Impact of age at onset for children with renal failure on education and employment transitions

Health (United Kingdom)

Volumn 19, Issue 1, 2015, Pages 67-85

  Lewis, Helen ^a   Arber, Sara ^a  

^a UNIVERSITY OF SURREY   (United Kingdom)

Author keywords

chronic illness; dialysis; puberty; transition; transplant

Indexed keywords

ADOLESCENT; ADOLESCENT DEVELOPMENT; ADULT; ADVERSE EFFECTS; CHILD; CHILD DEVELOPMENT; COMORBIDITY; COST OF ILLNESS; EDUCATIONAL STATUS; EMPLOYMENT; HUMAN; INTERPERSONAL COMMUNICATION; INTERVIEW; KIDNEY FAILURE, CHRONIC; KIDNEY TRANSPLANTATION; LIFE EVENT; ONSET AGE; QUALITATIVE RESEARCH; QUESTIONNAIRE; RENAL REPLACEMENT THERAPY; TIME; UNITED KINGDOM; YOUNG ADULT;

ADOLESCENT; ADOLESCENT DEVELOPMENT; ADULT; AGE OF ONSET; CHILD; CHILD DEVELOPMENT; COMORBIDITY; COST OF ILLNESS; DISCLOSURE; EDUCATIONAL STATUS; EMPLOYMENT; ENGLAND; HUMANS; INTERVIEWS AS TOPIC; KIDNEY FAILURE, CHRONIC; KIDNEY TRANSPLANTATION; LIFE CHANGE EVENTS; QUALITATIVE RESEARCH; QUESTIONNAIRES; RENAL DIALYSIS; RENAL REPLACEMENT THERAPY; TIME; YOUNG ADULT;

EID: 84919623326     PISSN: 13634593     EISSN: 14617196     Source Type: Journal    
DOI: 10.1177/1363459314539773     Document Type: Article

References (51)

