Continuity of care during end of life: An evolutionary concept analysis

International Journal of Nursing Knowledge

Volumn 26, Issue 2, 2015, Pages 80-89

  D'Angelo, Daniela ^a   Mastroianni, Chiara ^b   Hammer, J Marilyn ^c   Piredda, Michela ^d   Vellone, Ercole ^a   Alvaro, Rosaria ^a   De Marinis, Maria Grazia ^d  

^a UNIVERSITY OF ROME TOR VERGATA   (Italy)

^b Centro ANTEA   (Italy)

^c NEW YORK UNIVERSITY   (United States)

^d UNIVERSITY CAMPUS BIO MEDICO   (Italy)

Author keywords

Concept analysis; Continuity of patient care; End of life; Palliative care

Indexed keywords

HUMAN; PATIENT; PATIENT CARE; PSYCHOLOGY; TERMINAL CARE;

CONTINUITY OF PATIENT CARE; HUMANS; PATIENTS; TERMINAL CARE;

EID: 84927796834     PISSN: 20473087     EISSN: 20473095     Source Type: Journal    
DOI: 10.1111/2047-3095.12041     Document Type: Article

References (76)

1. Aspinal, F., Hughes, R., Dunckley, M., & Addington-Hall, J. (2006). What is important to measure in the last months and weeks of life? A modified nominal group study. International Journal of Nursing Studies, 43(4), 393-403.
2. Aubin, M., Giguere, A., Martin, M., Verreault, R., Fitch, M. I., Kazanjian, A., & Carmichael, P. H. (2012). Interventions to improve continuity of care in the follow-up of patients with cancer. Cochrane Database of Systematic Reviews, (7), CD007672.
3. Back, A. L., Michaelsen, K., Alexander, S., Hopley, E., Edwards, K., & Arnold, R. M. (2010). How oncology fellows discuss transitions in goals of care: A snapshot of approaches used prior to training. Journal of Palliative Medicine, 13(4), 395-400.
4. Bakitas, M., Bishop, M. F., Caron, P., & Stephens, L. (2010). Developing successful models of cancer palliative care services. Seminars in Oncology Nursing, 26, 266-284.
5. Barnato, A. E., Labor, R. E., Freeborne, N. E., Jayes, R. L., Campbell, D. E., & Lynn, J. (2005). Qualitative analysis of Medicare claims in the last 3 years of life: A pilot study. Journal of the American Geriatrics Society, 53(1), 66-73.
6. Barnet, M., & Shaw, T. (2013). What do consumers see as important in the continuity of their care? Supportive Care in Cancer, 21(9), 2637-2642.
7. Blackford, J., & Street, A. (2001). The role of the palliative care nurse consultant in promoting continuity of end-of-life care. International Journal of Palliative Nursing, 7(6), 273-278.
8. Bomba, P. A. (2005). Enabling the transition to hospice through effective palliative care. The Case Manager, 16(1), 48-52.
9. Borgsteede, S. D., Graafland-Riedstra, C., Deliens, L., Francke, A. L., Van Eijk, J. T., & Willems, D. L. (2006). Good end-of-life care according to patients and their GPs. The British Journal of General Practice: The Journal of the Royal College of General Practitioners, 56(522), 20-26.
10. Brazil, K., Howell, D., Marshall, D., Critchley, P., Van den Elzen, P., & Thomson, C. (2007). Building primary care capacity in palliative care: Proceedings of an interprofessional workshop. Journal of Palliative Care, 23(2), 113-116.
11. Brousseau, D. C., Meurer, J. R., Isenberg, M. L., Kuhn, E. M., & Gorelick, M. H. (2004). Association between infant continuity of care and pediatric emergency department utilization. Pediatrics, 113(4), 738-741.
12. Burge, F., Lawson, B., & Johnston, G. (2003). Family physician continuity of care and emergency department use in end-of-life cancer care. Medical Care, 41(8), 992-1001.
13. Burge, F., Lawson, B., Johnston, G., & Cummings, I. (2003). Primary care continuity and location of death for those with cancer. Journal of Palliative Medicine, 6(6), 911-918.
14. Burt, J., Barclay, S., Marshall, N., Shipman, C., Stimson, A., & Young, J. (2004). Continuity within primary palliative care: An audit of general practice out-of-hours co-operatives. Journal of Public Health, 26(3), 275-276.
