Palliative care quality indicators in Italy. What do we evaluate?

Supportive Care in Cancer

Volumn 20, Issue 9, 2012, Pages 1983-1989

  D'Angelo, Daniela ^a   Mastroianni, Chiara ^b   Vellone, Ercole ^a   Alvaro, Rosaria ^a   Casale, Giuseppe ^b   Latina, Roberto ^c   De Marinis, Maria Grazia ^d  

^a UNIVERSITY OF ROME TOR VERGATA   (Italy)

^b ANTEA Center   (Italy)

^c SAPIENZA UNIVERSITY OF ROME   (Italy)

^d UNIVERSITY CAMPUS BIO MEDICO   (Italy)

Author keywords

End of life; Palliative care; Quality indicators; Quality of care

Indexed keywords

ANALYSIS; ARTICLE; CONSENSUS; CULTURAL ANTHROPOLOGY; ETHICS; EVALUATION; EXISTENTIALISM; HEALTH CARE DELIVERY; HEALTH CARE QUALITY; HEALTH SERVICE; ITALY; MANAGEMENT; MANAGER; OUTCOME ASSESSMENT; PALLIATIVE THERAPY; PRACTICE GUIDELINE; PRIORITY JOURNAL; RELIGION; TERMINAL CARE; TOTAL QUALITY MANAGEMENT;

HUMANS; ITALY; PALLIATIVE CARE; QUALITY INDICATORS, HEALTH CARE; TERMINAL CARE;

EID: 84865172611     PISSN: 09414355     EISSN: 14337339     Source Type: Journal    
DOI: 10.1007/s00520-011-1301-y     Document Type: Article

References (34)

1. NIH (2004) NIH state-of-the-science conference statement on improving end-of-life care. Consens State Sci Statements 21(3):1-26
2. WHO (2010) Definition of palliative care http://www.who.int/cancer/ palliative/definition/en/. Accessed 13 Aug 2010
3. Zucco F (2010) Hospice in Italia, seconda rilevazione ufficiale. Medica editoria e Diffusione scientifica, Milano
4. Sepulveda C, Marlin A, Yoshida T, Ullrich A (2002) Palliative care: the World Health Organization's global perspective. J Pain Symptom Manage 24:91-96 (Pubitemid 35291983)
5. Granda-Cameron C, Viola SR, Lynch MP, Polomano RC (2008) Measuring patient oriented outcomes in palliative care: functionality and quality of life. Clin J Oncol Nurs 12:65-77
6. Ahmed N, Bestall JC, Ahmedzai SH et al (2004) Systematic review of the problems and issues of accessing specialist palliative care by patients, carers and health and social care professionals. Palliat Med 18(6):525-542 (Pubitemid 39242799)
7. Peruselli C, Marinari M, Brivio B et al (1997) Evaluating a home palliative care service: development of indicators for a continuous quality improvement program. J Palliat Care 13:34-42 (Pubitemid 127667621)
8. Donabedian A (1988) The quality of care. How can it be assessed? JAMA 260:1743-1748
9. Seow H, Snyder CF, Mularski RA et al (2009) A framework for assessing quality indicators for cancer care at the end of life. J Pain Symptom Manage 38:903-912
10. Aspinal F, Addington-Hall J, Hughes R, Higginson IJ (2003) Using satisfaction to measure the quality of palliative care: a review of the literature. J Adv Nurs 42:324-339 (Pubitemid 37255910)
11. Jocham HR, Dassen T, Widdershoven G, Halfens R (2006) Quality of life in palliative care cancer patients: a literature review. J Clin Nurs 15:1188-1195 (Pubitemid 44213906)
12. Teno JM, Byock I, Field MJ (1999) Research agenda for developing measures to examine quality of care and quality of life of patients diagnosed with life-limiting illness. J Pain Symptom Manage 17:75-82 (Pubitemid 29096207)
13. National Consensus Project for Quality Palliative Care (2009) Clinical practice guidelines for quality palliative care, second edition http://www.nationalconsensusproject.org. Accessed 11 Sept 2010
14. Presidenza del Consiglio dei Ministri-Conferenza Stato Regioni (2003). Indicatori per la verifica dei risultati ottenuti dalla rete di assistenza ai pazienti terminali e per la valutazione delle prestazioni erogate. Repertorio Atti N. 1665
15. Ministero della Salute (2007) DM N. 43. Definizione degli standard relativi all'assistenza ai malati terminali in trattamento palliative
16. Legge N. 18 (2010) Disposizioni per garantire l'accesso alle cure palliative e alla terapia del dolore
17. Ferrell B, Connor SR, Cordes A et al (2007) The national agenda for quality palliative care: the National Consensus Project and the National Quality Forum. J Pain Symptom Manage 33:737-744 (Pubitemid 46783991)
18. Rodella S (2010) La qualità dell'assistenza sanitaria secondo Avedis Donabedian. Il pensiero scientifico editore, Roma
19. Sistema nazionale per le linee guida (2009) Come organizzare una conferenza di consenso http://www.snlg-iss.it Accessed 17 March 2011
20. Seow H, Snyder CF, Shugarman LR et al (2009) Developing quality indicators for cancer end-of-life care: proceedings from a national symposium. Cancer 115:3820-3829
21. Pastrana T, Radbruch L, Nauck F et al (2010) Outcome indicators in palliative care-how to assess quality and success. Focus group and nominal group technique in Germany. Support Care Cancer 18:859-868
22. Lorenz K (2008) Progress in measuring and improving palliative and end-of-life quality. J Palliat Med 11:682-684 (Pubitemid 351918861)
23. Peruselli C, Paci E, Franceschi P, Legori T, Mannucci F (1997) Outcome evaluation in a home palliative care service. J Pain Symptom Manage 13:158-165 (Pubitemid 27172873)
24. Sato K, Miyashita M, Morita Tet al (2008) Reliability assessment and findings of a newly developed quality measurement instrument: quality indicators of end-of-life cancer care from medical chart review at a Japanese regional cancer center. J Palliat Med 11(5):729-737 (Pubitemid 351952831)
25. Bakitas M, Bishop MF, Caron P, Stephen L (2007) Developing successful model of cancer palliative care services. Semin Oncol Nurs 26(4):266-285
26. Ostgathe C, Voltz R (2010) Quality indicators in end-of-life care. Curr Opin Support Palliat Care 4:170-173
27. Pasman HR, Brandt HE, Deliens L, Francke AL (2009) Quality indicators for palliative care: a systematic review. J Pain Symptom Manage 38:145-156
28. Mularski RA, Dy SM, Shugarman LR et al (2007) A systematic review of measures of end-of-life care and its outcomes. Health Serv Res 42:1848-1870 (Pubitemid 47397188)
29. Marzano M (2004) Scene Finali. Mulino editore, Milano
30. Holland J, Weiss T (2008) The new standard of quality cancer care: integrating the psychosocial aspects in routine cancer from diagnosis through survivorship. Cancer J 14:425-428
31. Institute of Medicine (US) Committee on Psychosocial Services to Cancer Patients/Families in a Community Setting (2008) Cancer care for the whole patient: meeting psychosocial health needs. National Academies Press, Washington
32. Battaglia L, Carpanelli I, Tuveri G (2010) Etica nella cura oncologica. Carocci Faber, Roma
33. Donabedian A (1981) Using decision analysis to formulate process criteria for quality assessment. Inq Summer 18:102-119
34. Lohr KN, Yordy KD, Thier SO (1988) Current issues in quality of care. Health Aff 7:5-18 (Pubitemid 18080569)