Assessment of the quality of existing patient educational tools focused on sudden cardiac arrest: A systematic evaluation by the Sudden Cardiac Arrest Thought Leadership Alliance

Patient Preference and Adherence

Volumn 7, Issue , 2013, Pages 361-368

  Hazelton, Garrett ^a   Al Khatib, Sana M ^b,c   Fonarow, Gregg C ^d   Thomas, Kevin L ^c   Hayes, David ^e   Sanders, Gillian D ^b,c   Campbell, Susan M ^f   Yancy, Clyde ^g   Peterson, Eric D ^b,c   Sears, Samuel ^h  

^a EAST CAROLINA UNIVERSITY   (United States)

^b DUKE CLINICAL RESEARCH INSTITUTE   (United States)

^c DUKE UNIVERSITY SCHOOL OF MEDICINE   (United States)

^d UNIVERSITY OF CALIFORNIA   (United States)

^e MAYO CLINIC   (United States)

^f WomenHeart   (United States)

^g NORTHWESTERN UNIVERSITY   (United States)

^h EAST CAROLINA UNIVERSITY   (United States)

Author keywords

Decision making; Implantable cardioverter defibrillators; Patient centered outcomes research

Indexed keywords

APPLES AND ORANGES; ARTICLE; CARDIOVASCULAR PROCEDURE; CARING FOR A PERSON WITH HEART FAILURE; CLINICAL EFFECTIVENESS; COURSE CONTENT; DEVICES FOR HEART FAILURE RHYTHM PROBLEMS; ELECTROPHYSIOLOGY MEDIA LIBRARY; HEALTH CARE QUALITY; HEART ARRHYTHMIA; ICD FREQUENTLY ASKED QUESTIONS; IMPLANTABLE CARDIOVERTER DEFIBRILLATOR; INFORMATION DISSEMINATION; LEARNING AID; LIVING WITH AN IMPLANTABLE DEVICE FOR HEART RHYTHM MANAGEMENT; MEDICAL DECISION MAKING; MEDICAL INFORMATION; MEDICAL LITERATURE; MEDICAL SOCIETY; PATIENT DISCHARGE CONTRACT; PATIENT EDUCATION; POST IMPLANTABLE CARDIOVERTER DEFIBRILLATOR PLACEMENT; PRE IMPLANTABLE CARDIOVERTER DEFIBRILLATOR PLACEMENT; PROCESS DEVELOPMENT; PUBLICATION; QUALITY CONTROL; RISK ASSESSMENT; SUDDEN CARDIAC ARREST AND HOW TO PROTECT YOURSELF; SUDDEN CARDIAC DEATH; SUPPORT FOR WOMEN; YOUR HEART HEALTH;

EID: 84877057121     PISSN: None     EISSN: 1177889X     Source Type: Journal    
DOI: 10.2147/PPA.S42637     Document Type: Article

References (24)

