Trajectories of stress among parents of children with disabilities: A dyadic analysis

Family Relations

Volumn 63, Issue 1, 2014, Pages 39-54

  Woodman, Ashley C ^a,b  

^a UNIVERSITY OF WISCONSIN MADISON   (United States)

^b UNIVERSITY OF WISCONSIN MADISON   (United States)

Author keywords

Behavior problems; Developmental disabilities; Dyad; Family climate; Social support; Stress

Indexed keywords

EID: 84892182735     PISSN: 01976664     EISSN: 17413729     Source Type: Journal    
DOI: 10.1111/fare.12049     Document Type: Article

References (65)

1. Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M. W., Orsmond, G., & Murphy, M. M. (2004). Psychological well-being and coping in mothers of youths with autism, Down syndrome, or Fragile X syndrome. American Journal on Mental Retardation, 109, 237-254.
2. Abidin, R. R. (1995). Parenting Stress Index manual (3rd ed.). Odessa, FL: Psychological Assessment Resources.
3. Achenbach, T. M. (1992). Manual for the Child Behavior Checklist /2-3 and 1992 profile. Burlington, VT: University of Vermont Department of Psychiatry.
4. Achenbach, T. M., Edelbrock, C., & Howell, C. T. (1987). Empirically based assessment of the behavioral/emotional problems of 2-3-year-old children. Journal of Abnormal Child Psychology, 15, 629-650.
5. Bailey, D. B., Nelson, L., Hebbeler, K., & Spiker, D. (2007). Modeling the impact of formal and informal supports for young children with disabilities and their families. Pediatrics, 120, e992-e1001. doi:10.1542/peds.2006-2775
6. Baker, B. L., Blacher, J., Crnic, K. A., & Edelbrock, C. (2002). Behavior problems and parenting stress in families of three-year-old children with and without developmental delays. American Journal on Mental Retardation, 107, 433-444.
7. Baker, B. L., McIntyre, L. L., Blacher, J., Crnic, K., Edelbrock, C., & Low, C. (2003). Pre-school children with and without developmental delay: Behaviour problems and parenting stress over time. Journal of Intellectual Disability Research, 47, 217-230.
8. Beckman, P. J. (1983). Characteristics of handicapped infants: A study of the relationship between child characteristics and stress as reported by mothers. American Journal of Mental Deficiency, 88, 150-156.
9. Bristol, M. M., Gallagher, J. J., & Holt, K. D. (1993). Maternal depressive symptoms in autism: Response to psychoeducational intervention. Rehabilitation Psychology, 38, 3-10.
10. Crnic, K. A., Gaze, C., & Hoffman, C. (2005). Cumulative parenting stress across the preschool period: Relations to maternal parenting and child behaviour at age 5. Infant and Child Development, 14, 117-132. doi:10.1002/icd.384
11. Crnic, K., & Low, C. (2002). Everyday stresses and parenting. In M. H. Bornstein (ed.), Handbook of parenting, vol. 5: Practical issues in parenting (2nd ed., pp. 243-267). Mahwah, NJ: Lawrence Erlbaum Associates.
12. Deater-Deckard, K., & Scarr, S. (1996). Parenting stress among dual-earner mothers and fathers: Are there gender differences? Journal of Family Psychology, 10, 45-59.
13. Dunst, C. J., Trivette, C. M., & Cross, A. H. (1986). Mediating influences of social support: Personal, family, and child outcomes. American Journal of Mental Deficiency, 90(4), 403-417.
14. Dunst, C. J., Trivette, C. M., & Hamby, D. W. (1994). Measuring social support in families with young children with disabilities. In C. J. Dunst, C. M. Trivette, & A. G. Deal (Eds.), Supporting and strengthening families, vol. 1: Methods, strategies, and practices (pp. 152-160). Cambridge, MA: Brookline Books.
15. Durand, V. M., Hieneman, M., Clarke, S., Wang, M., & Rinaldi, M. L. (2013). Positive family intervention for severe challenging behavior I: A multisite randomized clinical trial. Journal of Positive Behavior Interventions, 15(3), 133-143. doi:10.1177/1098300712458324
16. Durand, V. M., & Merges, E. (2009). Functional communication training to treat challenging behavior. In W. T. O'Donohue & J. E. Fisher (Eds.), General principles and empirically supported techniques of cognitive behavior therapy (pp. 320-327). Hoboken, NJ: John Wiley & Sons.
17. Essex, E. L., Seltzer, M. M., & Krauss, M. W. (1999). Differences in coping effectiveness and well-being among aging mothers and fathers of adults with mental retardation. American Journal on Mental Retardation, 104, 545-563.
18. Flippen, M., & Crais, E. R. (2011). The need for more effective father involvement in early autism intervention: A systematic review and recommendations. Journal of Early Intervention, 33, 24-50. doi:10.1177/1053815111400415
19. Frey, K. S., Greenberg, M. T., & Fewell, R. R. (1989). Stress and coping among parents of handicapped children: A multidimensional approach. American Journal on Mental Retardation, Special Issue: Research on Families, 94, 240-249.
