Educational resources for patients considering a left ventricular assist device: A cross-sectional review of internet, print, and multimedia materials

Circulation: Cardiovascular Quality and Outcomes

Volumn 7, Issue 6, 2014, Pages 905-911

  Iacovetto, Matthew C ^a   Matlock, Daniel D ^a   McIlvennan, Colleen K ^a   Thompson, Jocelyn S ^a   Bradley, William ^b   LaRue, Shane J ^c   Allen, Larry A ^a  

^a UNIVERSITY OF COLORADO SCHOOL OF MEDICINE   (United States)

^b UNIVERSITY OF COLORADO   (United States)

^c WASHINGTON UNIVERSITY SCHOOL OF MEDICINE   (United States)

Author keywords

Heart failure; Patient education as topic; Ventricular assist device

Indexed keywords

ADULT; ARTICLE; CAREGIVER; COMPREHENSION; CROSS-SECTIONAL STUDY; DEVICE SAFETY; DEVICE THERAPY; FEMALE; HOSPICE CARE; HUMAN; INTERNET; LEFT VENTRICULAR ASSIST DEVICE; LIFESTYLE; MAJOR CLINICAL STUDY; MALE; MEDICAL INFORMATION; MEDICAL LITERATURE; MULTIMEDIA; PALLIATIVE THERAPY; PATIENT EDUCATION; PATIENT SAFETY; PRIORITY JOURNAL; READING; STATISTICS; FOLLOW UP; HEART FAILURE; MIDDLE AGED; PROCEDURES; REPRODUCIBILITY; RETROSPECTIVE STUDY;

ADULT; CROSS-SECTIONAL STUDIES; FEMALE; FOLLOW-UP STUDIES; HEART FAILURE; HUMANS; INTERNET; MALE; MIDDLE AGED; MULTIMEDIA; PATIENT EDUCATION AS TOPIC; REPRODUCIBILITY OF RESULTS; RETROSPECTIVE STUDIES;

EID: 84925852472     PISSN: 19417713     EISSN: 19417705     Source Type: Journal    
DOI: 10.1161/CIRCOUTCOMES.114.000892     Document Type: Article

References (37)

