메뉴 건너뛰기




Volumn 25, Issue 4, 2003, Pages 289-319

Life on a slippery slope: Perceptions of health in adults with cystic fibrosis

Author keywords

Adults; Coping; Cystic fibrosis; Health perceptions; Strategies; Styles

Indexed keywords

ADULT; AGE; ARTICLE; CHILDHOOD DISEASE; CLINICAL ARTICLE; COPING BEHAVIOR; CYSTIC FIBROSIS; FATALITY; FEMALE; GENETIC DISORDER; HUMAN; HUMAN EXPERIMENT; MALE; MEDICAL SPECIALIST; PERCEPTION; PREDICTION; SOCIAL ASPECT; SOCIOLOGY; SURVIVAL; UNITED KINGDOM;

EID: 0037955491     PISSN: 01419889     EISSN: None     Source Type: Journal    
DOI: 10.1111/1467-9566.00348     Document Type: Article
Times cited : (48)

References (64)
  • 1
    • 0000471085 scopus 로고
    • Cystic fibrosis of the pancreas and its relation to celiac disease
    • Anderson, D.H. (1938) Cystic fibrosis of the pancreas and its relation to celiac disease, American Journal of Diseases in Children, 56, 344-99.
    • (1938) American Journal of Diseases in Children , vol.56 , pp. 344-399
    • Anderson, D.H.1
  • 2
    • 0029926210 scopus 로고    scopus 로고
    • Severe osteoporosis before and after lung transplantation
    • Aris, R.M., Neuringer, I.P., Weiner, M.A. et al. (1996) Severe osteoporosis before and after lung transplantation, Chest, 109, 1176-83.
    • (1996) Chest , vol.109 , pp. 1176-1183
    • Aris, R.M.1    Neuringer, I.P.2    Weiner, M.A.3
  • 5
    • 0020648743 scopus 로고
    • The causes of disease: Women talking
    • Blaxter, M. (1983) The causes of disease: women talking, Social Science and Medicine, 17, 2, 59-69.
    • (1983) Social Science and Medicine , vol.17 , Issue.2 , pp. 59-69
    • Blaxter, M.1
  • 7
    • 0038500861 scopus 로고
    • Living with cystic fibrosis: The well sibling's perspective
    • Bluebond-Langner, M. (1991) Living with cystic fibrosis: the well sibling's perspective, Medical Anthropology Quarterly, 5, 2, 133-52.
    • (1991) Medical Anthropology Quarterly , vol.5 , Issue.2 , pp. 133-152
    • Bluebond-Langner, M.1
  • 9
    • 0020321030 scopus 로고
    • Chronic illness as biographical disruption
    • Bury, M. (1982) Chronic illness as biographical disruption, Sociology of Health and Illness, 4, 2, 167-82.
    • (1982) Sociology of Health and Illness , vol.4 , Issue.2 , pp. 167-182
    • Bury, M.1
  • 10
    • 84995038114 scopus 로고
    • The sociology of chronic illness: A review of research and prospects
    • Bury, M. (1991) The sociology of chronic illness: a review of research and prospects, Sociology of Health and Illness, 13, 4, 451-68.
    • (1991) Sociology of Health and Illness , vol.13 , Issue.4 , pp. 451-468
    • Bury, M.1
  • 11
    • 0007264839 scopus 로고    scopus 로고
    • Health, ageing and the lifecourse
    • Williams, S., Gabe, J. and Calnan, M. (eds). London: Routledge
    • Bury, M. (2000) Health, ageing and the lifecourse. In Williams, S., Gabe, J. and Calnan, M. (eds) Health, Medicine and Society: Key Theories, Future Agendas. London: Routledge.
    • (2000) Health, Medicine and Society: Key Theories, Future Agendas
    • Bury, M.1
  • 13
    • 0032344702 scopus 로고    scopus 로고
    • Doing nothing is no choice: Lay constructions of treatment decision-making among women with early-stage breast cancer
    • Charles, C., Redko, C., Whelan, T. et al. (1998) Doing nothing is no choice: lay constructions of treatment decision-making among women with early-stage breast cancer, Sociology of Health and Illness, 20, 1, 71-95.
