Developing Successful Models of Cancer Palliative Care Services

Seminars in Oncology Nursing

Volumn 26, Issue 4, 2010, Pages 266-284

  Bakitas, Marie ^a   Bishop, Margaret Firer ^a   Caron, Paula ^a   Stephens, Lisa ^a  

^a DARTMOUTH HITCHCOCK MEDICAL CENTER   (United States)

Author keywords

Cancer palliative care models; Palliative care standards; Review

Indexed keywords

ARTICLE; HEALTH SERVICES RESEARCH; HUMAN; MODEL; NATIONAL HEALTH ORGANIZATION; NEOPLASM; NURSING; ONCOLOGY NURSING; PALLIATIVE THERAPY; PATIENT CARE; PRIMARY HEALTH CARE; STANDARD; UNITED STATES;

CONTINUITY OF PATIENT CARE; HEALTH SERVICES RESEARCH; HUMANS; MODELS, NURSING; NATIONAL CANCER INSTITUTE (U.S.); NEOPLASMS; ONCOLOGIC NURSING; PALLIATIVE CARE; PRIMARY HEALTH CARE; UNITED STATES;

EID: 77958157060     PISSN: 07492081     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.soncn.2010.08.006     Document Type: Article

References (72)

1. Cancer Facts and Figures 2009 2009, American Cancer Society, American Cancer Society, Atlanta, GA.
2. Lynn J., Adamson D. Living Well at the End of Life: Adapting Health Care to Serious Chronic Illness in Old Age 2003, RAND Research, Santa Monica, CA.
3. Casarett D., Pickard A., Bailey F.A., et al. Do palliative consultations improve patient outcomes. J Am Geriatr Soc 2008, 56:593-599.
4. Jordhoy M.S., Fayers P., Loge J.H., Ahlner-Elmqvist M., Kaasa S. Quality of life in palliative cancer care: results from a cluster randomized trial. J Clin Oncol 2001, 19:3884-3894.
5. Teno J., Clarridge B.R., Casey V.A., et al. Family perspectives on end-of-life care at the last place of care. JAMA 2004, 291:88-93.
6. Ferrell B.R. Late referrals to palliative care. J Clin Oncol 2005, 23:908-909.
7. Kapo J., Harrold J., Carroll J., Rickerson E., Cassarrett D. Are we referring patients to hospice too late?. Patients' and families' opinions 2005, 8:521-527.
8. Field M.J., Cassel C.K. Approaching Death: Improving Care at the End of Life 1997, National Academy Press, Washington, DC.
9. Foley K.M., Gelband H. Improving Palliative Care for Cancer 2001, Institute of Medicine and National Research Council, Washington, DC.
10. Clinical Practice Guidelines for Quality Palliative Care 2009, National Consensus Project, National Consensus Project for Quality Palliative Care, Brooklyn, NY. 2nd ed.
11. Cancer Pain Relief and Palliative Care 1990, World Health Organization, World Health Organization, Geneva, Switzerland.
12. Bakitas M., Ahles T., Skalla K., et al. Proxy perspectives regarding end-of-life care for persons with cancer. Cancer 2008, 112:1854-1861.
13. Bakitas M., Lyons K., Hegel M., et al. Project ENABLE II randomized controlled trial to improve palliative care for rural patients with advanced cancer: baseline findings, methodological challenges, and solutions. Palliat Support Care 2009, 7:75-86.
14. Higginson I., Finlay I., Goodwin D., et al. Do hospital-based palliative teams improve care for patients or families at the end of life?. J Pain Symptom Manage 2001, 23:96-106.
15. Higginson I.J., Finlay I.G., Goodwin D.M., et al. Is there evidence that palliative care teams alter end-of-life experiences of patients and their caregivers?. J Pain Symptom Manage 2003, 25:150-168.
16. Teno J., Gruneir A., Schwartz Z., Nanda A., Welte T. Association between advance directives and quality of end-of-life care: a national study. J Am Geriatr Soc 2007, 55:189-194.
17. Teno J.M., Shu J.E., Casarett D., Spence C., Rhodes R., Connor S. Timing of referral to hospice and quality of care: length of stay and bereaved family members' perceptions of the timing of hospice referral. J Pain Symptom Manage 2007, 34:120-125.
18. A National Framework and Preferred Practices for Palliative and Hospice Care Quality: A Consensus Report 2006, National Quality Forum, National Quality Forum, Washington, DC.
19. Meyers F., Linder J., Beckett L., Christensen S., Blais J., Gandara D. Simultaneous care: a model approach to the perceived conflict between investigational therapy and palliative care J. Pain Symptom Manage 2004, 28:548-556.
20. Meyers F., Linder J. Simultaneous care: disease treatment and palliative care throughout illness. J Clin Oncol 2003, 21:1412-1415.
