fisher, K.R.2    Feudtner, C.3    Hinds, P.S.4
  • 37
    • 84886441677 scopus 로고    scopus 로고
    • Trajectory of parental hope when a child has difficult-to-treat cancer: A prospective qualitative study
    • Granek L, Barrera M, Shaheed J, et al. Trajectory of parental hope when a child has difficult-to-treat cancer: a prospective qualitative study. Psychooncology. 2013;22(11):2436-2444.
    • (2013) Psychooncology , vol.22 , Issue.11 , pp. 2436-2444
    • Granek, L.1    Barrera, M.2    Shaheed, J.3
  • 38
    • 84864614489 scopus 로고    scopus 로고
    • Parent-clinician communication intervention during end-of-life decision making for children with incurable cancer
    • Hinds PS, Oakes LL, Hicks J, et al. Parent-clinician communication intervention during end-of-life decision making for children with incurable cancer. J Palliat Med. 2012;15(8):916-922.
    • (2012) J Palliat Med , vol.15 , Issue.8 , pp. 916-922
    • Hinds, P.S.1    Oakes, L.L.2    Hicks, J.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.