Hospice and Palliative Nurses Association 2015-2018 research agenda

Journal of Hospice and Palliative Nursing

Volumn 17, Issue 2, 2015, Pages 119-127

  Lunney, June R ^a   Buck, Harleah ^b   Brody, Abraham A ^b   Campbell, Margaret L ^b   Fasolino, Tracy ^b   Goebel, Joy R ^b   Kehl, Karen A ^b   Lindley, Lisa C ^b   MacKenzie, Meredith A ^b   Mayhara, Masako ^b   Raudonis, Barbara M ^b  

^a Hospice and Palliative Nurses Association   (United States)

^b NONE

Author keywords

Hospice care; HPNA; Nursing education; Palliative care; Research

Indexed keywords

EID: 84925392362     PISSN: 15222179     EISSN: 15390705     Source Type: Journal    
DOI: 10.1097/NJH.0000000000000137     Document Type: Review

References (68)

1. Merriam-Webster Inc. The Merriam-Webster Dictionary. Springfield, MA: Merriam-Webster; 2005.
2. rd ed. 2013. http://www.nationalconsensusproject.org. Accessed November 18, 2014.
3. Lorenz KA, Dy SM, Naeim A, et al. Quality measures for supportive cancer care: the Cancer Quality-ASSIST Project. J Pain Symptom Manage. 2009;37:943-964. Accessed November 18, 2014.
4. Wenger NS, Shekelle PG. Assessing care of vulnerable elders: ACOVE project overview. Ann Intern Med. 2001;135:642-646.
5. Measuring What Matters. 2014. http://aahpm.org/quality/measuring-what-matters. Accessed November 18, 2014.
6. Block EM, Casarett DJ, Spence C, Gozalo P, Connor SR, Teno JM. Got volunteers? Association of hospice use of volunteers with bereaved family members' overall rating of the quality of end-of-life care. J Pain Symptom Manage. 2010;39:502-506.
7. Claxton-Oldfield S, Banzen Y. Personality characteristics of hospice palliative care volunteers: the "big five" and empathy. Am J Hosp Palliat Med. 2010;27:407-412.
8. Pesut B, Hooper B, Lehbauer S, Dalhuisen M. Promoting volunteer capacity in hospice palliative care. A narrative review. Am J Hosp Palliat Med. 2014;31:69-78.
9. Parker-Oliver D, Bronstein LR, Kurzejeski L. Examining variables related to successful collaboration on the hospice team. Health Soc Work. 2005;30:279-286.
10. Mosenthal AC, Murphy PA. Interdisciplinary model for palliative care in the trauma and surgical intensive care unit: Robert Wood Johnson Foundation Demonstration Project for Improving Palliative Care in the Intensive Care Unit. Crit Care Med. 2006;34:S399-S403.
11. Lindley LC. Pediatric hospice care knowledge: a transaction cost perspective. J Hosp Palliat Nurs. 2013;15:485-490.
12. Meier DE, Beresford L. The palliative care team. J Palliat Med. 2008;11:677-681.
13. VON GUNTEN CF, MULLAN PB, HARRITY S, et al. Residents from five training programs report improvements in knowledge, attitudes and skills after a rotation with a hospice program. J Cancer Educ. 2003;18:68-72.
14. Wittenberg-Lyles E, Goldsmith J, Ferrell B, Burchett M. Assessment of an interprofessional online curriculum for palliative care communication training. J Palliat Med. 2014;17:400-406.
15. Puntillo KA, Arai S, Cohen NH, et al. Symptoms experienced by intensive care unit patients at high risk of dying. Crit Care Med. 2010;38:2155-2160.
16. Weingaertner V, Scheve C, Gerdes V, et al. Breathlessness, functional status, distress, and palliative care needs over time in patients with advanced chronic obstructive pulmonary disease or lung cancer: a cohort study. J Pain Symptom Manage. 2014;48(4):569-581.e561.
17. Schumacher KL, Stewart BJ, Archbold PG, Caparro M, Mutale F, Agrawal S. Effects of caregiving demand, mutuality, and preparedness on family caregiver outcomes during cancer treatment. Oncol Nurs Forum. 2008;35:49-56.
18. Woolley DC, Old JL, Zackula RE, Davis N. Acute hospital admissions of hospice patients. J Palliat Med. 2013;16:1515-1522.
19. Simon ST, Weingartner V, Higginson IJ, Voltz R, Bausewein C. Definition, categorization, and terminology of episodic breathlessness: consensus by an international Delphi survey. J Pain Symptom Manage. 2014;47:828-838.
20. Mularski RA, Campbell ML, Asch SM, et al. A review of quality of care evaluation for the palliation of dyspnea. Am J Respir Crit Care Med. 2010;181:534-538.
21. Campbell ML, Templin T, Walch J. A Respiratory Distress Observation Scale for patients unable to self-report dyspnea. J Palliat Med. 2010;13:285-290.