21. Fadul N., Elsayem A., Palmer J.L., et al. Supportive versus palliative care: What's in a name?. Cancer 2009, 115:2013-2021.
22. Grant M., Hanson J., Mullan P., Spolum M., Ferrell B. Disseminating end-of-life education to cancer centers: overview of program and of evaluation. J Cancer Educ 2007, 22:140-148.
23. Meier D.E., Spragens L.H., Sutton S. A Guide to Building a Hospital-Based Palliative Care Program 2004, Center to Advance Palliative Care, New York, NY.
24. Weissman D.E., Meier D.E. Operational features for hospital palliative care programs: consensus recommendations. J Palliat Med 2008, 11:1189-1194.
25. Robert Wood Johnson Pioneer Programs in Palliative Care: Nine Case Studies 2000, Milbank Memorial Fund, New York, NY.
26. Schapiro R., Byock I., Parker S., Twohig J.S. Living and dying well with cancer: successfully integrating palliative care and cancer treatment 2003, Robert Wood Johnson Foundation, Missoula, MT.
27. Bakitas M., Stevens M., Ahles T., et al. Project ENABLE: a palliative care demonstration project for advanced cancer patients in three settings. J Palliat Med 2004, 7:363-372.
28. Esper P., Hampton J., Finn J., Smith D., Regiani S., Pienta K. A new concept in cancer care: the supportive care program. Am J Hosp Palliat Care 1999, 16:713-722.
29. Cancer care during the last phase of life. J Clin Oncol 1998, 16:1986.
30. Palliative Care V.I.2006, NCCN Clinical Practice Guidelines in Oncology 2006, National Comprehensive Cancer Network, National Comprehensive Cancer Network, New York, NY.
31. Hui D., Elsayem A., De la Cruz M., et al. Availability and integration of palliative care at US cancer centers. JAMA 2010, 303:1054-1061.
32. Ahles T., Seville J., Wasson J., et al. Panel-based pain managment in primary care: a pilot study. J Pain Symptom Manage 2001, 22:584-590.
33. Wasson J., Splaine M., Bazos D., Fisher E. Working inside, outside, and side by side to improve the quality of health care. Jt Comm J Qual Improv 1998, 24:513-517.
34. Bakitas M., Lyons K., Hegel M., et al. Effects of a palliative care intervention on clinical outcomes in patients with advanced cancer: the Project ENABLE II Randomized Controlled Trial. JAMA 2009, 302:741-749.
35. MacDonald N. Palliative care-the fourth phase of cancer prevention. Cancer Detect Prev 1991, 15:253-255.
36. MacDonald N. The interface between oncology and palliative medicine. Oxford Textbook of Palliative Medicine 1998, 11-18. Oxford University Press, Oxford, United Kingdom. 2nd ed. D. Doyle, G. Hanks, N. MacDonald (Eds.).
37. Von Korff M., Gruman J., Schaefer J., Curry S.J., Wagner E. Collaborative managment of chronic illness. Ann Intern Med 1997, 127:1097-1102.
38. Wagner E.H., Austin B.T., Davis C., Hindmarsh M., Schaefer J., Bonomi A. Improving chronic illness care: translating evidence into action. Health Aff 2001, 20:64-78.
39. Wagner E. Chronic disease management: what will it take to improve care for chronic illness?. Eff Clin Pract 1998, 1:2-4.
40. Glasgow R., Emont S., Miller D.C. Assessing delivery of the five "As" for patient-centered counseling. Health Promot Int 2006, 21:245-255.
41. Glasgow R., Whitesides H., Nelson C., King D. Use of the Patient Assessment of Chronic Illness Care (PACIC) with diabetic patients. Diabetes Care 2005, 28:2655-2661.
42. Wagner E., Bennett S., Austin B., Greene S., Schaefer J., Von Korff M. Finding common ground: patient-centeredness and evidence-based chronic illness care. J Altern Complement Med 2005, 11(Suppl 1):S7-S15.
43. Corbeil Y, Byock I. Dying Badly at Home: Preventing and Managing Symptomatic Crises. Presented at annual assembly, American Academy of Hospice and Palliative Medicine, Boston, MA, 2010.
44. McGrath P. End-of-life care for hematological malignancies: the 'technological imperative' and palliative care. J Palliat Care 2002, 18:39-47.
45. McGrath P. Are we making progress? Not in hematology!. Omega 2002, 45:331-348.
46. Hopkinson J.B., Wright D.N., Corner J.L. Seeking new methodology for palliative care research: challenging assumptions about studying people who are approaching the end of life. Palliat Med 2005, 19:532-537.