1. Arnett JJ.Emerging adulthood: A theory of development from the late teens through the twenties.American Psychologist. 2000;55:469-480
2. Atkin K,Ahmad W.Living a ‘normal’ life: Young people coping with thalassaemia major or sickle cell disorder.Social Science & Medicine. 2001;53:615-626
3. Blum RW.Transition to adult health care: Setting the stage.Journal of Adolescent Health. 1995;17:3-5
4. Brannen J,Nilsen N.Young people’s time perspectives: From youth to adulthood.Sociology. 2002;36:513-537
5. Broyer M,Le Bihan C,Charbit M, et al.Long-term social outcome of children after kidney transplantation.Transplantation. 2004;77:1033-1037
6. Bury M.Chronic illness as biographical disruption.Sociology of Health & Illness. 1982;4:167-182
7. Bury M.The sociology of chronic illness: A review of research and prospects.Sociology of Health & Illness. 1991;13:451-468
8. Bury M.Illness narratives: Fact or fiction.Sociology of Health & Illness. 2001;23:263-285
9. Carson CA,Kelnar CJH.The adolescent with diabetes.Journal of the Royal College of Physicians. 2000;34:24-27
10. Charmaz K.‘Discovering’ chronic illness: Using grounded theory.Social Science & Medicine. 1990;30:1161-1172
11. Charmaz K.The body, identity, and self.The Sociological Quarterly. 1995;36:657-680
12. Charmaz KHandbook of Qualitative Research. 2000 Grounded theory: Objectivist and constructivist methods. In: DenzinNKLincolnYS (eds) Handbook of Qualitative Research. 2nd ed.Thousand Oaks, CA: SAGE, pp. 510–535.Denzin NKLincoln YS, ed. Thousand Oaks, CA: SAGE; 2000:510-535.
13. Cieslik M,Simpson D.Skills for life? Basic skills and marginal transitions from school to work.Journal of Youth Studies. 2006;9:213-229
14. Cook N.It’s good to talk: Performing and recording the telephone interview.Area. 2009;41:176-185
15. Crowley-Matoka M.Desperately seeking normal: The promise and perils of living with kidney transplantation.Social Science & Medicine. 2005;61:821-831
16. Evans K.Taking control of their lives: Agency in young adult transitions in England and New Germany.Journal of Youth Studies. 2002;5:245-269
17. Giddens AModernity and Self-identity: Self and Society in the Late Modern Age. Cambridge: Polity Press; 1991:
18. Goffman EStigma: Notes on the Management of Spoiled Identity. Upper Saddle River, NJ: Prentice Hall Inc; 1963:
19. Grinyer A.The biographical impact of teenage and adolescent cancer.Chronic Illness. 2007;3:265-277
20. Haas SA,Glymour MM,Berkman LF.Childhood health and labor market inequality over the life course.Journal of Health and Social Behavior. 2013;52:298-313
21. Hickey KM.Impact of kidney disease on patient, family and society.Social Casework. 1972;53:391-398
22. Hills J,Brewer M,Jenkins S, et alAn anatomy of economic inequality in the UK. London: Government Equality Office; 2010:1-56.
23. Joachim G,Acorn S.Stigma of visible and invisible chronic conditions.Journal of Advanced Nursing. 2000;32:243-248
24. Kierans C.Narrating kidney disease: The significance of sensation and time in the employment of patient experience.Culture, Medicine and Psychiatry. 2005;29:341-359
25. Kirk S.How children and young people construct and negotiate living with medical technology.Social Science & Medicine. 2010;71:1796-1803
26. Knafl KA,Gilliss CL.Families and chronic illness: A synthesis of current research.Journal of Family Nursing. 2002;8:178-198
27. Leiter V.Nobody’s just normal, you know: The social creation of developmental disability.Social Science & Medicine. 2007;65:1630-1641
28. Leiter V,Waugh A.Moving out: Residential independence among young adults with disabilities and the role of families.Marriage and Family Review. 2009;45:519-537
29. Little M,Jordens CFC,Paul K, et al.Liminality: A major category of the experience of cancer illness.Social Science & Medicine. 1998;47:1485-1494
30. Lowton K.Only when I cough? Adult’s disclosure of cystic fibrosis.Qualitative Health Research. 2004;14:167-186
31. Lowton K,Gabe J.Life on a slippery slope: Perceptions of health in adults with cystic fibrosis.Sociology of Health & Illness. 2003;25:189-319
32. Marmot MFair Society, Healthy Lives. London: Institute of Health Equity, UCL; 2010:
33. Miles MB,Huberman AMAn Expanded Sourcebook: Qualitative Data Analysis. Thousand Oaks, CA: SAGE; 1994:
34. Novick G.Is there a bias against telephone interviews in qualitative research?.Research in Nursing & Health. 2008;31:391-398
35. OECD (2009) Doing Better for Children. Organisation for Economic Cooperation and Development (OECD). Available at: http://www.oecd.org/els/social/childwellbeing, p. 191.
36. Olausson B,Utbult Y,Hansson S, et al.Transplanted children’s experiences of daily living: Children’s narratives about their lives following transplantation.Pediatric Transplantation. 2006;10:575-585
37. Pound P,Gompertz P,Ebrahim S.Illness in the context of older age: The case of stroke.Sociology of Health & Illness. 1998;20:489-506
38. Reynolds JM,Morton MJS,Garralda ME, et al.Psychosocial adjustment of adult survivors of a paediatric dialysis and transplant programme.Archives of Disease in Childhood. 1993;68:104-110
39. Sanderson T,Calnan M,Morris M, et al.Shifting normalities: Interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis.Sociology of Health & Illness. 2011;33:618-633
40. Scambler G,Hopkins A.Being epileptic: Coming to terms with stigma.Sociology of Health & Illness. 1986;8:26-43
41. Simons L,Ingerski LM,Janicke DM.Social support, coping, and psychological distress in mothers and fathers of pediatric transplant candidates: A pilot study.Pediatric Transplantation. 2007;11:781-787
42. Stam H,Hartman EE,Deurloo JA, et al.Young adult patients with a history of pediatric disease: Impact on course of life and transition into adulthood.Journal of Adolescent Health. 2006;39:4-13
43. Thomson R,Bell R,Holland J, et al.Critical moments: Choice, chance and opportunity in young people’s narratives of transition.Sociology. 2002;36:335-354
44. Thomson R,Henderson S,Holland J.Making the most of what you’ve got? Resources, values and inequalities in young women’s transitions to adulthood.Educational Review. 2003;55:33-46
45. Tong A,Morton R,Howard K, et al.‘When I had my transplant, I became normal’. Adolescent perspectives on life after kidney transplantation.Pediatric Transplantation. 2011;15:285-293
46. Tsui EK.Say ‘trouble’s gone’: Chronic illness and employability in job training programmes.Sociology of Health & Illness. 2012;35:82-96
47. Van der Wel KA.Long-term effects of poor health on employment: The significance of life stage and educational level.Sociology of Health & Illness. 2011;33:1096-1111
48. White H,Gallay LOn Your Own Without a Net: The Transition to Adulthood for Vulnerable Populations. Osgood WFoster MFlanagan Cet al., ed. Chicago, IL: The University of Chicago Press; 2005:349-375.
49. Williams GH.The genesis of chronic illness: Narrative re-construction.Sociology of Health & Illness. 1984;6:175-200
50. Williams SJ.Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept.Sociology of Health & Illness. 2000;22:40-67
51. Wise BV.In their own words: The lived experience of pediatric liver transplant recipients.Qualitative Health Research. 2002;12:74-90