    • (1998) Sociology of Health and Illness , vol.20 , Issue.1 , pp. 71-95
    • Charles, C.1    Redko, C.2    Whelan, T.3
  • 14
    • 0020790850 scopus 로고
    • Loss of self: A fundamental form of suffering in the chronically ill
    • Charmaz, K. (1983) Loss of self: a fundamental form of suffering in the chronically ill, Sociology of Health and Illness, 5, 168-95.
    • (1983) Sociology of Health and Illness , vol.5 , pp. 168-195
    • Charmaz, K.1
  • 16
    • 0000902434 scopus 로고    scopus 로고
    • Introduction: Sociological perspectives on the new genetics: An overview
    • Conrad, P. and Gabe, J. (1999) Introduction: Sociological perspectives on the new genetics: an overview, Sociology of Health and Illness, 21, 5, 505-16.
    • (1999) Sociology of Health and Illness , vol.21 , Issue.5 , pp. 505-516
    • Conrad, P.1    Gabe, J.2
  • 18
    • 0002209264 scopus 로고
    • A cultural account of 'health': Control, release and the social body
    • McKinlay, J.B. (ed). London: Tavistock
    • Crawford, R. (1984) A cultural account of 'health': control, release and the social body. In McKinlay, J.B. (ed) Issues in the Political Economy of Health Care. London: Tavistock.
    • (1984) Issues in the Political Economy of Health Care
    • Crawford, R.1
  • 19
    • 0032361198 scopus 로고    scopus 로고
    • 'Sick role' or 'empowerment'? The ambiguities of life with an HIV positive diagnosis
    • Crossley, M. (1998) 'Sick role' or 'empowerment'? The ambiguities of life with an HIV positive diagnosis, Sociology of Health and Illness, 20, 4, 507-31.
    • (1998) Sociology of Health and Illness , vol.20 , Issue.4 , pp. 507-531
    • Crossley, M.1
  • 21
    • 0026540452 scopus 로고
    • The limits of lifestyle: Reassessing 'fatalism' in the popular culture of illness prevention
    • Davison, C., Frankel, S. and Davey Smith, G. (1992) The limits of lifestyle: reassessing 'fatalism' in the popular culture of illness prevention, Social Science and Medicine, 34, 6, 675-85.
    • (1992) Social Science and Medicine , vol.34 , Issue.6 , pp. 675-685
    • Davison, C.1    Frankel, S.2    Davey Smith, G.3
  • 23
    • 84982074775 scopus 로고
    • The image of health: Variations on perceptions by social class in a French population
    • d'Houtard, A. and Field, M.G. (1984) The image of health: variations on perceptions by social class in a French population, Sociology of Health and Illness, 6, 30-60.
    • (1984) Sociology of Health and Illness , vol.6 , pp. 30-60
    • D'Houtard, A.1    Field, M.G.2
  • 24
    • 0026608181 scopus 로고
    • Diabetes mellitus in cystic fibrosis: A review
    • Dodge, J.A. and Morrison, G. (1992) Diabetes mellitus in cystic fibrosis: a review, Journal of the Royal Society of Medicine, 85 (Supplement 19), 25-8.
    • (1992) Journal of the Royal Society of Medicine , vol.85 , Issue.SUPPL. 19 , pp. 25-28
    • Dodge, J.A.1    Morrison, G.2
  • 25
    • 0031458028 scopus 로고    scopus 로고
    • Incidence, population, and survival of cystic fibrosis in the UK, 1968-95
    • Dodge, J.A., Morison, S., Lewis, P.A. et al. (1997) Incidence, population, and survival of cystic fibrosis in the UK, 1968-95, Archives of Disease in Childhood, 77, 493-96.
