-
1
-
-
84883206141
-
HeLa's genome: Help us create well-consented cell lines, Personal Genome Project
-
Available at Accessed: June 27, 2013
-
Ball, M. P., 2013 HeLa's genome: Help us create well-consented cell lines, Personal Genome Project. Available at: http://blog.personalgenomes.org/2013/03/29/helas-genome-help-us-create-well-consented-cell-lines/. Accessed: June 27, 2013.
-
(2013)
-
-
Ball, M.P.1
-
2
-
-
0035835031
-
Protecting the privacy of family members in survey and pedigree research
-
Botkin, J., 2001 Protecting the privacy of family members in survey and pedigree research. JAMA 285: 207-211.
-
(2001)
JAMA
, vol.285
, pp. 207-211
-
-
Botkin, J.1
-
3
-
-
84879004496
-
Be prepared for the big genome leak
-
Brenner, S. E., 2013 Be prepared for the big genome leak. Nature 498: 139.
-
(2013)
Nature
, vol.498
, pp. 139
-
-
Brenner, S.E.1
-
4
-
-
84883211324
-
Broad Institute Creating a global alliance to enable responsible sharing of genomic and clinical data, Broad Institute
-
Available at Accessed: June 27, 2013
-
Broad Institute, 2013 Creating a global alliance to enable responsible sharing of genomic and clinical data, Broad Institute. Available at: http://www.broadinstitute. org/files/news/pdfs/GAWhitePaperJune3.pdf. Accessed: June 27, 2013.
-
(2013)
-
-
-
5
-
-
84883258419
-
HeLa cells and cavalier scientists, The Mermaid's Tale
-
Available at Accessed: June 27
-
Buchanan, A., 2013 HeLa cells and cavalier scientists, The Mermaid's Tale. Available at: http://ecodevoevo.blogspot.ca/2013/03/hela-cells-and-cavalierscientists. html. Accessed: June 27, 2013.
-
(2013)
-
-
Buchanan, A.1
-
6
-
-
84880947153
-
Cell therapy research and innovation: Identifying the emerging privacy challenges
-
Burningham, S., 2013 Cell therapy research and innovation: Identifying the emerging privacy challenges. Med. Law Int. 12: 204-234.
-
(2013)
Med. Law Int.
, vol.12
, pp. 204-234
-
-
Burningham, S.1
-
7
-
-
84930254097
-
HeLa publication brews bioethical storm
-
Available at Accessed: June 27, 2013
-
Callaway, E., 2013 HeLa publication brews bioethical storm. Nature. News. Available at: http://www.nature.com/news/hela-publication-brews-bioethicalstorm- 1.12689. Accessed: June 27, 2013.
-
(2013)
Nature. News
-
-
Callaway, E.1
-
8
-
-
84883214722
-
Canadian Institutes of Health Research, Natural Sciences and Engineering Research Council of Canada, and Social Sciences and Humanities Research Council of Canada
-
Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans
-
Canadian Institutes of Health Research, Natural Sciences and Engineering Research Council of Canada, and Social Sciences and Humanities Research Council of Canada, 2010 Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans.
-
(2010)
-
-
-
9
-
-
84899912309
-
Commercialization creep
-
Caulfield, T., 2012 Commercialization creep. Policy Options 34: 20-23.
-
(2012)
Policy Options
, vol.34
, pp. 20-23
-
-
Caulfield, T.1
-
10
-
-
84867497183
-
Biobanking, consent and control: A survey of Albertans on key research ethics issues
-
Caulfield, T., C. Rachul, and E. Nelson, 2012 Biobanking, consent and control: A survey of Albertans on key research ethics issues. Biopreserv. Biobank. 10: 433-438.
-
(2012)
Biopreserv. Biobank.
, vol.10
, pp. 433-438
-
-
Caulfield, T.1
Rachul, C.2
Nelson, E.3
-
11
-
-
33749600034
-
Body of research - ownership and use of human tissue
-
Charo, R. A., 2006 Body of research - ownership and use of human tissue. N. Engl. J. Med. 355: 1517-1519.
-
(2006)
N. Engl. J. Med.
, vol.355
, pp. 1517-1519
-
-
Charo, R.A.1
-
12
-
-
44449086398
-
Public opinion and trust in scientists: The role of the research context, and the perceived motivation of stem cell researchers
-
Critchley, C., 2008 Public opinion and trust in scientists: The role of the research context, and the perceived motivation of stem cell researchers. Public Underst. Sci. 17: 309-327.
-
(2008)
Public Underst. Sci.
, vol.17
, pp. 309-327
-
-
Critchley, C.1
-
13
-
-
84856445128
-
Predicting intention to biobank: a national survey
-
Critchley, C. R., D. Nicol, M. F. A. Otlowski, and M. J. A. Stranger, 2012 Predicting intention to biobank: a national survey. Eur. J. Public Health 22: 139-144.