20. Gerstein, E. D., Crnic, K. A., Blacher, J., & Baker, B. L. (2009). Resilience and the course of daily parenting stress in families of young children with intellectual disabilities. Journal of Intellectual Disability Research, 53, 981-997.
21. nd ed., pp. 303-317). New York: Oxford University Press.
22. Hanson, M. J., & Hanline, M. F. (1990). Parenting a child with a disability: A longitudinal study of parental stress and adaptation. Journal of Early Intervention, 14, 234-248.
23. Harrison, P. L., & Boan, C. H. (2000). Assessment of adaptive behavior. In B. A. Bracken (Ed.), Psychoeducational assessment of preschool children (pp. 124-144). Needham Heights, MA: Allyn & Bacon.
24. Hastings, R. P. (2003). Child behavior problems and partner mental health as correlates of stress in mothers and fathers of children with autism. Journal of Intellectual Disability Research, 47, 231-237. doi:10.1046/j.1365-2788.2003.00485.x
25. Hastings, R. P., & Beck, A. (2004). Practitioner review: Stress intervention for parents of children with intellectual disabilities. Journal of Child Psychology and Psychiatry, 45, 1338-1349. doi:10.1111/j.1469-7610.2004.00357.x
26. Hastings, R. P., Kovshoff, H., Ward, N. J., degli Espinosa, F., Brown, T., & Remington, B. (2005). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35, 635-644. doi:10.1007/s10803-005-0007-8
27. nd ed., pp. 547-570). Hoboken, NJ: Wiley.
28. Hauser-Cram, P., Warfield, M. E., Shonkoff, J. P., & Krauss, M. W. (2001). Children with disabilities: A longitudinal study of child development and parent well-being. Monographs of the Society for Research in Child Development, 66(3), 1-131.
29. Hogan, B. E., Linden, W., & Najarian, B. (2002). Social support interventions: Do they work? Clinical Psychology Review, 22, 381-440.
30. Hudson, A. M., Matthews, J. M., Gavidia-Payne, S. T., Cameron, C. A., Mildon, R. L., Radler, G. A., & Nankervis, K. L. (2003). Evaluation of an intervention system for parents of children with intellectual disability and challenging behaviour. Journal of Intellectual Disability Research, 47, 238-249.
31. Hyde, J. S. (2005). The gender similarities hypothesis. American Psychologist, 60, 581-592.
32. Innocenti, M. S., Huh, K., & Boyce, G. C. (1993). Families of children with disabilities: Normative data and other considerations on parenting stress. Topics in Early Childhood Special Education, 12, 403-427.
33. Keller, D. W. (1999). Dimensions of parenting stress of mothers and fathers of a school aged child with a disability. (Unpublished doctoral dissertation). Syracuse University, Syracuse, NY.
34. Krauss, M. W. (1993). Child-related and parenting stress: Similarities and differences between mothers and fathers of children with disabilities. American Journal on Mental Retardation, 97, 393-404.
35. Larson, R. W., & Almeida, D. M. (1999). Emotional transmission in the daily lives of families: A new paradigm for studying family process. Journal of Marriage and the Family, 61, 5-20.
36. Lyons, K. S., & Sayer, A. G. (2005). Longitudinal dyad models in family research. Journal of Marriage and Family, 67, 1048-1060. doi:10.1111/j.1741-3737.2005.00193.x
37. McCubbin, H. I., & Patterson, J. M. (1983). The family stress process: The double ABCX model of family adjustment and adaptation. Marriage and Family Review, 6, 7-37.
38. Middleton, H. A., Keene, R. G., & Brown, G. W. (1990). Convergent and discriminant validities of the Scale of Independent Behavior and the revised Vineland Adaptive Behavior Scales. American Journal on Mental Retardation, 94, 669-673.
39. Minnes, P. M. (1988). Family stress associated with a developmentally handicapped child. International Review of Research on Mental Retardation, 15, 195-226.
40. Minuchin, P. (1985). Families and individual development: Provocations from the field of family therapy. Child Development, 56, 289-302. doi:10.2307/1129720
41. Moos, R. H., & Moos, B. S. (1986). Family environment scale manual (2nd ed.). Palo Alto, CA: Consulting Psychologists Press.
42. Neece, C. L., Shulamite, A. G., & Baker, B. L. (2012). Parenting stress and child behavior problems: A transactional relationship across time. American Journal on Intellectual and Developmental Disabilities, 117, 48-66. doi:10.1352/1944-7558-117.1.48
43. Oelofsen, N., & Richardson, P. (2006). Sense of coherence and parenting stress in mothers and fathers of preschool children with developmental disability. Journal of Intellectual and Developmental Disability, 31, 1-12. doi:10.1080/13668250500349367
44. Orr, R. R., Cameron, S. J., Dobson, L. A., & Day, D. M. (1993). Age related changes in stress experienced by families with a child who has developmental delays. Mental Retardation, 31, 171-176.