1. Yuan N, Arnaoutakis GJ, George TJ, Allen JG, Ju DG, Schaffer JM, Russell SD, Shah AS, Conte JV. The spectrum of complications following left ventricular assist device placement. J Card Surg. 2012;27:630-638
2. Slaughter MS, Rogers JG, Milano CA, Russell SD, Conte JV, Feldman D, Sun B, Tatooles AJ, Delgado RM 3rd, Long JW, Wozniak TC, Ghumman W, Farrar DJ, Frazier OH; HeartMate II Investigators. Advanced heart failure treated with continuous-flow left ventricular assist device. N Engl J Med. 2009;361:2241-2251
3. John R, Kamdar F, Liao K, Colvin-Adams M, Boyle A, Joyce L. Improved survival and decreasing incidence of adverse events with the HeartMate II left ventricular assist device as bridge-to-transplant therapy. Ann Thorac Surg. 2008;86:1227-1234; discussion 1234
4. Allen JG, Weiss ES, Schaffer JM, Patel ND, Ullrich SL, Russell SD, Shah AS, Conte JV. Quality of life and functional status in patients surviving 12 months after left ventricular assist device implantation. J Heart Lung Transplant. 2010;29:278-285
5. Marcuccilli L, Casida JM. From insiders' perspectives: adjusting to caregiving for patients with left ventricular assist devices. Prog Transplant. 2011;21:137-143
6. Baker K, Flattery M, Salyer J, Haugh KH, Maltby M. Caregiving for patients requiring left ventricular assistance device support. Heart Lung. 2010;39:196-200
7. Beauchamp TL, Childress JF. Principles of Biomedical Ethics. 6th ed. Oxford: Oxford University Press; 2008
8. Allen LA, Stevenson LW, Grady KL, Goldstein NE, Matlock DD, Arnold RM, Cook NR, Felker GM, Francis GS, Hauptman PJ, Havranek EP, Krumholz HM, Mancini D, Riegel B, Spertus JA; American Heart Association; Council on Quality of Care and Outcomes Research; Council on Cardiovascular Nursing; Council on Clinical Cardiology; Council on Cardiovascular Radiology and Intervention; Council on Cardiovascular Surgery and Anesthesia. Decision making in advanced heart failure: a scientific statement from the American Heart Association. Circulation. 2012;125:1928-1952
9. Stevenson FA, Barry CA, Britten N, Barber N, Bradley CP. Doctor-patient communication about drugs: the evidence for shared decision making. Soc Sci Med. 2000;50:829-840
10. Elwyn G, Frosch D, Thomson R, Joseph-Williams N, Lloyd A, Kinnersley P, Cording E, Tomson D, Dodd C, Rollnick S, Edwards A, Barry M. Shared decision making: a model for clinical practice. J Gen Intern Med. 2012;27:1361-1367
11. Legare F, Ratte S, Stacey D, Kryworuchko J, Gravel K, Graham ID, Turcotte S. Interventions for improving the adoption of shared decision making by healthcare professionals. Cochrane Database Syst Rev. 2010:CD006732
12. Brody DS. The patient's role in clinical decision-making. Ann Intern Med. 1980;93:718-722
13. Greenfield S, Kaplan S, Ware JE Jr. Expanding patient involvement in care. Effects on patient outcomes. Ann Intern Med. 1985;102:520-528
14. Dugdale DC, Epstein R, Pantilat SZ. Time and the patient-physician relationship. J Gen Intern Med. 1999;14(suppl 1):S34-S40
15. Anderson AS, Klemm P. The Internet: friend or foe when providing patient education? Clin J Oncol Nurs. 2008;12:55-63
16. Hesse BW, Nelson DE, Kreps GL, Croyle RT, Arora NK, Rimer BK, Viswanath K. Trust and sources of health information: the impact of the Internet and its implications for health care providers: findings from the first Health Information National Trends Survey. Arch Intern Med. 2005;165:2618-2624
17. Cline RJ, Haynes KM. Consumer health information seeking on the Internet: the state of the art. Health Educ Res. 2001;16:671-692
18. Berland GK, Elliott MN, Morales LS, Algazy JI, Kravitz RL, Broder MS, Kanouse DE, Muñoz JA, Puyol JA, Lara M, Watkins KE, Yang H, McGlynn EA. Health information on the Internet: accessibility, quality, and readability in English and Spanish. JAMA. 2001;285:2612-2621
19. Stacey D, Bennett CL, Barry MJ, Col NF, Eden KB, Holmes-Rovner M, Llewellyn-Thomas H, Lyddiatt A, Legare F, Thomson R. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev. 2011:CD001431
20. Knops AM, Legemate DA, Goossens A, Bossuyt PM, Ubbink DT. Decision aids for patients facing a surgical treatment decision: a systematic review and meta-analysis. Ann Surg. 2013;257:860-866
21. Vlemmix F, Warendorf JK, Rosman AN, Kok M, Mol BW, Morris JM, Nassar N. Decision aids to improve informed decision-making in pregnancy care: a systematic review. BJOG. 2013;120:257-266
22. Aning JJ, Wassersug RJ, Goldenberg SL. Patient preference and the impact of decision-making aids on prostate cancer treatment choices and post-intervention regret. Curr Oncol. 2012;19(suppl 3):S37-S44
23. Waljee JF, Rogers MA, Alderman AK. Decision aids and breast cancer: do they influence choice for surgery and knowledge of treatment options? J Clin Oncol. 2007;25:1067-1073
24. Kirklin JK, Naftel DC, Kormos RL, Stevenson LW, Pagani FD, Miller MA, Timothy Baldwin J, Young JB. Fifth INTERMACS annual report: risk factor analysis from more than 6,000 mechanical circulatory support patients. J Heart Lung Transplant. 2013;32:141-156
25. Fry E. A readability formula that saves time. J Reading. 1968;11:513-516
26. Flesch R. A new readability yardstick. J Appl Psychol. 1948;32:221-233
27. Hazelton G, Al-Khatib SM, Fonarow GC, Thomas KL, Hayes D, Sanders GD, Campbell SM, Yancy C, Peterson ED, Sears S. Assessment of the quality of existing patient educational tools focused on sudden cardiac arrest: a systematic evaluation by the Sudden Cardiac Arrest Thought Leadership Alliance. Patient Prefer Adherence. 2013;7:361-368
28. Elwyn G, O'Connor A, Stacey D, Volk R, Edwards A, Coulter A, Thomson R, Barratt A, Barry M, Bernstein S, Butow P, Clarke A, Entwistle V, Feldman-Stewart D, Holmes-Rovner M, Llewellyn-Thomas H, Moumjid N, Mulley A, Ruland C, Sepucha K, Sykes A, Whelan T; International Patient Decision Aids Standards (IPDAS) Collaboration. Developing a quality criteria framework for patient decision aids: online international Delphi consensus process. BMJ. 2006;333:417
29. O'Connor AM, Cranney A. User Manual-Acceptability. Ottawa: Ottawa Hospital Research Institute. 1996. http://decisionaid.ohri.ca/docs/develop/ user-manuals/UM-acceptability.pdf. Accessed July 1, 2013
30. Barry MJ, Fowler FJ Jr, Mulley AG Jr, Henderson JV Jr, Wennberg JE. Patient reactions to a program designed to facilitate patient participation in treatment decisions for benign prostatic hyperplasia. Med Care. 1995;33:771-782
31. Yi PH, Ganta A, Hussein KI, Frank RM, Jawa A. Readability of arthroscopy-related patient education materials from the American Academy of Orthopaedic Surgeons and Arthroscopy Association of North America Web sites. Arthroscopy. 2013;29:1108-1112
32. Strachan PH, de Laat S, Carroll SL, Schwartz L, Vaandering K, Toor GK, Arthur HM. Readability and content of patient education material related to implantable cardioverter defibrillators. J Cardiovasc Nurs. 2012;27:495-504
33. Shukla P, Sanghvi SP, Lelkes VM, Kumar A, Contractor S. Readability assessment of internet-based patient education materials related to uterine artery embolization. J Vasc Interv Radiol. 2013;24:469-474
34. Walsh TM, Volsko TA. Readability assessment of internet-based consumer health information. Respir Care. 2008;53:1310-1315
35. Kutner M GE, Jin Y, Boyle B, Hsu Y, Dunleavy E. Literacy in Everyday Life: Results From the 2003 National Assessment of Adult Literacy. Washington, DC: US Department of Education; 2007
36. National Institutes of Health. How to Write Easy-to-Read Health Materials 2013. http://www.nlm.nih.gov/medlineplus/etr.html. Accessed December 5, 2013
37. Berkman ND, Sheridan SL, Donahue KE, Halpern DJ, Crotty K. Low health literacy and health outcomes: an updated systematic review. Ann Intern Med. 2011;155:97-107.