-
(2012)
Eur. J. Public Health
, vol.22
, pp. 139-144
-
-
Critchley, C.R.1
Nicol, D.2
Otlowski, M.F.A.3
Stranger, M.J.A.4
-
14
-
-
84867556865
-
Newborn Blood Spot Litigation: 70 Days to Destroy 5+ Million Samples
-
Genomics Law Report
-
Doerr, A., 2010 Newborn Blood Spot Litigation: 70 Days to Destroy 5+ Million Samples. Genomics Law Report.
-
(2010)
-
-
Doerr, A.1
-
15
-
-
84883245100
-
Your DNA in death: Reflections on the Henrietta Lacks bioethics controversy, Genetic Literacy Project
-
Available at Accessed: June 27
-
Entine, J., 2013 Your DNA in death: Reflections on the Henrietta Lacks bioethics controversy, Genetic Literacy Project. Available at: http://www. geneticliteracyproject.org/2013/04/01/your-dna-in-death-reflections-onthe- henrietta-lacks-bioethics-controversy/. Accessed: June 27, 2013.
-
(2013)
-
-
Entine, J.1
-
16
-
-
79959831383
-
Whose body is it anyway - human cells and the strange effects of property and intellectual property law
-
Feldman, R., 2011 Whose body is it anyway - human cells and the strange effects of property and intellectual property law. Stanford Law Rev. 63: 1377-1402.
-
(2011)
Stanford Law Rev.
, vol.63
, pp. 1377-1402
-
-
Feldman, R.1
-
17
-
-
77956415308
-
To the barricades! Am
-
Greely, H. T., 2010 To the barricades! Am. J. Bioeth. 10: 1-2.
-
(2010)
J. Bioeth.
, vol.10
, pp. 1-2
-
-
Greely, H.T.1
-
18
-
-
84883243760
-
-
Greenberg v Miami Children's Hospital Research Institute, 264 F Supp 2d 1064, 1066 (SD Fla)
-
Greenberg v Miami Children's Hospital Research Institute, 264 F Supp 2d 1064, 1066 (SD Fla 2003).
-
(2003)
-
-
-
19
-
-
84872459720
-
Identifying Personal Genomes by Surname Inference
-
Gymrek, M., A. L. McGuire, D. Golan, E. Halperin, and Y. Erlich, 2013 Identifying Personal Genomes by Surname Inference. Science 339: 321-324.
-
(2013)
Science
, vol.339
, pp. 321-324
-
-
Gymrek, M.1
McGuire, A.L.2
Golan, D.3
Halperin, E.4
Erlich, Y.5
-
20
-
-
84856063045
-
Indian tribe wins fight to limit research of its DNA
-
New York Times
-
Harmon, A., 2010 Indian tribe wins fight to limit research of its DNA. New York Times.
-
(2010)
-
-
Harmon, A.1
-
21
-
-
84883253531
-
Accord Aims to Create Trove of Genetic Data
-
The New York Times
-
Kolata, G., 2013 Accord Aims to Create Trove of Genetic Data. The New York Times.
-
(2013)
-
-
Kolata, G.1
-
22
-
-
84877612139
-
The Genomic and Transcriptomic Landscape of a HeLa Cell Line
-
Landry, J. J., P. T. Pyl, T. Rausch, T. Zichner, M. M. Tekkedil et al., 2013 The Genomic and Transcriptomic Landscape of a HeLa Cell Line. G3: Genes/Genomes/Genetics. 3: 1213-1224.
-
(2013)
G3: Genes/Genomes/Genetics
, vol.3
, pp. 1213-1224
-
-
Landry, J.J.1
Pyl, P.T.2
Rausch, T.3
Zichner, T.4
Tekkedil, M.M.5
-
23
-
-
84883238012
-
Publication of HeLa genome stirs controversy and debate, PHG Foundation
-
Available at Accessed: June 27, 2013
-
Leese, S., 2013 Publication of HeLa genome stirs controversy and debate, PHG Foundation. Available at: http://www.phgfoundation.org/news/13743/. Accessed: June 27, 2013.
-
(2013)
-
-
Leese, S.1
-
24
-
-
84866057075
-
Biobanks, Consent and Claims of Consensus
-
Master, Z., E. Nelson, B. Murdoch, and T. Caulfield, 2012 Biobanks, Consent and Claims of Consensus. Nat. Methods 9: 885-888.
-
(2012)
Nat. Methods
, vol.9
, pp. 885-888
-
-
Master, Z.1
Nelson, E.2
Murdoch, B.3
Caulfield, T.4
-
25
-
-
80755139422
-
To share or not to share: A randomized trial of consent for data sharing in genome research
-
McGuire, A. L., J. M. Oliver, M. J. Slashinski, J. L. Graves, T. Wang et al., 2011 To share or not to share: A randomized trial of consent for data sharing in genome research. Genet. Med. 13: 948-955.
-
(2011)
Genet. Med.