15. Byock, I. (2000). Completing the continuum of cancer care: Integrating life-prolongation and palliation. CA: A Cancer Journal for Clinicians, 50(2), 123-132.
16. Casas Fernandez de Tejerina, A. M. (2006). Symptom management, supportive and palliative care: The continuum of care in the cancer patient. The SEOM's continuing care section. Clinical & Translational Oncology, 8(9), 629-634.
17. Choi, Y. S., & Billings, J. A. (2002). Changing perspectives on palliative care. Oncology, 16(4), 515-522.
18. Coleman, E. A., & Berenson, R. A. (2004). Lost in transition: Challenges and opportunities for improving the quality of transitional care. Annals of Internal Medicine, 141(7), 533-536.
19. Corrales-Nevado, D., Alonso-Babarro, A., & Rodríguez-Lozano, M. Á. (2012). Continuity of care, innovation and redefinition of professional roles in the healthcare of chronically and terminally ill patients. Gaceta Sanitaria/S.E.S.P.A.S, 26(Suppl. 1), 63-68.
20. Coyle, N., Monzillo, E., Loscalzo, M., Farkas, C., Massie, M. J., & Foley, K. M. (1985). A model of continuity of care for cancer patients with pain and neuro-oncologic complications. Cancer Nursing, 8(2), 111-119.
21. Cringles, M. C. (2002). Developing an integrated care pathway to manage cancer pain across primary, secondary and tertiary care. International Journal of Palliative Nursing, 8(5), 247-255.
22. D'Angelo, D., Mastroianni, C., Vellone, E., Alvaro, R., Casale, G., Latina, R., & De Marinis, M. G. (2012). Palliative care quality indicators in Italy. What do we evaluate? Supportive Care in Cancer, 20(9), 1983-1989.
23. Dawson, S. (2007). Interprofessional working: Communication, collaboration. perspiration! International Journal of Palliative Nursing, 13(10), 502-505.
24. Department of Health. (2011). End of life care strategy third annual report. Retrieved October 15, 2012, from http://www.dh.gov.uk/publications
25. Devi, P. S. (2010). A timely referral to palliative care team improves quality of life. Indian Journal of Palliative Care, 17(Suppl.), 14-16.
26. Dumont, I., Dumont, S., & Turgeon, J. (2005). Continuity of care for advanced cancer patients. Journal of Palliative Care, 21(1), 49-56.
27. Efstathiou, N., & Clifford, C. (2011). The critical care nurse's role in end-of-life care: Issues and challenges. Nursing in Critical Care, 16(3), 116-123.
28. Ellingsen, S., Roxberg, Å., Kristoffersen, K., Rosland, J. H., & Alvsvåg, H. (2013). Entering a world with no future: A phenomenological study describing the embodied experience of time when living with severe incurable disease. Scandinavian Journal of Caring Sciences, 27(1), 165-174.
29. Eriksson, M., & Andershed, B. (2008). Care dependence: A struggle toward moments of respite. Clinical Nursing Research, 17(3), 220-236.
30. Field, M. J., & Cassel, C. K. (2011). Approaching death: Improving care at the end of life. Health Progress, 92(1), 25.
31. Finlay, E., & Casarett, D. (2009). Making difficult discussions easier: Using prognosis to facilitate transitions to hospice. CA: A Cancer Journal for Clinicians, 59(4), 250-263.
32. Fox, P. A. (2005). Developing primary palliative care: Continuity of care is paramount but needs to be tailored individually. British Medical Journal, 330(7492), 671.
33. Gulliford, M., Naithani, S., & Morgan, M. (2006). What is "continuity of care"? Journal of Health Services Research & Policy, 11(4), 248-250.
34. Haggerty, J. L., Reid, R., McGrail, K., & McKendry, R. (2001). Here, there and all over the place: Defining and measuring continuity of health care. Vancouver: Centre for Health Services and Policy Research, The University of British Columbia.
35. Haggerty, J. L., Reid, R. J., Freeman, G. K., Starfield, B. H., Adair, C. E., & McKendry, R. (2003). Continuity of care: A multidisciplinary review. British Medical Journal, 327(7425), 1219-1221.