22. Campbell ML, TN T. Cut-point for determining distress versus comfort with the Respiratory Distress Observation Scale. Palliat Med. In review.
23. Johnson MJ, Bland JM, Oxberry SG, Abernethy AP, Currow DC. Clinically important differences in the intensity of chronic refractory breathlessness. J Pain Symptom Manage. 2013;46:957-963.
24. Abernethy AP, McDonald CF, Frith PA, et al. Effect of palliative oxygen versus room air in relief of breathlessness in patients with refractory dyspnoea: a double-blind, randomised controlled trial. Lancet. 2010;376:784-793.
25. Galbraith S, Fagan P, Perkins P, Lynch A, Booth S. Does the use of a handheld fan improve chronic dyspnea? A randomized, controlled, crossover trial. J Pain Symptom Manage. 2010;39:831-838.
26. Campbell ML, Yarandi H, Dove-Medows E. Oxygen is nonbeneficial for most patients who are near death. J Pain Symptom Manage. 2013;45:517-523.
27. Pinna MÁC, Bruera E, Moralo MJR, Correas MÁS, Vargas RM. A randomized crossover clinical trial to evaluate the efficacy of oral transmucosal fentanyl citrate in the treatment of dyspnea on exertion in patients with advanced cancer. Am J Hosp Palliat Care. 2013. 1049909113513063.
28. Simon ST, Koskeroglu P, Gaertner J, Voltz R. Fentanyl for the relief of refractory breathlessness: a systematic review. J Pain Symptom Manage. 2013;46:874-886.
29. Bausewein C, Simon ST. Inhaled nebulized and intranasal opioids for the relief of breathlessness. Curr Opin Support Palliat Care. 2014;8(3):208-212.
30. Currow DC, Quinn S, Greene A, Bull J, Johnson MJ, Abernethy AP. The longitudinal pattern of response when morphine is used to treat chronic refractory dyspnea. J Palliat Med. 2013;16:881-886.
31. Nava S, Ferrer M, Esquinas A, et al. Palliative use of non-invasive ventilation in end-of-life patients with solid tumours: a randomised feasibility trial. Lancet Oncol. 2013;14:219-227.
32. Berger AM, Abernethy A, Atkinson A, et al.NCCN guidelines: cancer-related fatigue [v.1.2013]. 2013. nccn.org/professionals/physicians-gls/f-guidelines.asp#fatigue. Accessed November 18, 2014.
33. Minton O, Berger A, Barsevick A, et al. Cancer-related fatigue and its impact on functioning. Cancer. 2013;119:2124-2130.
34. Mitchell SA. Cancer-related fatigue: state of the science. PM&R. 2010;2:364-383.
35. Adler ED, Goldfinger JZ, Kalman J, Park ME, Meier DE. Palliative care in the treatment of advanced heart failure. Circulation. 2009;120:2597-2606.
36. Solano JP, Gomes B, Higginson IJ. A comparison of symptom prevalence in far advanced cancer, AIDS, heart disease, chronic obstructive pulmonary disease and renal disease. J Pain Symptom Manage. 2006;31:58-69.
37. Report of the Geriatrics-Hospice and Palliative Medicine Work Group: American Geriatrics Society and American Academy of Hospice and Palliative Medicine leadership collaboration. J Am Geriatr Soc. 2012;60:583-587.
38. Wright F, Hammer MJ, Melkus GD. Associations of multiple chronic conditions and cancer-related fatigue: an integrative review. Nurs Res. 2013;62(2):E37-E38.
39. Combs S, Kluger BM, Kutner JS. Research priorities in geriatric palliative care: nonpain symptoms. J Palliat Med. 2013;16:1001-1007.
40. Bower JE, Lamkin DM. Inflammation and cancer-related fatigue: mechanisms, contributing factors, and treatment implications. Brain Behav Immun. 2013;30:S48-S57.
41. Aouizerat B, Dodd M, Lee K, et al. Preliminary evidence of a genetic association between tumor necrosis factor alpha and the severity of sleep disturbance and morning fatigue. Biol Res Nurs. 2009. doi: 10.1177/1099800409333871
42. Barsevick A, Frost M, Zwinderman A, Hall P, Halyard M. I'm so tired: biological and genetic mechanisms of cancer-related fatigue. Qual Life Res. 2010;19:1419-1427.
43. Mishra SI, Scherer RW, Snyder C, et al. Exercise interventions on health-related quality of life for people with cancer during active treatment. Cochrane Library 2012. doi: 10.1002/14651858.CD008465.pub2
44. Clark K, Currow DC. Constipation in palliative care: what do we use as definitions and outcome measures? J Pain Symptom Manage. 2013;45:753-762.
45. Panchal SJ, Muller-Schwefe P, Wurzelmann JI. Opioid-induced bowel dysfunction: prevalence, pathophysiology and burden. Int J Clin Pract. 2007;61:1181-1187.