1. Matchett M, Sears SF, Hazelton G, Kirian K, Wilson E, Nekkanti R. The implantable cardioverter defibrillator: its history, current psychological impact and future. Expert Rev Med Devices. 2009;6:43-50.
2. SCA Prevention Medical Advisory Team (2007). SCA Prevention Pathway and Tools: Pre-ICD (Implantable Cardioverter Defibrillator) Placement: Frequently Asked Questions. Available from: https://wwwp.medtronic.com/medtronicconnect/content_linked/dynamic/sca-prevention/downloads/SCA-PatientPreICD-FAQs.pdf. Accessed March 8, 2013.
3. SCA Post FAQ: SCA Prevention Medical Advisory Team (2007). SCA Prevention Pathway and Tools: Post-ICD (Implantable Cardioverter Defibrillator) Placement: Frequently Asked Questions. Available from: https://wwwp.medtronic.com/medtronicconnect/content_linked/dynamic/sca-prevention/downloads/SCA-PatientPostICD-FAQs.pdf. Accessed March 8, 2013.
4. Matlock DD, Nowels CT, Bekelman DB. Patient perspectives on decision making in heart failure. J Card Fail. 2010;16:823-826.
5. American College of Cardiology (2011). CardioSmart: Arrhythmias. Available from: http://www.cardiosmart.org/HeartDisease/CTT.aspx?id=232. Accessed March 8, 2013.
6. American College of Cardiology (2011). CardioSmart: Sudden Cardiac Death (SCD). Available from: http://www.cardiosmart.org/HeartDisease/CTT.aspx?id=724. Accessed March 8, 2013.
7. Boston Scientific. Your Heart Health. Available from: http://www.bostonscientific.com/your-heart-health/index.html. Accessed March 8, 2013.
8. Fonarow GC, Albert NM, Curtis AB, etal. Improving evidence-based care for heart failure in outpatient cardiology practices: primary results of the Registry to Improve the Use of Evidence-Based Heart Failure Therapies in the Outpatient Setting (IMPROVE HF). Circulation. 2010;122:585-596.
9. Heart Rhythm Society. Apples and Oranges. Available from: http://www.hrsonline.org/News/SCA-awareness/sca_research.cfm. Accessed March 8, 2013.
10. Heart Rhythm Society. Implantable Cardioverter Defibrillators (ICD). Accessed from: http://www.hrsonline.org/PatientInfo/Treatments/ICD/index.cfm. Accessed March 8, 2013.
11. Heart Rhythm Society. ICD Frequently Asked Questions. Available from: http://www.hrsonline.org/PatientInfo/Treatments/ICD/icd_faqs.cfm. Accessed March 8, 2013.
12. Heart Rhythm Society. Risk Assessment. Available from: http://ceondemand.org/hrs/ram/splash.php. Accessed March 8, 2013.
13. Heart Rhythm Society. Treatments. Available from: http://www.hrsonline.org/PatientInfo/Treatments/index.cfm. Accessed March 8, 2013.
14. Heart Rhythm Society. Medmove. com: Electrophysiology Media Library (2007). Available from: http://www.medmovie.com/mmdatabase/MediaPlayer.aspx?ClientID=13&TopicID=886. Accessed March 8, 2013.
15. National Coalition for Women with Heart Disease. Womenheart. org: Support for Women. Available from: http://www.womenheart.org/supportForWomen/livingHD/index.cfm. Accessed March 8, 2013.
16. Fonarow GC, Albert NM, Cannom D, Lewis WR, Shea J, Walsh MN. Sudden cardiac arrest prevention pathways and tools. Crit Pathw Cardiol. 2009;8:79-87.
17. SCA Prevention Medical Advisory Team. SCA Prevention Pathway and Tools: Caring for a Person with Heart (2007). Available from: https://wwwp.medtronic.com/medtronicconnect/content_linked/dynamic/sca-prevention/downloads/SCA-CaregiverInformation.pdf. Accessed March 8, 2013.
18. SCA Arrhythmia: SCA Prevention Medical Advisory Team (2007). SCA Prevention Pathway and Tools: What are Arrhythmias? Available from: https://wwwp.medtronic.com/medtronicconnect/content_linked/dynamic/sca-prevention/downloads/SCA-WhatAreArrhythmias.pdf. Accessed March 8, 2013.
19. SCA Prevention Medical Advisory Team. (2007). SCA Prevention Pathway and Tools: Patient Discharge Contract. Available from: https://wwwp.medtronic.com/mdtConnectPortal/dynamicarea/scapreventionprogram/1581802171625/2. Accessed March 8, 2013.
20. Spyropoulos V, Ampleman S, Miousse C, Purden M. Cardiac surgery discharge questionnaires: meeting information needs of patients and families. Can J Cardiovasc Nurs. 2011;21:13-19.
21. Strachan PH, de Laat S, Carroll SL, et al. Readability and content of patient education material related to implantable cardioverter defibrillators. J Cardiovasc Nurs. 2012;27:495-504.
22. Elwyn G, O'Connor A, Stacey D, etal. Developing a quality criteria framework for patient decision aids: online international Delphi consensus process. International Patient Decision Aids Standards (IPDAS) Collaboration. BMJ. 2006;333:417.
23. O'Connor AM, Elwyn G. IPDAS 2005: Criteria for Judging the Quality of Patient Decision Aids. Available from: http://ipdas.ohri.ca/IPDAS_checklist.pdf. Accessed March 8, 2013.
24. Kong MH, Fonarow GC, Peterson ED, etal. Systematic review of the incidence of sudden cardiac death in the United States. J Am Coll Cardiol. 2011;57:794-801.