    • (1997) Archives of Disease in Childhood , vol.77 , pp. 493-496
    • Dodge, J.A.1    Morison, S.2    Lewis, P.A.3
  • 26
    • 0017656844 scopus 로고
    • Psychological aspects of recovery from coronary heart disease: A review
    • Doehrman, S.R. (1977) Psychological aspects of recovery from coronary heart disease: a review, Social Science and Medicine, 11, 199-218.
    • (1977) Social Science and Medicine , vol.11 , pp. 199-218
    • Doehrman, S.R.1
  • 27
    • 0026316543 scopus 로고
    • Cystic fibrosis: Current survival and population estimates to the year 2000
    • Elborn, J.S., Shale, D.J. and Britton, J.R. (1991) Cystic fibrosis: current survival and population estimates to the year 2000, Thorax, 46, 881-5.
    • (1991) Thorax , vol.46 , pp. 881-885
    • Elborn, J.S.1    Shale, D.J.2    Britton, J.R.3
  • 28
    • 0038162357 scopus 로고    scopus 로고
    • Social comparison and quality of life in schizophrenic patients
    • Franz, M., Reber, T., Meyer, T. et al. (1997) Social comparison and quality of life in schizophrenic patients, Quality of Life Research, 6, 7/8, 646-7.
    • (1997) Quality of Life Research , vol.6 , Issue.7-8 , pp. 646-647
    • Franz, M.1    Reber, T.2    Meyer, T.3
  • 29
    • 0032709589 scopus 로고    scopus 로고
    • Denial of disease in Type 2 diabetes mellitus: Its influence on metabolic control and associated factors
    • Garay-Sevilla, M.E., Malacara, J.M., Gutierrez-Roa, A. et al. (1999) Denial of disease in Type 2 diabetes mellitus: its influence on metabolic control and associated factors, Diabetic Medicine, 16, 238-44.
    • (1999) Diabetic Medicine , vol.16 , pp. 238-244
    • Garay-Sevilla, M.E.1    Malacara, J.M.2    Gutierrez-Roa, A.3
  • 34
    • 0038500820 scopus 로고    scopus 로고
    • Overview of transplantation and live donor transplants
    • Paper given, Royal Brompton and Harefield NHS Trust and National Heart and Lung Institute. 9-10 November
    • Hodson, M. (1998) Overview of transplantation and live donor transplants. Paper given at Cystic Fibrosis: While We Wait for Gene Therapy Conference, Royal Brompton and Harefield NHS Trust and National Heart and Lung Institute. 9-10 November.
    • (1998) Cystic Fibrosis: While We Wait for Gene Therapy Conference
    • Hodson, M.1
  • 35
    • 0031606157 scopus 로고    scopus 로고
    • Familial amyloidotic patients' experience of the disease and of liver transplantation
    • Jonsèn, E., Athlin, E. and Suhr, O. (1998) Familial amyloidotic patients' experience of the disease and of liver transplantation, Journal of Advanced Nursing, 27, 52-8.
    • (1998) Journal of Advanced Nursing , vol.27 , pp. 52-58
    • Jonsèn, E.1    Athlin, E.2    Suhr, O.3
  • 36
    • 0003008233 scopus 로고
    • Coming to terms with diabetes: Coping strategies and noncompliance
    • Anderson, R. and Bury, M. (eds). London: Unwin Hyman
    • Kelleher, D. (1988) Coming to terms with diabetes: coping strategies and noncompliance. In Anderson, R. and Bury, M. (eds) Living with Chronic Illness: the Experience of Patients and their Families. London: Unwin Hyman.
    • (1988) Living with Chronic Illness: The Experience of Patients and Their Families
    • Kelleher, D.1
  • 38
    • 0002483973 scopus 로고
    • The costs and benefits of denial
    • Breznitz, S. (ed). New York: International Universities Press
    • Lazarus, R.S. (1983) The costs and benefits of denial. In Breznitz, S. (ed) The Denial of Stress. New York: International Universities Press.
    • (1983) The Denial of Stress
    • Lazarus, R.S.1
  • 40
    • 0037367253 scopus 로고    scopus 로고
    • Double or quits: Perceptions and management of organ transplantation by adults with cystic fibrosis
    • in press
    • Lowton, K. (in press) Double or quits: perceptions and management of organ transplantation by adults with cystic fibrosis, Social Science and Medicine.
