Identifying data sources for a national population-based registry: The experience of the Spanish rare diseases registry

Public Health

Volumn 129, Issue 3, 2015, Pages 271-275

  Zoni, A C ^a   Dominguez Berjon M F ^a   Barcelo E ^a   Esteban Vasallo, M D ^a   Abaitua, I ^b   Jimenez Villa J ^c   Margolles Martins, M ^d   Navarro, C ^e,f   Posada, M ^b   Ramos Aceitero, J M ^d   Vazquez Santos C ^f   Zurriaga Llorens, O ^g,h   Astray Mochales, J ^a  

^a Plan Nacional sobre Sida   (Spain)

^b INSTITUTO DE SALUD CARLOS III   (Spain)

^c Operative Planning and Evaluation Division   (Spain)

^d Health Department of the Autonomous Government of Asturias   (Spain)

^e Universitary Hospital of Vigo (CHUVI)   (Spain)

^f Hospital Meixoeiro Edificio Anexo   (Spain)

^g General Directorate Public Health   (Spain)

^h Centre for Public Health Research CSISP   (Spain)

Author keywords

[No Author keywords available]

Indexed keywords

DATABASE; DISEASE; PUBLIC HEALTH;

ACCESS TO INFORMATION; ARTICLE; DATA BASE; DISEASE REGISTRY; EXPERIENCE; HUMAN; INFORMATION PROCESSING; MEDICAL INFORMATION SYSTEM; POPULATION RESEARCH; PUBLIC HEALTH SERVICE; QUALITY OF LIFE; QUESTIONNAIRE; RARE DISEASES REGISTRY; SPAIN; RARE DISEASES; REGISTER;

SPAIN;

DATA COLLECTION; HUMANS; RARE DISEASES; REGISTRIES; SPAIN;

EID: 84925206466     PISSN: 00333506     EISSN: 14765616     Source Type: Journal    
DOI: 10.1016/j.puhe.2014.12.013     Document Type: Article

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