36. Hall, P., Weaver, L., Gravelle, D., & Thibault, H. (2007). Developing collaborative person-centered practice: A pilot project on a palliative care unit. Journal of Interprofessional Care, 21(1), 69-81.
37. Hanson, L. C., & Ersek, M. (2006). Meeting palliative care needs in post-acute care settings: "To help them live until they die." Journal of the American Medical Association, 295(6), 681-686.
38. Hauser, J. M. (2009). Lost in transition: The ethics of the palliative care handoff. Journal of Pain and Symptom Management, 37(5), 930-933.
39. Heller, K. S., & Solomon, M. Z. (2005). Continuity of care and caring: What matters to parents of children with life-threatening conditions. Journal of Pediatric Nursing, 20(5), 335-346.
40. Holland, D. E., & Harris, M. R. (2007). Discharge planning, transitional care, coordination of care, and continuity of care: Clarifying concepts and terms from the hospital perspective. Home Health Care Services Quarterly, 26(4), 3-19.
41. Ionescu-Ittu, R., McCusker, J., Ciampi, A., Vadeboncoeur, A. M., Roberge, D., Larouche, D.,. Pineault, R. (2007). Continuity of primary care and emergency department utilization among elderly people. Canadian Medical Association Journal, 177(11), 1362-1368.
42. Johnson, S. (2007). Hope in terminal illness: An evolutionary concept analysis. International Journal of Palliative Nursing, 13(9), 451-459.
43. Joshua, M., & Hauser, M. D. (2009). Lost in transition: The ethics of the palliative care handoff. Journal of Pain and Symptom Management, 37(5), 930-933.
44. Kuebler, K. K., Lynn, J., & Von Rohen, J. (2005). Perspectives in palliative care. Seminars in Oncology Nursing, 21(1), 2-10.
45. Kuhl, D. (2011). Exploring the lived experience of having a terminal illness. Journal of Palliative Care, 27(1), 43-52.
46. Lorenz, K. A., Asch, S. M., Rosenfeld, K. E., Liu, H., & Ettner, S. L. (2004). Hospice admission practices: Where does hospice fit in the continuum of care? Journal of the American Geriatrics Society, 52(5), 725-730.
47. Lorenz, K. A., Lynn, J., Dy, S. M., Shugarman, L. R., Wilkinson, A., Mularski, R. A.,. Shekelle, P. G. (2008). Evidence for improving palliative care at the end of life: A systematic review. Annals of Internal Medicine, 148(2), 147-159.
48. Lorenz, K. A., Lynn, J., Morton, S. C., Dy, S., Mularski, R., Shugarman, L.,. Shekelle, P. G. (2007). A systematic review of measures of end-of-life care and its outcomes. Health Services Research, 42(5), 1848-1870.
49. Marsella, A. (2009). Exploring the literature surrounding the transition into palliative care: A scoping review. International Journal of Palliative Nursing, 15(4), 186-189.
50. Maunder, E. Z. (2004). The challenge of transitional care for young people with life-limiting illness. British Journal of Nursing, 13(10), 594-596.
51. Meier, D. E., & Beresford, L. (2007). Hospitals and hospices partner to extend the continuum of palliative care. Journal of Palliative Medicine, 10(6), 1231-1235.
52. Meier, D. E., & Beresford, L. (2008). Palliative care's challenge: Facilitating transitions of care. Journal of Palliative Medicine, 11(3), 416-421.
53. Meyers, F. J., & Linder, J. (2003). Simultaneous care: Disease treatment and palliative care throughout illness. Journal of Clinical Oncology, 21(7), 1412-1415.
54. Michiels, E., Deschepper, R., Van Der Kelen, G., Bernheim, J. L., Mortier, F., Vander Stichele, R., & Deliens, L. (2007). The role of general practitioners in continuity of care at the end of life: A qualitative study of terminally ill patients and their next of kin. Palliative Medicine, 21(5), 409-415.
55. National Consensus Project for Quality Palliative Care. (2009). Clinical practice guidelines for quality palliative care, second edition. Retrieved September 11, 2011, from http://www.nationalconsensusproject.org