    • Social Science and Medicine
    • Lowton, K.1
  • 41
    • 2742563342 scopus 로고    scopus 로고
    • Lung transplantation
    • Hodson, M.E. and Geddes, D.M. (eds). London: Arnold
    • Madden, B.P. (2000) Lung transplantation. In Hodson, M.E. and Geddes, D.M. (eds) Cystic Fibrosis. 2nd Edition. London: Arnold.
    • (2000) Cystic Fibrosis. 2nd Edition
    • Madden, B.P.1
  • 42
    • 0026628927 scopus 로고
    • Intermediate-term results of heart-lung transplantation for cystic fibrosis
    • Madden, B.P., Hodson, M.E., Tsang, V. et al. (1992) Intermediate-term results of heart-lung transplantation for cystic fibrosis, The Lancet, 339, 1583-7.
    • (1992) The Lancet , vol.339 , pp. 1583-1587
    • Madden, B.P.1    Hodson, M.E.2    Tsang, V.3
  • 43
    • 84977349714 scopus 로고
    • Case and situational analysis
    • Mitchell, J.C. (1983) Case and situational analysis, Sociological Review, 31, 2, 187-211.
    • (1983) Sociological Review , vol.31 , Issue.2 , pp. 187-211
    • Mitchell, J.C.1
  • 44
    • 0038162354 scopus 로고    scopus 로고
    • I've got what you've got
    • Niven, N. (2000) I've got what you've got, Nursing Times, 96, 23, 32-33.
    • (2000) Nursing Times , vol.96 , Issue.23 , pp. 32-33
    • Niven, N.1
  • 45
    • 0020074485 scopus 로고
    • Concepts of illness causation and responsibility: Some preliminary data from a sample of working class mothers
    • Pill, R. and Stott, N.C.H. (1982) Concepts of illness causation and responsibility: some preliminary data from a sample of working class mothers, Social Science and Medicine, 16, 43-52.
    • (1982) Social Science and Medicine , vol.16 , pp. 43-52
    • Pill, R.1    Stott, N.C.H.2
  • 46
    • 0022273913 scopus 로고
    • Choice or chance: Further evidence on ideas of illness and responsibility for health
    • Pill, R. and Stott, N.C.H. (1985) Choice or chance: further evidence on ideas of illness and responsibility for health, Social Science and Medicine, 20, 10, 981-91.
    • (1985) Social Science and Medicine , vol.20 , Issue.10 , pp. 981-991
    • Pill, R.1    Stott, N.C.H.2
  • 47
    • 0029800453 scopus 로고    scopus 로고
    • Chronic pain in cystic fibrosis
    • Ravilly, S., Robinson, W., Suresh, S. et al. (1996) Chronic pain in cystic fibrosis, Pediatrics, 98, 4, 741-7.
    • (1996) Pediatrics , vol.98 , Issue.4 , pp. 741-747
    • Ravilly, S.1    Robinson, W.2    Suresh, S.3
  • 48
    • 0024453308 scopus 로고
    • Identification of the cystic fibrosis gene: Chromosome walking and jumping
    • Rommens, J.M., Iannuzzi, M.C., Kerem, B. et al. (1989) Identification of the cystic fibrosis gene: chromosome walking and jumping, Science, 245, 1059-65.
    • (1989) Science , vol.245 , pp. 1059-1065
    • Rommens, J.M.1    Iannuzzi, M.C.2    Kerem, B.3
  • 49
    • 0029866880 scopus 로고    scopus 로고
    • Referral for lung transplantation: Experience of a Birmingham Adult Cystic Fibrosis Centre between 1987 and 1994
    • Ryan, P.J. and Stableforth, D.E. (1996) Referral for lung transplantation: experience of a Birmingham Adult Cystic Fibrosis Centre between 1987 and 1994, Thorax, 51, 302-5.