46. Lentz J, McMillan SC. The impact of opioid-induced constipation on patients near the end of life: perspectives of patients, family caregivers, and nurses. J Hosp Palliat Nurs. 2010;12:29-38.
47. Libert Y, Merckaert I, Slachmuylder JL, Razavi D. The ability of informal primary caregivers to accurately report cancer patients' difficulties. Psychooncology. 2013;22:2840-2847.
48. Hirdes JP, Freeman S, Smith TF, Stolee P. Predictors of caregiver distress among palliative home care clients in Ontario: evidence based on the interRAI Palliative Care. Palliat Support Care. 2012;10:155-163.
49. Garcíá-Toyos N, Escudero-Carretero MJ, Sanz-Amores R, Hoyos GD, Melchor-Rodŕguez JM, Tamayo-Velázquez MI. Preferences of caregivers and patients regarding opioid analgesic use in terminal care. Pain Med. 2014;15:577-587.
50. Tarumi Y, Wilson MP, Szafran O, Spooner GR. Randomized, double-blind, placebo-controlled trial of oral docusate in the management of constipation in hospice patients. J Pain Symptom Manage. 2013;45:2-13.
51. Hawley PH, Byeon JJ. A comparison of sennosides-based bowel protocols with and without docusate in hospitalized patients with cancer. J Palliat Med. 2008;11:575-581.
52. Tavares CN, Kimbrel JM, Protus BM, Grauer PA. Petroleum jelly (Vaseline balls) for the treatment of constipation: a survey of hospice and palliative care practitioners. Am J Hosp Palliat Care. 2013.
53. Ford AC, Brenner DM, Schoenfeld PS. Efficacy of pharmacological therapies for the treatment of opioid-induced constipation: systematic review and meta-analysis. Am J Gastroenterol. 2013;108:1566-1574; quiz 1575.
54. Lim SF, Childs C. A systematic review of the effectiveness of bowel management strategies for constipation in adults with stroke. Int J Nurs Stud. 2013;50:1004-1010.
55. Zhang T, Chon TY, Liu B, et al. Efficacy of acupuncture for chronic constipation: a systematic review. Am J Chin Med. 2013;41:717-742.
56. Lee MS, Choi TY, Park JE, Ernst E. Effects of moxibustion for constipation treatment: a systematic review of randomized controlled trials. Chin Med. 2010;5:28.
57. Lamas K, Lindholm L, Stenlund H, Engstrom B, Jacobsson C. Effects of abdominal massage in management of constipation - randomized controlled trial. Int J Nurs Stud. 2009;46:759-767.
58. McClurg D, Hagen S, Hawkins S, Lowe-Strong A. Abdominal massage for the alleviation of constipation symptoms in people with multiple sclerosis: a randomized controlled feasibility study. Mult Scler. 2011;17:223-233.
59. McClurg D, Lowe-Strong A. Does abdominal massage relieve constipation? Nurs Times. 2011;107:20-22.
60. Sinclair M. The use of abdominal massage to treat chronic constipation. J Bodywork Mov Ther. 2011;15:436-445.
61. National Institutes of Health. Implementation Science Information and Resources. http://www.fic.nih.gov/researchtopics/pages/implementationscience.aspx. Accessed July 1, 2014.
62. Sperhac AM, Clinton P. The essentials of doctoral education for advanced nursing practice. J Pediatr Health Care. 2008;22:146-151.
63. Demiris G, Parker Oliver D, Capurro D, Wittenberg-Lyles E. Implementation science: implications for intervention research in hospice and palliative care. Gerontologist. 2014;54:163-171.
64. Glasgow RE, McKay HG, Piette JD, Reynolds KD. The RE-AIM framework for evaluating interventions: what can it tell us about approaches to chronic illness management? Patient Educ Couns. 2001;44:119-127.
65. Oncology Nursing Society. ONS PEP topics. http://www2.ons.org/Research/PEP/Topics. Accessed July 8, 2014.
66. Registered Nurses Association of Ontario. End-of-life care in the last days and hours. http://rnao.ca/bpg/guidelines/endoflife-care-during-last-days-and-hours. Accessed July 8, 2014.
67. Davidson JE, Powers K, Hedayat KM, et al. Clinical practice guidelines for support of the family in the patient-centered intensive care unit: American College of Critical Care Medicine Task Force 2004-2005. Crit Care Med. 2007;35:605-622. DNP Fact Sheet. 2014. http://www.aacn.nche.edu/media-relations/fact-sheets/dnp.
68. DNP Fact Sheet. 2014; http://www.aacn.nche.edu/mediarelations/fact-sheets/dnp. Accessed November 18, 2014.