47. Jordhoy M.S., Kaasa S., Fayers P.M., Ovreness T., Underland G., Ahlner-Elmqvist M. Challenges in palliative care research; recruitment, attrition and compliance: experience from a randomized controlled trial. Palliat Med 1999, 13:299-310.
48. Davies B., Chekryn Reimer J., Brown P., Martens N. Challenges of conducting research in palliative care. Omega 1995, 31:263-273.
49. Bakitas M, Lyons K. Oncology clinicians' perspectives on providing palliative care for their patients with advanced cancer [abstract 44]. 10th National Conferenceon Cancer Nursing Research. Oncol Nurs Forum 2009;36.
50. Ahluwalia S., Fried T. Physician factors associated with outpatient palliative care referral. Palliat Med 2009, 23:608-615.
51. Byock I. Palliative care and oncology: growing better together. J Clin Oncol 2009, 27:170-171.
52. Byock I. Completing the continuum of cancer care: integrating life-prolongation and palliation. CA Cancer J Clin 2000, 50:123-132.
53. Havens G.A.D. Differences in the execution/nonexecution of advance directives by community dwelling adults. Res Nurs Health 2000, 23:319-333.
54. Coleman E. Falling through the cracks: challenges and opportunities for improving transitional care for persons with continuous complex care needs. J Am Geriatr Soc 2003, 51:549-555.
55. Meier D.E., Beresford L. Palliative care's challenge: facilitating transitions of care. J Palliat Med 2008, 11:416-421.
56. Coleman E.A., Boult C. Improving the quality of transitional care for persons with complex care needs. J Am Geriatr Soc 2003, 51:556-557.
57. Byock I. Principles of palliative medicine. Palliative Medicine 2009, 33-41. Saunders Elsevier, Philadelphia, PA. D. Walsh (Ed.).
58. Weissman D.E., Meier D.E., Spragens L.H. Center to Advance Palliative Care Palliative Care Consultation Service Metrics: consensus recommendations. J Palliat Med 2008, 11:1294-1298.
59. Seow H., Snyder C.F., Mularski R.A., et al. A framework for assessing quality indicators for cancer care at the end of life. J Pain Symptom Manage 2009, 38:903-912.
60. Ferrell B., Paice J., Koczywas M. New standards and implications for improving the quality of supportive oncology practice. J Clin Oncol 2008, 26:3824-3831.
61. Elwyn G., Buetow S., Hibbard J., Wensing M. Measuring quality through performance. Respecting the subjective: quality measurement from the patient's perspective. BMJ 2007, 335:1021-1022.
62. Byock I., Twohig J.S., Merriman M., Collins K. Promoting excellence in end-of-life care: a report on innovative models of palliative care. J Palliat Med 2006, 9:137-151.
63. Weissman D.E., Meier D.E. Center to Advance Palliative Care Inpatient Unit Operational Metrics: consensus recommendations. J Palliat Med 2009, 12:21-25.
64. Weissman D.E., Morrison R.S., Meier D.E. Center to Advance Palliative Care Palliative Care Clinical Care and Customer Satisfaction Metrics consensus recommendations. J Palliat Med 2010, 13:179-184.
65. Meier D.E., Beresford L. Using data to sustain and grow hospital palliative care programs. J Palliat Med 2008, 11:543-547.
66. Thomas J.S., Cassel J.B. Cost and non-clinical outcomes of palliative care. J Pain Symptom Manage 2009, 38:32-44.
67. Peikes D., Chen A., Schore J., Brown R. Effects of care coordination on hospitalization, quality of care, and health care expenditures among medicare beneficiaries: 15 randomized trials. JAMA 2009, 301:603-618.
68. Morrison R.S., Penrod J.D., Cassel J.B., et al. Cost savings associated with US hospital palliative care consultation programs. Arch Intern Med 2008, 168:1783-1790.
69. Twaddle M., Maxwell T., Cassel J., et al. Palliative care benchmarks from academic medical centers. J Palliat Med 2007, 10:86-98.
70. McNiff K.K., Neuss M.N., Jacobson J.O., Eisenberg P.D., Kadlubek P., Simone J.V. Measuring supportive care in medical oncology practice: lessons learned from the quality oncology practice initiative. J Clin Oncol 2008, 26:3832-3837.
71. Mularski R.A., Rosenfeld K., Coons S., et al. Measuring outcomes in randomized prospective trials in palliative care. J Pain Symptom Manage 2007, 34(1S):S7-S19.
72. Temel JS, Greer JA, Muzikansky MA, et al. Early palliative care for patients with metastatic non-small cell lung cancer. N Engl J Med 2010;363:733-42.