    • (1996) Thorax , vol.51 , pp. 302-305
    • Ryan, P.J.1    Stableforth, D.E.2
  • 50
    • 0027327922 scopus 로고
    • Healthy bodies, social bodies: Men's and women's concepts and practices of health in everyday life
    • Saltonstall, R. (1993) Healthy bodies, social bodies: men's and women's concepts and practices of health in everyday life, Social Science and Medicine, 36, 1, 7-14.
    • (1993) Social Science and Medicine , vol.36 , Issue.1 , pp. 7-14
    • Saltonstall, R.1
  • 52
    • 0029902378 scopus 로고    scopus 로고
    • Reproductive and sexual health in adolescents with cystic fibrosis
    • Sawyer, S.M. (1996) Reproductive and sexual health in adolescents with cystic fibrosis, British Medical Journal, 313, 1095-6.
    • (1996) British Medical Journal , vol.313 , pp. 1095-1096
    • Sawyer, S.M.1
  • 53
    • 0029364727 scopus 로고
    • Organ transplantation as a transformative experience: Anthropological insights into the restructuring of the self
    • Sharp, L.A. (1995) Organ transplantation as a transformative experience: anthropological insights into the restructuring of the self, Medical Anthropology Quarterly, 9, 3, 357-89.
    • (1995) Medical Anthropology Quarterly , vol.9 , Issue.3 , pp. 357-389
    • Sharp, L.A.1
  • 55
    • 0037824549 scopus 로고    scopus 로고
    • The politics of possibility: Conflict and misunderstanding stemming from public representations of cystic fibrosis gene therapy research
    • Paper given, Bielefeld, Germany
    • Stockdale, A. (1996) The politics of possibility: Conflict and misunderstanding stemming from public representations of cystic fibrosis gene therapy research. Paper given at 4S/EASST Conference, Bielefeld, Germany.
    • (1996) 4S/EASST Conference
    • Stockdale, A.1
  • 60
    • 0019828891 scopus 로고
    • Familial coping with chronic and severe childhood illness: The case of cystic fibrosis
    • Venters, M. (1981) Familial coping with chronic and severe childhood illness: the case of cystic fibrosis, Social Science and Medicine, 15, 289-97.
    • (1981) Social Science and Medicine , vol.15 , pp. 289-297
    • Venters, M.1
  • 61
    • 0019961094 scopus 로고
    • The process of neutralisation and the uncertainties of cystic fibrosis
    • Waddell, C. (1982) The process of neutralisation and the uncertainties of cystic fibrosis, Sociology of Health and Illness, 4, 210-20.
    • (1982) Sociology of Health and Illness , vol.4 , pp. 210-220
    • Waddell, C.1
  • 62
    • 0033870680 scopus 로고    scopus 로고
    • Health status and sociodemographic characteristics of adults receiving a cystic fibrosis diagnosis after age 18 years
    • Widerman, E., Millner, L., Sexauer, W. and Fiel, S. (2000) Health status and sociodemographic characteristics of adults receiving a cystic fibrosis diagnosis after age 18 years, Chest, 118, 427-33.
    • (2000) Chest , vol.118 , pp. 427-433
    • Widerman, E.1    Millner, L.2    Sexauer, W.3    Fiel, S.4
  • 63
    • 84972701536 scopus 로고
    • Concepts of health: An analysis of lay logic
    • Williams, R. (1983) Concepts of health: an analysis of lay logic, Sociology, 17, 185-204.
    • (1983) Sociology , vol.17 , pp. 185-204
    • Williams, R.1
  • 64
    • 3142688358 scopus 로고    scopus 로고
    • Diagnosis of cystic fibrosis related diabetes: A selective approach in performing the oral glucose tolerance test based on a combination of clinical and biochemical criteria
    • Yung, B., Kemp, M., Hooper, J. et al. (1999) Diagnosis of cystic fibrosis related diabetes: a selective approach in performing the oral glucose tolerance test based on a combination of clinical and biochemical criteria, Thorax, 54, 40-3.
    • (1999) Thorax , vol.54 , pp. 40-43
    • Yung, B.1    Kemp, M.2    Hooper, J.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.