45. Paskiewicz, T. L. (2009). A comparison of adaptive behavior skills and IQ in three populations: Children with learning disabilities, mental retardation, and autism. (Unpublished doctoral dissertation). Temple University, Philadelphia, PA.
46. Pelchat, D., Bisson, J., Ricard, N., Perreault, M., & Bouchard, J.-M. (1999). Longitudinal effects of an early family intervention programme on the adaptation of parents of children with a disability. International Journal of Nursing Studies, 36, 465-477.
47. Perry, A. (2004). A model of stress in families of children with developmental disabilities: Clinical and research applications. Journal on Developmental Disabilities, 11, 1-16.
48. Plant, K. M., & Sanders, M. R. (2007). Predictors of care-giver stress in families of preschool-aged children with developmental disabilities. Journal of Intellectual Disability Research, 51(2), 109-124. doi:10.1111/j.1365-2788.2006.00829.x
49. Preacher, K. J., Curran, P. J., & Bauer, D. J. (2006). Computational tools for probing interaction effects in multiple linear regression, multilevel modeling, and latent curve analysis. Journal of Educational and Behavioral Statistics, 31, 437-448.
50. Raudenbush, S. W., Brennan, R. T., & Barnett, R. C. (1995). A multivariate hierarchical model for studying psychological change within married couples. Journal of Family Psychology, 9, 161-174. doi:10.1037/0893-3200.9.2.161
51. Raudenbush, S. W., & Bryk, A. S. (2002). Hierarchical linear models: Applications and data analysis methods. Thousand Oaks, CA: Sage.
52. Raudenbush, S., Bryk, A. & Congdon, R. (2008). HLM (Version 6). Lincolnwood, IL: Scientific Software International.
53. Roach, M. A., Orsmond, G. I., & Barratt, M. S. (1999). Mothers and fathers of children with Down syndrome: Parental stress and involvement in childcare. American Journal on Mental Retardation, 104, 422-436.
54. Roberts, C., Mazzucchelli, T., Studman, L., & Sanders, M. R. (2006). Behavioral family intervention for children with developmental disabilities and behavioral problems. Journal of Clinical Child and Adolescent Psychology, 35, 180-193.
55. Rowbotham, M., Carroll, A., & Cuskelly, M. (2011). Mothers' and fathers' roles in caring for an adult child with an intellectual disability. International Journal of Disability, Development, and Education, 58, 223-240. doi:10.1080/1034912X.2011.598396
56. Sanders, M. R., & Markie-Dadds, C. (2002). Behavioral family interventions with children. In F. W. Kaslow & T. Patterson (Eds.), Comprehensive handbook of psychotherapy, Vol. 2: Cognitive-behavioral approaches (pp. 3-30). Hoboken, NJ: John Wiley & Sons.
57. Sanford, K., Bingham, C. R., & Zucker, R. A. (1999). Validity issues with the Family Environment Scale: Psychometric resolution and research application with alcoholic families. Psychological Assessment, 11, 315-325. doi:10.1037/1040-3590.11.3.315
58. Schultz, C. L., Schultz, N. C., Bruce, E. J., & Smyrnios, K. X. (1993). Psychoeducational support for parents of children with intellectual disability: An outcome study. International Journal of Disability, Development and Education, 40, 205-216.
59. Singer, G. H. S., Ethridge, B. L., & Aldana, S. I. (2007). Primary and secondary effects of parenting and stress management interventions for parents of children with developmental disabilities: A meta-analysis. Mental Retardation and Developmental Disabilities Research Reviews, 13, 357-369. doi:10.1002/mrdd.20175
60. Smith, T. B., Oliver, M. N. I., & Innocenti, M. A. (1999). Parenting stress in families of children with disabilities. American Journal of Orthopsychiatry, 71, 257-261.
61. Sparrow, S. S., Balla, D. A., & Cicchetti, D. V. (1984). The Vineland Adaptive Behavior Scales-Interview form. Circle Pines, MN: American Guidance Service.
62. Totsika, V., & Hastings, R. P. (2009). Persistent challenging behavior in people with an intellectual disability. Current Opinion in Psychiatry, 22, 437-441.
63. Townsend, A., Noelker, L., Deimling, G., & Bass, D. (1989). Longitudinal impact of interhousehold caregiving on adult children's mental health. Psychology and Aging, 4, 393-401.
64. Warfield, M. E., Krauss, M. W., Hauser-Cram, P., Upshur, C. C., & Shonkoff, J. P. (1999). Adaptation during early childhood among mothers of children with disabilities. Journal of Developmental and Behavioral Pediatrics, 20, 9-16.
65. Widaman, K. F. (2006). Best practices in quantitative methods for developmentalists: Missing data: What to do with or without them. Monographs of the Society for Research in Child Development, 71(3), 42-64. doi:10.1111/j.1540-5834.2006.00404.x