, vol.13
, pp. 948-955
-
-
McGuire, A.L.1
Oliver, J.M.2
Slashinski, M.J.3
Graves, J.L.4
Wang, T.5
-
26
-
-
84883253066
-
-
McInerney v MacDonald 2 SCR 138, 93 DLR (4th)
-
McInerney v MacDonald [1992] 2 SCR 138, 93 DLR (4th) 415.
-
(1992)
, vol.415
-
-
-
27
-
-
84874392177
-
Bioethics in popular science: evaluating the media impact of The Immortal Life of Henrietta Lacks on the biobank debate
-
Moore v Regents of the University of California, 793 P 2d 479 (SC Cal 1990)
-
Moore v Regents of the University of California, 793 P 2d 479 (SC Cal 1990). Nisbet, M. C., and D. Fahy, 2013 Bioethics in popular science: evaluating the media impact of The Immortal Life of Henrietta Lacks on the biobank debate. BMC Med. Ethics 14: 1-9.
-
(2013)
BMC Med. Ethics
, vol.14
, pp. 1-9
-
-
Nisbet, M.C.1
Fahy, D.2
-
28
-
-
84883235196
-
-
NPR, 2013 A new chapter in the story of Henrietta Lacks, NPR. Available at Accessed: June 27
-
NPR, 2013 A new chapter in the story of Henrietta Lacks, NPR. Available at: http://www.npr.org/2013/03/26/175335268/immortal-life-of-henrietta-lacks. Accessed: June 27, 2013.
-
(2013)
-
-
-
29
-
-
84883246942
-
Geneticists take HeLa sequence off-line after Lacks family notes they hadn't given consent, RetractionWatch
-
Available at Accessed: June 27, 2013
-
Oransky, I., 2013 Geneticists take HeLa sequence off-line after Lacks family notes they hadn't given consent, RetractionWatch. Available at: http://retractionwatch. wordpress.com/2013/03/25/geneticists-take-hela-sequence-off-line-after-lacksfamily- notes-they-hadnt-given-consent/. Accessed: June 27, 2013.
-
(2013)
-
-
Oransky, I.1
-
30
-
-
84883222489
-
Personal Genome Project
-
Available at Accessed: June 27, 2013
-
Personal Genome Project, 2012 Current Consent Form, PGP. Available at: http://www.personalgenomes.org/consent/. Accessed: June 27, 2013.
-
(2012)
Current Consent Form, PGP
-
-
-
31
-
-
84883225398
-
On science blogs: Immortality, National Association of Science Writers
-
Available at Accessed: June 27
-
Powledge, T. M., 2013 On science blogs: Immortality, National Association of Science Writers. Available at: http://www.nasw.org/science-blogs-immortality. Accessed: June 27, 2013.
-
(2013)
-
-
Powledge, T.M.1
-
32
-
-
84882264632
-
Presidential Commission for the Study of Bioethical Issues, Privacy and Progress in Whole Genome Sequencing
-
Available at Accessed: June 27, 2013
-
Presidential Commission for the Study of Bioethical Issues, 2012 Privacy and Progress in Whole Genome Sequencing. Available at: http://www. bioethics.gov/node/764. Accessed: June 27, 2013.
-
(2012)
-
-
-
33
-
-
84872841290
-
Public perceptions and biobanking: What does the research really say?
-
Rachul, C., A. McGuire, and T. Caulfield, 2012 Public perceptions and biobanking: What does the research really say? Stud. Ethics Law Technol. 6: 1-17.
-
(2012)
Stud. Ethics Law Technol.
, vol.6
, pp. 1-17
-
-
Rachul, C.1
McGuire, A.2
Caulfield, T.3
-
34
-
-
84872469268
-
The complexities of genomic identifiability
-
Rodriguez, L. L., L. D. Brooks, J. H. Greenberg, and E. D. Green, 2013 The complexities of genomic identifiability. Science 339: 275-276.
-
(2013)
Science
, vol.339
, pp. 275-276
-
-
Rodriguez, L.L.1
Brooks, L.D.2
Greenberg, J.H.3
Green, E.D.4
-
35
-
-
77954165960
-
The Immortal Life of Henrietta Lacks
-
Broadway Paperbacks, New York
-
Skloot, R., 2010 The Immortal Life of Henrietta Lacks, Broadway Paperbacks, New York.
-
(2010)
-
-
Skloot, R.1
-
36
-
-
77954165960
-
The Immortal Life of Henrietta Lacks, the Sequel
-
New York Times, New York
-
Skloot, R., 2013 The Immortal Life of Henrietta Lacks, the Sequel. New York Times, New York.
-
(2013)
-
-
Skloot, R.1
-
37
-
-
84883215093
-
-
Washington University v Catalona, 437 F Supp 2nd 985 (EDMo 2006), aff'd
-
Washington University v Catalona, 437 F Supp 2nd 985 (EDMo 2006), aff'd 2007.
-
(2007)
-
-
-
38
-
-
84883215253
-
-
Yearworth v North Bristol NHS Trust, EWCA Civ 37
-
Yearworth v North Bristol NHS Trust, [2009] EWCA Civ 37.
-
(2009)
-
-
|