56. Parker, S. M., Clayton, J. M., Hancock, K., Walder, S., Butow, P. N., Carrick, S.,. Tattersall, M. H. (2007). A systematic review of prognostic/end-of-life communication with adults in the advanced stages of a life-limiting illness: Patient/caregiver preferences for the content, style, and timing of information. Journal of Pain and Symptom Management, 34(1), 81-93.
57. Peppercorn, J. M., Smith, T. J., Helft, P. R., Debono, D. J., Berry, S. R., Wollins, D. S.,. Schnipper, L. E. (2011). American Society of Clinical Oncology statement: Toward individualized care for patients with advanced cancer. Journal of Clinical Oncology, 29(6), 755-760.
58. Porzio, G., Ricevuto, E., Aielli, F., Verna, L., Cannita, K., Pollice, R.,. Ficorella, C. (2005). The Supportive Care Task Force at the University of L'Aquila: 2-years experience. Supportive Care in Cancer, 13(6), 351-356.
59. Price, M., & Lau, F. Y. (2013). Provider connectedness and communication patterns: Extending continuity of care in the context of the circle of care. BMC Health Services Research, 13(309), 1-10.
60. Reb, A. M. (2003). Palliative and end-of-life care: Policy analysis. Oncology Nursing Forum, 30(1), 35-50.
61. Reid, C. M., Gibbins, J., McCoubrie, R., & Forbes, K. (2011). Palliative care is not same as end of life care. British Medical Journal, 342, d2735.
62. Reynolds, J., & Croft, S. (2010). How to implement the Gold Standards Framework to ensure continuity of care. Nursing Times, 106(32), 10-13.
63. Rodgers, B. L. (1989). Concepts, analysis and the development of nursing knowledge: The evolutionary cycle. Journal of Advanced Nursing, 14(4), 330-335.
64. Rodgers, B. L. (2000). Concept analysis: An evolutionary view. In Concept development in nursing foundation, techniques, and application (2nd ed., pp. 77-102). Philadelphia: Saunders Company.
65. Ryndes, T., & Emanuel, L. (2003). Is discontinuity in palliative care a culpable act of omission? The Hastings Center Report, (Suppl.), S45-47.
66. Sanft, T. B., & Von Roenn, J. H. (2009). Palliative care across the continuum of cancer care. Journal of the National Comprehensive Cancer Network, 7(4), 481-487.
67. Schofield, P., Carey, M., Love, A., Nehill, C., & Wein, S. (2006). "Would you like to talk about your future treatment options"? Discussing the transition from curative cancer treatment to palliative care. Palliative Medicine, 20(4), 397-406.
68. Schweitzer, B., Blankenstein, N., Deliens, L., & Van der Horst, H. (2011). Out-of-hours palliative care provided by GP co-operatives in the Netherlands: A focus group study. European Journal of General Practice, 17(3), 160-166.
69. Schweitzer, B., Blankenstein, N., Willekens, M., Terpstra, E., Giesen, P., & Deliens, L. (2009). GPs' views on transfer of information about terminally ill patients to the out-of-hours co-operative. BMC Palliative Care, 8, 19.
70. Sharma, G., Freeman, J., Zhang, D., & Goodwin, J. S. (2009). Continuity of care and intensive care unit use at the end of life. Archives of Internal Medicine, 169(1), 81-86.
71. Sparbel, K. J., & Anderson, M. A. (2000a). Integrated literature review of continuity of care: Part 1, conceptual issues. Journal of Nursing Scholarship, 32(1), 17-24.
72. Sparbel, K. J., & Anderson, M. A. (2000b). A continuity of care integrated literature review, Part 2: Methodological issues. Journal of Nursing Scholarship, 32(2), 131-135.
73. Temel, J. S., Greer, J. A., Muzikansky, A., Gallagher, E. R., Admane, S., Jackson, V. A.,.Lynch, T. J. (2010). Early palliative care for patients with metastatic non- small cell lung cancer. New England Journal of Medicine, 363, 733-742.
74. Widder, J., & Glawischnig-Goschnik, M. (2002). The concept of disease in palliative medicine. Medicine, Health Care, and Philosophy, 5(2), 191-197.
75. Wiebe, L. A., & Von Roenn, J. H. (2010). Working with a palliative care team. Cancer Journal, 16(5), 488-492.
76. Will, L. A. (1978). Continuity of care for patients with malignant disease. Postgraduate Medical Journal, 54(632), 391-394.